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Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Hello again. I am three months post stem cell transplant for NHL that crossed the blood brain barrier into my CNS. There are many restrictions for me and I wondered who else was in the same boat? Thank you.
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Huge sore on roof of mouth
I have Lupus and other things too. Every 6 weeks or so I relapse and this involves having some mouth ulcers and needing to be in bed for a few days. I am on Methotrexate. I now have a huge mouth ulcer on the roof of my mouth, swollen mouth and glands up. Do others experience this?
I have Lupus and other things too. Every 6 weeks or so I relapse and this involves having some mouth ulcers and needing to be in bed for a few days. I am on Methotrexate. I now have a huge mouth ulcer on the roof of my mouth, swollen mouth and glands up. Do others experience this?
Iona467
in
NRAS
7 years ago
Sores in the mouth
Hi everybody. I have just taken my second table of Hydroxycarbamide. So far, so good. I am writing a 'just in case' post as I know that a lot people on this drug have mouth sores. A few weeks ago,on this sight, there was a very helpful post about a mouth rinse for mouth problems.I took down the details
Hi everybody. I have just taken my second table of Hydroxycarbamide. So far, so good. I am writing a 'just in case' post as I know that a lot people on this drug have mouth sores. A few weeks ago,on this sight, there was a very helpful post about a mouth rinse for mouth problems.I took down the details
Splb3317
in
MPN Voice
7 years ago
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Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Diagnosed in July 2014- RCHOP treated in Pittsburgh at the Mario Lemieux Center for Blood Cancers. Relapsed in November of 2015, received RICE then BEAM before April 2016 auto stem cell transplant.
Mrjackwagon
in
Non Hodgkin's Lymphoma Friends
7 years ago
Disappointment.........needed a tooth axtraction ....
Will soon be participating in the flair trial so wanted to get this troublesome tooth out , to be honest should have had it out years ago but just carried on I have an irrational fear of dentists my achillies heel from childhood .......dentist said teeth were not in bad shape but the particular tooth
Will soon be participating in the flair trial so wanted to get this troublesome tooth out , to be honest should have had it out years ago but just carried on I have an irrational fear of dentists my achillies heel from childhood .......dentist said teeth were not in bad shape but the particular tooth
stewie
in
CLL Support
7 years ago
I'm new to this, please be gentle
So starting at the beginning I was diagnosed with Leukemia in 2014 at 23, then I had a stem cell transplant which is where it all went wrong; Being on all sorts of medication including steroids made me gain weight, then loose it, then gain it again; this wasn't helped by the fact I wasn't able to do
So starting at the beginning I was diagnosed with Leukemia in 2014 at 23, then I had a stem cell transplant which is where it all went wrong; Being on all sorts of medication including steroids made me gain weight, then loose it, then gain it again; this wasn't helped by the fact I wasn't able to do
lynn_dee_lou
in
Weight Loss Support
7 years ago
HCST
Has anyone looked into doing stem cell transplant? My neurologist told me that they wouldn't accept me because of my age 48 and because I have had MS for 9 years, think I want to try, this disease is so frustrating.
Has anyone looked into doing stem cell transplant? My neurologist told me that they wouldn't accept me because of my age 48 and because I have had MS for 9 years, think I want to try, this disease is so frustrating.
cnichols
in
My MSAA Community
7 years ago
Key questions to ask your consultant
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Davdow
in
CLL Support
7 years ago
Cold sores and Orencia
Hi, can I ask if anyone has suffered with cold sores when taking Orencia (Abatacept)? I got 5 after taking my 2nd weekly injection, 2 up my nose (ouch) and 3 around my mouth. I've not taken Orencia for 3 weeks now, waiting for sores to clear up. GP gave me a course of Aciclovir tablets and they are slowly
Hi, can I ask if anyone has suffered with cold sores when taking Orencia (Abatacept)? I got 5 after taking my 2nd weekly injection, 2 up my nose (ouch) and 3 around my mouth. I've not taken Orencia for 3 weeks now, waiting for sores to clear up. GP gave me a course of Aciclovir tablets and they are slowly
bernese1225
in
NRAS
7 years ago
Daughter update
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
fastball
in
Lung Conditions Community Forum
7 years ago
Relapsed Mantle Cell Lymphoma--I'm new here!
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
Gail2050
in
Non Hodgkin's Lymphoma Friends
7 years ago
CD8 T Cell Lymphoma in skin tissue and muscle
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
squashman
in
Non Hodgkin's Lymphoma Friends
7 years ago
MDS UK Patient and Family Forum Birmingham, UK Saturday, 4th February 2017 10.00 am – 16.30 pm
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
LCNurse
LeukaemiaCARE Nurse
in
Leukaemia CARE
7 years ago
SS carrier
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Nadineb1
in
Sickle Cell Society
7 years ago
Teeth!!!!
Have any of you experienced problems with your teeth after starting HU! I've been getting terrible mouth ulcers and been prescribed hydrocortisone lozenges. But my big problem now is ive suddenly got 3 wobbly teeth and gums are tender Anyone else had this problem? TIA
Have any of you experienced problems with your teeth after starting HU! I've been getting terrible mouth ulcers and been prescribed hydrocortisone lozenges. But my big problem now is ive suddenly got 3 wobbly teeth and gums are tender Anyone else had this problem? TIA
130396
in
MPN Voice
7 years ago
metallic taste after stopping smoking
this is about the 50th time i have tried to stop ... i am 63 now and stopped for 7 days so far ... it was the metallic taste along with swollen tongue ulcers on both sides more ulcers around my gums and inside my mouth that made me smoke again ... the very next day all the ulcers would be gone and
this is about the 50th time i have tried to stop ... i am 63 now and stopped for 7 days so far ... it was the metallic taste along with swollen tongue ulcers on both sides more ulcers around my gums and inside my mouth that made me smoke again ... the very next day all the ulcers would be gone and
bert693
in
Lung Conditions Community Forum
7 years ago
Tonsillitis and Enlarged Tonsil
Hi guys I didn't know where to post this so thought I'd try here, thanks. Long story short, at start of 2013 summer when I was 23 I had a severe case of tonsillitis with both tonsils very enlarged, inflamed and white stuff on it, it was hell. I saw the doctor a month after (procrastinated, thought it'll
Hi guys I didn't know where to post this so thought I'd try here, thanks. Long story short, at start of 2013 summer when I was 23 I had a severe case of tonsillitis with both tonsils very enlarged, inflamed and white stuff on it, it was hell. I saw the doctor a month after (procrastinated, thought it'll
Andyb1205
in
Thyroid UK
7 years ago
Hi everyone
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Louis-Henry
in
Myeloma UK
7 years ago
Hello
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
Hello, I am new here and from Japan, wish my country had site like this. I started to have lung problem as part of complication called GVHD which is from my stem cell transplant from blood cancer, i have other several complications but this is the hardest one. I was in the hospital for three weeks in
nonchan
in
Lung Conditions Community Forum
7 years ago
Mouth ulcers
Hi Since I first came down with RA , I have mouth ulcers all the time. These are very painful when they come up on the lips or tongue. I am not on MTX yet and I know that can cause them but does anyone just get them as part of their RA and not because of a side effect of medication. The only time they
Hi Since I first came down with RA , I have mouth ulcers all the time. These are very painful when they come up on the lips or tongue. I am not on MTX yet and I know that can cause them but does anyone just get them as part of their RA and not because of a side effect of medication. The only time they
grainnek
in
NRAS
8 years ago
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