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Vitamin B12 / Folic acid
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New to the forum
Hoping anyone can give me guidance, I'm newly diagnosed, after years of just getting on with it, in terms of been tired, i eventually found my fingers and toes so painful, it actually spurred me into going to the GPs, after a several visits and many blood tests, i was told I have PA. I was given the
Hoping anyone can give me guidance, I'm newly diagnosed, after years of just getting on with it, in terms of been tired, i eventually found my fingers and toes so painful, it actually spurred me into going to the GPs, after a several visits and many blood tests, i was told I have PA. I was given the
polarbear69
in
Pernicious Anaemia Society
7 months ago
Correct me if I am wrong. Please
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Canker Sores/Mouth ulcer
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Hi everyone, PBC and Mouth Ulcer when runned down? I had a sinus infection for 2 months and had 20 days of antibiotics for it. (This was in July and August- last tablet was taken in The beginning of September from the antibiotics) While on antibiotics- I developed ulcers inside my lower inner lip
Tramezzini
in
PBC Foundation
7 months ago
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š© STRESS
I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app . A named person has cancelled my repeat prescription of b12 ampoules I've just found out the named person is a receptionist at my new surgery . ( old one closed ) It was cancelled on starting there then
I'm due to go to the doctors surgery tomorrow for my IM B12 injectionI looked at my NHS app . A named person has cancelled my repeat prescription of b12 ampoules I've just found out the named person is a receptionist at my new surgery . ( old one closed ) It was cancelled on starting there then
Nackapan
in
Pernicious Anaemia Society
7 months ago
Deadly facts of b12
There is a guy on tiktok called Gary Brecka giving the 'deadly facts of b12' I looked in the comments he has people terrified of cyanocobalamin. I'm still alive and have it every 4 weeks š¤š
There is a guy on tiktok called Gary Brecka giving the 'deadly facts of b12' I looked in the comments he has people terrified of cyanocobalamin. I'm still alive and have it every 4 weeks š¤š
SunnyWorld
in
Pernicious Anaemia Society
7 months ago
B12 sources
I'm new here and not sure how it works but the problem is, I have moved house and thus GP practice, I normally have my B12 injections every 28 days and I don't think my new GP will do this, saying they usually do them every 2 months or so. This is no good to me so will have to self inject, can anyone
I'm new here and not sure how it works but the problem is, I have moved house and thus GP practice, I normally have my B12 injections every 28 days and I don't think my new GP will do this, saying they usually do them every 2 months or so. This is no good to me so will have to self inject, can anyone
tenderloins
in
Pernicious Anaemia Society
7 months ago
How do I start on self injecting?
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
I have been on B12 injections for years, but since covid they don't last. I get mine every 8 weeks, but symptoms return after only one week now and get progressively worse, tremors, ataxia, severe pain in spine.... but GP refuses injections more frequently. How do I go about self injecting, where do
totallyFrustrated
in
Pernicious Anaemia Society
7 months ago
newbie
Hi everyone After being unwell my B12 was tested as it came back as 51. I was offered 6 doses in 2 weeks and then told to return every three months for top ups. However - Iām 3 weeks after having my last dose and Iām starting to feel unwell again. can you advise me where to buy my own supplies for
Hi everyone After being unwell my B12 was tested as it came back as 51. I was offered 6 doses in 2 weeks and then told to return every three months for top ups. However - Iām 3 weeks after having my last dose and Iām starting to feel unwell again. can you advise me where to buy my own supplies for
0050
in
Pernicious Anaemia Society
7 months ago
petition?!
hello, I was just online trying to find anything about IM vās SC B12 and came across a post response to the question of do the NHS fund B12 injections-the answer (from a Cornwall NHS) said that the NHS would no longer be funding these and would expect the patient to pay for themselves? No date on post
hello, I was just online trying to find anything about IM vās SC B12 and came across a post response to the question of do the NHS fund B12 injections-the answer (from a Cornwall NHS) said that the NHS would no longer be funding these and would expect the patient to pay for themselves? No date on post
EyesWideNow
in
Pernicious Anaemia Society
7 months ago
first lap - nothing found. Please help.
Hi, Iām new here (or Iāve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, Iām new here (or Iāve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
6 months ago
Have you found sub-lingual B12 tablets or sprays effective?
It seems to me that the NHS treatment I am getting is aimed at keeping me out of B12 deficiency, not about giving me the optimum level for health. So in the long term it could be a good idea to bump the levels up a bit more. I know a lot of people self-inject but I am looking into alternatives to that
It seems to me that the NHS treatment I am getting is aimed at keeping me out of B12 deficiency, not about giving me the optimum level for health. So in the long term it could be a good idea to bump the levels up a bit more. I know a lot of people self-inject but I am looking into alternatives to that
Permexpi
in
Pernicious Anaemia Society
7 months ago
Vit B12 update
Following on from a previous post my B12 was 190 , so deficient and have had 6 loading dose injections which has definitely helped with fatigue . I am now taking B12 sublingual supplements . I have been taking PPI , Lansoprazole ,since I starting Prednisolone 18 months ago they are known to stop absorption
Following on from a previous post my B12 was 190 , so deficient and have had 6 loading dose injections which has definitely helped with fatigue . I am now taking B12 sublingual supplements . I have been taking PPI , Lansoprazole ,since I starting Prednisolone 18 months ago they are known to stop absorption
5goFlotilla
in
PMRGCAuk
7 months ago
Has anyone had fluid retention in legs and feet when increasing dose?
