Meningioma Support | HealthUnlocked

New to this forum having only just been diagnosed with a small meningioma in the left posterior ventricle (10mm) last week. I would be interested to hear...

I had a craniotomy about a week ago after finding a 5 cm meningioma which was affecting my vision and balance. I am on high doses of Steroids to reduce...

I had a craniotomy 7 weeks ago to remove a large meningioma. My head feels like it's being squeezed constantly. I'm also having issues sleeping it feels like...

Hello, I am on a forum elsewhere on this site that I have very helpful, so thought it was time I tried this one. Hoping to learn and understand a bit more...

Our Support Line will be closed over the Christmas period, from 2pm on Tuesday the 24th of December. Our Support Team will be back from 9am on Thursday the 2nd...

hi every just got this report back I have MS and really thought my symptoms were related to a relapse since fatigue and vision are my biggest struggles, come...

Atypical meningioma with separate radiation necrosis site.

I am a 58 year old brain tumor survivor. When I was 13 I had surgery for an Astrocytoma tumor. 27 treatment days of radiation followed. I recovered and thought...

I have had multiple recurring meningiomas with subsequent infections since 2020. I have undergone radiation treatments x2. The first was 5 times/week x 6...

What are your thoughts or opinions on how these develop? Did you have any physical trauma, did you work with chemicals, did any other family members have...

Active, social 72 year old female awaiting non malignant meningioma surgery around Christmas time. The meningioma is currently pressing on my optic nerve and...

Has anyone had more than 1 menigioma? I had 1 surgically removed from spine and now have 1 in my head. Dr. Is watching for now.

I have only ever posted once before... and I know we're all in the same boat. Many worse off than I 😕 I have a 1.6cm benign meningioma that sit pressing...

Hi people, I've just heard - and I'm sure it was meant very kindly - and not intended to cause distress - that if someone is older - I'm 72 with a benign...

Hi everyone, I've been lurking and reading the very brave and positive stories here for a while but have decided to post and ask for advice if I may. I'm...

Newly diagnosed (09/2024)with meningioma on right temporal lobe and transverse sinus vein.. I'm trying to get information and find a neurosurgeon. I have so...

Hi All I am about to start a six-week course of fractionated brain radiotherapy having been diagnosed with a medium sized Petroclivial Meningioma which...

Hi was diagnosed with a meningioma in may thus year it is pressing on my trigeminal nerve I have seen neurosurgeon my options monitored radiotherapy...

Hi, Thanks for accepting me to this group, having been diagnosed with a meningioma tumour 2 weeks ago, following a seizure, and having been referred for...

Hello , has anyone had any luck with dvla changing their rules on not been able to drive for 12 months following a grade 2 meningioma . I had mine removed in...

Hello, I had a craniotomy in 2020 for Atypical meningioma grade 2. At present, the cyst of the tumour cavity is enlarged and now the size is 4.5 cm. Along with...

On the 22/06/2024 i was travelling to work in my car and blacked out causing a car accident . I woke up in ambulance was taken to local hospital diagnosed with...

Hi All, I am sorry we meet here because of our circumstances. However, we are obviously here because only we know what it is like knowing there is something...

Hi, Just wondering If anyone else has multiple meningiomas? If so, what have you been told about possible treatment? I realise it depends where they are and...

I have 11 meningiomas and have worsening headaches, always really bad on wakening. Medication given by my Surgery made feel nauseous and headaches aren’t...

I was recently diagnosed with a 1.7cm meningioma in my frontal lobe (an incidental find after a suspected stroke) I’ve had 2 CT scans & an MRI scan at my local...

radiotherapy and fatigue. Has anyone experienced episodes of extreme fatigue? Eg, tired upon waking. If so, were you able to reduce symptoms successfully ?

Hi, does anyone have any suggestions on dealing with dvla, 11 months from 1 seizure and 8 months from surgery dvla have said today they have cancelled my...

Hi, I had a craniotomy and resection of petroclival meningioma in May 2022 but as attached to brain stem it can’t be fully removed. Due to minor growth and...

I’m interested in any long term side effects of radiation treatment on meningioma grade 1 but regrowing.