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I find this helpful

WIZARD6787 profile image
23 Replies

I have talked to two people about alcohol use and they both had a physician tell them that they typically increase the amount a paticient reports to 2 to 4 times the amount reported because people lie about their alcohol intake.

This also happened to me my liver function was low and I was told that was from the drinking. I said drinking was not an issue. 4 oz a year the max is not a cause for concern. My liver function returned to normal when I started supplementing with B6 which is known to address nonon-alcoholic alcohol fatty liver disease.

What I find helpful is that physicians fake data to meet their understanding and I believe that is common. If you report fatigue the physician fakes the data etc. I assume this practice is prevalent in case studies.

This is not a rant which I have done before. I am not as angry that physicians were not able to correctly treat me. I am angry they remain confident they have answers when they only have answer for their narrative which is a fabrication. I do not expect them to be emotionally able to accept I can treat myself when they cannot.

I personally do not believe it is only B12 that they are inept at treating. I find it pervasive and could make a strong logical case they over all do more harm than good. In the US medical errors are the third cause of preventable death and that is only the mistakes that are discovered.

I also find it helpful to separate out the success of the medicial field in the emergency room.

Pretty much physicians are very human but tend to have very little humanity. They also feel they have super powers and they do not.

For me the solution is to self treat across the board as long as I can access what is needed to self treat. First let them do no harm.

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23 Replies
topazrat profile image
topazrat

I know they lie! I have access to my notes and see it in black and white. For example I went for a diabetic foot check recently. I said that I had pain in my foot - on my notes it says that I have no pain.

I have also had written on my notes that I drink, which is why my liver function is off. No, I drink a few glasses of wine a week. Not enough to cause liver problems.

I've also had vaccinations added to my notes, which I haven't had and diabetic reviews that I haven't had. I once apparently had a foot check when I was on holiday 200 miles away.

I too treat as much as I can myself. I have lost faith in doctors and they have at times told me things that are not just wrong, but downright dangerous. But if I question them, they get all antsy.

WIZARD6787 profile image
WIZARD6787 in reply to topazrat

I am a white male not without a caustic wit. The dynamic for me is when meeting with them they are respectful. Then they write their notes and take back the narrative they are not wonderful human beings and I am substandard.

They are most often wrong and when they are not they are flat out lying.

deniseinmilden profile image
deniseinmilden in reply to WIZARD6787

Try being female!!! At least you get a degree of fake respect to your face!I'm not the crying sort but can be reduced to tears by the frustration of having to deal with their impossibly bad attitude - and that's just personal prejudice, before I get to anything medical!!!! Grrrrr.

What they don't know is although I look female and basically am, I think in a male way and there's obviously something not quite "normal female" about my body as I had to have a testicular cyst (and hence a testical) removed a couple of years ago. So when I then speak my attitude belies an anomaly that they aren't prepared for so they then just want to dismiss me ASAP.

Treesong2023 profile image
Treesong2023 in reply to deniseinmilden

I get you! I find you are treated as one of these sterotypes Denise..

- Dotty Mum with menopause maddness....

- Mad Aunty who is a hypochondriac...but we will call it healthy anxiety ( lot of it about..?)

- Attention grabbing sister who wants more attention

- Deluded Healthy Anxiety Lady who probably had a Feminist mum

If i displayed any intellectual analysis in the past (my profession meant I had to be academically and professionally well qualified) they go all glassy eyed, then guarded and then ...distant and things i say are nodded past..but NOT noted..

deniseinmilden profile image
deniseinmilden in reply to Treesong2023

Totally, completely, exactly!

My father was trained as a paramedic and I was brought up to have a practical interest in biology and health.

While working with livestock I've had the opportunity to work with some of the best vets ever, who have taught me methods of observation, deduction and treatment.

I'm reasonably intelligent and am a qualified and experienced ruminant nutritionist. It's been vital for my career that I'm knowledgeable and do further scientific research. Since being too unwell to work with animals 24/7 (other than my own), I've been a private carer for people with various serious health issues and I've learnt a lot of basic stuff to be good at caring for them.

And the medics absolutely hate it!!!

