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Vitamin B12 / Folic acid
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Confusing first results on T4/T3
Hi all, I'm reposting this as I didn't get any replies 😊 Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite
Hi all, I'm reposting this as I didn't get any replies 😊 Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite
Cassav
in
Thyroid UK
2 months ago
Reaction to B12 injection?
I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due but this time it didn't. I felt ill about an hour after the jab, severely dizzy, bit of a headache. I'm not sure if this is a sign I've had more B12 than I need? I'm a bit scared to run it by the GP as one time they stopped
I have B12 jabs every 4 months, usually PA neuropathy flares up when it's due but this time it didn't. I felt ill about an hour after the jab, severely dizzy, bit of a headache. I'm not sure if this is a sign I've had more B12 than I need? I'm a bit scared to run it by the GP as one time they stopped
Ix49
in
Pernicious Anaemia Society
2 months ago
Guide for medical practitioners and providers regarding B12 (NICE) Guidelines.
1, https://www.nice.org.uk/guidance/ng239/documents/draft-guideline 2. https://www.bmj.com/content/383/bmj-2022-071725 MaryF
1, https://www.nice.org.uk/guidance/ng239/documents/draft-guideline 2. https://www.bmj.com/content/383/bmj-2022-071725 MaryF
MaryF
Administrator
in
Hughes Syndrome APS Forum
2 months ago
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Notes
This is my current system of keeping track of injections. When I first started and was experiencing severe symptoms including brain fog I took a piece of paper and wrote dates on a single page. I would then inject and take the syringe and roll it in the paper that way I would know if I had injected.
This is my current system of keeping track of injections. When I first started and was experiencing severe symptoms including brain fog I took a piece of paper and wrote dates on a single page. I would then inject and take the syringe and roll it in the paper that way I would know if I had injected.
WIZARD6787
in
Pernicious Anaemia Society
2 months ago
Reset - depleted
I talk about doing well after daily injections for 3 years. This is true. however I went to Italy, walked 9 hours a day, plus wine daily. The two things that can surely deplete B12 ... AND had forgot my B12!!! I thought 12 days without it wouldn't matter. Wrong! All my symptoms returned.
I talk about doing well after daily injections for 3 years. This is true. however I went to Italy, walked 9 hours a day, plus wine daily. The two things that can surely deplete B12 ... AND had forgot my B12!!! I thought 12 days without it wouldn't matter. Wrong! All my symptoms returned.
B12life
in
Pernicious Anaemia Society
2 months ago
Low B12
My private blood test shows low B12 at 48.1 pmol/l. Is this something my GP should follow up with? I take daily B12 supplements but obviously this isn’t sufficient. Many thanks.
My private blood test shows low B12 at 48.1 pmol/l. Is this something my GP should follow up with? I take daily B12 supplements but obviously this isn’t sufficient. Many thanks.
Maldeerum
in
Thyroid UK
2 months ago
Periodic need for more B12
I'd appreciate knowing your experiences about periodically recognising the need to up your B12 injections? My journey has lasted some years and after the initial disasters with GPs dismissing me and becoming very ill, I started to SI. Eventually I found that fortnightly jabs worked brilliantly for me
I'd appreciate knowing your experiences about periodically recognising the need to up your B12 injections? My journey has lasted some years and after the initial disasters with GPs dismissing me and becoming very ill, I started to SI. Eventually I found that fortnightly jabs worked brilliantly for me
Baggy8
in
Pernicious Anaemia Society
2 months ago
NICE 2024 B12
Still trying to decipher the new guidelines. Does anyone know or had a : Cobasorb test? I've never heard of it . Name suggests it tests absorption of Cobalamin
Still trying to decipher the new guidelines. Does anyone know or had a : Cobasorb test? I've never heard of it . Name suggests it tests absorption of Cobalamin
Nackapan
in
Pernicious Anaemia Society
2 months ago
Latest test results, not sure what to do next.
