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Uva Ursi
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Hayfever remedies
Is it safe to take hayfever remedies with pbc I'm taking urso at the moment
Is it safe to take hayfever remedies with pbc I'm taking urso at the moment
Pinkflloyd
in
PBC Foundation
4 years ago
Pbc hair loss and backpain
I was diagnosed with pbc march this year I've been taking urso 500 mg twice a day my back pain is chronic and my hair has got so thin as its falling out so much can I take anything for my hair loss I'm 55 and its really getting me down?
I was diagnosed with pbc march this year I've been taking urso 500 mg twice a day my back pain is chronic and my hair has got so thin as its falling out so much can I take anything for my hair loss I'm 55 and its really getting me down?
Pinkflloyd
in
PBC Foundation
4 years ago
Obeticholic Acid
Hi all are many of you taking this medication if so any info will be of great help Consultant wants me to try this already taking Urso not seeing Consultant at Q E until Dec due to all the cancelled appointments he just mentioned it to me in my clinic telephone call from him last week just wondered
Hi all are many of you taking this medication if so any info will be of great help Consultant wants me to try this already taking Urso not seeing Consultant at Q E until Dec due to all the cancelled appointments he just mentioned it to me in my clinic telephone call from him last week just wondered
cavi
in
PBC Foundation
4 years ago
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Dosage of urso
Hi I started straight away on 1000. 4 taken with my food at tea time. I had itch legs before I started a few mths Ago and no side effects and legs don’t itch Anymore unless I touch too much alcohol. So just have a bottle now and again.
Hi I started straight away on 1000. 4 taken with my food at tea time. I had itch legs before I started a few mths Ago and no side effects and legs don’t itch Anymore unless I touch too much alcohol. So just have a bottle now and again.
wakeboarding
in
PBC Foundation
4 years ago
Intermittent fasting for PBC
Hi all! Has anyone here tried intermittent fasting to control symptoms and improve their health? When my alk phos creeped back up into pre URSO levels, I decided to try time restricted feeding because some of the research shows that when the gut is rested regularly for more than 12 hours, repair of the
Hi all! Has anyone here tried intermittent fasting to control symptoms and improve their health? When my alk phos creeped back up into pre URSO levels, I decided to try time restricted feeding because some of the research shows that when the gut is rested regularly for more than 12 hours, repair of the
Dinasmom
in
PBCers Organization
4 years ago
Fenofibrate
Has anyone added Fenofibrate to Urso regimen? If so, any side effects? Are you feeling better?
Has anyone added Fenofibrate to Urso regimen? If so, any side effects? Are you feeling better?
Susn
in
PBC Foundation
4 years ago
PBC and rapid weight gain
Hi all. I was diagnosed with PBC a year ago and take 1000mg Urso a day. I am gaining weight everyday and have put a stone on in a month but definitely not overeating,I was in fact loosing weight and have or had lost two stone since being diagnosed. I havnt had a blood test for around 6 months. Has anyone
Hi all. I was diagnosed with PBC a year ago and take 1000mg Urso a day. I am gaining weight everyday and have put a stone on in a month but definitely not overeating,I was in fact loosing weight and have or had lost two stone since being diagnosed. I havnt had a blood test for around 6 months. Has anyone
Dibby1971
in
PBC Foundation
4 years ago
Hi there, what to do if you are only ama-m2 positive but have normal liver function test ?
Hi everyone. I'm very glad to find this place. It's really helpful reading the posts here. Sorry for my English as I'm not an native English speaker, but I'll try my best to make it understandable. As far as I know, 2 out of 3 requirements are needed to make a diagnose of PBC. 1. ama-m2 positive 2.
Hi everyone. I'm very glad to find this place. It's really helpful reading the posts here. Sorry for my English as I'm not an native English speaker, but I'll try my best to make it understandable. As far as I know, 2 out of 3 requirements are needed to make a diagnose of PBC. 1. ama-m2 positive 2.