My last dose increase of Armour, up to 2.5 grains a day, coincided with the start of the heatwave in earlier summer. My feet swelled up, they look like puffa fish on top. All I can comfortably wear is flip-flops! I put it down to the heatwave. Well that's way in the past now and my feet are still
My last dose increase of Armour, up to 2.5 grains a day, coincided with the start of the heatwave in earlier summer. My feet swelled up, they look like puffa fish on top. All I can comfortably wear is flip-flops! I put it down to the heatwave. Well that's way in the past now and my feet are still
FancyPants54
in
Thyroid UK
7 months ago
Are you taking enough B12?
This is a good, short video (about 15 minutes) from an M.D. https://youtu.be/OPHWGDIGDLw?si=4PLhG7ny5qWIC9qp ---------------------- https://youtu.be/Z2vNFzMpbIA?si=ifT8qH7ao3uX-rau
This is a good, short video (about 15 minutes) from an M.D. https://youtu.be/OPHWGDIGDLw?si=4PLhG7ny5qWIC9qp ---------------------- https://youtu.be/Z2vNFzMpbIA?si=ifT8qH7ao3uX-rau
PDWarrior1900
in
Cure Parkinson's
7 months ago
PAS SEMINAR 14 October 2023
the Pernicious Anaemia Society is running a seminar on Saturday 14th October 2023, you have to be a member to attend but there is time to sign up and register for the event. The seminar runs 10am to 12noon UK time but recordings of the speakers are available after, again for members. The three speakers
the Pernicious Anaemia Society is running a seminar on Saturday 14th October 2023, you have to be a member to attend but there is time to sign up and register for the event. The seminar runs 10am to 12noon UK time but recordings of the speakers are available after, again for members. The three speakers
PAScomms
in
Pernicious Anaemia Society
7 months ago
So tired all the time
Hi everyone I had a hip replacement end of April and a nasty chest infection about 5weeks ago.I had 2 courses of antibiotics and it improved, I had a chest X-ray and a sputum test and they were negative thankgoodness.I still feel so fatigued all of the time. I am self injecting once a week but to be
Hi everyone I had a hip replacement end of April and a nasty chest infection about 5weeks ago.I had 2 courses of antibiotics and it improved, I had a chest X-ray and a sputum test and they were negative thankgoodness.I still feel so fatigued all of the time. I am self injecting once a week but to be
Chocolate41
in
IBS Network
7 months ago
diagnosed with PMR
quick introduction , am early 50ās contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
quick introduction , am early 50ās contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I asked if I could consider HRT as thought maybe it could be menopause symptoms , had been taking naproxen for menstrual pain and migraines for about
Emilydarby
in
PMRGCAuk
6 months ago
Deficiency vs Broken
Hi Guys As usual I have been mulling over my recent GP experience of rolling eyes (aka ālooking for their brainā courtesy of Narwhal!). I donāt think GPs get the difference between a body being deficient in B12 and a body whose B12 system is broken. Mixteca made the analogy of putting fuel in a
Hi Guys As usual I have been mulling over my recent GP experience of rolling eyes (aka ālooking for their brainā courtesy of Narwhal!). I donāt think GPs get the difference between a body being deficient in B12 and a body whose B12 system is broken. Mixteca made the analogy of putting fuel in a
Wwwdot
in
Pernicious Anaemia Society
7 months ago
Disposal of used syringes from SI (Cardiff)
Hi all, I was self injecting every month until my GP took my B12 levels (along with other tests) pre-summer and they were over 1000. She basically said they wouldnāt continue their injections unless I stopped. I diligently stopped but have started to notice the symptoms creeping up again before my
Hi all, I was self injecting every month until my GP took my B12 levels (along with other tests) pre-summer and they were over 1000. She basically said they wouldnāt continue their injections unless I stopped. I diligently stopped but have started to notice the symptoms creeping up again before my
Squirrel_enthusiast
in
Pernicious Anaemia Society
7 months ago
skin reaction to B12 injections
Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injection I developed red bumpy skin on my forehead some of which looked like spots. After the 5th I developed a cluster of similar spots along my jawline that were uncomfortable. This is very unusual for me. My husband is administering
Hi, I was prescribed the 6 injections every 2 days. Soon after the fourth injection I developed red bumpy skin on my forehead some of which looked like spots. After the 5th I developed a cluster of similar spots along my jawline that were uncomfortable. This is very unusual for me. My husband is administering
Sparkleros
in
Pernicious Anaemia Society
7 months ago
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