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Uva Ursi
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Risks from Corvid19
Does PBC put us more at risk from the Corvid19 . Also is URSO an immunosuppressant.
Does PBC put us more at risk from the Corvid19 . Also is URSO an immunosuppressant.
Philippastcarin
in
PBC Foundation
4 years ago
Good afternoon
Good afternoon everyone. Well I am now in isolation. I have a head cold with a chest infection. It is related to my asthma but, I am immune compromised due to medication for AIH and PBC overlap, plus hashimoto's and asthma. I currently take budesonide and urso until I see my consultant or rather speak
Good afternoon everyone. Well I am now in isolation. I have a head cold with a chest infection. It is related to my asthma but, I am immune compromised due to medication for AIH and PBC overlap, plus hashimoto's and asthma. I currently take budesonide and urso until I see my consultant or rather speak
Alley27
in
Positive Wellbeing During Self-Isolation
4 years ago
Pbc
Hi it’s me again still stressing ,I have pbc and I’m on the Urso medication I have chosen to continue working as work in a private nursery and have to stay open for vulnerable and key worker parents .. am I right in believing I no greater risk than anyone else without pbc ? Thanks sherrie
Hi it’s me again still stressing ,I have pbc and I’m on the Urso medication I have chosen to continue working as work in a private nursery and have to stay open for vulnerable and key worker parents .. am I right in believing I no greater risk than anyone else without pbc ? Thanks sherrie
Shezza123
in
British Liver Trust
4 years ago
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Urso and putting weight on
Hi, I was diagnosed with pbc September 2018 I was given Urso 1x4 times daily, I have noticed since being on this medication that I have put on a stone in weight, I am tempted to stop the Urso because I really can’t afford to put weight on, this is concerning me
Hi, I was diagnosed with pbc September 2018 I was given Urso 1x4 times daily, I have noticed since being on this medication that I have put on a stone in weight, I am tempted to stop the Urso because I really can’t afford to put weight on, this is concerning me
Chickadee69
in
PBC Foundation
4 years ago
Referral to Haematologist
Hello, I have been diagnosed with PBC since November 2016, and been on Urso since early 2017 I saw my gastro consultant, in February this year and have received a copy of the letter sent to my Gp and Liver nurse. He states that my alp was 134, and otherwise blood work was unremarkable. He has referred
Hello, I have been diagnosed with PBC since November 2016, and been on Urso since early 2017 I saw my gastro consultant, in February this year and have received a copy of the letter sent to my Gp and Liver nurse. He states that my alp was 134, and otherwise blood work was unremarkable. He has referred
bullett
in
PBC Foundation
4 years ago
Anyone having Hemoglobin problems?
I have been having liver enzyme elevations since 2015. Never real high like some I see in these posts. On one 500 mg URSO since March 2019. All liver labs currently are within range. My Ammonia was 70 a month ago..on massive dose of Lactulose...currently it is 25..yay! Does anyone know if PBC causes
I have been having liver enzyme elevations since 2015. Never real high like some I see in these posts. On one 500 mg URSO since March 2019. All liver labs currently are within range. My Ammonia was 70 a month ago..on massive dose of Lactulose...currently it is 25..yay! Does anyone know if PBC causes
Miamomma
in
PBCers Organization
4 years ago
Biotin vs Urso
Can you take Biotin for hair loss when you take URSO ???
Can you take Biotin for hair loss when you take URSO ???
1155Cat
in
PBC Foundation
4 years ago
Bezafibrate with Urso really helps
Everyone with PBC and increasing ALP should ask for the combi-therapy with Bezafibrat. Your doctor can prescribe it with the diagnosis: metabolic fat disorder, so to avoid that it is not yet approved for PBC, because studies are so expensive for this cheap medicine. (We all Pbc-ers have metabolic fat-disorder
Everyone with PBC and increasing ALP should ask for the combi-therapy with Bezafibrat. Your doctor can prescribe it with the diagnosis: metabolic fat disorder, so to avoid that it is not yet approved for PBC, because studies are so expensive for this cheap medicine. (We all Pbc-ers have metabolic fat-disorder
gardenfun
in
British Liver Trust
4 years ago
Liver Specialist in Seattle area?
I was diagnosed with stage 2 PBC April, 2019 and have been on Urso which is helping but recently by ALT levels were 192 and my doctor told me that was looking good. WHAT?? Does anyone have a good recommendation for a liver specialist in the Seattle are?
I was diagnosed with stage 2 PBC April, 2019 and have been on Urso which is helping but recently by ALT levels were 192 and my doctor told me that was looking good. WHAT?? Does anyone have a good recommendation for a liver specialist in the Seattle are?
