Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,428 members • 26,837 posts

All posts for January 2023

I have had radiation for a painful Met a L5----

I expect the pain to gone in 2-4 weeks-- Can I do BAT if I don't presently have painful bone mets? Also Hopkins say the flare pain lasts only a week....

I expect the pain to gone in 2-4 weeks-- Can I do BAT if I don't presently have ...

nuc1111

•1 year ago

25 Replies

Calling all BAT-men ...

(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA and NH), and am looking for some input from forum members. My MO has an...

(... that's you, Russ!) I am about to begin BAT with a new MO (who works in MA ...

noahware

•1 year ago

26 Replies

Update on restaging cancer

Took a little time to process MO appt. last Tuesday...no good news. MO very concerned about doubling time of PSA so quickly. Tho my husband's had many SEs from...

Took a little time to process MO appt. last Tuesday...no good news. MO very conc...

Shamrock46

•1 year ago

13 Replies

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State of shock

Dx March 2021 Gleason 9 mets to lymph nodes(in profile) after speaking to urologist, Ro,Mo. Decided to go with MO's advice @ Cancer treatment centers of...

Dx March 2021 Gleason 9 mets to lymph nodes(in profile) after speaking to urolog...

joeydashoe

•1 year ago

26 Replies

Erratic PSA on jevannta

Started (cab) in September of 2022, on 3 month elgard, next one is February along with xgeva and my 9th infusion. This is my PSA history. 8/19/2022 - 49.8...

Started (cab) in September of 2022, on 3 month elgard, next one is February alon...

Muffin2019

•1 year ago

12 Replies

PSA Climbing

my husband’s psa has been climbing for 6 months. He recently left the urologist he was going to and is now going to Roswell Park Comprehensive Cancer Center in...

my husband’s psa has been climbing for 6 months. He recently left the urologist ...

Dixiechopper

•1 year ago

10 Replies

Vacation Proposal

Post Script: After my long winded post, Dr Borno just phoned. They've decided they would prefer not to rush into a break. Since he's tolerating treatment so...

Post Script: After my long winded post, Dr Borno just phoned. They've decided ...

JWPMP

•1 year ago

6 Replies

Apalutamide (Erleada) Only Lasted 6-7 Months! What Next?

After being on Apalutamide, Lupron, & Xgeva, since April of 2022, & PSA drop from 7.3 (extensive bone mets.) & a drop to 0.1 (for 2 mons.), PSA rose to 0.6...

After being on Apalutamide, Lupron, & Xgeva, since April of 2022, & PSA drop fro...

john4803

•1 year ago

41 Replies

Just checking to be sure 6 month break after 5 week radiation treatment is the next best step?

I hope everyone here is finding success and positive moments in this journey as we make our way through this new year ♥️ Hoping to ask for an opinion here just...

I hope everyone here is finding success and positive moments in this journey as ...

FormulaRob

•1 year ago

19 Replies

Second Opinion?

In an earlier post I mentioned a vertebral fracture of my thoracic spine that was discovered only because my General Practitioner ordered X-rays because I'd...

In an earlier post I mentioned a vertebral fracture of my thoracic spine that wa...

Hidden

•1 year ago

54 Replies

Biopsy

Has anyone out there had a negative experience with having a biopsy?

Mickeydog

•1 year ago

37 Replies

Hello, good People!

My father Washington diagnosed Last year, în january 2022, with a 120 PSA and score Gleason 8, 4+4. He s done 1 month abiterone, 6 docetaxel and Eligard every...

My father Washington diagnosed Last year, în january 2022, with a 120 PSA and sc...

tuta1960

•1 year ago

17 Replies

First PSMA Scan after 3 months radiation to lymph nodes

Since my PSA rose from 0.18 (2 months post radiation) to 0.22 (3 months post radiation), I have another PSMA scan before starting any further treatment. Pre-RT...

Since my PSA rose from 0.18 (2 months post radiation) to 0.22 (3 months post rad...

Wloi

•1 year ago

5 Replies

Erleada/Apalutamide: Any positive experiences?

There are many posts and experiences of bad side effects of Erleada and only a few better experiences. Please, tell me some succesfull stories and good...

There are many posts and experiences of bad side effects of Erleada and only a f...

Daughter17

•1 year ago

15 Replies

Looking for suggestion of clinical trials for mCRPC

I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytiga (2012-Current). Interested in joining trials that involve PARP inihibitors,...

I have had SBRT (2007), Chemotherapy (2010/2011), ADT using Casodex/Lupron/Zytig...

Cmdrdata

•1 year ago

7 Replies

Abiraterone Cost

Like some of you, I have the AARP United HealthCare Part D Walgreens plan. I'm in California if that makes a difference. I placed my first 2023 abiraterone...

Like some of you, I have the AARP United HealthCare Part D Walgreens plan. I'm i...

Gearhead

•1 year ago

32 Replies

Seeking clarification on significance of soft versus bone mets.

