Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,442 members • 26,861 posts

All posts for April 2018

What to try next?

My dad is 71 yo, stage IV, mets to sacrum, one rib and shoulder. He’s done basically every approved treatment. Showed good progress on Xtandi for 9 months...

My dad is 71 yo, stage IV, mets to sacrum, one rib and shoulder. He’s done basi...

Damusolf

•6 years ago

19 Replies

Slow recovery from Chemo, Round 4, Session 2

PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from the nadir at 1.45 on 12/19/16, 2017 was a year of steady increases and a bunch...

PSA 1124, Age 59, Stage 4, Dx 3-22-16 So after watching my PSA slowly climb from...

ontheroad589

•6 years ago

4 Replies

One Good Attribute of PCa

This bad boy takes its time killing you....my wife's hairdresser's father was healthy and never went to the doctor....was a vegetarian and walked 3 miles a...

This bad boy takes its time killing you....my wife's hairdresser's father was he...

gusgold

•6 years ago

15 Replies

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Cyanide Kills PCa But It Looks Like Cyanidin Works Too By Raising Levels of SIRT6

I am keeping a 300mg cap of cyanide in case I face the morphine drip...right now I am trying Cyanidin Gus...

I am keeping a 300mg cap of cyanide in case I face the morphine drip...right now...

gusgold

•6 years ago

2 Replies

Surgeon/writer Sherwin Nulands' thoughts on his advanced stage prostate cancer - short video's

Five Minute Video of Sherwin Nuland describing his reaction to advanced prostate cancer and three minute video on how he thinks about death....

Five Minute Video of Sherwin Nuland describing his reaction to advanced prostate...

Darryl

Partner•6 years ago

3 Replies

Foods/Supplements-Vitamins: Luteolin.

Luteolin (not lutein) is a polyphenol. It is a flavone (in the flavonoid sub-family). It is found, along with apigenin - another flavone, in parsley &......

Luteolin (not lutein) is a polyphenol. It is a flavone (in the flavonoid sub-fa...

pjoshea13

•6 years ago

7 Replies

New to this Site

My husband, 66 years old, was diagnosed in August 2016 with metastastic prostate cancer. It was in the pelvic area, spine, ribs and right shoulder. He was...

My husband, 66 years old, was diagnosed in August 2016 with metastastic prostate...

phelie

•6 years ago

6 Replies

Is localized treatment possible under the guidance of a medical oncologist who lives miles away from me?

New here, one previous post. Age 72, Gleason 9, prostatectomy in February 2018, 2 of 12 lymph nodes positive. PET scan this week in Nashville to determine...

New here, one previous post. Age 72, Gleason 9, prostatectomy in February 2018,...

Balsam01

•6 years ago

6 Replies

Lymph Node Dissection [LND] & Salvage Radiotherapy [sRT].

New Mayo study below [1]. For article, see [2]. When radical prostatectomy (RP) is a primary treatment option, it offers better 10 year survival than...

New Mayo study below [1]. For article, see [2]. When radical prostatectomy (RP)...

pjoshea13

•6 years ago

12 Replies

Rechallenge with Xtandi

I have been in this battle for almost six years (please see bio for complete treatment history). Last chemo Docetaxel/Carboplatin chemo cycle was 1/9/18 and...

I have been in this battle for almost six years (please see bio for complete tre...

vandy69

•6 years ago

10 Replies

Lupron, Look on the Bright Side

Lupron Disadvantages: Impotence, Muscle-wasting, weight gain, pain, brittle fingernails; hot flashes, brain fog, hair loss, etc... Lupron Advantages: My...

Lupron Disadvantages: Impotence, Muscle-wasting, weight gain, pain, brittle fin...

EricE

•6 years ago

54 Replies

Nicotinamide Riboside a NAD+ Booster Works...Can NAD+ Prevent Metastasis and Slow Tumor Growth

NAD+ levels decline with age and if you read the studies NAD+ Boosters (Niagen) are way more effective than resveratrol because resveratrol has a real short...

NAD+ levels decline with age and if you read the studies NAD+ Boosters (Niagen) ...

gusgold

•6 years ago

4 Replies

"AGE" & "STAGE"...and maybe date of diagnosis...

me 61, stage 4 wouldn't it be great if everyone started their comments or posts...with their age and stage...so that we can see if they are really "comparable"...

me 61, stage 4 wouldn't it be great if everyone started their comments or posts....

greatjohn

•6 years ago

58 Replies

Resistance training impact on ADT symptoms.

New study below. "Prostate cancer patients on androgen deprivation therapy (ADT) experience adverse effects such as lean mass loss, known as sarcopenia, fat...

New study below. "Prostate cancer patients on androgen deprivation therapy (ADT)...

pjoshea13

•6 years ago

4 Replies

HGPIN & Statins.

New study below. In a recent thread on 5alpha-reductase inhibitors (e.g. Avodart/Dutasteride), which can dramatically reduce the incidence of indolent...

New study below. In a recent thread on 5alpha-reductase inhibitors (e.g. Avodart...

pjoshea13

•6 years ago

3 Replies

PC Invasion of My Liver

Just learned this week that my PC has invaded my liver. I was just about to have my 4th infusion for Xofigo (Radium 223). But my scan from last week showed...

Just learned this week that my PC has invaded my liver. I was just about to hav...

Hidden

•6 years ago

15 Replies

Paul Very Sick In Hospital

Hi everyone. Paul has been in hospital since Tuesday morning. We were due in to get his bloods done anyway but we also went in because Paul had developed a...

Hi everyone. Paul has been in hospital since Tuesday morning. We were due in to...

