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Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Nadineb1
in
Sickle Cell Society
7 years ago
Teeth!!!!
Have any of you experienced problems with your teeth after starting HU! I've been getting terrible mouth ulcers and been prescribed hydrocortisone lozenges. But my big problem now is ive suddenly got 3 wobbly teeth and gums are tender Anyone else had this problem? TIA
Have any of you experienced problems with your teeth after starting HU! I've been getting terrible mouth ulcers and been prescribed hydrocortisone lozenges. But my big problem now is ive suddenly got 3 wobbly teeth and gums are tender Anyone else had this problem? TIA
130396
in
MPN Voice
8 years ago
metallic taste after stopping smoking
this is about the 50th time i have tried to stop ... i am 63 now and stopped for 7 days so far ... it was the metallic taste along with swollen tongue ulcers on both sides more ulcers around my gums and inside my mouth that made me smoke again ... the very next day all the ulcers would be gone and
this is about the 50th time i have tried to stop ... i am 63 now and stopped for 7 days so far ... it was the metallic taste along with swollen tongue ulcers on both sides more ulcers around my gums and inside my mouth that made me smoke again ... the very next day all the ulcers would be gone and
bert693
in
Lung Conditions Community Forum
8 years ago
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Tonsillitis and Enlarged Tonsil
Hi guys I didn't know where to post this so thought I'd try here, thanks. Long story short, at start of 2013 summer when I was 23 I had a severe case of tonsillitis with both tonsils very enlarged, inflamed and white stuff on it, it was hell. I saw the doctor a month after (procrastinated, thought it'll
Hi guys I didn't know where to post this so thought I'd try here, thanks. Long story short, at start of 2013 summer when I was 23 I had a severe case of tonsillitis with both tonsils very enlarged, inflamed and white stuff on it, it was hell. I saw the doctor a month after (procrastinated, thought it'll
Andyb1205
in
Thyroid UK
8 years ago
Hi everyone
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Louis-Henry
in
Myeloma UK
7 years ago
Hello
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
nonchan
in
Lung Conditions Community Forum
7 years ago
Mouth ulcers
Hi Since I first came down with RA , I have mouth ulcers all the time. These are very painful when they come up on the lips or tongue. I am not on MTX yet and I know that can cause them but does anyone just get them as part of their RA and not because of a side effect of medication. The only time they
Hi Since I first came down with RA , I have mouth ulcers all the time. These are very painful when they come up on the lips or tongue. I am not on MTX yet and I know that can cause them but does anyone just get them as part of their RA and not because of a side effect of medication. The only time they
grainnek
in
NRAS
8 years ago
Kissing with Mouth ulcer HIV Risk
Hi Sir, I have visited a strip club last Monday and took a lap dance. During that dance 1. I have touched her boobs and pressed too for couple of minutes 2. I have touched her Vagina from out side couple of times but did not insert my finger into her Vagina 3. Through out the dance I was completely
Hi Sir, I have visited a strip club last Monday and took a lap dance. During that dance 1. I have touched her boobs and pressed too for couple of minutes 2. I have touched her Vagina from out side couple of times but did not insert my finger into her Vagina 3. Through out the dance I was completely
Hidden
in
Anxiety Support
8 years ago
Frightening news - White CBC of 22,000 and liver panels elevated - RA, PMR and GCA with an ALL leukemia history
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras. I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers
Nitrobunny
in
NRAS
7 years ago
Horrible taste - sore mouth - body smell
Been on Methotrexate for nearly 5 months and have developed really horrid taste in my mouth and sore mouth - plus body smell. Anyone know is this happens on the other pill Dmards or Biologics. Will see Nurse Practitioner who may proscribe another dmard with the same result. Any experiences or helpful
Been on Methotrexate for nearly 5 months and have developed really horrid taste in my mouth and sore mouth - plus body smell. Anyone know is this happens on the other pill Dmards or Biologics. Will see Nurse Practitioner who may proscribe another dmard with the same result. Any experiences or helpful
Tamsy
in
NRAS
8 years ago
Hashimoto and mouth sores
So as a newly diagnosed Hashimoto sufferer I thought id suffered enough over the last few years but this weekend I have experienced very sore lips and gums. I have developed what I think is a canker sore on my upper lip which is burning with pain. I got my period on Saturday and I've been so poorly over
