Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,056 members • 26,262 posts

All posts for September 2022

genetic testing

what is the difference in Foundation One testing and Gradient Liquid Biopsy?

JolleySprings

•2 years ago

4 Replies

Dr Nicholas Vogelzang has died

Well known and well respected Dr Vogelzang of Las Vegas died at the age of 72. He’d recently retired and was in hospice care. What a loss for the Prostate...

Well known and well respected Dr Vogelzang of Las Vegas died at the age of 72. H...

strummer

•2 years ago

6 Replies

Pro biotics

I saw another feed a bit ago about taking pro biotics prior to and during radiation. Any details on this? I am waiting for my PSMA PET. Orders are in , just...

I saw another feed a bit ago about taking pro biotics prior to and during radiat...

runtrails

•2 years ago

6 Replies

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zytiga, dexamethasone and weight gain/moonface

My husband, Mike, seems to be doing great cancer-wise sine switching from zytiga/prednisone to zytiga/dexamethasone (.5) Psa down to <.01and scans appearing...

My husband, Mike, seems to be doing great cancer-wise sine switching from zytiga...

longleaf

•2 years ago

14 Replies

Lets list our rays of hope, the treatments on the horizon - please contribute to this knowledgebase.

Being a patient of a tarminal disease in a rather young age, I keep fidgeting over the internet to find out promising emerging treatments for CRPC and...

Being a patient of a tarminal disease in a rather young age, I keep fidgeting ov...

Soumen79

•2 years ago

17 Replies

Restaging

MO tells us that there is no value in PSMA PET now. Her plan is to reimage CT chest, pelvis, abdomen, and repeat bone scan and compare to initial in May. All...

MO tells us that there is no value in PSMA PET now. Her plan is to reimage CT ch...

warrior22

•2 years ago

25 Replies

Ruminating on Extending ADT&Zytiga beyond 18 months

Please see my profile for details but I am T3bn1m0 with pni, SVI, BRCA2 positive with Intraductal histology. I am 15 months post HDR Brachytherapy with EBRT....

Please see my profile for details but I am T3bn1m0 with pni, SVI, BRCA2 positive...

TylexGP

•2 years ago

12 Replies

PIK3CA somatic mutation identified via liquid biopsy

My recent Guardant liquid biopsy report detected PIK3CA Amplification. There are currently no FDA approved therapies available. Appreciate input.

My recent Guardant liquid biopsy report detected PIK3CA Amplification. There ar...

HopingForTheBest1

•2 years ago

7 Replies

Reversion mutation - BRCA2

I recently had a Guardant360 CDx liquid biopsy that showed my BRCA2 inherited mutation, previously treated with Olaparib successfully for two years, is now...

I recently had a Guardant360 CDx liquid biopsy that showed my BRCA2 inherited mu...

HopingForTheBest1

•2 years ago

12 Replies

what are the best time to apply darolutamide?

HiHi, really glad to know this forum and this is my first post here and we are very frustrated as short of information in our medical system and we have a very...

HiHi, really glad to know this forum and this is my first post here and we are v...

leechi

•2 years ago

11 Replies

Prostrate Center of Excellence in L.A.?

Would that be UCLA? Researching treatment options and advice for multi-modal care Any help would be greatly appreciated. thanks Mark

Would that be UCLA? Researching treatment options and advice for multi-modal car...

SierraSix

•2 years ago

4 Replies

Fusion Biopsy Results - GC5 - Gleason 9 (4 + 5)

Greetings, Just got my biopsy results via my medical portal. Not good. GC5 - Gleason 9 (4 +5) I have an appointment with the PA on Friday (in 2 days). A...

Greetings, Just got my biopsy results via my medical portal. Not good. GC5 - Gl...

SierraSix

•2 years ago

26 Replies

For Our Spouses and Partners 💗💗💗

We know that you suffer with us, differently, but with us. Your love and care is both needed and greatly appreciated - even when we are miserable and don’t...

We know that you suffer with us, differently, but with us. Your love and care i...

Carlosbach

•2 years ago

33 Replies

QOL activities to help enrich your life and put the negative thoughts asleep for a while.

after Covid letup a bit and the extheme heat of summer has relented some here in the Central Valley, I’ve finally been able to get out of the house and try to...

after Covid letup a bit and the extheme heat of summer has relented some here in...

Kaliber

•2 years ago

112 Replies

Aetna denied request for PSMA scan

My PSA has gone up from .1 t0 3.5 in the last 6 months. Aetna told me to go pound sand and denied my request for the PSMA scan. Does anyone know how much it...

My PSA has gone up from .1 t0 3.5 in the last 6 months. Aetna told me to go pou...

Jamesjohn63

•2 years ago

47 Replies

Urgent Advice Needed. Time Sensitive.

Hi all, you were all so helpful on my first post so I need some serious advice here We live in Toronto Canada. Father diagnosed with 226PSA a few months...

Hi all, you were all so helpful on my first post so I need some serious advice...

FormulaRob

•2 years ago

70 Replies

Anyone using Estrogel with success to relieve horrible hot flashes?

On ronrons advice and experience I decided to give estrogen replacement a try. I get horrible hot flashes every hour that leaves me drenched in sweat. I...

On ronrons advice and experience I decided to give estrogen replacement a try. ...

No_stone_unturned

•2 years ago

41 Replies

Orgovox your experience with this

I am currently on Eligard my doc has suggested trying Orgovox would like to know what others have experienced using this medication. With Eligard I have a...

