The title pretty much sums it up and I'd be lying if I said I wasn't scared. I'm a pretty cool customer and when I hear hoofbeats I look for horses not zebras.
I went for my Actemra infusion yesterday and had the normal blood draw which is full metabolic, CBC and ESR with liver panels. My liver numbers have been elevated for quite some time. Not before now did they cause anyone any major concern but what is really concerning is my white blood count. I haven't been able to log into the portal to see the rest of my labs but my doctor called me very concerned. I've been on antibiotics for five days, four before the blood draw. All this is frightening for two reasons. One, I hope and pray I do not have leukemia again. I am brushing but we've been chalking that up to the prednisone. Over all I feel good, practically great even despite having a pretty wicked bout of pleurisy over the weekend. I am frightened no doubt. I barely, and I mean barely survived the last of two bone marrow transplants. A third is out of the question. Secondly, if all is good on that front I do not want to have to go off of Actemra. It's the only thing that has worked for me in 14 years. My rheumatologist wants to do labs again in two weeks. I'm not so sure I want to wait that long and I'm thinking of calling my GP to get in to his office and have him draw them.
And thoughts, wisdom or distractions are all appreciated -