I've had Fibro for 20 years now, and coped with it as best I could, worked until a few years ago when everything just hit the fan and I couldn't cope any more and was always ill. Since then I've been on IB and now ESA and receive DLA, and I liked to think I was coping pretty well. Lately I've realised that my life is incredibly limited, but thats at least in part my own fault!! I rarely go anywhere, but always with my husband when I do because he can drive me, and I've lost confidence in walking on my own. Anyway it HURTS! I've got a manual wheelchair which we bought for holidays and going to big exhibitions etc where there's just too much walking, but I can't propel it myself because my hands and arms are just too sore. I also have a scooter I never use because I can't get it out of the garage without help, and anyway holding down the lever to propel it hurts as well. I can only get it out when himself is at home, at which point I don't need it because he will take me. I have tried to keep walking - am afraid it may be use it or lose it - and am working with a physio, which doesn't seem to be producing results, and uses up too many spoons. The bald fact and bottom line is that I almost never go anywhere, and am becoming STIR CRAZY!
I've seen a power chair which would be perfect for me - if I could afford it. Can't use my DLA to fund it as our car is motability so no allowance left to buy one. I could probably borrow the money except for a mental block - would becoming a regular wheelchair user be a whole new lease of life, or would it mean I was giving up? Maybe this is all to do with a bad attitude to disability and false pride, and I know I do this "isn't it marvellous how she copes" thing, which doesn't reflect the reality. Sorry, I know I must sound like I'm rambling .... but I need perspective on this.