Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,433 members • 26,841 posts

All posts for October 2021

Are We Out Of The Woods For A While?

It has been a roller coaster of a few months. After a hemi-ablation HIFU In Germany (4/11/19) Alan had a great nadir of 0.19. Men with that kind of result have...

It has been a roller coaster of a few months. After a hemi-ablation HIFU In Germ...

Londear1992

•3 years ago

9 Replies

Swollen ankles while on chemotherapy

My father had his 1st docetaxel chemo 2 weeks ago and feels much better after the treatment(significant reduction of bone pain,appetite is back). However, he...

My father had his 1st docetaxel chemo 2 weeks ago and feels much better after t...

Vsahay

•3 years ago

5 Replies

Palliative use of Dexamethasone in advanced metastatic prostate cancer.

What is the consensus on using Dexamethasone as a pallative option in advanced metastatic disease. I am Stage 4 currently trying a final try on chemo (forgot...

What is the consensus on using Dexamethasone as a pallative option in advanced m...

mwykes

•3 years ago

6 Replies

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Cacao enquiry - 1st post

Thanks for including me in your group, I just signed up today. I turned 74 years old in June. My PSA scores have been above normal since my 1st blood test...

Thanks for including me in your group, I just signed up today. I turned 74 year...

kuki2

•3 years ago

7 Replies

Brip1 mutation

My 82 y/o father has metastatic prostate cancer. He received external beam radiation and ADT therapy followed by zytiga and xtandi. Found to have a Brip1...

My 82 y/o father has metastatic prostate cancer. He received external beam radia...

Voula4ny

•3 years ago

18 Replies

The Weakest Link

When it comes to my new granddaughter, I am now known as "the weakest link". I'm sure you can image why. She knows right where to go when she wants......

When it comes to my new granddaughter, I am now known as "the weakest link". I'...

Hidden

•3 years ago

28 Replies

Opinion of Dr Matthew Smith

Has anyone had any experience with Dr Matthew Smith at Mass general hospital in Boston. And if so what is your opinion?

Has anyone had any experience with Dr Matthew Smith at Mass general hospital in...

Dracus

•3 years ago

13 Replies

Incontinence control Device.

Since the time I have started estrogen therapy I am facing incontinence problem. Having tried pads,leak proof underwear etc now I am using this on top...

Since the time I have started estrogen therapy I am facing incontinence problem....

KSK54

•3 years ago

24 Replies

Reading a PSMA Pet Pyl Scan:Second Opinions?

Many of us send our pathology slides to Epsteins lab at Johns Hopkins for a second opinion. Is there a recommended place to send our psma pet scans to get a...

Many of us send our pathology slides to Epsteins lab at Johns Hopkins for a seco...

Hidden

•3 years ago

6 Replies

5th Xofigo treatment done PSA is at 692.32

Getting nervous with the rise in PSA. I know this treatment does not effect it but what does it mean? We are not close to any areas where the PSMA PET are...

Getting nervous with the rise in PSA. I know this treatment does not effect it b...

Yorkielover2

•3 years ago

11 Replies

Pylarify sites in California

Because Ga-68-PSMA-11 is only FDA-approved at 2 sites -UCLA and UCSF, there can be long waiting times. Pylarify, the other FDA-approved PSMA PET indicator, is...

Because Ga-68-PSMA-11 is only FDA-approved at 2 sites -UCLA and UCSF, there can ...

Tall_Allen

•3 years ago

29 Replies

My Recent Way of Dealing With Incontinence

I have been absolutely miserable for the last three years dealing with this problem. During a 50 minute workout in the gym I usually have to use the toilet...

I have been absolutely miserable for the last three years dealing with this prob...

E2-Guy

•3 years ago

88 Replies

From crummy times to laughter

The last update on my Jeff was a downer, so I thought I’d share something that tickles me. Jeff is already thinking about Christmas and has started to shop....

The last update on my Jeff was a downer, so I thought I’d share something that t...

Pancake_Lefse

•3 years ago

13 Replies

What does a high Chromoganin A,S test mean?

I have been on lupron for 5 1/2 years. My PSA has been slowly going up. PSA 3 months ago at uro was 0.23, last week it was 0.22. I went to Hollings Cancer...

I have been on lupron for 5 1/2 years. My PSA has been slowly going up. PSA 3 ...

Echotango51

•3 years ago

10 Replies

Am I overthinking?

If PSA is being suppressed with Xtandi is it prudent to do something integratively or otherwise before PSA begins to rise and while one feels relatively...

If PSA is being suppressed with Xtandi is it prudent to do something integrativ...

myamic

•3 years ago

20 Replies

Are you on ADT? Many/Most of us are. THIS IS A MUST WATCH VIDEO. 3 key points: Statins, Degelrix, Metformin. Grand Rounds in Urology.Mike

https://youtu.be/6duRbpY-WkI

Spyder54

•3 years ago

56 Replies

Alkaline Phosphatase Rising

Hello folks, Stage 4 with bone Mets and lymph nodes. Current PSA at 0.008 and i was diagnosed in Nov 2019 with a PSA of 308. I’m looking for answers as to...

Hello folks, Stage 4 with bone Mets and lymph nodes. Current PSA at 0.008 and i...

Dale150

•3 years ago

16 Replies

Effectiveness of treatment.Arbiterone and Docetaxcel

After 6 cycles of Docetaxcel in April-July 2016 ,my oncologist put me on ADT till 2020 when Psa was increasing .The nadir Psa was 0. 04 in Oct 2019. Psa...

