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Uva Ursi
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Hair loss with urso
Has anyone found out if we can use topical rogaine for hair loss with urso?
Has anyone found out if we can use topical rogaine for hair loss with urso?
Pamela4475
in
PBC Foundation
6 years ago
Any partial responders to URSO out there?
Hi All. I was diagnosed almost 3 years ago. My LFTs were “grossly abnormal”. They really were through the roof. Started URSO straight away and while they have come down hugely (and still are coming down albeit 1 or 2 points only but at least in the right direction), they are still nowhere near normal
Hi All. I was diagnosed almost 3 years ago. My LFTs were “grossly abnormal”. They really were through the roof. Started URSO straight away and while they have come down hugely (and still are coming down albeit 1 or 2 points only but at least in the right direction), they are still nowhere near normal
LisaC22
in
PBC Foundation
6 years ago
Is it PBC or Urso ?
I have just st learned through lab testing that I am deficient in Vitamins A, D and K. Does the disease or the medicine cause this? What is the cure because I know we have a hard time absorbing these vitamins. I don’t see the doctor about these results for three more weeks
I have just st learned through lab testing that I am deficient in Vitamins A, D and K. Does the disease or the medicine cause this? What is the cure because I know we have a hard time absorbing these vitamins. I don’t see the doctor about these results for three more weeks
Sissymcc
in
British Liver Trust
6 years ago
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Fibroscan
Had a fibroscan today. Technician said I did not show a fatty liver or any cirrhosis. Getting a 2nd opinion on my liver biopsy. All bloodwork is within range except AMA and ANA. Put on Urso 2 months ago. So if it’s not PBC what else could it be? This has been going on since July and I want some resolution
Had a fibroscan today. Technician said I did not show a fatty liver or any cirrhosis. Getting a 2nd opinion on my liver biopsy. All bloodwork is within range except AMA and ANA. Put on Urso 2 months ago. So if it’s not PBC what else could it be? This has been going on since July and I want some resolution
Ellyne
in
PBC Foundation
6 years ago
PBC Vit D now getting bone pain
I visited my GP in Nov last year complaining of extreme muscle pain in my arms & legs, itching and tiredness no gastric problems at all. After doing bloods he called me back to say really high LF results. He referred me to see a general medicine consultant who would look at both issues LF & muscle
I visited my GP in Nov last year complaining of extreme muscle pain in my arms & legs, itching and tiredness no gastric problems at all. After doing bloods he called me back to say really high LF results. He referred me to see a general medicine consultant who would look at both issues LF & muscle
marieharris67
in
PBC Foundation
6 years ago
Colonoscopy and urso
Hi everyone, i'm having a colonoscopy soon and i received a letter telling me i have to have a clear liquid diet for 2 whole days prior to the proceedure. I have pbc and take urso. The urso states i have to take them 3 x day with or just after food ! Do i continue to take urso without food for these
Hi everyone, i'm having a colonoscopy soon and i received a letter telling me i have to have a clear liquid diet for 2 whole days prior to the proceedure. I have pbc and take urso. The urso states i have to take them 3 x day with or just after food ! Do i continue to take urso without food for these
pottery1
in
PBC Foundation
6 years ago
For people who did not respond to Urso, has Ocaliva had a more positive effect?
My partner has been taking Urso for several years and it has not appeared to be helping at all. We went to see the liver consultant recently following another biopsy and there has been progression in the condition and urso has not been working. Anyway, the consultant has prescribed my partner with Ocaliva
My partner has been taking Urso for several years and it has not appeared to be helping at all. We went to see the liver consultant recently following another biopsy and there has been progression in the condition and urso has not been working. Anyway, the consultant has prescribed my partner with Ocaliva
djws
in
PBC Foundation
6 years ago
My partner has PBC, just looking for some help, advice and support
My partner has been diagnosed with PBC, first diagnosed around 4 years ago and has been living with it since then. She has been taking Urso for around 3 years but according to the doctor this has not really had any positive effect - the PBC is apparently getting worse and there is now signs of cirrhosis
My partner has been diagnosed with PBC, first diagnosed around 4 years ago and has been living with it since then. She has been taking Urso for around 3 years but according to the doctor this has not really had any positive effect - the PBC is apparently getting worse and there is now signs of cirrhosis
djws
in
PBC Foundation
6 years ago
I was diagnosed 3 yrs ago with PBC. I would like to know how many people here have had their gallbladder removed and or appendix?
I have been reading what people post on here but have never posted. Does anyone know approximately how long between stages when on urso or is it different for everyone? My biggest issue is the not knowing. My doctor said to just go enjoy the time I have left but that is very hard to do.
