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copy of letter sent to GP surgery
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
rheumatologist sent result of Dexa scan but interestingly he lists my medical diagnosis in which he writes History of Perniceous Anaemia (gastric parietal cell antibodies positive, intrinsic factor antibodies negative) and it was this last reading that I was told by a GP from our surgery t,hat it was
Beadbuddy
in
Pernicious Anaemia Society
7 months ago
Updated bloods after 25mcg dose increase
Hey everyone, Just had my latest round of bloods after a 25mcg increase from 150 to 175 daily. Pre increase: (still didnt feel right at all) TSH - 1.83 mU/L (TSH range - 0.30 - 4.20) T4 - 14.3 pmol/L (T4 range - 9.0 - 19.0) T3 - 3.7 pmol/L (T3 range - 3 - 5.4) New bloods: TSH - 0.74
Hey everyone, Just had my latest round of bloods after a 25mcg increase from 150 to 175 daily. Pre increase: (still didnt feel right at all) TSH - 1.83 mU/L (TSH range - 0.30 - 4.20) T4 - 14.3 pmol/L (T4 range - 9.0 - 19.0) T3 - 3.7 pmol/L (T3 range - 3 - 5.4) New bloods: TSH - 0.74
dexterholland91
in
Thyroid UK
7 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
5 months ago
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It is not me it is you.
I think I may have an understanding. "Those on this forum which refer to my work and the accomplishments I experience as the results of that work as finding what works by experimentation, can not fathom that I can review the current information and methodology used to design protocols and design a
I think I may have an understanding. "Those on this forum which refer to my work and the accomplishments I experience as the results of that work as finding what works by experimentation, can not fathom that I can review the current information and methodology used to design protocols and design a
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Is there a chat network for people with osteoporosis in England?
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
I have just been diagnosed with osteoporosis and my Dr prescribed Alendronic Acid 70 mg once a week, but after reading the side affects of taking it am unsure whether to take them. So far I have only broken my wrist bone about ten years ago when I had a fall, I have small aches and pains and have neuropathy
Mylovelys
in
Bone Health and Osteoporosis UK
6 months ago
Alendronic Acid and diverticulosis
since my Rheumy discovered I have two fractured vertebra, she is insisting I take AA. At my Dexa scan last summer AA was suggested but left to my decision as it showed ostopaenia not osteoporosis. I took AA last weekend and experienced heartburn, indigestion and difficulty and some pain swallowing. I
since my Rheumy discovered I have two fractured vertebra, she is insisting I take AA. At my Dexa scan last summer AA was suggested but left to my decision as it showed ostopaenia not osteoporosis. I took AA last weekend and experienced heartburn, indigestion and difficulty and some pain swallowing. I
Japsquar
in
PMRGCAuk
5 months ago
First SI, the pain, ouch!
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Bertiepuss
in
Pernicious Anaemia Society
7 months ago
Bit confused, latest test results now on Erfa. Could I have an unstable thyroid??
Hi helpful thyroid community. I’ve been on Erfa now for 3.5 months I did another blood test Monday and just have results thru. I’m now taking 60mg very early morning and 30mg lunch time (so timing not ideal if this to keep away from eating!) The October test was just after I upped the doseage from original
Hi helpful thyroid community. I’ve been on Erfa now for 3.5 months I did another blood test Monday and just have results thru. I’m now taking 60mg very early morning and 30mg lunch time (so timing not ideal if this to keep away from eating!) The October test was just after I upped the doseage from original
Starseed56
in
Thyroid UK
7 months ago
GP wont prescribe Hydroxycobalamin until further blood tests conducted despite neuro involvement.
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Good morning.I've found this forum out of desperation having experienced what I now know are symptoms of B12 deficiency for a few years. After repeated B12 levels over the years which consistently showed my levels dropping (treatable since 2021 in some parts of the country) they were finally low enough
Betwelvepatient
in
Pernicious Anaemia Society
7 months ago
Sudden recent darkness under eyes
Hey, all, I think I know that a lot of people have dark area around their eyes just as part of their normal selves. But I have never had any rings under my eyes. But in the last couple days, have definitely noticed slightly dark rings under my eyes. I am thinking this is more likely a nutrient issue
Hey, all, I think I know that a lot of people have dark area around their eyes just as part of their normal selves. But I have never had any rings under my eyes. But in the last couple days, have definitely noticed slightly dark rings under my eyes. I am thinking this is more likely a nutrient issue
Vlaminck
in
CLL Support
7 months ago
20 hours of non-injecting
Having completed a two week trial I did not inject until my stuffy head came back. It was then three days of recovery but nothing severe. I thought that I might be experiencing shortness of breath at about 6 hours but nothing definitive. I woke up at 11 am with my stuffy head and injected and went
Having completed a two week trial I did not inject until my stuffy head came back. It was then three days of recovery but nothing severe. I thought that I might be experiencing shortness of breath at about 6 hours but nothing definitive. I woke up at 11 am with my stuffy head and injected and went
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
GP disagreement re levo. Plus wondering if FT3/TPO link to Pernicious anaemia B12 treatment?
Question re changing GP in same surgery and differing GP views. So sorry its a long one, added alot of health backstory incase its useful. I'm in the UK and was dx hypothyroid last year. Been titrating levo and got to about 1 this spring. Was doing OK, not brilliant and was certin I hahe Pernicious Anaemia
Question re changing GP in same surgery and differing GP views. So sorry its a long one, added alot of health backstory incase its useful. I'm in the UK and was dx hypothyroid last year. Been titrating levo and got to about 1 this spring. Was doing OK, not brilliant and was certin I hahe Pernicious Anaemia
Opal79
in
Thyroid UK
7 months ago
What level is normal after B12 injections
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
NeverSayDi
in
Pernicious Anaemia Society
7 months ago
Alpha-lipoic acid
Hi! Has anyone on here used a Alpha-lipoic acid supplement, to help remove heavy metals from the body? If so . . . Did you see good results? . . . And if the results were good, can anyone recommend a brand and where they got it from? Thank you, Tracy
Hi! Has anyone on here used a Alpha-lipoic acid supplement, to help remove heavy metals from the body? If so . . . Did you see good results? . . . And if the results were good, can anyone recommend a brand and where they got it from? Thank you, Tracy
T108
in
Early CKD Support
5 months ago
b12 and ferratin
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
Lee_maynard
in
Pernicious Anaemia Society
7 months ago
To come off Hydroxychoroquine with No alternative drug replacement for it.
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
Hi Everyone,Gluten free chocolate chip cookie they are absolutely delish 😋 crispy top and gooey in the middle my recent baking . Thought I give you some update about my current situation that is ongoing at the moment. So , last month we (hubby and I ) saw my eye genetics consultant who felt that I
KnitSewPurl
in
LUPUS UK
5 months ago
Schilling Test -or something else ?
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
7 months ago
PA and FND
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
purpleabc
in
Pernicious Anaemia Society
7 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
7 months ago
B12 deficiency and bronchitis
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
Hatwindowwindow4
in
Pernicious Anaemia Society
7 months ago
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