anonymousjohndoe
in
PBC Foundation
4 years ago
PBC and Hair loss
I know hair loss is one of the things I was anticipating with the diagnosis but never imagined it would be in this massive amount! I am losing hair every minute and my pony tail now is so thin and empty:( I wonder if this is because of PBC or because of URSO and is there anything that can make it better
I know hair loss is one of the things I was anticipating with the diagnosis but never imagined it would be in this massive amount! I am losing hair every minute and my pony tail now is so thin and empty:( I wonder if this is because of PBC or because of URSO and is there anything that can make it better
N-Sedky
in
PBC Foundation
4 years ago
PBC Diet and Multivitamins
I am on a low sugar, low salt and a vegetarian diet. I try hard to eat healthy and fresh as much as I can, trying to cut dairy too. Are there any other nutritional tips that keeps our body performing better, any herbal drinks or supplements? I take a multivitamin with high vitamin D to support the loss
I am on a low sugar, low salt and a vegetarian diet. I try hard to eat healthy and fresh as much as I can, trying to cut dairy too. Are there any other nutritional tips that keeps our body performing better, any herbal drinks or supplements? I take a multivitamin with high vitamin D to support the loss
N-Sedky
in
PBC Foundation
4 years ago
Skin and PBC
Hi all, this is my first post. I was just diagnosed this month, and am not on Urso yet, but will be soon, hopefully. I'm wondering if it's a PBC, or a compromised liver, thing to have rashly/spotty skin on the face. It comes and goes, and sometimes goes very quickly, not like the way spots would normally
Hi all, this is my first post. I was just diagnosed this month, and am not on Urso yet, but will be soon, hopefully. I'm wondering if it's a PBC, or a compromised liver, thing to have rashly/spotty skin on the face. It comes and goes, and sometimes goes very quickly, not like the way spots would normally
Kakey
in
PBC Foundation
4 years ago
Rheumy v Derma
Hello. During this difficult time, I'm now really struggling. Previously, I was an in-patient, I've had PUVA, all the drugs I can think of, all from dermatology. Thet prescribed Humira, and it worked almost instantly. My psoriasis cleared, my arthritis was as fine as it could be. Because my skin cleared
Hello. During this difficult time, I'm now really struggling. Previously, I was an in-patient, I've had PUVA, all the drugs I can think of, all from dermatology. Thet prescribed Humira, and it worked almost instantly. My psoriasis cleared, my arthritis was as fine as it could be. Because my skin cleared
roadtoad
in
NRAS
4 years ago
Life insurance with pbc
Hi all, I am really struggling to find anyone willing to give me life insurance. Does anyone have experience of this or managed to find a company willing to ensure. I have pbc but it is well controlled with urso. I am 38 years old and just want to make sure my son is protected if anything was to
Hi all, I am really struggling to find anyone willing to give me life insurance. Does anyone have experience of this or managed to find a company willing to ensure. I have pbc but it is well controlled with urso. I am 38 years old and just want to make sure my son is protected if anything was to
eecos
in
PBC Foundation
4 years ago
Acute Hepatitis
I have the PBC antibody but had no symptoms. Then I was given hydroxychloroquine for palendronic Arthritis. After a week I felt ill. Dr did bloods and my LFT’s were totally deranged. Was in hospital for a week. Now taking URSO and Colestramine and now 8 weeks later LFTs slowly coming back down but not
I have the PBC antibody but had no symptoms. Then I was given hydroxychloroquine for palendronic Arthritis. After a week I felt ill. Dr did bloods and my LFT’s were totally deranged. Was in hospital for a week. Now taking URSO and Colestramine and now 8 weeks later LFTs slowly coming back down but not
Joel31
in
PBC Foundation
4 years ago
Risks from Corvid19
Does PBC put us more at risk from the Corvid19 . Also is URSO an immunosuppressant.
Does PBC put us more at risk from the Corvid19 . Also is URSO an immunosuppressant.
Philippastcarin
in
PBC Foundation
4 years ago
Good afternoon
Good afternoon everyone. Well I am now in isolation. I have a head cold with a chest infection. It is related to my asthma but, I am immune compromised due to medication for AIH and PBC overlap, plus hashimoto's and asthma. I currently take budesonide and urso until I see my consultant or rather speak
Good afternoon everyone. Well I am now in isolation. I have a head cold with a chest infection. It is related to my asthma but, I am immune compromised due to medication for AIH and PBC overlap, plus hashimoto's and asthma. I currently take budesonide and urso until I see my consultant or rather speak
Alley27
in
Positive Wellbeing During Self-Isolation
4 years ago
Pbc
Hi it’s me again still stressing ,I have pbc and I’m on the Urso medication I have chosen to continue working as work in a private nursery and have to stay open for vulnerable and key worker parents .. am I right in believing I no greater risk than anyone else without pbc ? Thanks sherrie
Hi it’s me again still stressing ,I have pbc and I’m on the Urso medication I have chosen to continue working as work in a private nursery and have to stay open for vulnerable and key worker parents .. am I right in believing I no greater risk than anyone else without pbc ? Thanks sherrie
Shezza123
in
British Liver Trust
4 years ago
Urso and putting weight on
Hi, I was diagnosed with pbc September 2018 I was given Urso 1x4 times daily, I have noticed since being on this medication that I have put on a stone in weight, I am tempted to stop the Urso because I really can’t afford to put weight on, this is concerning me
Hi, I was diagnosed with pbc September 2018 I was given Urso 1x4 times daily, I have noticed since being on this medication that I have put on a stone in weight, I am tempted to stop the Urso because I really can’t afford to put weight on, this is concerning me
Chickadee69
in
PBC Foundation
4 years ago
Referral to Haematologist
Hello, I have been diagnosed with PBC since November 2016, and been on Urso since early 2017 I saw my gastro consultant, in February this year and have received a copy of the letter sent to my Gp and Liver nurse. He states that my alp was 134, and otherwise blood work was unremarkable. He has referred
Hello, I have been diagnosed with PBC since November 2016, and been on Urso since early 2017 I saw my gastro consultant, in February this year and have received a copy of the letter sent to my Gp and Liver nurse. He states that my alp was 134, and otherwise blood work was unremarkable. He has referred
bullett
in
PBC Foundation
4 years ago
Anyone having Hemoglobin problems?
I have been having liver enzyme elevations since 2015. Never real high like some I see in these posts. On one 500 mg URSO since March 2019. All liver labs currently are within range. My Ammonia was 70 a month ago..on massive dose of Lactulose...currently it is 25..yay! Does anyone know if PBC causes
I have been having liver enzyme elevations since 2015. Never real high like some I see in these posts. On one 500 mg URSO since March 2019. All liver labs currently are within range. My Ammonia was 70 a month ago..on massive dose of Lactulose...currently it is 25..yay! Does anyone know if PBC causes
Miamomma
in
PBCers Organization
4 years ago
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