Myeloma UK | HealthUnlocked

Have just been diagnosed HR Multiple Myeloma Shocked scared and start treatment on Friday Would be so grateful for advice guidance and any help ? Thank you...

Hi everyone Very curious about this condition as I my have it, I'm on watch and wait at mo, but here is my story.. I am wondering whether i have myeloma as my...

I was diagnosed with MGUS 18 years ago. I have since been diagnosed with CLL for which I am on watch and wait. As far as I am aware these two are not...

Hi I've been on the forum a few weeks in that time my dad has died I really don't even know what I want from this part of the site but I'm struggling I've only...

[An email i received on 06 July 2021 from CPS Research is copied below] Multiple Myeloma Research Study Help those affected by myeloma We're delighted to...

I wrote a reply to a post called newcomers, in which I explained my circumstances – long story short I am off to Sutton Marsden today for a harvesting session....

Hi, Presented at my local cancer ward assessment unit on Friday with temp. of 38.8, was up & down for 24hrs, sore throat, cough, cold, aching. Assessed & told...

Hi , I have been told I have free light chains in my blood and have been referred to a hematologist , I go on Tuesday , i have been waiting 3 months for the...

I'm wondering if anyone can help and I'm so sorry if I'm coming across as a hypocondriac, but I'm just worried because I think there maybe a possibility I have...

My father has just been diagnosed with MM, He is just 65 and been told that it could be passed on to me too. I was wondering if anyone knows if I can get...

Hi ive been on checkups for mgus for about 3 or 4 yrs..my para protein has now gone up to a level that my doc says is likely im now no longer asymptomatic but...

Hi, My husband has just been diagnosed with Mgus & a symptomatic myeloma.. So we're just trying to get as much info, to understand, what his diagnosis means..&...

Hi everyone. I was recently diagnosed with multiple myeloma through blood tests and Bence Jones test. but symptoms that first took me to the doctors were pains...

my auntie is currently living in france and has recently spent a couple of weeks in hospital due to severe pain in her sternum at first they thought she had a...

Hi I'm Jon, I was diagnosed with Smouldering Myeloma recently. No symptoms at the moment thankfully. Had bone marrow biopsy, just regular blood tests now.

I was told I had it on 16 may go back to the hospital next week I been get a lot of pain from October when I was got push in to a table at work hart my...

Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint...

Hi there. I have just joined and hope you're all doing ok? My Mum was diagnosed just over a year ago and has been told today that she needs to start treatment...

Hi I'm June have myeloma can you tell me how to meet other people with myeloma for support

Does anyone have any tips for a terrible rash which is bleeding. I have tried various creams and Anti Histamines without any success?

Some good news today - we've just launched our clinical trial MUK eleven which will open to recruitment imminently. This trial is the first of its kind and...

The Committee of Human Medicinal Products in Europe is recommending that daratumumab (also known as Darzalex®) has its licence extended to include combination...

Do you have fatigue or live with someone who does? Comment below with how fatigue feels to you and if you have any tips for living with it. Your words could...

Hi everyone - Myeloma UK has launched the dates for the 2017 Patient and Family Infodays. Infodays give you the chance to learn more about myeloma, the latest...

Scotland's drug approval body has decided not to recommend both Kyprolis® (carfilzomib) and Darzalax® (daratumumab) for myeloma patients. Myeloma UK made a...

New record! A needle in my arm 7 times today! 5 failures to find the vein, 1 cannula, 1 extra blood test for research, 3 apologetic nurses. My veins see the...

Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long...

My mother had been having back pain of weeks, months. Kept going to the doctors. I think they were putting it down to her age. She is only 70!!! They were...

A big welcome to our new members who found our new community over the last few days. Come introduce yourself and what brings you to our HealthUnlocked. Take a...

If you are new to the Myeloma UK community, this is the Topic to say "hi" and introduce yourself. It's a good idea to include when you were diagnosed and...