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Stem Cell Transplant Research
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Underactive symptoms but high t4? Help!
Hi all, Wondering if anyone can assist me, since Christmas I have felt like my thyroid has gone rogue, I have put on a stone, fatigue has returned, brain fog, constipation, floaters in my eyes on some days and crystal clear vision on others, muscle ache and tenderness, anxiety, itchy scalp, dry skin
Hi all, Wondering if anyone can assist me, since Christmas I have felt like my thyroid has gone rogue, I have put on a stone, fatigue has returned, brain fog, constipation, floaters in my eyes on some days and crystal clear vision on others, muscle ache and tenderness, anxiety, itchy scalp, dry skin
Missdee666
in
Thyroid UK
7 years ago
Question on Complete Stem Cell Transplant
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
Has anyone out there ever had a complete stem cell transplant? I will be going with my sister in law this coming week to Emory Hospital in Atlanta to find out the details. Would like to hear the good and the bad if you or if you know anyone who has had this done. She has CLL but has the P17 deletion
evetom
in
CLL Support
7 years ago
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Nervous and unsure.
Hi there! I've spent hours in the last 4 days reading up on many different syndroms, diseases and viruses. But it keeps coming back to Behcet's. This last week overnight I woke up with many ulcers in my mouth and on my labia. They're now also on my scalp. I was having bloating issues in my tummy and
Hi there! I've spent hours in the last 4 days reading up on many different syndroms, diseases and viruses. But it keeps coming back to Behcet's. This last week overnight I woke up with many ulcers in my mouth and on my labia. They're now also on my scalp. I was having bloating issues in my tummy and
Tai_me_in_happy
in
Behçet's UK
7 years ago
Bone marrow transplant on the cards
Meeting with a BMT consultant yesterday. Nice chap. Laid it all on the line warts and all. 6-9 months for the Ibutrinin to do it's job then in for BMT. Good news is that I will only be in 4 weeks and can more or less choose when it's best for me to start. Sisters tissue is done, mine is not ready but
Meeting with a BMT consultant yesterday. Nice chap. Laid it all on the line warts and all. 6-9 months for the Ibutrinin to do it's job then in for BMT. Good news is that I will only be in 4 weeks and can more or less choose when it's best for me to start. Sisters tissue is done, mine is not ready but
KAS8
in
CLL Support
7 years ago
Once again, sad relapse
Sad news 😢 I was in remission only a few months for systematic NHL in 2015 after 6 rounds of R-EPOCH, then I had a recurrence in my Central nervous system once the NHL had crossed the blood brain barrier. I then had 8 rounds of Methotrexate/Rituxin prior to a stem cell transplant in Nov 2016 (the chemo
Sad news 😢 I was in remission only a few months for systematic NHL in 2015 after 6 rounds of R-EPOCH, then I had a recurrence in my Central nervous system once the NHL had crossed the blood brain barrier. I then had 8 rounds of Methotrexate/Rituxin prior to a stem cell transplant in Nov 2016 (the chemo
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Repeat mouth ulcers
I keep getting the worse mouth ulcers everrrrr my lupus consultants have tried everything they can't grasp why.. even antibiotics, oral gel for the dry mouth nope not workinf. Even coconut oil pulling is kot working. Combined with painful teeth i am at wits end grrrrre
I keep getting the worse mouth ulcers everrrrr my lupus consultants have tried everything they can't grasp why.. even antibiotics, oral gel for the dry mouth nope not workinf. Even coconut oil pulling is kot working. Combined with painful teeth i am at wits end grrrrre
avionne
in
LUPUS UK
7 years ago
Journey begins
Hello ladies , a few hours since my first appointment with consultant following ultrasound diagnosis of a complex cyst two weeks ago. Surgery in three weeks to remove ovaries and Fallopian tubes he asked me to consent to further surgery when He's already there but warned he may have to go back in
Hello ladies , a few hours since my first appointment with consultant following ultrasound diagnosis of a complex cyst two weeks ago. Surgery in three weeks to remove ovaries and Fallopian tubes he asked me to consent to further surgery when He's already there but warned he may have to go back in
Christie22
in
My Ovacome
7 years ago
Oral Thrush
Hi, Has anyone else had oral thrush. After 3 double doses of antibiotics I have been left with oral thrush. I have been on 2 different courses of medication. Nystan and Fluconazole 50mg. twice a day. I was seen at the hospital, they took a lot of blood tests about 2 months ago but I have not heard anything
Hi, Has anyone else had oral thrush. After 3 double doses of antibiotics I have been left with oral thrush. I have been on 2 different courses of medication. Nystan and Fluconazole 50mg. twice a day. I was seen at the hospital, they took a lot of blood tests about 2 months ago but I have not heard anything
nanapat112
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
First time here
Hi everyone. I really don't know how to start and I honestly feel kind of embarrassed just throwing my business out for the entire world to see but I'm not sure what else to do. I'll keep this short, try to at least. I've been through Hodgkins Lymphoma twice, as recently as last year and beat it again