Hello all, Kathy here, spouse to Ed living with stage 4 PC with mets to lymph nodes and lungs. Dx NOv 2020, Gleason score 8, initial PSA 286. I have been...

Hello all, Kathy here, spouse to Ed living with stage 4 PC with mets to lymph n...

MIkamom

•1 year ago

21 Replies

What we don’t know, patients can teach us.

https://youtu.be/PgXOiXKo5RU

Darryl

Partner•1 year ago

3 Replies

Paxlovid for cancer patients with Covid?

Visited cancer center consultant and asked about Paxlovid, perhaps prescribed in advance of Covid diagnosis since I have aggravating issues with disease and...

Visited cancer center consultant and asked about Paxlovid, perhaps prescribed in...

tarhoosier

•1 year ago

10 Replies

concern over chest infections after chemo, should I be worried?

Hi all, I am really concerned about my husband who has Stage 4, Gleason 9 PC. He had his last chemotherapy round at the beginning of December and will start...

Hi all, I am really concerned about my husband who has Stage 4, Gleason 9 PC. ...

Ktm990jan

•1 year ago

8 Replies

Jaw mets

Hi my husband was referred to a dental specialist because he had numbness to part of his jaw and lip. The specialist thinks it's a metastasis in his jaw bone...

Hi my husband was referred to a dental specialist because he had numbness to par...

Omc64

•1 year ago

14 Replies

Enzalutamide (Xtandi) or not

2012 Robotic Prostatectomy. Gleason 3+4 2015 Salvage Radiation plus 6 months Zoladex 2019 and 2020 PET/CT scans showed 2 mets to spine and one in Ribs plus...

2012 Robotic Prostatectomy. Gleason 3+4 2015 Salvage Radiation plus 6 months Zo...

x-rays1

•1 year ago

43 Replies

Lupron+docetaxel+Abiraterone

First time posting. I have stage IVB PC, which was discovered via a hernia procedure in November 2022. I completed 1 month of ADT with no side effects and my...

First time posting. I have stage IVB PC, which was discovered via a hernia proc...

TMcgee

•1 year ago

7 Replies

Hot flashes and Lupron

Hi All - I'm looking for advice in a rather special case - I've been on Lupron for a bit over a year, and on Ariraterone for about 8 months. Last month, my MO...

Hi All - I'm looking for advice in a rather special case - I've been on Lupron f...

chickgreen

•1 year ago

23 Replies

should I be worried?

looking for some insite as to what I should expect going forward given the state of my condition. Had prostatectomy in 2019. Gleason 4+3. PSA before...

looking for some insite as to what I should expect going forward given the state...

Jroc1

•1 year ago

5 Replies

Patrick Walsh on "Discovery"

https://youtube.com/shorts/4CZVY4GdNEM?feature=share

Darryl

Partner•1 year ago

Be the first to reply

On to docetaxel

Hi, Was on Zytiga for 4 weeks. Too many bad side effects. headache, aching joints, very bad balance, extreme fatigue, heart racing at times, increased...

Hi, Was on Zytiga for 4 weeks. Too many bad side effects. headache, aching jo...

MJCA

•1 year ago

20 Replies

Dealing with relatives into holistic healing and Reiki

I recently had a get-togther with my my extended family, despite my high levels of pain from APc. One couple who was there offered to do Reiki on me several...

I recently had a get-togther with my my extended family, despite my high levels ...

EdBacon

•1 year ago

82 Replies

Dr Myers

Why was my post asking about Dr. Myers delete???

Ran2599dy

•1 year ago

14 Replies

Bone Marrow and blood cells

My husband has been in the hospital for a week. He had been struggling to eat and drink due to nausea. His oncologist had him come in and they gave him a liter...

My husband has been in the hospital for a week. He had been struggling to eat an...

Wyldhare22

•1 year ago

28 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for January 2023

I have had radiation for a painful Met a L5----

Calling all BAT-men ...

Update on restaging cancer

State of shock

Erratic PSA on jevannta

PSA Climbing

Vacation Proposal

Apalutamide (Erleada) Only Lasted 6-7 Months! What Next?

Just checking to be sure 6 month break after 5 week radiation treatment is the next best step?

Second Opinion?

Biopsy

Hello, good People!

First PSMA Scan after 3 months radiation to lymph nodes

Erleada/Apalutamide: Any positive experiences?

Looking for suggestion of clinical trials for mCRPC

Abiraterone Cost

Seeking clarification on significance of soft versus bone mets.

What we don’t know, patients can teach us.

Paxlovid for cancer patients with Covid?

concern over chest infections after chemo, should I be worried?

Jaw mets

Enzalutamide (Xtandi) or not

Lupron+docetaxel+Abiraterone

Hot flashes and Lupron

should I be worried?

Patrick Walsh on "Discovery"

On to docetaxel

Dealing with relatives into holistic healing and Reiki

Dr Myers

Bone Marrow and blood cells

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