My Recent Way of Dealing With Inconti... - Advanced Prostate...

Advanced Prostate Cancer

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My Recent Way of Dealing With Incontinence

ronronHU profile image

I have been absolutely miserable for the last three years dealing with this problem. During a 50 minute workout in the gym I usually have to use the toilet three times. I refuse to wear diapers or pads for several reasons so I decided to try the incontinence condoms and a bag. I started using this technique about a week ago and so far I am thrilled. The entire apparatus including 10 external catheter condoms, bag, and belt cost me less than $10. Prior to this I was wrapping the worthless little guy in paper towels covered with a tiny plastic bag secured with small rubber bands. I would have to change the towels about a dozen times/day. Now I can workout and even go a couple of more hours without going to the bathroom. The strange thing about this is that very little urine enters the bag. I'm wondering if the condom puts a bit of pressure on my urethra reducing the leakage? I always wear shorts so I suspend the bag from the belt with bra straps to keep it above my knee. I folded the 600 ml bag in half since it is too long and far larger than what I need...I'm looking for a 250 ml bag which would be way more than adequate . I wish I had tried this system when I first became incontinent!

88 Replies

Ingenious and inexpensive!

ronronHU profile image
ronronHU in reply to Tall_Allen

Allen, Why do you think the leakage is minimal with this system?

Tall_Allen profile image
Tall_Allen in reply to ronronHU

I don't know. You may need some kind of ointment on your penis to prevent fungal infection.

ronronHU profile image
ronronHU in reply to Tall_Allen

I don't wear this contraption all the time. I'm using it only when I go out or go to the gym. Fortunately I don't have leakage during the night; perhaps because of the lack of vertical gravitational force while sleeping along with no activity?

I wonder if wearing conventional condoms could reduce leakage? I tried Googling this question, but found nothing.

ronronHU profile image
ronronHU in reply to Tall_Allen

The perfect solution!

Wheel Bearing Grease is fungi unfriendly, facilitates easy installation, its sticky consistency keeps the condom in place, is inexpensive and available in all auto part stores.

0
TFBUNDY profile image
TFBUNDY in reply to ronronHU

😅😅😅😅

Kaliber profile image
Kaliber in reply to ronronHU

Rotflol … almost split a seam with this one , perfect. Handy for personal hygiene, great out in the garage, and a great hair product, …. Does it get any better than that ???

ronronHU profile image
ronronHU in reply to Kaliber

I hadn't thought about the "hair" usage; however, I'll give it a try!

Kaliber profile image
Kaliber in reply to ronronHU

That’s how the movie stars get that thick luxurious hair that stands up and flips over … Back in the day ( 50 s ) there was the “ Butch “ ( or sometimes called the flattop ) haircut that stood up on the top of your head … it used a similar product called “ butch wax “ ( a real thing , look it up ) …. Your 90 weight product would appeal more to those with dark or black hair .

Think about it, a great hair day and run your rusty bicycle chain thru it for a comb …. Does it get any better than that.

What a group … hygienic hints , beauty secrets and garage hints in the same posts … wow, that’s impressive.

Just say’in

😂😂😂😂😂

ronronHU profile image
ronronHU in reply to Kaliber

I used the "Butch wax" when I was a teeny bopper! You're right...this is much more than just a PCa forum!

TylexGP profile image
TylexGP in reply to ronronHU

Thanks for the Laugh!

Ok …ok …buster, I know a bragger when I see one. I’m looking at your rig and wondering where in the beejeebers I would find “ anything “ to fit into that condom pee receptacle thingy …. I often have to “ go “ several times an hour, and while driving back from the coast yesterday, something like that would prevent those many times I had to stop along the way. I carry my own empty orange juice jugs especially for that use. They are very difficult to use tho, when standing up beside the road. Your rig looks like it would be great,

Still I got nothing …. Maybe some Gorilla glue or rubber bands if I could find anything to stick them on yayahahahaya yayahahahaya

Just say’in

😂😂😂❤️❤️❤️

ronronHU profile image
ronronHU in reply to Kaliber

Haha!

The condoms come in three sizes...I ordered the medium ones which I'm very surprised didn't fall off! I think you will be pleasantly surprised if you try this "rig".

Kaliber profile image
Kaliber in reply to ronronHU

Yea …. This is a good post and something I think some of us put off or resist dealing with. I know your info and the post “ stadiumpal “ has opened new doors of possibilities to change up one of my most basic problems. It’s like a magic button or something, I invariably have to go in the worse places … the more difficult the circumstances the more sure I’ll have to go and not just once yayahahahaya yayahahahaya.