I am currently on Eligard my doc has suggested trying Orgovox would like to know...

Gerald2022

•2 years ago

19 Replies

Second phase with Zytiga....then what?

Well hello again my friends. As mentioned before, I had previous PC 2010, Proton RT in 2016. In May my PSA went to 2.0. Recurrence in two obturator lymph...

Well hello again my friends. As mentioned before, I had previous PC 2010, Proto...

icanwintwice

•2 years ago

7 Replies

PSA Increase

Right now I'm at the hospital due to severe lower back pain and stomach pain. My MO ordered full abdominal ultrasound sensing that it was acute appendicitis...

Right now I'm at the hospital due to severe lower back pain and stomach pain. My...

Mojar

•2 years ago

5 Replies

Xtandi-Lupron Side Effect Questions

My husband is 81, diagnosed spring of 21 with metastatic PC. PSA of 89. By July 21 they had him on Lupron and Xtandi by September. His numbers went way, way...

My husband is 81, diagnosed spring of 21 with metastatic PC. PSA of 89. By July ...

Cabin-Time

•2 years ago

30 Replies

Johnson & Johnson Prostate Cancer Treatments

Johnson & Johnson Prostate Cancer Treatments Johnson & Johnson was on Cramer's Mad Money touting a pipeline of new Prostate Cancer Treatments. Does...

Johnson & Johnson Prostate Cancer Treatments Johnson & Johnson was on Cramer...

cesces

•2 years ago

4 Replies

Staph Infections Rifampin

Has anyone had to use rifampin while on Zytiga? Jim has been having recurrent skin staph infections. His PCP is considering rifampin, but UCSF says he'll...

Has anyone had to use rifampin while on Zytiga? Jim has been having recurrent s...

JWPMP

•2 years ago

20 Replies

lymph nodes

After prostate surgery 2007, radiation 2009 general area, PSA went up 4.6. Started on Lupron, hot flashes, very very tiredness, switched to Casodex. PSA went...

After prostate surgery 2007, radiation 2009 general area, PSA went up 4.6. Star...

Papadave

•2 years ago

18 Replies

Sacrum tumor

Anyone have experience with a Sacrum tumor? Onc. wants to do a needle biopsy, then radiation but reading up on this, IF it shows a Chordoma, radiation is...

Anyone have experience with a Sacrum tumor? Onc. wants to do a needle biopsy, t...

Pops78

•2 years ago

11 Replies

Malecare Earns Second Patent

Malecare received its second patent for a "Predictive and interactive diagnostic system." Malecare is one of the few (perhaps, the only) patient advocacy...

Malecare received its second patent for a "Predictive and interactive diagnostic...

Darryl

Partner•2 years ago

21 Replies

Found his maxillary Osteonecrosis of the jaw has exposed and his 4th chemo. of Docetaxel is due in a few days. Chemo making worse to ONJ?

86-year-old advanced prostate cancer with dx 2018, while doing EBRT in 2020, developed Maxillary Osteonecorsis of the jaw that has been taking care with...

86-year-old advanced prostate cancer with dx 2018, while doing EBRT in 2020, dev...

11redtomato_41

•2 years ago

3 Replies

Pluvicto 1

Well finally pluvicto 1 down. I think went smoothly. I am experiencing a fair amount of aching, presumably because of effect of treatment. I think bone pain....

Well finally pluvicto 1 down. I think went smoothly. I am experiencing a fair am...

RunThru

•2 years ago

3 Replies

Interesting new research on why ARI drugs like Xtandi fail

https://www.sciencedaily.com/releases/2022/09/220915104739.htm?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter

https://www.sciencedaily.com/releases/2022/09/220915104739.htm?utm_medium=email&...

Benkaymel

•2 years ago

32 Replies

Using Lupron for diagnostic tool????

Was wondering why you couldnt use a 1 month lupron injection for diagnostic testing for a guy who had a clean biopsy twice, had PSA going up and down over...

Was wondering why you couldnt use a 1 month lupron injection for diagnostic tes...

Rocketman1960

•2 years ago

12 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for September 2022

genetic testing

Dr Nicholas Vogelzang has died

Pro biotics

zytiga, dexamethasone and weight gain/moonface

Lets list our rays of hope, the treatments on the horizon - please contribute to this knowledgebase.

Restaging

Ruminating on Extending ADT&Zytiga beyond 18 months

PIK3CA somatic mutation identified via liquid biopsy

Reversion mutation - BRCA2

what are the best time to apply darolutamide?

Prostrate Center of Excellence in L.A.?

Fusion Biopsy Results - GC5 - Gleason 9 (4 + 5)

For Our Spouses and Partners 💗💗💗

QOL activities to help enrich your life and put the negative thoughts asleep for a while.

Aetna denied request for PSMA scan

Urgent Advice Needed. Time Sensitive.

Anyone using Estrogel with success to relieve horrible hot flashes?

Orgovox your experience with this

Second phase with Zytiga....then what?

PSA Increase

Xtandi-Lupron Side Effect Questions

Johnson & Johnson Prostate Cancer Treatments

Staph Infections Rifampin

lymph nodes

Sacrum tumor

Malecare Earns Second Patent

Found his maxillary Osteonecrosis of the jaw has exposed and his 4th chemo. of Docetaxel is due in a few days. Chemo making worse to ONJ?

Pluvicto 1

Interesting new research on why ARI drugs like Xtandi fail

Using Lupron for diagnostic tool????

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