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Book is now available in print form
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Hi everybody. Pleased to let you know that the book Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide, is now available in print form from PMRGCAuk. Unfortunately at the moment we don't have a way for you to pay for it online. Please write to BM PMRGCAuk, London, WC1N 3XX, enclosing a
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
10 years ago
abnormal blood levels
Hi every1, I signed up about a week ago. Was diagnosed with COPD in 2009. Have been taking Accolate, (zafirlukast) for a long time. am wondering if anyone has had experience of these meds. Now been told I have abnormal blood levels. More tests results next week. I never knew there was a site like this
Hi every1, I signed up about a week ago. Was diagnosed with COPD in 2009. Have been taking Accolate, (zafirlukast) for a long time. am wondering if anyone has had experience of these meds. Now been told I have abnormal blood levels. More tests results next week. I never knew there was a site like this
oldkath
in
Lung Conditions Community Forum
10 years ago
I've now seen a gastro consultant who thinks it's my stomach not working properly that makes me ill, not my herniated liver.
I've now got to have a test which is similar to a barium swallow to see if my stomach can empty properly. He thinks that this may be causing my symptoms! He's not sure if it is my liver. The consultants just won't refer me to a liver specialist!
I've now got to have a test which is similar to a barium swallow to see if my stomach can empty properly. He thinks that this may be causing my symptoms! He's not sure if it is my liver. The consultants just won't refer me to a liver specialist!
Hidden
in
British Liver Trust
10 years ago
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Angry
Ive been given a caution at work today fir time off illness operation etc, I work for the nhs go figure? Ive contacted my union im so angry apparently its policy. Anybody else had shocking treatment at work. I wanted the thump the woman from hr today, she said sorry but it's policy, I wonder if she has
Ive been given a caution at work today fir time off illness operation etc, I work for the nhs go figure? Ive contacted my union im so angry apparently its policy. Anybody else had shocking treatment at work. I wanted the thump the woman from hr today, she said sorry but it's policy, I wonder if she has
fibobs79
in
Endometriosis UK
10 years ago
Hi! I'm new here and was looking for some advice and answers! All reply's are gratefully received!
Hello there! I was diagnosed very recently with EDS after asking my doctor to be referred to a rheumatologist. She also told me I had quiet severe fibromyalgia, something I'd never heard of before. After doing some research and reading the pamphlets she gave to me, I had a few questions which I think
Hello there! I was diagnosed very recently with EDS after asking my doctor to be referred to a rheumatologist. She also told me I had quiet severe fibromyalgia, something I'd never heard of before. After doing some research and reading the pamphlets she gave to me, I had a few questions which I think
EmmyJ
in
Fibromyalgia Action UK
10 years ago
recovered from brain fog caused from root canals after 9 years http://www.westonaprice.org/dentistry/root-canal-dangers-Streptococcus mutans
drugged by psychiatrist for nine years because of root canals and brain fog, finally got the clarity I dreamed of having, But I see psychiatrist don't want to see someone recover without "Happy Pills", they prefer to diagnose someone "delusional", Claim there pills cleared my brain fog, "stop blaming
drugged by psychiatrist for nine years because of root canals and brain fog, finally got the clarity I dreamed of having, But I see psychiatrist don't want to see someone recover without "Happy Pills", they prefer to diagnose someone "delusional", Claim there pills cleared my brain fog, "stop blaming
Aseffa_D
in
Thyroid UK
10 years ago
Dla mandatory review
Hi, Just had a decision back from a mandatory review from Dla saying that nothing has changed in my condition since 2012. I was rewarded the middle rate care back in December last year until December next year . But I really struggle getting out. I wrote them a 6 sided a4 letter about my difficulties
Hi, Just had a decision back from a mandatory review from Dla saying that nothing has changed in my condition since 2012. I was rewarded the middle rate care back in December last year until December next year . But I really struggle getting out. I wrote them a 6 sided a4 letter about my difficulties
michphil
in
Fibromyalgia Action UK
10 years ago
Emotional intelligence? Anyone worked with emotional patterning that MAY be 'associated' with lupus?
A spark of light/nudge to my ego/ hint of truth gave me opportunity and challenge to honestly acknowledge patterns that were no longer helpful but adding to 'stress' in my daily life. "Over whelm, giving up, difficulty in standing up for myself.." is turning into "I speak up for myself freely and easily
A spark of light/nudge to my ego/ hint of truth gave me opportunity and challenge to honestly acknowledge patterns that were no longer helpful but adding to 'stress' in my daily life. "Over whelm, giving up, difficulty in standing up for myself.." is turning into "I speak up for myself freely and easily
oaktree
in
LUPUS UK
10 years ago
no weight loss
Can't even think of losing weight at the minute, my husband has been told he probably has the big C, has had barium swallow, scan and endoscopy now and get the official diagnosis on Thursday. I feel like my life is on hold and can't imagine how he is feeling. Been eating whatever is to hand in the
Can't even think of losing weight at the minute, my husband has been told he probably has the big C, has had barium swallow, scan and endoscopy now and get the official diagnosis on Thursday. I feel like my life is on hold and can't imagine how he is feeling. Been eating whatever is to hand in the
christine-smith20
in
Weight Loss Support
10 years ago
My neurosurgeon wants me to take Elavil for pain. He said he would start me on 10 mg and then increase jut to 25 mg if needed. Is there a
less chance of getting side effect from Elavil with this low dose?
