Could this be the beginning of someth... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

Could this be the beginning of something good for B12 in the UK ?

Marz profile image
Marz
17 Replies

ukri.org/who-we-are/how-we-...

Am imagining the day when we can purchase B12 phials in our local pharmacies ? Or will Big Pharma make a move ?

Whilst living in Crete for 15 years I was able to buy 3 phials plus syringes for around 5 euro - those were the days 🌻

Written by
Marz profile image
Marz
To view profiles and participate in discussions please or .
Read more about...
17 Replies
JaneChapple profile image
JaneChapple

Very interesting Marz thanks for posting. Lets hope BP dont get their hands on it and stick the price up 6000% like they did with T3!

Janexxx😊❤️

Wheat profile image
Wheat

thank you Marz, long way to go yet, but let's hope so.

helvella profile image
helvella

They refer to disposing of cobalt waste in conventional production.

Surely they extract effectively all the cobalt from the waste and use it for future production? If not, 'tis madness.

tomdickharry profile image
tomdickharry in reply tohelvella

I don't know what they actually do with it, but I doubt if it's wasted. Cobalt is used in agriculture - mustn't let those cows get deficient - and in the batteries of all those electric cars they're trying to make us buy.

JGBH profile image
JGBH

The best thing would be that GPs and other medics become aware and accept that B12 is most important for patients’ wellbeing. … 😘

Marz profile image
Marz in reply toJGBH

Docs have to follow Guidelines 😒 sadly....

JGBH profile image
JGBH in reply toMarz

I believe there are new guidelines from NICE regarding B12 now, Read about this a while ago but can’t remember. It was from NICE guidelines though. So let’s hope for a change… but patients will still need to be proactive I think… old habits die hard if at all…

helvella profile image
helvella in reply toJGBH

The new B12 guideline has not yet been published - March to July 2024, I think. (Date has changed at least once.)

Vitamin B12 deficiency in over 16s: diagnosis and management

In development [GID-NG10176] Expected publication date: 06 March 2024

nice.org.uk/guidance/indeve...

JGBH profile image
JGBH in reply tohelvella

Thanks for letting me know. Obviously I must have been wishing it had already been published… It’s a step forward…

It is high time such a simple supplement be made available to all who need it,

helvella profile image
helvella in reply toMarz

Technically, they do not have to follow guidelines. Every NICE guideline has this:

The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian.

I can easily agree that many doctors feel they cannot depart from the guidelines. And that there might be other restrictions on what they do (e.g. local limits in prescribing).

That actual guidelines actually say they allow this is, nonetheless, important.

holyshedballs profile image
holyshedballs in reply toMarz

Please be wary of the "Doctors must follow guidelines" saying. There are a number of legal cases that reaffirm that guidelines are just that, guidelines.

The person who relies on guidelines must have regard, amongst other things, to the people who wrote the guidelines i.e. their expertise and sponsorship, and the extent that the draft has been sent out for consultation with the people that will be affected by the guidelines.

Even if the guidelines have been written by real experts who are not biased and widely consulted on by users and (in this case) patient groups, the doctor can deviate from the guidelines if s/he has a good reason to do so.

The doctor also has other duties to take into account the wishes and preference of the patient and the the knowledge the patient has of his/her own condition. The doctor has a duty to agree with the patient the therapy that the patients undergoes.

This requires a well informed patient presenting the doctor with alternative therapy that is well researched and agreeing on that alternative therapy. The doctor should make notes of the reasons for diverging from the orthodox guidance and notes of the agreement wit the patient. Good monitoring of the progress of the patient is essential.

Even NICE guidance states that guidelines should not take the place of the doctors skill and expertise. the ye should help the doctor and the patient agree to the patients therapy.

Finally, there is also case law that states that over reliance on guidelines and in effect saying that a doctor must follow guidelines can be negligent practice by the doctor.

I see that Helvella has reproduced the part of NICE guidance that states this.👍

Baobabs profile image
Baobabs

I have heard that BP or associated bodies are trying to control the ‘use’ of vitamins, minerals and substances that are considered non allopathic. If I remember correctly, it is planned for in Canada.

Blearyeyed profile image
Blearyeyed

Really interesting , thanks for posting the link , take care , Bee

Orchard33 profile image
Orchard33

What a fascinating and informative article. How I marvel at our scientists.

deniseinmilden profile image
deniseinmilden

Hi! I hope all going well for you.Thank you for sharing such an excellent article. I've further shared it on Ex-Twitter!

holyshedballs profile image
holyshedballs

Thank you for posting 👍

Wwwdot profile image
Wwwdot

Hi Marz

Very interesting read. Thank you for sharing this.

Needed some positive info to life the spirits and this was it!

Thank you again.

🤗🤗🤗

Not what you're looking for?

You may also like...

Could this be B12

I've been back and forward to the Gp for a good few years complaining of fatigue and brain fog. I...
Steap profile image

Could this be a side effect of low b12?

I wonder if anyone can help identify my symptoms? I have had these symptoms for 7 months now. It...
cloverfiat profile image

Aching/painful joints - could this be b12 deficiency

For the past week I've suffered with aching/painful joints, mainly ankles, knees, hips & soles of...
vikki24 profile image

Could it not be PA/B12 deficiency?

Hi, after getting weekly injections for the past year, my ferritin level is no 7 (range 10-225), so...
palmtop profile image

Could b12 deficiency be my problem?

Hi. Thank you for the add. I'd like to share my story with you to see whether you think I am...
charlianne profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.