I’m well provisioned at home but getting out can be trouble. This is great info …

😁😁😁

CAMPSOUPS profile image
CAMPSOUPS in reply to Kaliber

This would be my speed if I needed one ha!

adt condom
Kaliber profile image
Kaliber in reply to CAMPSOUPS

Yea ….uh, huh …. Another bragger …. How long you been on adt anyway … 3 weeks yayahahahaya

Just say’in

😂😂😂

Lulu700 profile image
Lulu700 in reply to CAMPSOUPS

No big thang!😂

Kaliber profile image
Kaliber in reply to Lulu700

Lol

Guys,I was using 5 to 7 pads for 4 years. Finally I had enough and had a AUS implant, that was 3 1/2 years ago. The best thing I did, have you considered one.

ronronHU profile image
ronronHU in reply to Echotango51

I would probably opt for the AUS if Medicare would pay outside The US. I dread ever going back to America.

Echotango51 profile image
Echotango51 in reply to ronronHU

Where do you live, may I ask why you done want to come back to USA. Come back get the AUS and then leave.

ronronHU profile image
ronronHU in reply to Echotango51

I live in Thailand and the three surgeries that I had in America were big mistakes! My RP left me impotent, incontinent and resulted in BCR, lost a kidney because of a harmless benign cyst, and lymph node excision only reduced my PSA for a few months. Those bad experiences plus a 40 hour RT travel ordeal, possible infection and unsuccessful surgery, cost, and quarrentine requirements when returning to Thailand are keeping me from subjecting myself to the knife again! I thought that UCI and Baylor in Dallas were considered good venues for those surgeries...go figure!

Echotango51 profile image
Echotango51 in reply to ronronHU

Man, I’m sorry to hear that. My surgery did the same thing to me. Read my profile, hopefully my PSA will go up very slowly. I have been fortunate too have good doctors.

I don't know if I can share this here, but I will try to...

stadiumpal.com/product/stad...

Kaliber profile image
Kaliber in reply to vforvendetta

Good info, thanks.

😁😁😁

That "stadiumpal" doesn't work very well when wearing shorts since it's worn around the calf which is the way all the bags are worn! That's why I came up with the belt idea.

Kaliber profile image
Kaliber in reply to ronronHU

Lol … then there’s that

Mama Mia Ronron . Do what you’ve got to do . I sported tubes a foley and 3 bags of piss around for almost two years . I know how it feels to have this shit under the clothes . At least it’s not in side of you . You’re just avoiding leaks . That’s cool .I hope for you that there is No pain involved beyond strapping on the gear . What I like is those 50 minutes in the gym no matter what . Nothing will stop you . Thanks again !

Just out of interest I have gone from numerous trickles day and night to a reasonable pee that actually makes a decent sound in the dunny by taking 2X Solaray Saw Palmetto & Pygeum capsules along with 1X Advance Physician Formulas Beta-Sitosterol daily. I bought from iHerb.com. My prostate is twice as big as it should be and I have a lesion on it which could be cancerous. Going back for more scans soon to see if things are shrinking.

Kaliber profile image
Kaliber in reply to Getz

Well ….uh …. Nearly everyone on this group, cept the ladies …of course …. Either has had their prostrate surgically removed, chemically rendered into spam , or by radiation beams or totally eaten by cancer bugs. My guess is that, for most of us, it’s a little late for saw palmetto style pee management … dunno for sure tho. a large number of us don’t even have the attached ( to our prostrate) genitals as you’d normally recognize / expect …..thanks to ADT treatments. yayahahahaya yayahahahaya. Just the nature of the game here. It’s not that wee are different, we’re “ special “ … that’s what wee are.

Just say’in

Getz profile image
Getz in reply to Kaliber

Sorry mate. I'm obviously in the wrong group as I still have mine, though it has a cancerous lesion on it.

Kaliber profile image
Kaliber in reply to Getz

Count your lucky stars brother … everyone on this group is facing advanced stage 4 prostate cancer which is a death sentence. All of us are at some stage of impending death. It can be kinda gloomy here , if you aren’t advanced stage 4 , you’d probably rather find a more suitable group with guys with similar problems.

You are welcome here , of course. I think there are other cancer groups of different types on this site as well, you might check them out too.

