Search
Search
About
Log in
Join
Experiences with
Uva Ursi
Posts
Communities
1,371 public posts
Filter results
Urso wake up call
Well I've just had a massive wake-up call. I've been diagnosed & on urso for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me. Annual checkup lots of other autoimmune symptoms fatigue dry eyes mouth watch my diet but managing
Well I've just had a massive wake-up call. I've been diagnosed & on urso for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me. Annual checkup lots of other autoimmune symptoms fatigue dry eyes mouth watch my diet but managing
teddybear7
in
PBC Foundation
6 years ago
Fibroscan results
Hi was diagnosed with pbc through blood test October 2017 and now on Urso. I had a fibroscan in January and the eresults were 13.9kpa F3 fibrosis. Can any explain this to me please?
Hi was diagnosed with pbc through blood test October 2017 and now on Urso. I had a fibroscan in January and the eresults were 13.9kpa F3 fibrosis. Can any explain this to me please?
ETW1
in
PBC Foundation
6 years ago
im scared and dont know what to do
i ned some feed back...was diagnosed with pbc 09/2016 since then all test have come back ok blood,scans,ect..i always felt dr made a mistake when he told me my pbc was caused by drinking..so i just went to a liver clinic for a second opinion ..they took there own blood work which came back as normal
i ned some feed back...was diagnosed with pbc 09/2016 since then all test have come back ok blood,scans,ect..i always felt dr made a mistake when he told me my pbc was caused by drinking..so i just went to a liver clinic for a second opinion ..they took there own blood work which came back as normal
Hidden
in
PBC Foundation
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Liver not good after stopping Urso
Hi everyone. I said before I’ll keep you posted about the result of stopping Urso, generally after six weeks without it I felt much better but tested proved otherwise. My liver did like it so looking fo a new doctor to see what else I can take?
Hi everyone. I said before I’ll keep you posted about the result of stopping Urso, generally after six weeks without it I felt much better but tested proved otherwise. My liver did like it so looking fo a new doctor to see what else I can take?
Evaibrahim60
in
PBC Foundation
6 years ago
Fatty liver diet
Hi, I was diagnosed with PBC 6 years ago and taking urso. Was also told I had a fatty liver. My levels are getting worse despite increasing my urso and wondered if following a fatty liver diet would help. Didn’t know one existed till I read someone was on it on this site. Gastro Doctor told me I didn
Hi, I was diagnosed with PBC 6 years ago and taking urso. Was also told I had a fatty liver. My levels are getting worse despite increasing my urso and wondered if following a fatty liver diet would help. Didn’t know one existed till I read someone was on it on this site. Gastro Doctor told me I didn
Catherine3883
in
PBC Foundation
6 years ago
Bezafibrate
My consultant has just suggested that I should take 400mg Bezafibrate modified release tablet once a day. It is not something I have heard of and was just wondering if anyone else takes them and how they have got on with them. I already take 1000mg of Urso per day. Look forward to your replies - good
My consultant has just suggested that I should take 400mg Bezafibrate modified release tablet once a day. It is not something I have heard of and was just wondering if anyone else takes them and how they have got on with them. I already take 1000mg of Urso per day. Look forward to your replies - good
IOW-gal
in
PBC Foundation
6 years ago
Meds
2 weeks in with correct dose of urso for pbc and steroids for newly diagnosed aih and I feel like a new woman 😄. Muscle pain reduced within 24 hrs from a pain score of 10 to a 2 , for the first time in over 6 months I feel I'm actually doing my job properly at work ( I support autistic adults) . On
2 weeks in with correct dose of urso for pbc and steroids for newly diagnosed aih and I feel like a new woman 😄. Muscle pain reduced within 24 hrs from a pain score of 10 to a 2 , for the first time in over 6 months I feel I'm actually doing my job properly at work ( I support autistic adults) . On
Louisethew
in
PBC Foundation
6 years ago
Newby
Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also have lupus and sjogrens l started urso 2 weeks ago and got to see my consultant again in June. I must say this diagnosis has totally floored me and im worried for my future.
Hi im Christine 67 and was dianosed with pbc 2 weeks ago by way of biopsy l also have lupus and sjogrens l started urso 2 weeks ago and got to see my consultant again in June. I must say this diagnosis has totally floored me and im worried for my future.
kingsnorth
in
PBC Foundation
6 years ago
newly diagnosed
I was diagnosed with pbc two weeks ago by way of biopsy I have started URSO I have been reading that lots of people don't respond to URSO and I might be one of them Im am so worried. Im 67
I was diagnosed with pbc two weeks ago by way of biopsy I have started URSO I have been reading that lots of people don't respond to URSO and I might be one of them Im am so worried. Im 67
kingsnorth
in
PBC Foundation
6 years ago
Long time off of here due to life lol.