Hi, Please see the recent test results above. I'm feeling mostly ok taking 75mg and 100mg Levothyroxine (Teva - changing brands seems to give me problems) on alternate days but still get days feeling cold and fogged up. From the tests I see that D and B12 are both quite low though I take supplements
Hi, Please see the recent test results above. I'm feeling mostly ok taking 75mg and 100mg Levothyroxine (Teva - changing brands seems to give me problems) on alternate days but still get days feeling cold and fogged up. From the tests I see that D and B12 are both quite low though I take supplements
Grey-Sky
in
Thyroid UK
2 months ago
Importance of vitamin B12
Interesting - Researchers report that depletion of dietary vitamin B12 (which induces propionate breakdown) & propionate supplementation suppress neurodegeneration & reverse Parkinsons-associated transcriptomic aberrations (in C. elegans) https://www.cell.com/cell-reports/fulltext/S2211-1247(24)00193
Interesting - Researchers report that depletion of dietary vitamin B12 (which induces propionate breakdown) & propionate supplementation suppress neurodegeneration & reverse Parkinsons-associated transcriptomic aberrations (in C. elegans) https://www.cell.com/cell-reports/fulltext/S2211-1247(24)00193
Farooqji
in
Cure Parkinson's
2 months ago
Love and B12
A little something I created. How love is so similar and soluble as B12 and they both must be applied consistently and often... I know silly. 😜 Injections of love, akin to B12, Begin their dance, a waltz so true. Once they pierce the skin's embrace, It takes some time to find their place. They wander
A little something I created. How love is so similar and soluble as B12 and they both must be applied consistently and often... I know silly. 😜 Injections of love, akin to B12, Begin their dance, a waltz so true. Once they pierce the skin's embrace, It takes some time to find their place. They wander
Rexz
in
Pernicious Anaemia Society
2 months ago
B12 test results
I know I've been asking a lot of questions lately, trying to figure things out. 🤔 Here's another one!I've seen it commented before than once on injections levels should be over 1000 minimum in order for healing to happen. I also know we are told not to get levels rechecked once on injections. In November
I know I've been asking a lot of questions lately, trying to figure things out. 🤔 Here's another one!I've seen it commented before than once on injections levels should be over 1000 minimum in order for healing to happen. I also know we are told not to get levels rechecked once on injections. In November
Suesue246
in
Pernicious Anaemia Society
2 months ago
New blood test results
Hi all, Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite me reducing my levo and introducing T3. TSH 0.007
Hi all, Please see my first results 6 weeks after introducing T3. I'm on 125mcg of levo and 10mcg of lio. I am very confused because I was certain that my current symptoms were due to being undermedicated! And how can my T4 be top of range again despite me reducing my levo and introducing T3. TSH 0.007
Cassav
in
Thyroid UK
2 months ago
Brain alterations with Chronic Fatigue
Hi all, I'm part of a chronic illness support group and they did a Zoom session on how to use telehealth visits for physical therapy . The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (myalgic encephalomyelitis
Hi all, I'm part of a chronic illness support group and they did a Zoom session on how to use telehealth visits for physical therapy . The physical therapist referenced an article about scientists recently finding what may be the physiological root of chronic fatigue and ME (myalgic encephalomyelitis
Cobalt1312
in
Pernicious Anaemia Society
2 months ago
where to get b12 injections to self administer?
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
hello, I am an American living in the UK. I was previously being treated in the USA for my pernicious anemia with once monthly, self injections. In the UK I have been met with absolute apathy and disregard for my condition. I am genuinely just tired of fighting for my care, and don’t have the strength
Popcornlover1
in
Pernicious Anaemia Society
2 months ago
ITV Evening News 6/3/24
I hear that the following is on ITV evening news. “Evening News on ITV will see Jimmy Norman share his story on ''how difficult it is'' to receive B12 injections regularly enough for him to be able to function on a daily basis...😞”
I hear that the following is on ITV evening news. “Evening News on ITV will see Jimmy Norman share his story on ''how difficult it is'' to receive B12 injections regularly enough for him to be able to function on a daily basis...😞”
B12again
in
Pernicious Anaemia Society
2 months ago
Any Tips To Help With Post B12 Injection Affects?
Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling it now.. I was so rough yesterday, which was the day after my 1st one, I’ve been fine so far until a couple of hours ago but it feels like someone has poured ice in me I’m so cold, dizzy and spaced out and generally feeling
Hi, I had my 2nd of 6 loading dose B12 injections this morning and I’m feeling it now.. I was so rough yesterday, which was the day after my 1st one, I’ve been fine so far until a couple of hours ago but it feels like someone has poured ice in me I’m so cold, dizzy and spaced out and generally feeling
Hidden
in
Pernicious Anaemia Society
2 months ago
Things are getting worse
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
Vongai
in
Pernicious Anaemia Society
2 months ago
Bleeding when injecting
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Helliborous
in
Pernicious Anaemia Society
2 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
2 months ago
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