Peace brother ❤️❤️❤️

I find pads are excellent.

ronronHU profile image
ronronHU in reply to Poowater

Don't they keep everything down there wet? Do you have to wear plastic underwear with them? Are they not costly?

We have a drawer full of complimentary condom catheters of various sizes and accessories, mostly unopened, because my husband had me order size small. We could not get it to fit on and unrolled as it was way too tight. He had underestimated his girth so we got the cardboard sizing chart instead of the printed paper one to be more accurate. It made for an interesting afternoon as we wanted to give the contraption a test run for road trips.

The company sent out more complimentary sizes which he has since refused to try again.

However, knowing how my guy operates, if I suggest the wheel bearing lubrication idea, he might just go for that. He used to like working on cars with his buddies. Thanks for the tips and keep them coming!

ronronHU profile image
ronronHU in reply to Grumpyswife

Love your reply! Obviously 'Grumpy' is well hung even though his thing may be as worthless as mine!

Kaliber profile image
Kaliber in reply to ronronHU

Lol

ronronHU profile image
ronronHU in reply to Grumpyswife

Mary,

I am so sorry to hear what John has been through in his battle with this sh*t! We are both the same age; however, he was diagnosed three years before I was. I am very happy to still be around after reading all of the horror stories on this site.

We both had radical prostatectomies; mine was robotic which is basically the same as laparoscopic except for the fact that the surgeon operates the instruments from a remote console. You stated that John had subsequent brachytherapy which I don't quite understand since he had no prostate to insert the seeds into?

Grumpyswife profile image
Grumpyswife in reply to ronronHU

We also feel fortunate that John is alive and enjoying life. He has found Myrbetriq to be helpful for controlling frequent urination. Also Megestrol for nighttime hot flashes.

John had daVinci laparoscopic RP in Florida before insurance would pay for it. We had to pay out of pocket. Some people on here feel open surgery may have been more curative.

The brachytherapy seeds were planted in his prostate bed along with some boost radiation to the area.

I will reread your history.😀

ronronHU profile image
ronronHU in reply to Grumpyswife

Mine was also done via the daVinci robot in 2004; however, Medicare paid for it. I think it was billed at about $100K which of course Medicare paid only a fraction of.

My brother had conventional "open" surgery 20 years ago and he never had BCR.

Kaliber profile image
Kaliber in reply to Grumpyswife

Yayahahahaya good info and funny . I wonder if I can get my wife to fit me for that prosthetic…. A few times yayahahahaya.“ a little to the left, there, dear !!! “

😂😂😂❤️❤️❤️

Kaliber profile image
Kaliber in reply to Kaliber

I showed this to my wife and she laughed out loud …. She mumbled something that sounded like “ dreamer “ … not sure.

😂😂😂😂

Have you tried a Wiesner incontinence clamp or similar device. I found it very useful after prostatectomy. It's a more sophisticated way of putting a peg on your penis.

ronronHU profile image
ronronHU in reply to Graham49

My doctor recommended the 'Cunningham Clamp' which IMO looks grossly uncomfortable. I haven't tried any of them; however, the 'Wiesner' does appear to be somewhat smaller. Have you tried any others, and do you find this one to be the best solution?

Grumpyswife profile image
Grumpyswife in reply to ronronHU

The Cunningham clamp works. My husband used them for a few years.

He didn’t like the plastic ones. It takes longer to go with having to release it and reset it. They cost about $40 each on eBay or Amazon. The foam wears down eventually. I found a way to replace the foam inexpensively but then he quit using the clamp abruptly because Myrbetriq improved his situation so much.

Kaliber profile image
Kaliber in reply to ronronHU

I tried those little plastic clothespins, but , like you said …. they are uncomfortable. Plus, those tiny ones that come in Barbie playhouses are hard to find.

Just say’in 😂😂😂❤️❤️❤️

CAMPSOUPS profile image
CAMPSOUPS in reply to Kaliber

No worries. I got it covered.

perfect clothes pin
Kaliber profile image
Kaliber in reply to CAMPSOUPS

That’s the ones …who knew you use them too !!!! Herze an extra hint : buy a pair of those mink lined tweezers for comfort as well. Helps with applying those pesky clothes pins and sooooo soothing too. ( j-o-h-n recommended the mink tweezers from vast personal experience and he was right )

😁😁😁😁😁

ronronHU profile image
ronronHU in reply to CAMPSOUPS

That one would be perfect for my schwantz! I may have to put a little padding in it to make it more comfortable. Where can I buy them?