If I accidentally use a technical term, they instantly flinch and the shutters go straight up and they aren't interested in dealing with me at all - I can only presume from fear of being found out to be as incompetent as most of them appear to be!

deniseinmilden profile image
deniseinmilden in reply to topazrat

My notes said I'd been given smoking cessation advice.I've never smoked anything in my life and I was cross because it seemed like I didn't make sensible lifestyle choices, when my whole life revolves around being as healthy as possible, just to exist at all!

And other nonsense! Galling, isn't it!

Wwwdot profile image
Wwwdot

Hi Wiz and Topazrat

Yes, lots of errors in mine and it’s difficult to correct errors too!

In my B12 referral letters to the Haematologist, neurologist and gastroenterologist my RELEVANT medical background and treatments were summarised.

I am recorded as having a “fit” at age 15 which is untrue and impossible as I would have been unable to obtain my driving licence at 17 as I had to have a medical and a brain scan of sorts - wires stuck on head - because I did fit watching a black and white TV when I was 11. You have to be clear of a “fit” for 5 years to get a driving licence and I was borderline. No fits since. The fit at age 11 and apparently at age 15 were deemed relevant

I had an emergency 5 hour operation for a brain haemorrhage and at the same time a Caesarian section operation and was in intensive care for 5 days 22 years ago - but this information was omitted from my referral as deemed irrelevant!

I too have joined the “mistrust” camp have been there for a long time to be honest but the level of mistrust is accumulating sadly . I KNOW they are under pressure, I am under pressure to cut corners too in my job as an engineer, but I stick to my ethics and principles and I am known for that trait.

I also take B6 and find it very helpful for my underlying mood but I hadn’t appreciated it was also beneficial to the liver. Interesting.

Great post

🤗🤗🤗

WIZARD6787 profile image
WIZARD6787 in reply to Wwwdot

>>I KNOW they are under pressure,

There are factors at why they suck at treating illness: pressure, regulations, patients, big pharma, the human body is complicated etc. There is no excuse for the lack of humility that is pervasive in the medicial field. No excuse for the abusing patients when the overriding factor is fininicial.

I as best I can choose not to enable their abuse no matter the excuse. When it is best for me to deal with them I do so and then come home and shower.

deniseinmilden profile image
deniseinmilden in reply to Wwwdot

There's loads of pertinent information missing from my notes that has obviously been taken out deliberately because it would show up their errors in treatment if they'd been left in and would leave them liable to potential claims.

If I speak about these things to a GP now they think I'm making it up and am totally barking... And so immediately distrust me and therefore write me off as an attention seeking nutter - which would be the case if it wasn't true, but unfortunately for me, is!

wedgewood profile image
wedgewood

I more and more try to treat myself . Yes ,I have developed mistrust of doctors after unfortunate experiences . Yes they do sometimes tell untruths ( the most diplomatic way of expressing what you know I mean) Also “ economical with the truth” ,when it’s convenient.

Wwwdot profile image
Wwwdot in reply to wedgewood

Hi Wedgewood

We are certainly the wise sages, without a doubt!

🤗🤗🤗

Orchard33 profile image
Orchard33

After my second talk with a haematologist I reported that my energy and health had improved after a ferritin infusion. He wrote in his report that I was now better. Something I had not even hinted at!!

deniseinmilden profile image
deniseinmilden

A B S O L U T E L Y!!!!!!

MorningMist profile image
MorningMist

I find they adapt their response to fit in with nhs guidelines. And nhs guidelines direct them to particular diagnoses with set treatments. If you dare suggest anything outside those parameters you are met with derision or in the case of just one gp I see a frank admission that if the nhs doesn’t recognise something it might as well not exist.

Our free healthcare works for those who don’t question too much and take whatever is prescribed for them. I have put more prescriptions in the bin than I have taken to the pharmacy, after realising that most of them would cause as much harm as good.

The doctors I have met who immediately commanded my respect can be counted on the fingers of one hand. Excluding my thumb.

So painful isn’t it??

Being told all my symptoms were psychosomatic without taking into account 25hrs in ED while unable to walk, toilet myself and hadn’t eaten/slept in all those hours. Of course I was anxious and upset!

