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Vitamin B12 / Folic acid
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PA weight gain and numbness
Hello PA community, I want to check with your guys if anyone has problem loosing weight, I have been on B12 for the nearly 10 years. I have been putting on weight and very hard to loose it. I pass menopause but still have hot flashes, constant numbness on my legs and fingers, specifically at night, I
Hello PA community, I want to check with your guys if anyone has problem loosing weight, I have been on B12 for the nearly 10 years. I have been putting on weight and very hard to loose it. I pass menopause but still have hot flashes, constant numbness on my legs and fingers, specifically at night, I
Icomaria
in
Pernicious Anaemia Society
7 days ago
another excellent B12 article by B. Wolffenbuttel
https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0CMTEAAR37XhrBq5rOfXZyNhRlxKwMqJQjmPDuhMsrOeM1_0d8Mqo-RJyg4S-F-i8_aem_qrZvOGooSM1M-vVnqSUeNw I particularly liked the “50% of individuals require individualized injection regimens with more frequent administration, ranging
https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0CMTEAAR37XhrBq5rOfXZyNhRlxKwMqJQjmPDuhMsrOeM1_0d8Mqo-RJyg4S-F-i8_aem_qrZvOGooSM1M-vVnqSUeNw I particularly liked the “50% of individuals require individualized injection regimens with more frequent administration, ranging
PlatypusProfit8077
in
Pernicious Anaemia Society
7 days ago
Back pain
Hi everyone, I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor says the increased pain at certain times is just my Fibro. But I'm not so sure. I had loading doses at the beginning of February, then by mid April
Hi everyone, I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor says the increased pain at certain times is just my Fibro. But I'm not so sure. I had loading doses at the beginning of February, then by mid April
Kma123
in
Pernicious Anaemia Society
7 days ago
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Am I wrong?,
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active b12 test, cones back borderline low at 48. I supplemented with sublingual cyanocobalamin for 4 months. Then waited 3 months before having another
Popcorn12345
in
Pernicious Anaemia Society
8 days ago
Symptom flare up after working out (?!) advice please
Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years ago and have injections from GP once every 2 months but supplement with my own when feeling low. I'm 36 years old and female. Have a busy life, work full time with a young child. My question is about exercise. If I exert
Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years ago and have injections from GP once every 2 months but supplement with my own when feeling low. I'm 36 years old and female. Have a busy life, work full time with a young child. My question is about exercise. If I exert
DocAJB
in
Pernicious Anaemia Society
8 days ago
PA to have treatment?
do you have to have PA to have b12 injections from the doctor? My PA test was negative but I’m obv having symptoms and I just wanted to get clarity on this. Thanks.
do you have to have PA to have b12 injections from the doctor? My PA test was negative but I’m obv having symptoms and I just wanted to get clarity on this. Thanks.
Em19911
in
Pernicious Anaemia Society
8 days ago
Enter The Dragon
Dear All, As a community, our journey can be extremely arduous. There is no set pattern to recovery, once we believe that we are on an even keel, something can tip the balance. Hey presto, more tomfoolery, antics and don’t start on the capers. I wished to share this piece with you. Vitamin B12 transforms
Dear All, As a community, our journey can be extremely arduous. There is no set pattern to recovery, once we believe that we are on an even keel, something can tip the balance. Hey presto, more tomfoolery, antics and don’t start on the capers. I wished to share this piece with you. Vitamin B12 transforms
Narwhal10
in
Pernicious Anaemia Society
8 days ago
B12 5mg, is it worth it?
Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has anyone had any experience with these, does it give you a mega boost so I wouldn't have to have as many 1mg injections? Thanks in advance for any advice
Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has anyone had any experience with these, does it give you a mega boost so I wouldn't have to have as many 1mg injections? Thanks in advance for any advice
VMITCHELL78
in
Pernicious Anaemia Society
8 days ago
B12 Toxicity
Our Doctor recently did a B12 and Ferritin blood test and is now demanding that we stop self injecting with immediate effect to prevent B12 toxicity….. Has anyone ever heard of this and if not, how do we deal with this? My husband has megaloblastic anaeamia and stopping the injections could have fatal
Our Doctor recently did a B12 and Ferritin blood test and is now demanding that we stop self injecting with immediate effect to prevent B12 toxicity….. Has anyone ever heard of this and if not, how do we deal with this? My husband has megaloblastic anaeamia and stopping the injections could have fatal
Granny2024
in
Pernicious Anaemia Society
9 days ago
Adrenal support - early days of T3
Hi I have recently started on Liothyronine - followed advice to start slowly and all seems to be going well. I am also on very regular B12 injections. I have a question about supporting adrenal glands. I had (may still have…) low morning cortisol, was given a Short Synacthen test which I passed but
Hi I have recently started on Liothyronine - followed advice to start slowly and all seems to be going well. I am also on very regular B12 injections. I have a question about supporting adrenal glands. I had (may still have…) low morning cortisol, was given a Short Synacthen test which I passed but
GW1000
in
Thyroid UK
9 days ago
worse after b12 injection
really confused what and where to go from here… I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever since. I also do have currently low ferritin of 20 and my b12 was around 250 prior to injection. I had been told people felt better straight away
really confused what and where to go from here… I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever since. I also do have currently low ferritin of 20 and my b12 was around 250 prior to injection. I had been told people felt better straight away
B12stuff
in
Pernicious Anaemia Society
9 days ago
How does it feel to have too much B12?
