Search
Search
About
Log in
Join
Experiences with
Vision loss
Read more...
Posts
Communities
1,590 public posts
Filter results
Hubby about to begin Obinutuzumab infusions....feeling anxious
After having a transient
loss
of
vision
in one eye that was ultimately related to a "tortuous vein" problem and a white blood cell count of over 200k, his oncologist placed him on Acalabrutinib for eight months.
After having a transient
loss
of
vision
in one eye that was ultimately related to a "tortuous vein" problem and a white blood cell count of over 200k, his oncologist placed him on Acalabrutinib for eight months.
keikikumu
in
CLL America Support
2 years ago
Levothyroxine dosing - micrograms per square metre
I keep finding references to dosing levothyroxine based on body surface area. Such as this: [i]The maintenance dose is usually 100 to 150 micrograms per m² of body surface.[/i] (Taken from the documentatian for Orifarm but similar is widely included in Patient Information Leaflets, etc.) And there
I keep finding references to dosing levothyroxine based on body surface area. Such as this: [i]The maintenance dose is usually 100 to 150 micrograms per m² of body surface.[/i] (Taken from the documentatian for Orifarm but similar is widely included in Patient Information Leaflets, etc.) And there
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Working with Fibromyalgia
Hi i was wondering how do everyone.cope with working i had a spinal fusion and decompression 2 half years ago and now dignosed with Fibromyalgia in alot of pain lots of medication .i would love to go back to work but impossible feel so lost my life has really changed.x
Hi i was wondering how do everyone.cope with working i had a spinal fusion and decompression 2 half years ago and now dignosed with Fibromyalgia in alot of pain lots of medication .i would love to go back to work but impossible feel so lost my life has really changed.x
Shartaylor0264
in
Fibromyalgia Action UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
taking hydroxychloroquine with a visual impairment
In his opinion, the benefits out weigh the risks and since my
vision
is already poor, he figured that any
vision
loss
may not make a huge difference for me… however, I recently saw my Neuro ophthalmologist to get my eyes checked and he had a different opinion.
In his opinion, the benefits out weigh the risks and since my
vision
is already poor, he figured that any
vision
loss
may not make a huge difference for me… however, I recently saw my Neuro ophthalmologist to get my eyes checked and he had a different opinion.
AnimalLover115
in
LUPUS UK
2 years ago
Common Symptoms.
I also had intermittent temporary
loss
of level of hearing and
vision
. I would need speakers at times and then not. With the vision I would need to increase the size of the text on my phone or lap top. The reason I concluded that this was due to B12 D is they went away with self treatment.
I also had intermittent temporary
loss
of level of hearing and
vision
. I would need speakers at times and then not. With the vision I would need to increase the size of the text on my phone or lap top. The reason I concluded that this was due to B12 D is they went away with self treatment.
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Grateful survivor of Bacterial Spinal Meningitis, Spinal fusion, Stage IV kidney failure and COVID with natural immunity.
Greetings to any and all persons who may read my bio and be encouraged by the continuous love that God provides in a time of medical crisis. In no way do I intend to disparage the talented and dedicated members of the medical profession. I am into predictive and preventive medicine. As a patient
Greetings to any and all persons who may read my bio and be encouraged by the continuous love that God provides in a time of medical crisis. In no way do I intend to disparage the talented and dedicated members of the medical profession. I am into predictive and preventive medicine. As a patient
STA2017
in
Meningitis Now
2 years ago
Weight loss surgery.
I have primary Lymphodeama in both lower legs and one hand. It’s been stable for many years and managed with compression garments. I have over the last decade put on quite a lot of weight. I’ve tried everything and weight loss is so slow I get get up and give up only to gain more. I’m also a stress
I have primary Lymphodeama in both lower legs and one hand. It’s been stable for many years and managed with compression garments. I have over the last decade put on quite a lot of weight. I’ve tried everything and weight loss is so slow I get get up and give up only to gain more. I’m also a stress
Jenny113
in
LSN
2 years ago
GCA symptoms after one year of discontinuing prednisone
My neuro opthamologist said eyes looked good, and that positional
vision
loss
might not be GCA. He asked for a carotid ultrasound which was negative. However recently I have experienced jaw claudication only while eating , have lost some weight, and ESR/CRP has risen to 22/33.
My neuro opthamologist said eyes looked good, and that positional
vision
loss
might not be GCA. He asked for a carotid ultrasound which was negative. However recently I have experienced jaw claudication only while eating , have lost some weight, and ESR/CRP has risen to 22/33.
Pamk1949
in
PMRGCAuk
2 years ago
Trab operation for normal tension glaucoma
My pressure was in the low to mid teens but I was still suffering damage to the optic nerve causing
loss
of field
vision
in the central part of the eye so my Consultant was anxious to perform the trab to stabilise the eye and prevent further damage.
My pressure was in the low to mid teens but I was still suffering damage to the optic nerve causing
loss
of field
vision
in the central part of the eye so my Consultant was anxious to perform the trab to stabilise the eye and prevent further damage.
Biffo72
in
Glaucoma UK
2 years ago
Trab operation for normal tension glaucoma
My pressure was in the low to mid teens but I was still suffering damage to the optic nerve causing
loss
of field
vision
in the central part of the eye so my Consultant was anxious to perform the trab to stabilise the eye and prevent further damage.
My pressure was in the low to mid teens but I was still suffering damage to the optic nerve causing
loss
of field
vision
in the central part of the eye so my Consultant was anxious to perform the trab to stabilise the eye and prevent further damage.
Biffo72
in
Glaucoma UK
2 years ago
PD’s Effect on Vision
“We need to remember that no two cases of Parkinson’s are exactly alike. No matter who you see or know with PD, or what you hear or read about PD, you are not necessarily going to be like that or have happen to you what has happened to them, because you are unique and so is each case of PD.” NANCY F.