Hi everyone. I really don't know how to start and I honestly feel kind of embarrassed just throwing my business out for the entire world to see but I'm not sure what else to do. I'll keep this short, try to at least. I've been through Hodgkins Lymphoma twice, as recently as last year and beat it again
AntonioAndEmilio
in
Anxiety and Depression Support
7 years ago
Transplant Patients - SCT/BMT
Have you had or are a candidate for a Stem Cell Transplant or someone who is a caregiver of a SCT patient? If so, there is a fantastic Facebook support group for SCT and BMT patients and their caregivers. If you would like the link, please message me and I would be happy to provide it to you. NOTE:
Have you had or are a candidate for a Stem Cell Transplant or someone who is a caregiver of a SCT patient? If so, there is a fantastic Facebook support group for SCT and BMT patients and their caregivers. If you would like the link, please message me and I would be happy to provide it to you. NOTE:
Tinkerbellcgy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Multiple myeloma
Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint back wards forwards to doctor s for the pain in my left leg and thigh and hip joint could sleep pain was horrible got diagnosis in Feb 2017 with
Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint back wards forwards to doctor s for the pain in my left leg and thigh and hip joint could sleep pain was horrible got diagnosis in Feb 2017 with
Yobigfoot247
in
Myeloma UK
7 years ago
Searching for a TKO
I am seeking out others who may have a shared experience as am in a frustrating and nerve wracking place. I was diagnosed in Aug 2016 with DLBC Lymphoma, stage OK ...dr felt so confident that 6 rounds "gold standard treatment with RCHOP" would CURE this. 3 cycles and scan, good progress (original
I am seeking out others who may have a shared experience as am in a frustrating and nerve wracking place. I was diagnosed in Aug 2016 with DLBC Lymphoma, stage OK ...dr felt so confident that 6 rounds "gold standard treatment with RCHOP" would CURE this. 3 cycles and scan, good progress (original
buttrflymeme
in
Non Hodgkin's Lymphoma Friends
7 years ago
April's Topic of the Month - Coping with Mouth & Nose Ulcers (We want to hear your tips and experiences)
Our 'Topic of the Month' discussion for April is 'Coping with Mouth & Nose Ulcers''.
Up to 45% of people who have SLE will develop oral or nasal ulcers. They are usually painless, but occasionally can be painful. We want to hear if you have any tips for preventing ulcers or coping with them
Our 'Topic of the Month' discussion for April is 'Coping with Mouth & Nose Ulcers''.
Up to 45% of people who have SLE will develop oral or nasal ulcers. They are usually painless, but occasionally can be painful. We want to hear if you have any tips for preventing ulcers or coping with them
Paul_Howard
LUPUS UK
in
LUPUS UK
7 years ago
Health Anxiety
I have had an itchy lipline and a rash under my bottom lip and have convinced my Brian that I have oral herpes. I literally went to the doctor twice to make sure it's not that and they say it isn't but I keep believing I do. I have no cold sores at all. My boyfriend and I have been together for 2 years
I have had an itchy lipline and a rash under my bottom lip and have convinced my Brian that I have oral herpes. I literally went to the doctor twice to make sure it's not that and they say it isn't but I keep believing I do. I have no cold sores at all. My boyfriend and I have been together for 2 years
Okarls
in
Anxiety Support
7 years ago
Atypical CML / MPN
Hi, I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept. to 96 and a few 80's in April-May
Hi, I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept. to 96 and a few 80's in April-May
Acml
in
Leukaemia Support
7 years ago
Atypical CML / MPN
Hi, (Age 69 yrs + 9 mos now) I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept.
Hi, (Age 69 yrs + 9 mos now) I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept.
Acml
in
Fight MPN
7 years ago
Leeds Forum
Hi everyone I would like to that Maz and her team for organising the Patients forum in Leeds yesterday. It was a great day full of information from Maz and the specialist Drs and nurses. Chris did a fantastic speech about his journey through MF and a Bone marrow transplant. I was diagnosed with MF last
Hi everyone I would like to that Maz and her team for organising the Patients forum in Leeds yesterday. It was a great day full of information from Maz and the specialist Drs and nurses. Chris did a fantastic speech about his journey through MF and a Bone marrow transplant. I was diagnosed with MF last
Skye333
in
MPN Voice
7 years ago
ulcers
Hi all anyone had a tiny lump on gum ? i cant see it has its too far back in mouth after my wisdom tooth , i wonder if this can be caused by hu , i know mouth ulcers are this feels ulcer like i worry about any little strange thing that crops up , i saw dentist in jan she didnt see it then plus i dont
Hi all anyone had a tiny lump on gum ? i cant see it has its too far back in mouth after my wisdom tooth , i wonder if this can be caused by hu , i know mouth ulcers are this feels ulcer like i worry about any little strange thing that crops up , i saw dentist in jan she didnt see it then plus i dont
catwoman2015
in
MPN Voice
7 years ago
Stem Cell Transplants
This might be of interest to anybody who has to undergo a stem cell transplant: http://tinyurl.com/mnkrk78
This might be of interest to anybody who has to undergo a stem cell transplant: http://tinyurl.com/mnkrk78
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
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