PacificNW
in
PBC Foundation
4 years ago
Taking Urso first trimester of Pregnancy
Hi there, Very surprisingly we have found at 42 years old we are having a baby - not what was planned but we are happy, our last baby was 11 years ago! :-) Anyway, when I was last pregnant Urso wasn't highly used so I was not on it... Do any mothers out there have any experience Of taking URSO in their
Hi there, Very surprisingly we have found at 42 years old we are having a baby - not what was planned but we are happy, our last baby was 11 years ago! :-) Anyway, when I was last pregnant Urso wasn't highly used so I was not on it... Do any mothers out there have any experience Of taking URSO in their
KiwiPBC
in
PBC Foundation
4 years ago
High ALT AST
Hello I was diagnosed in 2017, good responder to URSO but lately high ALT and AST ( 103, 135). All indicators are negative to AIH, next step a biopsy. Has anyone this situation? Thanks for the answers Rita
Hello I was diagnosed in 2017, good responder to URSO but lately high ALT and AST ( 103, 135). All indicators are negative to AIH, next step a biopsy. Has anyone this situation? Thanks for the answers Rita
ritarobainapbc
in
PBC Foundation
4 years ago
I 'm new here
Hi, This is recipes and I have been on urso for about 2 years , I have had the itching but it is better now. I have just got over a uti infection and my fever is gone so I guess it was from the uti, I have had a lot of trouble with feeling gassy and bloated. I was wondering if anyone else have had this
Hi, This is recipes and I have been on urso for about 2 years , I have had the itching but it is better now. I have just got over a uti infection and my fever is gone so I guess it was from the uti, I have had a lot of trouble with feeling gassy and bloated. I was wondering if anyone else have had this
recipes
in
PBC Foundation
4 years ago
Dry irritating cough
I have been on Urso for a couple of years now and have had a dry irritating cough for at least that long. I don't know if it is due to the Urso, side effects do state cough and sore throat. I just wonder if anyone has had this problem and what to do about it. I am on nexium 40mg daily and taking an antihistamine
I have been on Urso for a couple of years now and have had a dry irritating cough for at least that long. I don't know if it is due to the Urso, side effects do state cough and sore throat. I just wonder if anyone has had this problem and what to do about it. I am on nexium 40mg daily and taking an antihistamine
atmn2g
in
PBC Foundation
4 years ago
Post flu virus
Hi everyone, I had the flu virus in January and was ill in bed for 3 days. Since then I have had a bad urine infection. Last night I had acid reflux before bed and then I was really sick all night long. No gastric pains that you get with this sort of thing and no diarrhea. Today all my joints ache and
Hi everyone, I had the flu virus in January and was ill in bed for 3 days. Since then I have had a bad urine infection. Last night I had acid reflux before bed and then I was really sick all night long. No gastric pains that you get with this sort of thing and no diarrhea. Today all my joints ache and
Spanishnan
in
PBC Foundation
4 years ago
Be positive
I am 65 male just been diagnosed with pbc my liver results have been high for 10 years but when I went to doctors they asked a couple of questions and that was that. Retired 2 years ago feeling tired thought somethings not right joints aching etc. Went back young doctor said I will get to bottom of
I am 65 male just been diagnosed with pbc my liver results have been high for 10 years but when I went to doctors they asked a couple of questions and that was that. Retired 2 years ago feeling tired thought somethings not right joints aching etc. Went back young doctor said I will get to bottom of
wakeboarding
in
PBC Foundation
4 years ago
Where do you get your Urso prescription?
Sorry, another daft question. I started on Urso at the end of December and was given a two month supply, they are running out now and I don't know where to get more. Do I go to my GP for a repeat or should I wait until called in by the consultant to see if they're working? The appointment is due but
Sorry, another daft question. I started on Urso at the end of December and was given a two month supply, they are running out now and I don't know where to get more. Do I go to my GP for a repeat or should I wait until called in by the consultant to see if they're working? The appointment is due but
hells456
in
PBC Foundation
4 years ago
Aching & Brain fog in PBC
Hi, I was diagnosed with PBC in October last year through routine blood tests due to fatigue and was started on Urso 500mg twice daily. However just wanted to ask if anybody else suffers with a feeling of heavy aching arms it’s not constant but suffering more up at the top of my arms and lower back
Hi, I was diagnosed with PBC in October last year through routine blood tests due to fatigue and was started on Urso 500mg twice daily. However just wanted to ask if anybody else suffers with a feeling of heavy aching arms it’s not constant but suffering more up at the top of my arms and lower back
Willow1050
in
PBC Foundation
4 years ago
What shows Urso is working?
I was diagnosed and started Urso five weeks ago and I'm having a blood test next week to see if it's working. I feel a bit more in control when I'm prepared for results. Nearly all my last bloods were well out of range and the next set is testing a lot of stuff. I know it's all important, but what specifically
I was diagnosed and started Urso five weeks ago and I'm having a blood test next week to see if it's working. I feel a bit more in control when I'm prepared for results. Nearly all my last bloods were well out of range and the next set is testing a lot of stuff. I know it's all important, but what specifically
hells456
in
PBC Foundation
4 years ago
Sunshine
I have heard from numerous people that you should not be in the sun if you have PBC ... does anyone know if this is true ?? And if it is true ... is it because of the URSO or just because of PBC ???
I have heard from numerous people that you should not be in the sun if you have PBC ... does anyone know if this is true ?? And if it is true ... is it because of the URSO or just because of PBC ???
1155Cat
in
PBC Foundation
5 years ago
Fibroscan shows slight fatty liver
I was diagnosed early stage 1 in 2000 and have responded well to Urso, LFT's came back to almost normal in the first year and have stayed there since. I went for a fibroscan yesterday. Although I have to wait for the liver specialist to interpret the results, the nurse who did the scan told me there
I was diagnosed early stage 1 in 2000 and have responded well to Urso, LFT's came back to almost normal in the first year and have stayed there since. I went for a fibroscan yesterday. Although I have to wait for the liver specialist to interpret the results, the nurse who did the scan told me there
kizzywizzy99
in
PBC Foundation
5 years ago
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