Or even on a referral “patient had a syncope event in the shower while standing”……no! I was seated in a meeting at work. Like how different can you get?!

Hectorsmum2 profile image
Hectorsmum2

I write myown summery of meetings with doctors at times to try and put the record straight. Thye miss out so much information and add a few lies at times. not sure if my letters are kept on notes as requested.

Nackapan profile image
Nackapan in reply to Hectorsmum2

They shouid be scanned on.I used to see sll of my notes .

This new surgery only 'allow ' some access otherwise codes..

Still awaiting my requested notes .

36 years missing.

I haven't a complicated medical health history

Treesong2023 profile image
Treesong2023

We all have our stories, but i always treat my Docs with respect.

My line of engagement is more ..satrical now... I am treating myself for my PA and Fatigue etc, and the better for it... So, I use them for the blood tests i need etc.

But i do rather enjoy just laying out the symptoms i have ...long term use of PPI, proven PN, consistent 100+MCV, consistenly low RBC, consistently low Haematocrit and Folate, consistent report of fatigue, mental fog, low mood, evident hairloss... at each session i go into..

"...But your B12 was over 300 last time? thats when we checked you in 2022? So, its not B12 is it ..? " .. and best of all...

"..sometimes Mrs x ...its just

...IDIOMATIC... = hahahaha :-)

I now dont even press them with.... ...how about you consider treating the patient and consistent, proven symptoms?........................not the numbers..?

Today I walked 4.2 miles, then got the beds stripped for washing.. Not done that type of thing for neatly 4 years... Thanks Doc.

WIZARD6787 profile image
WIZARD6787 in reply to Treesong2023

I treat them with courtesy. Not respect. I respect the power given to them by the state to access tests.

Regenallotment profile image
Regenallotment

100% agree with this, I’ve pointed out more than once (to my nicer GPs at the practice) that the less the doc has to do with treating me / trying things and let’s me get on with it the less I spend time blocking up appointments and taking up a seat in the waiting room 🤣… one of them agreed with me 👏

WIZARD6787 profile image
WIZARD6787

I am an environmental consultant. My work is not anything like you think it is unless you have hired a consultant to help you navigate the process of obtaining permits from the many governmental agencies with jurisdiction of whatever it is you want to do with your land or buildings.

I work very hard to be competent and practice with integrity. My evaluation of achieving that is not my end of it, that is the role of those I choose to accept a check from.

I refused to work for dentists or doctors as I found them to be arrogant. I have since come to understand they believe as I am licenced by the state my job is simply to complete the check boxes and my work will be accepted by those with jurisdiction. They do not understand the concept of oversight as they have so little.

Here is the thing. My work does not only have to meet all the laws and regulations it has to be effective as possible given the current understanding of science. This changes constantly and rapidly, as a professional I feel it is my responsibility to keep up and affect the path of improvement.

My work is not as complex as I do not deal with the human body. Competency and integrity is the same.

To be clear if you hire a environmental consultant it is unlikely you will hire one who is competent and has integrity. It is possible to make a very good living just checking the boxes and doing what the government agencies think is best. Not my style.

Bellabab profile image
Bellabab

I have had multiple problems with my present practice. A few months back I got to see a new young GP & I was very impressed by her ability to understand and her ability to develop a good interpersonal relationship with me. She is now pregnant and about to go on maternity leave. I will see her in a few days time then probably not for a good few months.

I am very concerned that I will get one of the older GPs I cannot trust or get on with.

I hope the NHS gets sorted by the new Government as right now many parts of it are failing.

WIZARD6787 profile image
WIZARD6787

Thank you all this exchange has been helpful.

It is hard not to feel persecuted when you are being persecuted. I am not being singled out. Well I am because I am assertive and the option is to suffer by following.

The medicial field does not test, diagnose, treat or evaluate results of treatment in a way most beneficial for their patients. That is not what they do not is there any indication of any change.

So that is the problem defined with having medicial personnel in charge. There is little chance of a collaboration for my benefit.

So now I have to define my scope of work. That is going to be difficult.

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