“We need to remember that no two cases of Parkinson’s are exactly alike. No matter who you see or know with PD, or what you hear or read about PD, you are not necessarily going to be like that or have happen to you what has happened to them, because you are unique and so is each case of PD.” NANCY F.
Farooqji
in
Cure Parkinson's
2 years ago
Advice please
I’m currently on holiday so away from my GP Surgery. On 1st July I started having whooshes of the bottom. Despite eating bland food, I am easily having to dash to the toilet at least twice an hour. Tried taking Imodium seems to work for 4 hours then I am back to square one. 😭needless to say all my muscles
I’m currently on holiday so away from my GP Surgery. On 1st July I started having whooshes of the bottom. Despite eating bland food, I am easily having to dash to the toilet at least twice an hour. Tried taking Imodium seems to work for 4 hours then I am back to square one. 😭needless to say all my muscles
Bunnyjones
in
Thyroid UK
2 years ago
My partner was diagnosed with IIH in January 22 and it seems the neurological department know very little, so the future feels uncertain.
Hi there, My partner has Idiopathic Intercranial Hypertension ( I I H ) which is a pressure that builds up in the cerebral fluid and causes
vision
loss
, hearing loss and mobility problems, memory function, just to name a few.
Hi there, My partner has Idiopathic Intercranial Hypertension ( I I H ) which is a pressure that builds up in the cerebral fluid and causes
vision
loss
, hearing loss and mobility problems, memory function, just to name a few.
Marist
in
Neuropathy Support
2 years ago
RED LIGHT HELMET can cause increased ‘reactive oxygen species’ (ROS) production, according to this study
https://pubmed.ncbi.nlm.nih.gov/33530211/ This study included 18 patients (not mice!) to determine the safety and effectiveness of photobiomodulation (PBM) + hydrogen water (H2), stating H2 may clear additional ROS produced by PBM All participants received daily PBM + H2 therapy for 2 weeks. The UPDRS
https://pubmed.ncbi.nlm.nih.gov/33530211/ This study included 18 patients (not mice!) to determine the safety and effectiveness of photobiomodulation (PBM) + hydrogen water (H2), stating H2 may clear additional ROS produced by PBM All participants received daily PBM + H2 therapy for 2 weeks. The UPDRS
Jennyjenny2
in
Cure Parkinson's
2 years ago
I can feel that old fybro feeling again, in 2020 in full isolation from Covid, lack of mobility, developed fybromyalgia [undiagnosed]?
I was never able to be fully diagnosed as I am vulnerably disabled, then lo and behold, I developed a colourful reaction to AZ vaccine,in 2021 which reacted to my schwannomatosis NF3, then slowly very slowly wearing off, with all symptoms of the fibro [not a recommended way of getting rid of the condition
I was never able to be fully diagnosed as I am vulnerably disabled, then lo and behold, I developed a colourful reaction to AZ vaccine,in 2021 which reacted to my schwannomatosis NF3, then slowly very slowly wearing off, with all symptoms of the fibro [not a recommended way of getting rid of the condition
Adlon57
in
Fibromyalgia Action UK
2 years ago
Ferritin level information
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
DataRN
in
Restless Legs Syndrome
2 years ago
How to deal with pelvic pain
I have been having a lot of pelvic pain over the last 10 months especially since i have to have a catheter fitted. Also, I feel that I have another ovarian cyst as I am getting similar pain as I have had them in the past. I have had to have the catheter fitted since September because I was retaining
I have been having a lot of pelvic pain over the last 10 months especially since i have to have a catheter fitted. Also, I feel that I have another ovarian cyst as I am getting similar pain as I have had them in the past. I have had to have the catheter fitted since September because I was retaining
Amelia-Jayne
in
Pelvic Pain Support Network
2 years ago
Loss of left eye vision after mengioma tumour removal by optic nerve in my daughter-anyone experience this or regain vision?
Anyone experience
loss
of
vision
after mengioma tumour surgery-vision return?
Anyone experience
loss
of
vision
after mengioma tumour surgery-vision return?
Santamusic
in
Meningioma Support
2 years ago
vision deterioration and hearing loss
hi everyone just wondered how many of you suffer these. Symptoms ? I’m still in a battle with doctors to get more frequent jabs as my symptoms keep coming .. currently have 8 weekly but know it’s not enough..have just had neurologist appointment moved from feb to September so hoping that’s going to
hi everyone just wondered how many of you suffer these. Symptoms ? I’m still in a battle with doctors to get more frequent jabs as my symptoms keep coming .. currently have 8 weekly but know it’s not enough..have just had neurologist appointment moved from feb to September so hoping that’s going to
Lowblow
in
Pernicious Anaemia Society
2 years ago
Needed help and advice
Hi im all new to this page, im looking for advice before i feel like im heading so low.. i can not shake this pain off and the tiredness off.. i have a spinal fusion 3 years ago, and it has stemmed for this, as the consultant has told me.. the weight has crept up and i can not shift it... any advice
Hi im all new to this page, im looking for advice before i feel like im heading so low.. i can not shake this pain off and the tiredness off.. i have a spinal fusion 3 years ago, and it has stemmed for this, as the consultant has told me.. the weight has crept up and i can not shift it... any advice
Meljack9704
in
Fibromyalgia Action UK
2 years ago
1
...
9
10
11
...
80
Next page
10
20
30
40
50
60
70
80
Filter results
Clear filters
Posted in
All communities
Thyroid UK
343 results
PMRGCAuk
107 results
Cure Parkinson's
98 results
View top 10 communities
Sort by
Most Relevant
Newest