less chance of getting side effect from Elavil with this low dose?
mturn62
in
Pain Concern
10 years ago
cont.. dwp v fibro
Hi Today after 12 month of fighting with dwp and getting back onto esa I received a new medical assessment form so we go back to the start again dwp seem to want to put me in a early grave all the stress has my fibro the worst its been for many year I am now having flashbacks to my childhood which I
Hi Today after 12 month of fighting with dwp and getting back onto esa I received a new medical assessment form so we go back to the start again dwp seem to want to put me in a early grave all the stress has my fibro the worst its been for many year I am now having flashbacks to my childhood which I
sally200469
in
Fibromyalgia Action UK
10 years ago
Would it be giving in or up?
I've had Fibro for 20 years now, and coped with it as best I could, worked until a few years ago when everything just hit the fan and I couldn't cope any more and was always ill. Since then I've been on IB and now ESA and receive DLA, and I liked to think I was coping pretty well. Lately I've realised
I've had Fibro for 20 years now, and coped with it as best I could, worked until a few years ago when everything just hit the fan and I couldn't cope any more and was always ill. Since then I've been on IB and now ESA and receive DLA, and I liked to think I was coping pretty well. Lately I've realised
Artyrosie
in
Fibromyalgia Action UK
10 years ago
Has anyone ever been prescribed Trazodone for depression & anxiety?
I've been waiting since December for a psychotherapy appointment and just got a letter to say I should hear in the next 18 weeks!!! It's just got too much so I've been at the GP this morning all weepy. I can't sleep and now that I'm back working being so tired is stressing me out. I think too much so
I've been waiting since December for a psychotherapy appointment and just got a letter to say I should hear in the next 18 weeks!!! It's just got too much so I've been at the GP this morning all weepy. I can't sleep and now that I'm back working being so tired is stressing me out. I think too much so
NWG23
in
Fibromyalgia Action UK
10 years ago
Has anyone tried trihexyphenidyl, procyclidine or orphenadrine ? If so any help?
Dad has had some benefit from the hyoscine patches in terms of improving movement and speech at first, but now they just help with swallow mainly. The patch gives too much of a rash so we may give one of these a try, just thought I'd see if anyone else had tried? It is for Parkinson's really.
Dad has had some benefit from the hyoscine patches in terms of improving movement and speech at first, but now they just help with swallow mainly. The patch gives too much of a rash so we may give one of these a try, just thought I'd see if anyone else had tried? It is for Parkinson's really.
daughter_Julie
in
PSP Association
10 years ago
I have had mild Raynauds symptoms since age 40. I have noticed significant increase in symptoms this past year. I have had stress and also
Estrogen therapy. Any link?
Estrogen therapy. Any link?
Ema2
in
Scleroderma & Raynaud's UK (SRUK)
10 years ago
Hello all! I am new to this site but I wondered if I could have your help, its regarding Occupational Therapy for Ataxia?
Hello, I am a 2nd year student of Occupational Therapy at University. My older brother has Friedreich's Ataxia and just wanted to live as independently as possible, which inspired my career choice. I am presenting in front of the University Lectures about Ataxia, however relating to Occupational Therapy
Hello, I am a 2nd year student of Occupational Therapy at University. My older brother has Friedreich's Ataxia and just wanted to live as independently as possible, which inspired my career choice. I am presenting in front of the University Lectures about Ataxia, however relating to Occupational Therapy
heather778
in
Ataxia UK
10 years ago
My 22yr old son was diagnosed with Pulmonary Langerhans Cell Histiocytosis. Anyone suffering from this and what treatments are you doing?
MLinder
in
Lung Conditions Community Forum
10 years ago
Raynoids and under active thyroid with ingrowing toenail?
I think I have a ingrowing toenail my toe is very painful is it ok for me to try dig this out myself with raynauds and under active thyroid or should I be going to a doctor to do it x
I think I have a ingrowing toenail my toe is very painful is it ok for me to try dig this out myself with raynauds and under active thyroid or should I be going to a doctor to do it x
Emma020884
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
My husband has has a barium swallow test today as he has been having trouble swallowing even fluids he is 15 mths post op ivor lewis .
He now has to have a ct scan because they have found a stricture in the upper part of is oesophugus. At the back of the throat now am worried the cancer has returned is this possible
He now has to have a ct scan because they have found a stricture in the upper part of is oesophugus. At the back of the throat now am worried the cancer has returned is this possible
Wassell
in
Oesophageal & Gastric Cancer
11 years ago
Nocturia is this another worry or just part of the long game .. I can see from all of the group stress of Christmas has set flares off .
Dopeydillis
in
LUPUS UK
11 years ago
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