I'm confused regarding Lifelong ADT vs. Adjuvant ADT, what my options are.
Recently at the Mayo - please read my profile, it's a quick read. I met with Kwon and he indicated I could end ADT in 6 months (that was in September). OK, that confused me as he initially told me 2 years when he originally recommended it, then on my last visit clarified that meant 2 years after the start of chemo. My first Lupron injection was on the last day of chemo. Currently my PSA remains undetectable. He also said I could remain on ADT as many men stay on it for years, but that his assistant had some exciting news for me.
Then I met with his assistant Madison, who is involved with the VISION Trial and she indicated that I was eligible for LU177 treatment. She explained what they know and I have my doubts about the VISION trial but recognize the LU177 is used worldwide.
So some questions:
I'm clearly on Adjuvant ADT - if I can remain on it for years as Kwon suggests is possible, what is the differentiation from lifelong ADT? (sorry I searched here and googled. Can't find the differentiation)
I assume if I discontinued ADT, I would wait until cancer reveals itself again, then undergo the LU177. That could be weeks, months, years(HA!).
What if it fails, have I opened myself up to Castrate Resistant PC since I stopped ADT?
What options would I have then?
What if it succeeds? How long is it expected to last before needing treatment again? Seems results, or rather repeat visits are all over the place.
As you can probably tell, I'm a bit scared to act as actions have consequences and those if/then scenarios aren't always answered by doctors.
I'm in no hurry and plan on remaining on Lupron beyond the next 6 months until I learn more, assuming it's still working.
I appreciate your help/ input.
FWIW, I don't know what kind of PC I have. I don't think insurance covers the genome analysis.