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Vitamin B12 / Folic acid
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Injecting with out of date B12 ampules
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
Cetus
in
Pernicious Anaemia Society
7 months ago
Peripheral neuropathy
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
puppy43
in
CLL Support
7 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
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Private testing for B12 and MMA (UK)
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Shoe2
in
Pernicious Anaemia Society
7 months ago
Dizziness
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Catsmud
in
Pernicious Anaemia Society
7 months ago
VIT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW 528 L
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
LeaKolo
in
Pernicious Anaemia Society
7 months ago
First three weeks on Prednisolone !
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
It has been a slow start on prednisone for PMR, after three weeks there is improvement apart from right shoulder still painful, doctor thinks that could be something else, that could do with some physio . I am still feeling anxious taking the medication. Saw the doctor yesterday they have strongly
Mistyfied
in
PMRGCAuk
5 months ago
shortness of breath subsequent to zoledronic acid infusion
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Because of GI problems, bisphosphonate tablets are not an option for me, so I have gone down the infusion path. I had my first infusion on December 28th, and experienced about three days of bad muscle pain, which then resolved itself. It was a couple of weeks later that I noticed that my ankles were
Angel_doll
in
PMRGCAuk
5 months ago
Alendronic Acid and ears
I have chronic ear ache in one ear - seeing private consultant soon- audiologist thinks may be bones problem. Have takes AA for 5 years. Saw on Google could damage ears like jaw - believe should not take before and after extraction. It’s rare - should I stop AA for now - scans showed bone density borderline
I have chronic ear ache in one ear - seeing private consultant soon- audiologist thinks may be bones problem. Have takes AA for 5 years. Saw on Google could damage ears like jaw - believe should not take before and after extraction. It’s rare - should I stop AA for now - scans showed bone density borderline
Daffodilia
in
PMRGCAuk
5 months ago
my story
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
Beadbuddy
in
Pernicious Anaemia Society
7 months ago
Normal B12 levels?
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
Could this be the beginning of something good for B12 in the UK ?
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
https://www.ukri.org/who-we-are/how-we-are-doing/research-outcomes-and-impact/bbsrc/better-b12-safer-and-sustainable-production/ Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ? Whilst living in Crete for 15 years I was able to buy 3 phials
Marz
in
Pernicious Anaemia Society
7 months ago
Endometriosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Women's Health
5 months ago
Endo diagnosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Endometriosis UK
5 months ago
Frequency
Someone posted that some of us inject 2 to 3 times a day. I was going to comment some of us inject 4 times a day but never found that comment again. I personally did trials of 1.2,3,4 times a day. Other than the 4 times a day it was about getting more B12. Then it came to me that more frequent might
Someone posted that some of us inject 2 to 3 times a day. I was going to comment some of us inject 4 times a day but never found that comment again. I personally did trials of 1.2,3,4 times a day. Other than the 4 times a day it was about getting more B12. Then it came to me that more frequent might
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
zoledronic acid infusion and osteoarthritis
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
Radars
in
Bone Health and Osteoporosis UK
5 months ago
Re-reading Martyn Hooper
Hi Guys I have had such an extraordinary week chatting with you on this forum that my head is buzzing with PA questions! I am having a PA review and research day today. I am revisiting "[i]What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY[/i]" by our wonderful Martyn Hooper. The following
Hi Guys I have had such an extraordinary week chatting with you on this forum that my head is buzzing with PA questions! I am having a PA review and research day today. I am revisiting "[i]What you need to know about PERNICIOUS ANAEMIA AND B12 DEFICIENCY[/i]" by our wonderful Martyn Hooper. The following
Wwwdot
in
Pernicious Anaemia Society
7 months ago
Funny Mix?
Hi Folks For over two years i have been searching for a diagnosis to my long held symptoms, hence my arrival here. I have been living with classic low thyroid symptoms for many years i fear. I am basically half dead half of the time, and mostly dead the rest. Anyways - above is a Nuffield
Hi Folks For over two years i have been searching for a diagnosis to my long held symptoms, hence my arrival here. I have been living with classic low thyroid symptoms for many years i fear. I am basically half dead half of the time, and mostly dead the rest. Anyways - above is a Nuffield
Treesong2023
in
Thyroid UK
7 months ago
Waking feeling tense since change of B12
Wondering if I should change b12. Since switching to Pascoe hydroxo ampoules from Dr Myhill's hydroxo vial, when I wake in the morning my body is full of tension / tense energy. I feel like I want to have a round on a punch bag to release all the tension and agitation. Whilst my body is feeling this
Wondering if I should change b12. Since switching to Pascoe hydroxo ampoules from Dr Myhill's hydroxo vial, when I wake in the morning my body is full of tension / tense energy. I feel like I want to have a round on a punch bag to release all the tension and agitation. Whilst my body is feeling this
Sunnysidoop
in
Pernicious Anaemia Society
7 months ago
Any expert eyes make any sense of these results
Hi I am writing to my GP today to ask for B12 injections to increase my levels to top 25% of range and support my clearly wonky thyroid activity. If anyone has any observations whatsoever regarding my blood results over the last 18 months I would be truly grateful ! I will attach results in next
Hi I am writing to my GP today to ask for B12 injections to increase my levels to top 25% of range and support my clearly wonky thyroid activity. If anyone has any observations whatsoever regarding my blood results over the last 18 months I would be truly grateful ! I will attach results in next
Spritze
in
Thyroid UK
7 months ago
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