After 6 cycles of Docetaxcel in April-July 2016 ,my oncologist put me on ADT ti...

Kodamolagai

•3 years ago

5 Replies

Should I cancel salvage radiation and ADT

I am 58 years old. I’m 185cms and weigh 95 kg. I was diagnosed with Gleeson 4+3 =7 around Feb 2014. I had a radical prostatectomy in 2014, Monitoring of my...

I am 58 years old. I’m 185cms and weigh 95 kg. I was diagnosed with Gleeson 4...

Granster62

•3 years ago

16 Replies

HDR Brachytherapy UCSF

So it's finally happening. Tues and Wed 10/19 & 10/20 After endless delays, Jim finally gets his radiation treatment. Such a relief that it will be Dr...

So it's finally happening. Tues and Wed 10/19 & 10/20 After endless delays, Ji...

JWPMP

•3 years ago

18 Replies

Has anyone here completely overcome Radiation Cystitis or Radiation Urethritis for the long term?

Asking because my hubs is having 2nd bout in less than 1 year. Urologist is repeating same procedure of dilating urethra using successively larger catheters...

Asking because my hubs is having 2nd bout in less than 1 year. Urologist is rep...

Lyubov

•3 years ago

11 Replies

1 Year after taking Zytiga (Abiraterone) PSA from 750 to 54

Hello everyone. Id like to post update on my fathers therapy. This time last year he got the therapy of Zytiga + prednisone 5mg a day. Before the therapy he...

Hello everyone. Id like to post update on my fathers therapy. This time last yea...

pozitronij

•3 years ago

12 Replies

PSMA Scan, ADT

I'm confused about something, and I'm hoping someone can clarify. In an interview I saw with UCLA's Michael Steinberg re: PSMA imaging, he says that there's a...

I'm confused about something, and I'm hoping someone can clarify. In an intervi...

Horse12888

•3 years ago

29 Replies

PSMA AT UCLA

Greetings , I was informed today as of yesterday Medicare will cover our PSMA scans which I am getting on Monday...Saves us money...Blue Skies ,,,,Sky...

Greetings , I was informed today as of yesterday Medicare will cover our PSMA sc...

pilot52

•3 years ago

12 Replies

PSA after Prostate removal

Can Sexual activity after RP raise PSA levels?

plato123

•3 years ago

6 Replies

Can I try A rechallenge with Xtandi after using docetaxel and cabazitaxel?

I Used xtandi before in a trial. Ended trial when psa started increasing some. Since then have failed docetaxel and now cabazitaxel/carboplatin. Planning on...

I Used xtandi before in a trial. Ended trial when psa started increasing some. ...

Peterd110

•3 years ago

12 Replies

PSA after salvage radiation

Hi My husband has prostate cancer. I think we are in a good, wait and see place, but wanted to get your opinions. My husband had a RP in November of 2018. He...

Hi My husband has prostate cancer. I think we are in a good, wait and see place,...

Wifeof

•3 years ago

10 Replies

Lifelong ADT vs Adjuvant ADT and other questions

I'm confused regarding Lifelong ADT vs. Adjuvant ADT, what my options are. Recently at the Mayo - please read my profile, it's a quick read. I met with Kwon...

I'm confused regarding Lifelong ADT vs. Adjuvant ADT, what my options are. Rece...

swwags

•3 years ago

50 Replies

Zoladex, Abiraterone and Chemo

Hi everyone, Is it dangerous to have the above three agents all at once? Thanks!

Hi everyone, Is it dangerous to have the above three agents all at once? Thanks...

Hillwalker87

•3 years ago

4 Replies

Findings from PET scan pretty grim

My Jeff’s brain looks better. However … It appears cancer has spread to Jeff’s lungs. He has fluid and inflammation in his lungs which is likely being...

My Jeff’s brain looks better. However … It appears cancer has spread to Jeff’s...

Pancake_Lefse

•3 years ago

17 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for October 2021

Are We Out Of The Woods For A While?

Swollen ankles while on chemotherapy

Palliative use of Dexamethasone in advanced metastatic prostate cancer.

Cacao enquiry - 1st post

Brip1 mutation

The Weakest Link

Opinion of Dr Matthew Smith

Incontinence control Device.

Reading a PSMA Pet Pyl Scan:Second Opinions?

5th Xofigo treatment done PSA is at 692.32

Pylarify sites in California

My Recent Way of Dealing With Incontinence

From crummy times to laughter

What does a high Chromoganin A,S test mean?

Am I overthinking?

Are you on ADT? Many/Most of us are. THIS IS A MUST WATCH VIDEO. 3 key points: Statins, Degelrix, Metformin. Grand Rounds in Urology.Mike

Alkaline Phosphatase Rising

Effectiveness of treatment.Arbiterone and Docetaxcel

Should I cancel salvage radiation and ADT

HDR Brachytherapy UCSF

Has anyone here completely overcome Radiation Cystitis or Radiation Urethritis for the long term?

1 Year after taking Zytiga (Abiraterone) PSA from 750 to 54

PSMA Scan, ADT

PSMA AT UCLA

PSA after Prostate removal

Can I try A rechallenge with Xtandi after using docetaxel and cabazitaxel?

PSA after salvage radiation

Lifelong ADT vs Adjuvant ADT and other questions

Zoladex, Abiraterone and Chemo

Findings from PET scan pretty grim

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