Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,075 members • 27,703 posts

All posts for June 2022

HOPE IS ALIVE. Original PSA 209 with bone mets 8 Years Ago, still undetectable <0.10 as of today

For all of my brothers traveling down this wicked path with me, please know hope is still alive and well for all of us. I have not posted for a while as I am...

For all of my brothers traveling down this wicked path with me, please know hope...

poofers

•2 years ago

40 Replies

What Are The Best Prostate Cancer Research Charities?

Besides Malecare (of course), what prostate cancer research charities are Malecare members donating to? I've donated to American Cancer Society, Zero,...

Besides Malecare (of course), what prostate cancer research charities are Maleca...

cancerfox

•2 years ago

9 Replies

Psa going up after Pluvicto.

Husband is just finishing his 6th isotope. Psa seems to be going up quickly. Today psa was 7.1. Last test 3 weeks ago was 3.5. 3 weeks before that 1.51....

Husband is just finishing his 6th isotope. Psa seems to be going up quickly. Tod...

Cynthgob

•2 years ago

7 Replies

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Testosterone “Flare” (Or Testosterone?) Timing to Optimize Salvage Radiation Therapy

I have referred to the following article a few times in response to some posts about the use and timing of ADT when used in addition (adjuvant) to improve...

I have referred to the following article a few times in response to some posts a...

MateoBeach

•2 years ago

15 Replies

Countdown begins

My Jeff … They aren't doing the spinal tap. Due to his rapid decline, they feel he has days to weeks left. They are attempting to discharge on hospice today....

My Jeff … They aren't doing the spinal tap. Due to his rapid decline, they feel...

Pancake_Lefse

•2 years ago

93 Replies

Protein powder

Hi to everyone.. I need your help with this…. What kind of protein powder do you all use to make your smoothie. I am asking for my husband, as I am the one...

Hi to everyone.. I need your help with this…. What kind of protein powder do you...

Hidden

•2 years ago

49 Replies

Urinal incontinence

G'Day folks. I had some cancer removed from my L2 which also caused a spinal fracture, since this treatment of RT + a plate & screws from L1 to L4 my...

G'Day folks. I had some cancer removed from my L2 which also caused a spinal fr...

Chubby42

•2 years ago

9 Replies

Radiation to Cervical Spine

My husband is on his 4th of 5th day of treatment to his cervical spine of radiation- he has a fracture from bone mets. Wondering if anyone has had that and...

My husband is on his 4th of 5th day of treatment to his cervical spine of radia...

Sipj

•2 years ago

9 Replies

HMB

In the recent "Losing Muscles" thread (https://healthunlocked.com/advanced-prostate-cancer/posts/148152168/loosing-muscles), some of the responses mentioned...

In the recent "Losing Muscles" thread (https://healthunlocked.com/advanced-prost...

Gearhead

•2 years ago

13 Replies

Is the chat access broken?

At the top of the page where it shown the icons for My Feed, My hub, Chat and Alerts, I can see that there is a message waiting for me in the chat. But when I...

At the top of the page where it shown the icons for My Feed, My hub, Chat and Al...

Mascouche

•2 years ago

13 Replies

Are MRI with coil and biopsy needed for BCR recurrence in prostate for cryotherapy, HIFU, Tulsa Pro or Brachytherapy?

After posting questions on ADT options for BCR oligometastasis, we have new development/input from RO and MO which makes us delay starting hormone therapy now....

After posting questions on ADT options for BCR oligometastasis, we have new deve...

TCMG

•2 years ago

7 Replies

Are you wasting your money on supplements? Most likely, experts say.

https://jamanetwork.com/journals/jama/fullarticle/2793446?guestAccessKey=2a436fd3-f03d-453b-a0e9-a29595310e8e&utm_source=For_The_Media&utm_medium=referral&utm_c

https://jamanetwork.com/journals/jama/fullarticle/2793446?guestAccessKey=2a436fd...