Grumpyswife profile image
Grumpyswife in reply to ronronHU

The clamp has several teeth settings to customize the amount of squeezing to make it more comfortable.

RS265 profile image
RS265 in reply to ronronHU

Hi, I totally recommend the Weisner clamp and tried several others before buying it. It is comfortable and effective. I have used it on long haul flights, bike riding, Pilates workouts and skiing. It freed me from the leg bag/condom and that dammable adhesive when the condom has been on too long,. Ultimately had an AUS implant but carry the Wiesner whenever I travel in case of unexpected AUS failure.

ronronHU profile image
ronronHU in reply to RS265

Thank you for your informative reply!

Graham49 profile image
Graham49 in reply to ronronHU

The Wiesner is the only one I tried. I kept the Kegels up and eventually stopped using it.

ronronHU profile image
ronronHU in reply to Graham49

WOW! That's great news; however, the Kegels never seemed to help me.

Graham49 profile image
Graham49 in reply to ronronHU

For ages I was not doing the Kegels correctly. When you are ding them correctly it feels a bit like you are pulling your anus up into your abdomen. Good luck.

ronronHU profile image
ronronHU in reply to Graham49

Do you elevate your butt as high as you can?

Graham49 profile image
Graham49 in reply to ronronHU

Not particularly. I am doing some as I sit down now. You are trying to contract the muscles between your your anus, your testicles and the cheeks of your butt. If you had diarrea and was trying to make it to the toilet, you would probably do this naturally.

ronronHU profile image
ronronHU in reply to Graham49

Got it...I thank you!

Since I am having very little leakage while wearing the catheter condom and urine bag, I tried something different tonight while spending almost an hour in the gym. I just used a conventional condom to see if it would reduce the leakage. Much to my surprise I was able to complete my 25 minute cross trainer routine, bench presses, lat pulldown machine exercises with 125 lbs, and chest fly machine exercises without going to the toilet. I still don't understand why a condom pretty much stops the leakage when I normally had to change my unconventional paper towel & plastic bag 'Rube Goldberg' getup three times?

Compression maybe the answer.

ronronHU profile image
ronronHU in reply to noirhole

The condoms are not very tight since they don't make them small enough for my pathetic, little schwantz. ("Schwantz: Slang-ish German word for the male organ.")

I have the opposite problem (I retain urine), so I use an in dwelling (Foley) catheter 24/7. However, I only wear a bag at night. The rest of the time I plug the end of the cath and remove said plug when I have to urinate. My frequency is the same as anyone else’s with normally functioning urethra. I have been told by my urologist that my solution would work equally well if I were incontinent.

I change my catheter every three weeks, and over the course of 5yrs, I have never had a UTI. Cheap and trouble-free. Plus, if a penis is what a man pees through, then I now have an eleven inch penis. Attitude, gentlemen. Attitude.

ronronHU profile image
ronronHU in reply to FourString

After reading your reply I don't know if I should laugh or cry!

FourString profile image
FourString in reply to ronronHU

Nothing to cry about.

Kaliber profile image
Kaliber in reply to ronronHU

Lol

Kaliber profile image
Kaliber in reply to FourString

Lol

maley2711 profile image
maley2711 in reply to FourString

what type of plug for end of cath tube...could you just use on/off plastic valve instead?

FourString profile image
FourString in reply to maley2711

I tried the valve approach. I prefer the plug. No moving parts to get funky with urine particulates.

My catheter plug in action.
ronronHU profile image
ronronHU in reply to FourString

Bro,

I'm not quite sure I understand the "plug" system that you are using? Are you using just the condom and no bag?

FourString profile image
FourString in reply to ronronHU

No condom. I use an in dwelling (Foley) catheter with no bag during the day. I use a bag at night so I don’t have to get up and pee. I just plug the end of the catheter during daytime use. PLUS: I can unplug and write my name in cursive in the snow due to improved articulation of the urine stream.

FourString profile image
FourString in reply to maley2711

Safety tip when using a catheter plug: pinch off the funnel-like part of the catheter just behind the plug BEFORE removing. Very neat and clean.

ronronHU profile image
ronronHU in reply to FourString

Thank you!

This may be just the thing I’ve been looking for. ThNk you very much!!

I'm leaking very little while wearing the condom and bag so I have been trying just conventional condoms which are also greatly reducing urine loss. I'm still tying to figure out why since none of the condoms fit my teeny schwartz very tightly? During an hour workout in the gym only a couple of drops enter the bag.

