Two years and counting: I thought I'd... - Advanced Prostate...

Advanced Prostate Cancer

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Two years and counting

Skippy3 profile image
18 Replies

I thought I'd provide an update. Some info may be of help to others. I met with Dr Sartor of Tulane University, Jan 10, 2023. He said my bloodwork was excellent. I had some questions. Can I go snow skiing in March? Yes. When do I have to worry about bones breaking. Dr Sartor said his recent experience using the Eligard, Abiraterone + Prednisone combo, was not as hard on bones as past treatments. He did recommend that I get a DEXA scan and take Oscal 500+D 2 times a day. As far as I know the Oscal company is out of business. I found a substitute. It contains, 10 mcg which equals 10 iu which Dr Sartor says is the minimum. For me, he recommended 2 pills a day. I take one in the morning and one at night.

I also told him that I sleep very poorly getting up 3 or more times a night to urinate. I suggested Merbetriq as I heard about it on this forum. He recommended 5mg Oxybutynin 2 times a day instead. He said it also helps with hot flashes. While sitting there he called in my prescription to my local Florida drug store. I've never had a doctor do that. When I got home I picked up the prescription, took one pill at lunch and another before bedtime. Amazingly I slept better and felt more relaxed when I got up. When I do urinate a stronger stream comes out. Hot flashes appear to be gone. The only downside is extremely dry mouth. My dental assistant turned me on to some over the counter products, mouthwash and spray. They can be found in the dental department. They appear to work.

After my initial discussion with Dr. Sartor I wanted to know what happens after my PSA goes up. I had a list. The first thing he talked about what getting a PSMA Pet scan and subjecting any hot spots to SBRT. He was interested in searching out those hot spots after my PSA gets up to 0.2. It's 0.05 now. Interestingly I talked to him about similar things 6 months ago. He didn't think other strategies were worth pursuing until PSA got up to 2. One other trick he mentioned was switching Prednisone to Dexamethasone. Two treatment strategies he said were dead, Thorium Th 227 anti-PSMA monoclonal anti body and Amgen AMG 509. Here's hoping for another 2 years.

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Skippy3 profile image
Skippy3
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18 Replies
Boywonder56 profile image
Boywonder56

Sounds like soc....keep on truckin

timotur profile image
timotur

Good news and thanks for posting Dr Sartor's comments and the link to Oscal... have a great ski trip in March!

Zengal79 profile image
Zengal79

Enjoy the smooth sailing! Keep on keeping on. Enjoy that ski trip.

Scout4answers profile image
Scout4answers

could you elaborate on what he said about the switch from prednisone to dexamethisone. Are you making the change or only preparing for the eventual change if PSA rises?

Skippy3 profile image
Skippy3 in reply toScout4answers

It’s only if PSA goes up. Why a different steroid would help in that regard I don’t know. In any case I’m staying the course for now. It does beg the question, if your PSA goes up and a different steroid fixes it, are you really castrate resistant?

I am bummed to hear his opinion about amg 509!

Skippy3 profile image
Skippy3 in reply to

Me too. I thought it was going to be the answer for some of us.

Soumen79 profile image
Soumen79

Is he saying amg 509 is hopeless? Its nt yet out of trial may be!

Skippy3 profile image
Skippy3 in reply toSoumen79

That’s how I read it. Dead is dead.

Muffin2019 profile image
Muffin2019

I take calcium citrate ad it goes to the bones, you might have to take it with food ad calcium carbonate.

Skippy3 profile image
Skippy3 in reply toMuffin2019

I take one pill after breakfast and another before I go to bed. The Dr didn’t specify when to take it.

Nusch profile image
Nusch in reply toSkippy3

I was told taking calcium in the evening is better. Because the bone work is going on mainly in the night.

Concerned-wife profile image
Concerned-wife

if you end up with constipation from that type of calcium, you can switch to calcium citrate

gsun profile image
gsun in reply toConcerned-wife

I take magnesium for that and it works.

Muffin2019 profile image
Muffin2019 in reply togsun

A week after my infusions I take a stool softener and have oatmeal with ground flax seed, helps thd chlolesterol plus it helps to keep me regular.

Drandma profile image
Drandma

my husband sees Dr. Sartor also. Very personable and gave me his cell number to text any and all concerns I have. Our urologist in Mississippi recently told us Dr. Sartor is not taking any new patients. Not sure if that’s true, but thankful we are under his care. We go back to see him in February after a PSMA scan the end of the month. Good luck to you in your journey

Skippy3 profile image
Skippy3 in reply toDrandma

Thank you. We all need some.

DesertDaisy profile image
DesertDaisy

Be sure to take Vitamin D and Vitamin K2 along with the calcium. These vitamins help keep the calcium in the bones.

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