Niggles are Signals??: Hi Guys... - Pernicious Anaemi...

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Niggles are Signals??

Wwwdot profile image
16 Replies

Hi Guys

Omitting background for brevity - dx P.A. 09/22.

Self- treat with guidance from B12 specialist and Functional Nutritionist.

last 8 weeks reduced from 4/day B12 injections to 1.5 average B12 injections with change in supplements

BUT ARE THESE NIGGLES of any importance…??

Stabbing pain in the tip of my toes

Cramp like pain in right calf

Stressmares - rescuing children in bad dreams ( had for last 20 years but now escalating)

Panic attack in the night

Feeling like crying

Neuralgia in rhs of face

Teeth a bit achy

Having lots of mental energy but no physical energy

Feeling discombobulated Narwhal10

Wanting to be alone

Feeling negative

Feeling tired

Not too sure what is going on. Do I go back to 2 a day every day … that’s my gut instinct.

Feeling off course without a compass at the mo but still rowing madly

🤗🤗🤗

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16 Replies
deniseinmilden profile image
deniseinmilden

Good morning!

Sounds like the reduction is not working for you at all as you're getting all the classic deficiency symptoms back.

I've been on 1.5mg per day for 9 years and it works for me but I know of at least a couple of people who need 3mg/day, every day. There are bound to others like yourself who need more.

If you need it, you need it.

Symptoms are your body's way of telling you something is wrong, so aim to stay symptom free. Equally, no symptoms suggests all's well.

PS you might need to start back with more than you were on before (4x) to get yourself over the current deficiency that you've caused yourself by reducing - but you then should be able to go back to that if that was working.

"If it ain't broke, don't fix it!" - do whatever works best for you. One size fits all treatments are not appropriate for a diverse population.

Eg to keep well, which actually equates to staying in blood test range, I need to take approx 24x the upper daily intake recommendation for vitamin D. I have other family members who are not directly connected (cousins who are not sisters, and another aunt) who also need way more vitamin D than recommended, so there must be an unusual gene in our family somewhere.

I hope you are back on form soon! Good luck!

Jillymo profile image
Jillymo

Hi,

Go back to the regime that was working for you. I inject 2ml daily which seems to work for me albeit I do have set backs.

Rescuing children all night long must be exhausting so no wonder you feel like crying. I have had to inject more due to the heat affecting me.

Come on, get back in that canoe and keep rowing. 🛶

Sorry to hear your out of sorts. 💐

ClaireWF1346 profile image
ClaireWF1346

I have exactly the same concern after recently dropping the frequency of my injections, following advice. Most worrying for me is having "the sighs" back and the feeling of breathlessness but also troubled sleep is back, low mood and feeling tired. I keep thinking it's because X or Y but I'm considering going back to my EOD schedule too. It's only been two weeks for me so perhaps it's too soon for symptoms to come back. Good luck with whatever you decide 😘

Wwwdot profile image
Wwwdot in reply to ClaireWF1346

Good luck to you too Claire.

I am going to act now and go back to 2/day and if niggles remain then up to 3 /day. No way can I go back to where I was.

Rowing again and feeling the support from you guys!

🤗🤗🤗

ClaireWF1346 profile image
ClaireWF1346 in reply to Wwwdot

The fear of that is very real! So nice to have the support of this group when sometimes you feel like nobody understands.

Chickens44 profile image
Chickens44

I like the analogy’Feeling off course without a compass’. That’s how I feel at the moment, can’t seem to get motivated, feeling low mood, and generally ‘just off’. And I had such a good couple of days last week. So accept my sympathies. It feels like it’s been such a long time since I felt ‘normal’. I’m wondering if it’s my Vitamin D level. I’m waiting for the results of a test to check my levels. If it’s still low I am going to up my supplementation. ☹️

Wwwdot profile image
Wwwdot

Hi Chickens

Sorry you feel like that too. Not a nice feeling is it.

But we have a great crew on this boat!

Row my friend, row!

🤗🤗🤗

Wheat profile image
Wheat

Dear Dot you have my sympathy and I hope you feel much better soonest.

I think that your niggles are maybe symptoms. Increasing your injections should help. This trial and error process is not much fun.

Thyroid wise I am a poor converter. B12, Im what you termed a super injector.

Your post has me wondering perhaps I also have a methylation problem, so thank you. Again, feel better soon 🌸x

Wwwdot profile image
Wwwdot in reply to Wheat

Hi Wheat

Apparently more than 50% of population are poor folic acid converters and it actually acts as a block apparently if you are a poor converter. My improvement has been down to using methyl folate instead. Back to 2/day B12 for a while - it’s early days but still heading in the right direction!

🤗🤗🤗

JesusMercy60 profile image
JesusMercy60 in reply to Wwwdot

I was told I have a gene mutated that has I've read contraversy of weather it really affect people or not. but I found a multi vitamin that says folate only not folic acid that is made of fruit and food so it's natural so I take it every day. I'm still new with my injections. I tried folic acid and folinic acid tablets and felt totally out of control so I can't take them I even tried a 1/4 of the tablet but my body went crazy with it so I try to eat food and take the llama natural multi's they have all the B vitamins and d2 and d3. I spread them out throughout the day.

Wwwdot profile image
Wwwdot in reply to JesusMercy60

Hi JesusMercy

Yes, it takes time to find out what works for us and what doesn't.

Sounds like you are making headway! Well done.

🤗🤗🤗

JesusMercy60 profile image
JesusMercy60 in reply to Wwwdot

yes I am slowly and lots of offering up prayers, for us all. I injected yesterday and felt pretty good, today I'm off a bit and am really tired

Wwwdot profile image
Wwwdot in reply to JesusMercy60

Hi JesusMercy

Thank you for including us in your prayers. 🥰

In the early days I was tired on non- injecting days - your body is working hard to heal - it needs rest so be kind to yourself.

🤗🤗🤗

WIZARD6787 profile image
WIZARD6787

Had to look up niggles. 🙂

Narwhal10 profile image
Narwhal10

Hi Dot,

I do apologise for the delay, I have been rather poorly myself. Gently row my darling. Okay, you done a whoopsie (mistake) just get back on track with frequency again. See how you are after 3 weeks.

If after that time symptoms have not started to dissipate then maybe look at supplements that you have swapped. But one thing at a time or you will not establish Cause and Effect.

I am afraid I steer clear of advice with Diabetes. Simply because we had Specialist Diabetic Nurses to work alongside and that was in the Antenatal, IntraPartum and Postpartum period. Women’s bodies change greatly at these times. Interesting fact, our Jam Tarts’ rate increases, it’s vascular volume and output increase too. In the third trimester cardiac output is about 40-50% higher during.

That’s a lot of Ms Muscle and Power in just 1 organ.

Wwwdot profile image
Wwwdot in reply to Narwhal10

Hi Narwhal

Sorry to hear you have been unwell. Hope you bounce back quickly.

I think I listened to my body with my heart rather than my head and heard what I so WANT to hear ... I so WANT to be on few injections that I allowed my body to run before it can walk and I should have used my head and slowed its enthusiasm and reduced more slowly.

I am back to 3 x injections a day and things are improving and virtually all the niggles have gone. Still on the supplements too as they are giving good outcomes. Feeling more like myself again albeit a little more tired than I would like.

Yes, still rowing and at least now I have reset my compass!

🤗🤗🤗

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