Try a woman's lips to seal the deal.............. (Kills two birds with one stone)....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/16/2021 10:43 PM DST

Awesome! Back when I had my RP, post surg they supplied me with two pee bags, a small 1 liter bag that strapped to my lower leg for daytime usage, and a larger 5 liter bag for nighttime/bedtime use . It hung over the edge of the bed and was lower than me. Each had a petcock to empty the urine in the bottom. The hose/tube was about three feet long, and adjustable.

It was unique to be able to sometimes empty the smaller leg bag. Put leg side foot up on a large planter in the mall and pretend to be tying my shoe, open the petcock just below the pants cuff, and water the bushes!

Long distance truck drivers learned to use condom catheters and leg bags years ago, to increase driving distances without stopping.

Today I only have stress incontinence, which I use pads for. Besides, there is no condom small enough for this little, withered exit tube now.

Good luck with your devices and recovery!

ronronHU profile image
ronronHU in reply to Cancer2x

I'm leaking very little while wearing the condom and bag so I have been trying just conventional condoms which are also greatly reducing urine loss. I'm still tying to figure out why since none of the condoms fit my teeny schwartz very tightly? During an hour workout in the gym only a couple of drops enter the bag.

Cancer2x profile image
Cancer2x in reply to ronronHU

I think as long as the rim even slightly compressed the urethra on the underside of your penis it might be just enough to retard the flow of urine. Good luck!

ronronHU profile image
ronronHU in reply to Cancer2x

Kinda like the clamps. Thanks!

maley2711 profile image
maley2711 in reply to Cancer2x

rubber band??

ronronHU profile image
ronronHU in reply to maley2711

I put several rubber bands on my paper towels and plastic bag getup, bit still have significant leakage.

maley2711 profile image
maley2711 in reply to ronronHU

I meant a rubber band in lieu of clamp, etc to restrict urethral flow ? Or maybe restrict blood flow too much> wouldn't seem any worse than a clamp?

Well that was funny. I enjoyed reading your post. You see the problem I have is everything falls off. I tried to convene catheter and getting it to stay on is the problem I’ve even gone down in size & used extra glue. Also tried a few different types of clamp. One of them was a spring loaded metal thing that someone into S&M would be delighted with. As well as being incontinent I also have overactive bladder and retain. Go figure who can have one when you can get all three. When I sit down my small stubby penis disappears into me and the leaking dissolves’s the glue. The clamps come off the same way. I’ve learned to live with the pads but am going to try the condom catheter again as it would be useful. BTW the bags come in a 250 ml that you can stick to your upper leg. They are for exactly your need. Workouts, short flights etc.

Conveen active 250ml
ronronHU profile image
ronronHU in reply to Bcgkelly

Greetings Bro,

Thank you for your interesting reply! I read your profile and I'm sorry to hear about what you have been going through at your youthful age.

Keeping condoms on my useless, little schwantz is also a problem; however, I found that a couple of small rubber bands and tight fitting briefs help. If I can find anything that helps them stay on place better I will surely apprise you.

Best,

Ron

o
Grumpyswife profile image
Grumpyswife in reply to ronronHU

Those are exactly the kind of undapants that my husband used to wear! I used to call him quick draw McGraw from an old cartoon character as he was in and out of the bathroom in a flash. I would always have to ask him, "Did you wash your hands?" He was that fast. Those were the days! I have saved a couple of the most colorful tighties for the memories.

Regarding your rubber band idea, just the thought of it hurts. Why not check out Dollar Tree for womens pony tail binders that are very thick and well padded. They won't do as much damage as rubber bands and you can usually get several for a dollar so you can change them often.

This has been a great, fun and informative post.

ronronHU profile image
ronronHU in reply to Grumpyswife

Thank you Mary for the suggestion. The rubber bands haven't been a problem yet since I normally put some tissue or paper towels under them, plus they are not very tight. However, your "pony tail binder" idea sounds like a winner. We don't have 'Dollar Tree' stores here, but we do have similar DIY (Do It Yourself) stores that I absolutely love and spend hours in. They recently built one not far from my condo that must be about 20,000 sq. ft.

Would this work at night for those of us who have toget up every hour or so?

ronronHU profile image
ronronHU in reply to Joey40

Joey, Are you incontinent or do you have BPH (enlarged prostate) which prevents you from emptying your bladder when you go? Do you still have your prostate? If you do your problem is totally different from mine where my RP left me with the leakage problem. It kinda sounds like you have BPH.

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