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Vitamin B12 / Folic acid
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Can PMR weakened muscle cause curvature of the spine?
I finally saw a doctor at the pain clinic today. Since being diagnosed with PMR in 2018 I have lost 15cm in height. In 2020, just before lockdown, I was moving a pkt of mushrooms across my body from the table to the counter, when I felt something 'go' in the middle of my back. An hour or so later
I finally saw a doctor at the pain clinic today. Since being diagnosed with PMR in 2018 I have lost 15cm in height. In 2020, just before lockdown, I was moving a pkt of mushrooms across my body from the table to the counter, when I felt something 'go' in the middle of my back. An hour or so later
Omanain
in
PMRGCAuk
3 months ago
Prescribed Alendronic Acid and Lansaprozal at start of treatment. Are they necessary?
greetings! Now on Day 7 of 15mg Pred. Stiffness and general pain considerably reduced, but persistent pain from frozen shoulder. Sleeping much better, feel tired but have pulled back on activity and allowing plenty of rest time. Started a low carb diet, take Pred after breakfast of eggs ( veg
greetings! Now on Day 7 of 15mg Pred. Stiffness and general pain considerably reduced, but persistent pain from frozen shoulder. Sleeping much better, feel tired but have pulled back on activity and allowing plenty of rest time. Started a low carb diet, take Pred after breakfast of eggs ( veg
Scaredofpred
in
PMRGCAuk
3 months ago
Needles for B12 self injection
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Mariemcdo
in
Pernicious Anaemia Society
5 months ago
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Early signs of PA
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
Sailinglady
in
Pernicious Anaemia Society
6 months ago
Interesting article on more sustainable B12 production
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
Technoid
in
Pernicious Anaemia Society
6 months ago
Sylvia Plath and B12?
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
bookish
in
Pernicious Anaemia Society
6 months ago
Ducks in a row
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
Whiteways4711
in
Pernicious Anaemia Society
6 months ago
Glaucoma B12 relationship?
Has anyone already commented on this or can anyone make any sense from it? Especially the discussion para which just makes no sense to me at all https://www.frontiersin.org/articles/10.3389/fnut.2023.1130032/full Thanks for any thoughts
Has anyone already commented on this or can anyone make any sense from it? Especially the discussion para which just makes no sense to me at all https://www.frontiersin.org/articles/10.3389/fnut.2023.1130032/full Thanks for any thoughts
bookish
in
Pernicious Anaemia Society
6 months ago
Point me in the right direction please :)
Can anyone help me purchasing b12 ampules from bodfeld please.. The packaging and wording has changed since my last lot and don't want to order the wrong thing. Tia x
Can anyone help me purchasing b12 ampules from bodfeld please.. The packaging and wording has changed since my last lot and don't want to order the wrong thing. Tia x
Lj1115
in
Pernicious Anaemia Society
6 months ago
Possible IBD?
Hi Everyone, I hope you’re all doing okay. Sorry to be a pain but I’d love some thoughts and advice from you if possible, please. I’m a 46 male with real worries about the possibility of Crohn’s disease and don’t seem to be able to move past it. It started with a perianal abscess 10 months ago which
Hi Everyone, I hope you’re all doing okay. Sorry to be a pain but I’d love some thoughts and advice from you if possible, please. I’m a 46 male with real worries about the possibility of Crohn’s disease and don’t seem to be able to move past it. It started with a perianal abscess 10 months ago which
farranccc
in
Crohn's and Colitis Support
6 months ago
Query on changing brands and types
Hello all, I am desperately waiting for my usual Panpharma hydroxycobalamin acetate to come back onto the usual German shelves so I can get it ordered. I am on my last box now and bought some different to tide me over but it’s the 2ml product and I am not looking forward to having to use it. 2 questions
Hello all, I am desperately waiting for my usual Panpharma hydroxycobalamin acetate to come back onto the usual German shelves so I can get it ordered. I am on my last box now and bought some different to tide me over but it’s the 2ml product and I am not looking forward to having to use it. 2 questions
Rosydawn
in
Pernicious Anaemia Society
6 months ago
I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?
I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?
I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?
Jeannebon46
in
Pernicious Anaemia Society
6 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
6 months ago
should I keep going
I started my loading doses of B12 and l was very up and down with it. Then in October l got my first 3mth injection and it floored me for 2wks after that my energy levels started coming back up. I spoke to my doctor about it and she said that maybe I should come off of B12. I got another 3mth in January
I started my loading doses of B12 and l was very up and down with it. Then in October l got my first 3mth injection and it floored me for 2wks after that my energy levels started coming back up. I spoke to my doctor about it and she said that maybe I should come off of B12. I got another 3mth in January
Ooopsy
in
Pernicious Anaemia Society
6 months ago
results of 156
Hi, I’ve just finished a course of loading does and had a blood test following which the receptionist has told me has come back as 156 and no further action required however my symptoms have been getting worse not better. Should I contact my gp again or just carry on until my next does in 3 months?
Hi, I’ve just finished a course of loading does and had a blood test following which the receptionist has told me has come back as 156 and no further action required however my symptoms have been getting worse not better. Should I contact my gp again or just carry on until my next does in 3 months?
JessB94-
in
Pernicious Anaemia Society
6 months ago
Taking levothyroxine with Lansoprazole and Atorvastatin and others
Large changes in my health over recent months with heart issues means I am taking many more medications. Trying to sort out the best timing as many seem to impact thyroid medication I take Levothyroxine early in the morning Aspirin and Clopidogrel after breakfast Atorvastatin in the evening I now need
Large changes in my health over recent months with heart issues means I am taking many more medications. Trying to sort out the best timing as many seem to impact thyroid medication I take Levothyroxine early in the morning Aspirin and Clopidogrel after breakfast Atorvastatin in the evening I now need
carer999
in
Thyroid UK
6 months ago
Affect of Alendronic acid if needing dental work?
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
moconnolly
in
PMRGCAuk
4 months ago
I had b12 injections stopped during covid I’m now getting them again
I was diagnosed with pernicious anemia many years ago I was put on b12 injections,some years later I started experiencing numbness in my left leg burning sensation in my hands was sent to see a neurologist who did MRI scans and told there was degeneration in the nerves in my spine which was due to my
I was diagnosed with pernicious anemia many years ago I was put on b12 injections,some years later I started experiencing numbness in my left leg burning sensation in my hands was sent to see a neurologist who did MRI scans and told there was degeneration in the nerves in my spine which was due to my
bigE20
in
Pernicious Anaemia Society
6 months ago
Alendronic acid query
I’m being pressured to take Alendronic Acid for Osteoporosis but Dad died of AF related issue. Has anyone else had experience of refusing this drug?
I’m being pressured to take Alendronic Acid for Osteoporosis but Dad died of AF related issue. Has anyone else had experience of refusing this drug?
PatriMac
in
PMRGCAuk
4 months ago
Rapid Heart Rate & Metallic Taste
I have had palpitations overnight and a strong metallic taste in my mouth since starting Iron tablets. I started B12 injections in November last year and have been on Ferrous Gluconate tablets now reduced to one every other day. Was wondering how long this may last, please advise - Thank You Shannondor
I have had palpitations overnight and a strong metallic taste in my mouth since starting Iron tablets. I started B12 injections in November last year and have been on Ferrous Gluconate tablets now reduced to one every other day. Was wondering how long this may last, please advise - Thank You Shannondor
Shannondor
in
Pernicious Anaemia Society
6 months ago
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