I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of injections. I am not sure if I needed to push through this or stop and let things settle. How can you tell whether you need more or less B12? I am finding this very confusing...
I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of injections. I am not sure if I needed to push through this or stop and let things settle. How can you tell whether you need more or less B12? I am finding this very confusing...
Krysagnes
in
Pernicious Anaemia Society
10 days ago
appointment with doc
T 4. 8.0. Range. 8 -18.0 TSH. 0.17. 0.38-5.33 B12. 277. 180/900 Sodium. 132. 135-146 Ferritin. 23. 11-307 Red blood 3.66 3.80-5.30 Haemoglobin 116 120-150 Message. to book telephone appointment I delayed it by
T 4. 8.0. Range. 8 -18.0 TSH. 0.17. 0.38-5.33 B12. 277. 180/900 Sodium. 132. 135-146 Ferritin. 23. 11-307 Red blood 3.66 3.80-5.30 Haemoglobin 116 120-150 Message. to book telephone appointment I delayed it by
Gcart
in
Thyroid UK
10 days ago
So, reversing out. Why?
I have read all about reversing out symptoms after having iron infusion and starting B12 injections. But can anyone tell me why we get these symptoms. What is the science behind it? Surely healing should get easier, not worse. Just interested to know why we go backwards before recovery.
I have read all about reversing out symptoms after having iron infusion and starting B12 injections. But can anyone tell me why we get these symptoms. What is the science behind it? Surely healing should get easier, not worse. Just interested to know why we go backwards before recovery.
Chickens44
in
Pernicious Anaemia Society
10 days ago
T3 toxicity
Hi, I wonder if anyone could tell me whether it’s possible for T3 to simply ‘not agree’ with me? I’ve posted here before and got lots of great advice. My numbers previously showed me mid range through all the thyroid numbers but not converting well to T3. I was advised to take selenium and zinc
Hi, I wonder if anyone could tell me whether it’s possible for T3 to simply ‘not agree’ with me? I’ve posted here before and got lots of great advice. My numbers previously showed me mid range through all the thyroid numbers but not converting well to T3. I was advised to take selenium and zinc
Peril1504
in
Thyroid UK
10 days ago
Haematologist uk
Hi Please forgive me if this post is inappropriate. I am looking for a good B12/PA understanding Haematologist in the Uk preferably NHS if anyone can recommend I would appreciate it I am in LINCOLNSHIRE but happy to travel. Thank you
Hi Please forgive me if this post is inappropriate. I am looking for a good B12/PA understanding Haematologist in the Uk preferably NHS if anyone can recommend I would appreciate it I am in LINCOLNSHIRE but happy to travel. Thank you
Diane1961
in
Pernicious Anaemia Society
10 days ago
esomeprazole
I've posted or replied a few times now about my struggle to stop this medication. Now I have a new reason. I've needed a couple of teeth extracted and bled profusely afterwards. Someone tried to tell me it was my B12 injections, but all I found on that subject is the possibility of INCREASED clotting
I've posted or replied a few times now about my struggle to stop this medication. Now I have a new reason. I've needed a couple of teeth extracted and bled profusely afterwards. Someone tried to tell me it was my B12 injections, but all I found on that subject is the possibility of INCREASED clotting
tomdickharry
in
Pernicious Anaemia Society
11 days ago
Sharp Bins
Hi - I have been using B12 patches for years - but found I needed more and more to feel OK. So I went to my GP - who was unhelpful. I found an Aesthetic Practitioner who gave me a number of shots - after filling in an online form for a prescription. She has now stopped her practice for a short time
Hi - I have been using B12 patches for years - but found I needed more and more to feel OK. So I went to my GP - who was unhelpful. I found an Aesthetic Practitioner who gave me a number of shots - after filling in an online form for a prescription. She has now stopped her practice for a short time
Pixie330
in
Pernicious Anaemia Society
12 days ago
68.1 pmoI/L
My test results shows active B12 of 68.1 with Normal range 25.1 - 165.0 pmol/L. My GP says it's normal and won't do anything. Can any tell me whether this is low or high?
My test results shows active B12 of 68.1 with Normal range 25.1 - 165.0 pmol/L. My GP says it's normal and won't do anything. Can any tell me whether this is low or high?
Salis80
in
Pernicious Anaemia Society
12 days ago
Waiting on ultrasound results
Hi everyone, I found a lump on the front of my neck (you can visibly see it) along with a raised lymph node. I had a neck ultrasound this week and I’m just waiting on the results. The radiologist said there is a 2cm nodule on my thyroid but that he couldn’t see anything concerning and would pass everything
Hi everyone, I found a lump on the front of my neck (you can visibly see it) along with a raised lymph node. I had a neck ultrasound this week and I’m just waiting on the results. The radiologist said there is a 2cm nodule on my thyroid but that he couldn’t see anything concerning and would pass everything
Seashell8915
in
Thyroid UK
12 days ago
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