Hi everyone. I have been away from pbc foundation for a very long time reason being my life has gone through a lot of changes over the past couple of years. I divorced the man who did not care or even try to understand my AIH/PBC...and who cheated on me so many times.....I actually have a job which the
Hi everyone. I have been away from pbc foundation for a very long time reason being my life has gone through a lot of changes over the past couple of years. I divorced the man who did not care or even try to understand my AIH/PBC...and who cheated on me so many times.....I actually have a job which the
Alley27
in
PBC Foundation
6 years ago
Hit a wall
Hello I’ve got pbc in my 3rd year on urso I’ve been under a lot of stress last 3 months work full time looking after sick mother whose now gone into nursing home . I’ve been really well but suddenly have developed inflammatory arthritis foggiest and fatigue went to g.p Friday who has signed me off work
Hello I’ve got pbc in my 3rd year on urso I’ve been under a lot of stress last 3 months work full time looking after sick mother whose now gone into nursing home . I’ve been really well but suddenly have developed inflammatory arthritis foggiest and fatigue went to g.p Friday who has signed me off work
tessiecat
in
PBC Foundation
6 years ago
Alternative approach to PBC
Hi all I've been diagnosed with PBC and have been taKing 1000th Ursodeoxycholic per day. Dry mouth in particular driving me crazy. Just wondering if anyone has ever tried alternative approach to dealing with this condition and in particular if anyone knows anything about fumitory. Could it be used as
Hi all I've been diagnosed with PBC and have been taKing 1000th Ursodeoxycholic per day. Dry mouth in particular driving me crazy. Just wondering if anyone has ever tried alternative approach to dealing with this condition and in particular if anyone knows anything about fumitory. Could it be used as
M_rose
in
PBC Foundation
6 years ago
Azathiropine.
Hi all, started on azathiropine as being treated ow for AIH as well as PBC . Has anyone who is in similar situation ?my question is .. if on immunosuppressant for the AIH should that not in turn stop the immune system attacking the bile ducs and subsequently no longer need to take urso ?
Hi all, started on azathiropine as being treated ow for AIH as well as PBC . Has anyone who is in similar situation ?my question is .. if on immunosuppressant for the AIH should that not in turn stop the immune system attacking the bile ducs and subsequently no longer need to take urso ?
Hidden
in
PBC Foundation
6 years ago
Bike extract
Has anyone ever tried a bile extract along with the Urso? I was told by someone that they were able to bring their labs to normal and eventually get off Urso by using a bile extract. I’m very reluctant to try. Any input would be greatly appreciated. Hope everyone is doing as best they can with
Has anyone ever tried a bile extract along with the Urso? I was told by someone that they were able to bring their labs to normal and eventually get off Urso by using a bile extract. I’m very reluctant to try. Any input would be greatly appreciated. Hope everyone is doing as best they can with
LorraineLouise
in
PBC Foundation
6 years ago
My Liver Biopsy
Hi All, I have been diagnosed with PBC and started taking Urso 300mg 3 times a day. My question is how do I know for sure if it is PBC? My biopsy report said that I have granulomatous duct injury suggestive of PBC but that there are clinical and histologic features that are atypical for that disease
Hi All, I have been diagnosed with PBC and started taking Urso 300mg 3 times a day. My question is how do I know for sure if it is PBC? My biopsy report said that I have granulomatous duct injury suggestive of PBC but that there are clinical and histologic features that are atypical for that disease
Ellyne
in
PBC Foundation
6 years ago
Allergies to URSO. Help What can I do?
Dilemma, what can I do if I am allergic to treatment of PBC. The pills cotain sodium lauryl sulfate a big allergen for me. What other meds similar to URSO can I take or natural treatment. I am unsure I can find something that I am not allergic to? Currently, I am on watch as Gastro agrees that I should
Dilemma, what can I do if I am allergic to treatment of PBC. The pills cotain sodium lauryl sulfate a big allergen for me. What other meds similar to URSO can I take or natural treatment. I am unsure I can find something that I am not allergic to? Currently, I am on watch as Gastro agrees that I should
Sdone
in
PBC Foundation
6 years ago
Urso and weight gain
I was diagnosed with PBS in Dec of 17. I have been followed for years due to my LFT's being extremely high and was just told it was fatty liver. Finally I was sent to a hepatologist who diagnosed me. I was immediately started on Urso. Since being on it, I have gained weight. Has anyone else experienced
I was diagnosed with PBS in Dec of 17. I have been followed for years due to my LFT's being extremely high and was just told it was fatty liver. Finally I was sent to a hepatologist who diagnosed me. I was immediately started on Urso. Since being on it, I have gained weight. Has anyone else experienced
pjfort
in
PBC Foundation
6 years ago
PBC Gallbladder removed
Hello I am new to this site and truly appreciate reading all of your questions and all of the support you give one another . I was diagnosed a year ago with PBC . I was confused then and I'm still confused . Two years ago I developed this strange pain that was sporadic in my upper stomach area . Sometimes
Hello I am new to this site and truly appreciate reading all of your questions and all of the support you give one another . I was diagnosed a year ago with PBC . I was confused then and I'm still confused . Two years ago I developed this strange pain that was sporadic in my upper stomach area . Sometimes
Seybeaute
in
PBC Foundation
6 years ago
Urso for life?
Hi i've just had a diagnosis of pcb today after high protein levels, im going to take urso to bring them back down, once you start taking urso is it for life?
Hi i've just had a diagnosis of pcb today after high protein levels, im going to take urso to bring them back down, once you start taking urso is it for life?
5422
in
PBC Foundation
6 years ago
Biopsy results
Finally got to see hep dr for liver biopsy results , it confirmed pbc but also found autoimmune hepatitis and signs of fibrosis. Dr has upped urso to correct dose for my weight and prescribed steroids and vit d , blood tests needed , dexa scan and fibro scan also needed dr said he will be seeing me often
Finally got to see hep dr for liver biopsy results , it confirmed pbc but also found autoimmune hepatitis and signs of fibrosis. Dr has upped urso to correct dose for my weight and prescribed steroids and vit d , blood tests needed , dexa scan and fibro scan also needed dr said he will be seeing me often
Louisethew
in
PBC Foundation
6 years ago
1
...
29
30
31
...
69
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1221 results
British Liver Trust
72 results
PBCers Organization
34 results
View top 10 communities
Sort by
Most Relevant
Newest