So as a newly diagnosed Hashimoto sufferer I thought id suffered enough over the last few years but this weekend I have experienced very sore lips and gums. I have developed what I think is a canker sore on my upper lip which is burning with pain. I got my period on Saturday and I've been so poorly over
ChrissyS1
in
Thyroid UK
8 years ago
A thankful run
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
It's not been a great week. My lovely hairdresser's husband has died after a long struggle with liver cancer, and I have just heard that my cousin has to have another stem cell transplant after Christmas and that a friend has just been diagnosed with breast cancer. I was talking myself out of a run today
Ullyrunner
Graduate
in
Couch to 5K
8 years ago
Diagnosis
Hi there can anyone advise about having someone take you seriously to have lupus looked at? I've been told I have fibromyalgia, arthritis and patella femoral joint dysfunction. For years I have had issues with recurrent mouth ulcers (some so big they've ulcerated my throats and spread down my windpipe
Hi there can anyone advise about having someone take you seriously to have lupus looked at? I've been told I have fibromyalgia, arthritis and patella femoral joint dysfunction. For years I have had issues with recurrent mouth ulcers (some so big they've ulcerated my throats and spread down my windpipe
Minnie101
in
LUPUS UK
8 years ago
I didn't have pernicious anemia I have cancer
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed pernicious anemia, but unfortunately after more blood tests I was found to have AML leukemia. I spent nearly four hours in the Mayo Clinic last week
oldtimeradioguy
in
Pernicious Anaemia Society
8 years ago
New Member
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
I'm new to the forum and have myleo fibrosis. I am waiting on a stem cell transplant at City of Hope
linbatten
in
Fight MPN
8 years ago
Mouth ulcers
Hi All, Newbie here.... I've been diagnosed with Hashimotos but with a working thyroid, but due to symptoms have been put on a low dose of thyroxine 25mg since April. Since July I have had mouth ulcers every week I was wondering is there a link between thyroxine and mouth ulcers? Thanks in advance for
Hi All, Newbie here.... I've been diagnosed with Hashimotos but with a working thyroid, but due to symptoms have been put on a low dose of thyroxine 25mg since April. Since July I have had mouth ulcers every week I was wondering is there a link between thyroxine and mouth ulcers? Thanks in advance for
Tina2788
in
Thyroid UK
8 years ago
Sore Mouth on Methotrexate
Suddenly yesterday I started feeling what feels like burning in my mouth. I can't see any obvious sores or ulcers but the roof of my mouth and tongue are a bit red, 'raw' and sore feeling. My throat is now starting to hurt a bit too. I was warned to look out for ulcers, but a sore tongue? I've just
Suddenly yesterday I started feeling what feels like burning in my mouth. I can't see any obvious sores or ulcers but the roof of my mouth and tongue are a bit red, 'raw' and sore feeling. My throat is now starting to hurt a bit too. I was warned to look out for ulcers, but a sore tongue? I've just
hope-always316
in
NRAS
8 years ago
Chronic fatigue
Hi all I am 27 years old and been diagnosed with mild endo for a year. The pain since the lap has subsided as I have the hormonal coil and barely have a period but recently it has come back with a vengeance and my flares up are getting worse. I have just started a new high profile job and have been tired
Hi all I am 27 years old and been diagnosed with mild endo for a year. The pain since the lap has subsided as I have the hormonal coil and barely have a period but recently it has come back with a vengeance and my flares up are getting worse. I have just started a new high profile job and have been tired
flossy24
in
Endometriosis UK
8 years ago
Intro
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Hi I'm Christiana. I was diagnosed with T cell lymphoblastic lymphoma, stage 4b in 2013. My treatment protocol has been ukall12. After 6 months inpatient treatment then and a donor stem cell transplant I'm doing well, being monitored frequently but all's good. I've been writing a blog this year diarying
Christiana_
in
Leukaemia CARE
8 years ago
NCT02478125 - for prostate cancer metatstses
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
This was at Johns Hopkins just last week. I went down for a screening interview, which was wonderful, and the whole experience was fantastic. Unfortunately, I was too healthy for the trial, so I have to at least wait. I characterize it as an "off label" use of a pretty standard procedure: essentially
Hidden
in
Understanding Clinical Trials
8 years ago
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