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Vitamin B12 / Folic acid
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zoledronic acid infusion and osteoarthritis
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
I have been reading about zoledronic acid does not help with osteoarthritis and may make it worse, I have marked facet arthropathy in the lower lumbar spine arthritis, anyone know anything about this.
Radars
in
Bone Health and Osteoporosis UK
6 months ago
Sudden recent darkness under eyes
Hey, all, I think I know that a lot of people have dark area around their eyes just as part of their normal selves. But I have never had any rings under my eyes. But in the last couple days, have definitely noticed slightly dark rings under my eyes. I am thinking this is more likely a nutrient issue
Hey, all, I think I know that a lot of people have dark area around their eyes just as part of their normal selves. But I have never had any rings under my eyes. But in the last couple days, have definitely noticed slightly dark rings under my eyes. I am thinking this is more likely a nutrient issue
Vlaminck
in
CLL Support
7 months ago
20 hours of non-injecting
Having completed a two week trial I did not inject until my stuffy head came back. It was then three days of recovery but nothing severe. I thought that I might be experiencing shortness of breath at about 6 hours but nothing definitive. I woke up at 11 am with my stuffy head and injected and went
Having completed a two week trial I did not inject until my stuffy head came back. It was then three days of recovery but nothing severe. I thought that I might be experiencing shortness of breath at about 6 hours but nothing definitive. I woke up at 11 am with my stuffy head and injected and went
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
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GP disagreement re levo. Plus wondering if FT3/TPO link to Pernicious anaemia B12 treatment?
Question re changing GP in same surgery and differing GP views. So sorry its a long one, added alot of health backstory incase its useful. I'm in the UK and was dx hypothyroid last year. Been titrating levo and got to about 1 this spring. Was doing OK, not brilliant and was certin I hahe Pernicious Anaemia
Question re changing GP in same surgery and differing GP views. So sorry its a long one, added alot of health backstory incase its useful. I'm in the UK and was dx hypothyroid last year. Been titrating levo and got to about 1 this spring. Was doing OK, not brilliant and was certin I hahe Pernicious Anaemia
Opal79
in
Thyroid UK
7 months ago
What level is normal after B12 injections
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
First post after being diagnosed with very low B12 (67). I am in the UK and had the course of six injections within two weeks 12 weeks ago. My level of B12 has just been tested and is 360 but I have no idea whether this would be normal at this stage? I am debating whether to have another injection or
NeverSayDi
in
Pernicious Anaemia Society
7 months ago
b12 and ferratin
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
hi all does anyone know if a ferratin level of 35 can have negative effects on my b12 injections. Doctors have told me it’s well with range(15-300). been feel terrible for 18 months and feels as if the b12 has stopped working. Thanks
Lee_maynard
in
Pernicious Anaemia Society
7 months ago
Schilling Test -or something else ?
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
I recently found this out: Seventeen years ago, my cousin was found to have B12 deficiency. She would have been in her early 30s then - and was told that PA was unlikely at that young age. They tested her. From what she has told me, it sounds as if she was given the Schilling test - as she remembers
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
7 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Hi all, I only recently learned that Urso has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon! Urso suppresses the production of immunoglobulins IgA, IgG and IgM (although IgM is generally chronically raised
Skypony
in
PBC Foundation
6 months ago
PA and FND
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
Today I saw a neurologist for the first time , sadly not impressed and I am frustrated . I have already posted about my bad experience and lack of care from my Gp surgery, the same from my new surgery. I realised that my right hip was not working as it should, couldn't lift it off the bed or get it into
purpleabc
in
Pernicious Anaemia Society
7 months ago
sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
7 months ago
B12 deficiency and bronchitis
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
hi. I’m new to this and I’m hoping that someone can help me. Over four weeks ago. I had a serious flu that turned out to be bronchitis. I was sleeping 20 hours a day and was seriously fatigued. I wasn’t getting better so went to the GP who told me I had post viral fatigue and told me to rest but weeks
Hatwindowwindow4
in
Pernicious Anaemia Society
7 months ago
Injecting with out of date B12 ampules
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
I still have some B12 ampules left over after panic buying a lot during the pandemic. Are they still effective a year or two after their expiry date, if they have been kept in the unheated spare room all this time?
Cetus
in
Pernicious Anaemia Society
7 months ago
Peripheral neuropathy
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
Hi to the CLL community , on cycle 8 of my V and O treatment and now on Venetoclax for the last 4 months. Have had the venetoclax reduced to 200mg for a few weeks to help with neutropenia, but over the last 3 weeks I have developed neuropathy particularly in my fingers which wakes me up at night as
puppy43
in
CLL Support
7 months ago
INTRINSIC FACTOR ANTIBODY positive result
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
Does a positive INTRINSIC FACTOR ANTIBODY mean I have Pernicious Anemia? Does this mean I'm on B12 shots for life?
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discuss my osteoporosis with? Thank you.
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discus my osteoporosis with? Thank you. I have severe osteoporosis for 7+ years and despite being on alendronic acid 70mg once weekly for 7 years , my osteoporosis has worsened such that my advice a few
Please does anyone know a private Rheumatologist in Cornwall or Devon who I would be able to go and discus my osteoporosis with? Thank you. I have severe osteoporosis for 7+ years and despite being on alendronic acid 70mg once weekly for 7 years , my osteoporosis has worsened such that my advice a few
Kakally
in
PMRGCAuk
6 months ago
Private testing for B12 and MMA (UK)
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Looking for some pointers from others. I have felt unwell since Jan 23. URQ pain, malaise, tingling on chest and in thumbs and fingers, cold extremeties, chest pain, shortness of breath , distinct and new varicose veins in ankles. Also poor fat absorption. I had thought maybe liver. But ultrasound and
Shoe2
in
Pernicious Anaemia Society
7 months ago
Dizziness
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Has anyone experienced dizziness in between having B12.. I’m having up to 15 episodes of light headiness dizziness a day now having B12 every 8 weeks had 8 days ago but still getting dizzy how long does it take to get into system… had blood test all came back normal I’m thinking it could be neurological
Catsmud
in
Pernicious Anaemia Society
7 months ago
VIT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW 528 L
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
IT B12 BINDING CAPACITY, UNSAT(TRANSCOBALAMIN) LOW - 528 L Reference Range: 650-1340 pg/mL I finally have a result that proves my B12 Deficiency that I have indicated has been quite recovered on EOD Hydro IM. The issue is that it went on back order everywhere, and I have been to minimal IM of Methyl
LeaKolo
in
Pernicious Anaemia Society
7 months ago
my story
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
Beadbuddy
in
Pernicious Anaemia Society
7 months ago
Normal B12 levels?
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
63 yo female. Symptoms have been over a year of tingling/light pins and needles in feet, exhaustion, and memory issues, now lately ringing in ears, diagnosed with low B12 (63). Currently on weekly shots of Cyanocobalamin 1000 mcg/ml. After 6 weeks my B12 is at 537. What should it be? Also had a homocysteine
ReallyWondering
in
Pernicious Anaemia Society
7 months ago
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