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Vitamin B12 / Folic acid
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Hello all, sone advise please.
I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my life. I have a friend who does have a diagnosis and hers 3 monthly injections of the NHS and I can’t understand how she is coping, but she was
I am undiagnosed B12 diffident but started self injecting and it has changed my life. I am fast Approaching 50 and have been obease for more than 3/4 of my life. I have a friend who does have a diagnosis and hers 3 monthly injections of the NHS and I can’t understand how she is coping, but she was
Lowbattry03
in
Pernicious Anaemia Society
14 days ago
B12 and Ferritin results
Just had blood tests and results for B12 are 201 (110-900) and ferritin 59 (30-337). Am I right in thinking these should be higher?
Just had blood tests and results for B12 are 201 (110-900) and ferritin 59 (30-337). Am I right in thinking these should be higher?
Girlslovescifi
in
Thyroid UK
14 days ago
Test Result Feedback
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Any feedback on below bloods? On 600mcg levothyroxine total per week. Am working on the iron at the moment. Vit B12 and D are fine. Trying to de-stress where I can. TSH 0.52 mIU/L (0.4 - 4) 3.3% Free T4 (fT4) 15.6 pmol/L (9 - 25) 41.3% Free T3 (fT3) 5.7 pmol/L (3.5 - 6.5) 73.3% T4:T3 Ratio 2.737
Curious123
in
Thyroid UK
14 days ago
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B12 jabs and tablets giving me palpitations. Anyone else have trouble
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
Hi, I now find if I take a sublingual B12 tablet of 1000ug I experience palpitations. I have reduced to 500, and then 250ug same problem but slightly less severe. The symptoms came on soon after taking the tablets and lasted a few hours. I swapped back onto my injections Hevert B12 Depot Hydroxocobalaminacetate
john159
in
Pernicious Anaemia Society
15 days ago
Unrelated PMR question, but asking for a desperate friend in need …
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from you. She has recovered from breast and throat/neck cancer, unrelated to each other, but has undergone chemo/radio and now has the all clear.
LemonZest11
in
PMRGCAuk
15 days ago
Supplements still necessary?
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Good morning allI have run out of my methylfolate supplements I have been on B12 injections for a few years now and been taking supplements too. Just wanted to know if its necessary to keep taking the supplements, it just gets so expensive with the cost of living. I take B1,B2 & methylfolate. Any advice
Aumshantii
in
Pernicious Anaemia Society
15 days ago
Turmeric and a Flare and Drama + Thoughts
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges . Some are way too expensive but I found some on Amazon that were really inexpensive and had a delivery of a few shots of Turmeric from Tesco
discoballs
in
PMRGCAuk
16 days ago
B12 suppliers to UK
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
I’ve just tried to order B12 depot from verdandapo through amazon pay but they won’t ship to my Uk address. Where are people ordering from at the moment? Thanks
FlorencePocket-Owl
in
Pernicious Anaemia Society
16 days ago
Swollen tongue and teeth impressions on tongue
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
I am suffering with a very sore swollen tongue and I'm sure ages ago there was a post about this but I can't find it. Am I right in thinking that B12 may be the issue or increase in meds to rectify this? I am currently on Erfa one and quarter grains 6am and half grain 3pm and alternate days one and half
lostherpocket
in
Thyroid UK
16 days ago
good morning, question on iron supplement when I start injection
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
well for now I'm on liquid b12 methyl 720 per day and next week my injections come in the mail ans I know Im needing Iron supplements but I'm not sure how much to take. Im not sure on how much injection I will be on yet.
JesusMercy60
in
Pernicious Anaemia Society
17 days ago
How to deal with GP who is not keen on tests
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
I am having issues where my GP would rather no give advise or tests. I have to remember and follow up on test to be done and even then he can deny the tests requested. I had blurry vision , cold hand when i stay still and body aches but doctor claims these felt by all the people though when check with
thyroidsymtoms
in
Thyroid UK
18 days ago
Cyanocobalamin
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Hi, I have just been informed by my GP surgery that Cyanocobalamin injections, which I have 4 weekly, have been discontinued in England. I am allergic to hydroxycobalamin so cannot have that. I know Cyanocobalamin is still available in Europe but my GP can only use what is available to them in England
Syuri
in
Pernicious Anaemia Society
18 days ago
Nd Thyroid to thyroxine
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Hi, I have Hashimoto's thyroid and Endoctrinologist has advised I move from NP thyroid to thyroxine. I was sent for Ultra sound by my doctor and had difficulty getting a follow up as he was on holidays for 2 months. I had to get online doc to refer me and only had report of ultrasound so not the scan
Bridb
in
Thyroid UK
19 days ago
Muscle Damage
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Cobalt1312
in
Pernicious Anaemia Society
19 days ago
A weird dynamic.
When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by a downturn of 5 +- days which I assume is my body healing which is hard on my body and I need a lot of rest. This dynamic was not apparent until
When I make a positive change in my supplementation or activity there is a three day +- uptick as my body is getting more of what it needs. This is followed by a downturn of 5 +- days which I assume is my body healing which is hard on my body and I need a lot of rest. This dynamic was not apparent until
WIZARD6787
in
Pernicious Anaemia Society
20 days ago
stomach polyps
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Hi all I’ve addressed a thyroid issue - Hashimotos, with the help from the thyroid site. I’m still experiencing fatigue. I am in meno/post menopausal stage. Symptoms do over lap, but have suspected B12 issue for some time. Tend to get low active B12 results. Lots of B12 symptoms. Dr not interested,
Bacca
in
Pernicious Anaemia Society
20 days ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
20 days ago
It’s ok to be deficient if you inflicted it upon yourself..
Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the use of b12 injections. Self administered. Daily!! Even providing an instruction video to show how easy and convenient it is to do. I can only
Has anyone sought an explanation from their gp as to why if you have caused b12 deficiency by the deliberate use of nitrous oxide that the NHS sanctions the use of b12 injections. Self administered. Daily!! Even providing an instruction video to show how easy and convenient it is to do. I can only
MorningMist
in
Pernicious Anaemia Society
20 days ago
Help please to understand blood test results a month after c vaccine
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
brenanddave
in
Pernicious Anaemia Society
20 days ago
Methyl or Hydro B12 injections - is it safe to switch between both each month?
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
LaraPA
in
Pernicious Anaemia Society
21 days ago
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