MelaniePaul

•6 years ago

37 Replies

An update post chemo

Hi Folks, its been 5 months since my last post, trying to stay on-board this roller coaster. I was diagnosed as advanced in Oct 2017 (age 60) with PSA of 193...

Hi Folks, its been 5 months since my last post, trying to stay on-board this rol...

jimbob99999

•6 years ago

3 Replies

Xtandi clinical trial experience update

My husband is in a clinical trial with xtandi and mystery drug. We are pretty sure he is in the xtandi plus placebo arm of the trial. He did not have any of...

My husband is in a clinical trial with xtandi and mystery drug. We are pretty su...

StephjoeSteph4197

•6 years ago

3 Replies

A wife's introductory post

EliasJ is my husband and in December of 2015 he was diagnosed with Advanced Prostate Cancer - pT3BM1NO/Gleason 4+3=7. His PSA level then was 1,142 - a...

EliasJ is my husband and in December of 2015 he was diagnosed with Advanced Pros...

EliasJ

•6 years ago

44 Replies

Food, fun & festivities....and Age relevance (I'm 61 & Stage 4)

hmmm. I keep reading on here that so many of the community are either Vegan or Vegetarian. It sounds good. BUT, my whole JOY OF LIFE is eating...I'm not...

hmmm. I keep reading on here that so many of the community are either Vegan or ...

greatjohn

•6 years ago

31 Replies

SSDI/Medicare, I didn't know, Others didn't know, We found out Here!

I am now CRPC or mCRPCa, how ever you want to say it, diagnosed back in April of 2017. I did not realize that I qualified for Social Security Disability...

I am now CRPC or mCRPCa, how ever you want to say it, diagnosed back in April of...

TenscTexan

•6 years ago

34 Replies

ASCO Issues New Guidelines for Optimizing Anticancer Therapy in Metastatic non-CRPC.

"The standard therapy for newly diagnosed metastatic prostate cancer has traditionally been ADT alone. "An expert panel led by Michael J Morris, MD, Memorial...

"The standard therapy for newly diagnosed metastatic prostate cancer has traditi...

pjoshea13

•6 years ago

2 Replies

Hemoglobin.

New Swedish study, below [1]. I don't know what to make of it. I know from my BAT-like protocol that low testosterone [T] causes red blood cell [RBC] levels to...

New Swedish study, below [1]. I don't know what to make of it. I know from my BA...

pjoshea13

•6 years ago

3 Replies

Coffee

My Urologist suggested I stop drinking coffee due to my issues with weak stream, long time to finish and constantly needing to get up in middle of night. Does...

My Urologist suggested I stop drinking coffee due to my issues with weak stream,...

Ewhite99

•6 years ago

5 Replies

Darolutamide Should Be Available in 2018

Good news if you failed Xtandi because Apalutamide has similar chemical structure and Darolutamide does not...Darolutamide works on mutated AR's and AR-V7...

Good news if you failed Xtandi because Apalutamide has similar chemical structur...

gusgold

•6 years ago

14 Replies

Zytiga Co-Pay

Quick question. My wife lost her job recently and with that my coverage on her companies health plan. I decided to purchase a Medical supplement plan F to go...

Quick question. My wife lost her job recently and with that my coverage on her c...

arizonablue

•6 years ago

12 Replies

Looking for radiation Dr in the Columbus Ohio area.

Our treating Dr is in New York at MSK. Husbands scans came back just SARCHOID of spine after biopsy not cancer which was previously stated on MRI. Dr Danilla...

Our treating Dr is in New York at MSK. Husbands scans came back just SARCHOID of...

Armywifedublin

•6 years ago

2 Replies

Serrapeptase/Nattokinase best source and dosing?

Hello. Does anybody have a recommendation for a good company/distributor of serrapeptase and nattokinase supplements. Also, interested in dosing advice. Lots...

Hello. Does anybody have a recommendation for a good company/distributor of serr...

jdm3

•6 years ago

2 Replies

A month of Casodex monotherapy

I did 30 months ADT and stopped, with MedOnc approval, last shot on 03/31/17. Didn't want PCa to go castrate resistant. So, monthly PSA went 0.1- 0.1- 0.2 -...

I did 30 months ADT and stopped, with MedOnc approval, last shot on 03/31/17. D...

dockam

•6 years ago

13 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for April 2018

What to try next?

Slow recovery from Chemo, Round 4, Session 2

One Good Attribute of PCa

Cyanide Kills PCa But It Looks Like Cyanidin Works Too By Raising Levels of SIRT6

Surgeon/writer Sherwin Nulands' thoughts on his advanced stage prostate cancer - short video's

Foods/Supplements-Vitamins: Luteolin.

New to this Site

Is localized treatment possible under the guidance of a medical oncologist who lives miles away from me?

Lymph Node Dissection [LND] & Salvage Radiotherapy [sRT].

Rechallenge with Xtandi

Lupron, Look on the Bright Side

Nicotinamide Riboside a NAD+ Booster Works...Can NAD+ Prevent Metastasis and Slow Tumor Growth

"AGE" & "STAGE"...and maybe date of diagnosis...

Resistance training impact on ADT symptoms.

HGPIN & Statins.

PC Invasion of My Liver

Paul Very Sick In Hospital

An update post chemo

Xtandi clinical trial experience update

A wife's introductory post

Food, fun & festivities....and Age relevance (I'm 61 & Stage 4)

SSDI/Medicare, I didn't know, Others didn't know, We found out Here!

ASCO Issues New Guidelines for Optimizing Anticancer Therapy in Metastatic non-CRPC.

Hemoglobin.

Coffee

Darolutamide Should Be Available in 2018

Zytiga Co-Pay

Looking for radiation Dr in the Columbus Ohio area.

Serrapeptase/Nattokinase best source and dosing?

A month of Casodex monotherapy

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