Hidden

•2 years ago

58 Replies

Extracts from two papers on exercise and cancer. Paper 1 investigates the blood from 25 patients with mCRPC exercising. Paper 2 is a review.

The first paper indicates that a phase 3 trial INTERVAL-GAP4 is recruiting. I have not checked this. The patients used in this study were recruited to the...

The first paper indicates that a phase 3 trial INTERVAL-GAP4 is recruiting. I ha...

Graham49

•2 years ago

4 Replies

Eyes watery during Docetaxel treatment

Hello, I got 5 docetaxel infusions, and now I have excessive tearing in both eyes. I know that this tearing is one of multiple side effects of docetaxel. I...

Hello, I got 5 docetaxel infusions, and now I have excessive tearing in both eye...

Catfish21

•2 years ago

11 Replies

Does private insurance pay for PSMA (Pylarify) scans in the US

Has anyone had the Pylarify PSMA pet scan in the US and had it paid for by private insurance (not medicare) such as and especially BCBS. Does any one know...

Has anyone had the Pylarify PSMA pet scan in the US and had it paid for by priva...

TJGuy

•2 years ago

7 Replies

First Lupron on Monday. Am I going to a funeral or a wedding!?

While I wait out these last few days before my first Lupron injection, I'm having a lot of emotions; many at the same time. Not unlike my memories of getting...

While I wait out these last few days before my first Lupron injection, I'm havin...

Lewellen

•2 years ago

68 Replies

ADT options for BCR oligometastesis

Recent Auxmin and PSMA scans show that my husband has BCR oligometastesis (MRI shows nothing). It seems there are two different treatment options/opinions: 1....

Recent Auxmin and PSMA scans show that my husband has BCR oligometastesis (MRI s...

TCMG

•2 years ago

15 Replies

Keynote 365 Trial Pembroluzimab/Lenvatinib

Hi everybody, this is Marcellus from the Netherlands….I was wondering: I am going to participate in the Keynote 365 Trial, cohort F/G Pembrolizumab (Keytruda)...

Hi everybody, this is Marcellus from the Netherlands….I was wondering: I am goin...

mjv222

•2 years ago

2 Replies

Loosing muscles

During last 8 years on ADT, and last 2 years of Xtandi, I am facing continious loosing muscles, as well as weight, of course. Bones metastases prevent me...

During last 8 years on ADT, and last 2 years of Xtandi, I am facing continious l...

beogradjanin

•2 years ago

34 Replies

Cabergoline Reduces Prolactin To Cure CRPC?

What do people think of this? Yes it's only a single "novel" patient case. I could swear I've seen posts elsewhere about people concerned with having too low...

What do people think of this? Yes it's only a single "novel" patient case. I co...

jazj

•2 years ago

23 Replies

10 second test for mortality. Interesting indeed

The source credible, the test, who knows: https://www.medscape.com/viewarticle/975941?src=wnl_tp10_daily_220621_MSCPEDIT&uac=443629EX&impID=4355046#vp_2

The source credible, the test, who knows: https://www.medscape.com/viewarticle/9...

katartizo61

•2 years ago

12 Replies

Spinal tap is Thursday

We met with oncology this morning and as I suspected, we didn’t really learn much more. They plan to do the spinal tap Thursday. Pending those results,...

We met with oncology this morning and as I suspected, we didn’t really learn muc...

Pancake_Lefse

•2 years ago

18 Replies

Sexual Restoration for Gay men after treatment

https://youtu.be/-yhAaqisLW0

Darryl

Partner•2 years ago

Be the first to reply

phase 3 trial of SHR3630 versus bicalutamide in combination with androgen deprivation therapy (ADT) in patients with high-volume metastatic

Publish DateJune 17, 2022 Renal and Urology News Novel Drug Improves Outcomes vs Bicalutamide in Metastatic Hormone-Sensitive Prostate Cancer Jody A. Charnow...