I have been reading what people post on here but have never posted. Does anyone know approximately how long between stages when on urso or is it different for everyone? My biggest issue is the not knowing. My doctor said to just go enjoy the time I have left but that is very hard to do.
tealmust
in
PBC Foundation
6 years ago
itchy help. PBC diagnose questions- where do we go now
hello all, hoping to get some help as I seem to be running out of treatment options and coming to a dead end with suggestions from my doctors. I was diagnosed with PBC 3 years ago at the age of 25. I presented with extremely itchy skin and low energy and was found to have Stage 2/3 PBC. I was prescribed
hello all, hoping to get some help as I seem to be running out of treatment options and coming to a dead end with suggestions from my doctors. I was diagnosed with PBC 3 years ago at the age of 25. I presented with extremely itchy skin and low energy and was found to have Stage 2/3 PBC. I was prescribed
ead0724
in
PBC Foundation
6 years ago
12 week update on Ocaliva - plateau’ed.
Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes. In terms of blood work
Update on me. For reference I was diagnosed with PBC in March 2017. Went on urso which was helping but then plateaued over the summer. Started Ocaliva 11/13, at the lowest dose 5 mg/day. I was very nervous about it. Was really itchy weeks 2-4, it subsided and now comes and goes. In terms of blood work
Ottley3
in
PBC Foundation
6 years ago
Concerns
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of urso and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
After a definite diagnosis 5 weeks ago of pbc and aih consultant started me on proper dose of urso and steroids for aih , within 24 hrs the constant muscle pains had gone as had the fatigue, I was s new woman 😄5 weeks later steroids reduced from 8 a day to 6 a day and immune suppression drug added ,
Louisethew
in
PBC Foundation
6 years ago
Thyroid
Thyroid test came back all jacked up. I understand Ocaliva can have abnormal effect on levels, so be it. Do those of you on Urso have the same problem? So sick of it...
Thyroid test came back all jacked up. I understand Ocaliva can have abnormal effect on levels, so be it. Do those of you on Urso have the same problem? So sick of it...
gwillistexas
in
PBC Foundation
6 years ago
When to test for urso response
Hi. Can anyone tell me when i should be tested to see if i am responding to urso. I have been taking urso for 1 month and have been diagnosed with pbc. I am from the uk.
Hi. Can anyone tell me when i should be tested to see if i am responding to urso. I have been taking urso for 1 month and have been diagnosed with pbc. I am from the uk.
pottery1
in
PBC Foundation
6 years ago
Pins and needles
Does anybody get pins and needles in their legs and feet im on urso and only had this since starting it 4 weeks ago
Does anybody get pins and needles in their legs and feet im on urso and only had this since starting it 4 weeks ago
kingsnorth
in
PBC Foundation
6 years ago
alk phos climbing
I have been on Urso for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
I have been on Urso for a year and 5 months on Ocalvia and my Alk Phos is still climbing. Has anyone else experienced this?
happy0507
in
PBC Foundation
6 years ago
Cold again!!!!
Can I take Night Nurse tablets with Urso, I am tired of repeat colds this winter just paracetemol doesnt do anything, o I thought I would try these.?
Can I take Night Nurse tablets with Urso, I am tired of repeat colds this winter just paracetemol doesnt do anything, o I thought I would try these.?
Sandie1
in
PBC Foundation
6 years ago
Lower tummy pains with Urso
Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking Urso, 3 x day. For the past 2 weeks i have a bloated tummy which is tender and a painfull lower tummy. It seems to get worse after each dose of Urso. The last dose is the most painfull. Is this normal and will it pass when i get
Hi, i was diagnosed with PBC in December and i am in my 3rd week of taking Urso, 3 x day. For the past 2 weeks i have a bloated tummy which is tender and a painfull lower tummy. It seems to get worse after each dose of Urso. The last dose is the most painfull. Is this normal and will it pass when i get
pottery1
in
PBC Foundation
6 years ago
What can this be?
For the past 4 years I have had high LFT counts which is controlled by 500mgs of Urso x 2 daily. I am 64 years old and tests for AMA and a biopsy, both 3 years ago, were negative. Now have aching pain in the liver area, painful joints, fatigue & itching - what can this be?
For the past 4 years I have had high LFT counts which is controlled by 500mgs of Urso x 2 daily. I am 64 years old and tests for AMA and a biopsy, both 3 years ago, were negative. Now have aching pain in the liver area, painful joints, fatigue & itching - what can this be?
KathyFish
in
PBC Foundation
6 years ago
Urso wake up call
Well I've just had a massive wake-up call. I've been diagnosed & on urso for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me. Annual checkup lots of other autoimmune symptoms fatigue dry eyes mouth watch my diet but managing
Well I've just had a massive wake-up call. I've been diagnosed & on urso for four years. All doing well bloods coming back with ok levels occasionally itching but not too bad Drs are very pleased with me. Annual checkup lots of other autoimmune symptoms fatigue dry eyes mouth watch my diet but managing
teddybear7
in
PBC Foundation
6 years ago
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