Publish DateJune 17, 2022 Renal and Urology News Novel Drug Improves Outcomes vs...

Graham49

•2 years ago

2 Replies

Acute, major depression after 3-month Lupron injection, from a new poster

I haven't posted my prostate cancer bio here yet but I intend to in the future. I had a prostatectomy along with my seminal vesicles and the left side lymph...

I haven't posted my prostate cancer bio here yet but I intend to in the future. ...

maggiedrum

•2 years ago

27 Replies

FDG pet scan not the best for prostate cancer ?

It has been recommended on here that an FDG pet scan is a wise companion scan to have with a PSMA scan to see overlap between the two. When discussing this...

It has been recommended on here that an FDG pet scan is a wise companion scan to...

joeguy

•2 years ago

25 Replies

What is a Bemer PMEF and BCX Ultra delux Rife machine?

Someone contacted me about using this as additional therapy. I am a little suspicious.

Someone contacted me about using this as additional therapy. I am a little suspi...

Pianodude

•2 years ago

17 Replies

Switching from Firmagon to Lucrin or Eligard

Hi, this is ALEX from Malaysia. First Dx 2016 psa 8.34, gs 3+4. Had RP 10/2017 with positive margin. Did salvage IMRT 8/4/2019 at psa 2.43 without adt. After...

Hi, this is ALEX from Malaysia. First Dx 2016 psa 8.34, gs 3+4. Had RP 10/2017 w...

huraymond

•2 years ago

7 Replies

Scot inhibition study

This looks like a potential breakthrough. Apparently the ketones from fasting have a different behaviour on cancer than the ketones from a diet....

This looks like a potential breakthrough. Apparently the ketones from fasting ha...

Mascouche

•2 years ago

18 Replies

Jevtana/Carbo combo after 6 cycles with PSA trending up

Have had 6 cycles of this combo so far. 3 week cycles. Side effects tolerable. Tomorrow will be #7? After initial treatment PSA dropped from 62 to 4. But,...

Have had 6 cycles of this combo so far. 3 week cycles. Side effects tolerable....

HopingForTheBest1

•2 years ago

2 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for June 2022

HOPE IS ALIVE. Original PSA 209 with bone mets 8 Years Ago, still undetectable <0.10 as of today

What Are The Best Prostate Cancer Research Charities?

Psa going up after Pluvicto.

Testosterone “Flare” (Or Testosterone?) Timing to Optimize Salvage Radiation Therapy

Countdown begins

Protein powder

Urinal incontinence

Radiation to Cervical Spine

HMB

Is the chat access broken?

Are MRI with coil and biopsy needed for BCR recurrence in prostate for cryotherapy, HIFU, Tulsa Pro or Brachytherapy?

Are you wasting your money on supplements? Most likely, experts say.

Extracts from two papers on exercise and cancer. Paper 1 investigates the blood from 25 patients with mCRPC exercising. Paper 2 is a review.

Eyes watery during Docetaxel treatment

Does private insurance pay for PSMA (Pylarify) scans in the US

First Lupron on Monday. Am I going to a funeral or a wedding!?

ADT options for BCR oligometastesis

Keynote 365 Trial Pembroluzimab/Lenvatinib

Loosing muscles

Cabergoline Reduces Prolactin To Cure CRPC?

10 second test for mortality. Interesting indeed

Spinal tap is Thursday

Sexual Restoration for Gay men after treatment

phase 3 trial of SHR3630 versus bicalutamide in combination with androgen deprivation therapy (ADT) in patients with high-volume metastatic

Acute, major depression after 3-month Lupron injection, from a new poster

FDG pet scan not the best for prostate cancer ?

What is a Bemer PMEF and BCX Ultra delux Rife machine?

Switching from Firmagon to Lucrin or Eligard

Scot inhibition study

Jevtana/Carbo combo after 6 cycles with PSA trending up

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