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Uva Ursi
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My questions are to all those with PBC and AIH overlap.Which of your conditions was diagnosed first and with the AIH did you have jaundice?
I attended Hepatology last week and my consultant has informed me that he thinks I may have PBC AIH overlap as my Bilirubin has been rising steadily for few months now. So I am now wondering if I do in fact have AIH if I have had it all along as the symptoms are very similar to PBC in that it lists
I attended Hepatology last week and my consultant has informed me that he thinks I may have PBC AIH overlap as my Bilirubin has been rising steadily for few months now. So I am now wondering if I do in fact have AIH if I have had it all along as the symptoms are very similar to PBC in that it lists
littlemo
in
PBC Foundation
11 years ago
How many stages are there of PBC? And when should the gastroenterologist offer Urso?
The specialist has told me I'm in the early stages of PBC, but not specified which one, or how many there are. It's my understanding this progresses at different rates varying per person, is this correct?
The specialist has told me I'm in the early stages of PBC, but not specified which one, or how many there are. It's my understanding this progresses at different rates varying per person, is this correct?
sarahalawson
in
PBC Foundation
11 years ago
Hello everyone, I've been diagnosed with PBC and Autoimmune Hepatitis Overlap Syndrome in July'13.
Liver biyopsy showed stage 3 fibrosis. I'm 28 years old. My all elevated LFTs got back to normal ranges after 1.5 month i started using Urso 250mg (2*2). My doctor told me that this is a perfect progress so he didnt want to put me on corticosteroids. LFTs are all back to normal but it doesnt keep me
Liver biyopsy showed stage 3 fibrosis. I'm 28 years old. My all elevated LFTs got back to normal ranges after 1.5 month i started using Urso 250mg (2*2). My doctor told me that this is a perfect progress so he didnt want to put me on corticosteroids. LFTs are all back to normal but it doesnt keep me
Burke0626
in
PBC Foundation
11 years ago
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Stupid flipping itch!!!
Hi everyone.... I found out in august I had Pbc x have been on ur so from then, 500 mg. meant to be on 1000 mg but my stomach can't tolerate it. I first started itching in dec last year x it went away but it's been back with a vengeance this last week or so x it's driving me up the walls! Was wondering
Hi everyone.... I found out in august I had Pbc x have been on ur so from then, 500 mg. meant to be on 1000 mg but my stomach can't tolerate it. I first started itching in dec last year x it went away but it's been back with a vengeance this last week or so x it's driving me up the walls! Was wondering
Dmb1
in
PBC Foundation
11 years ago
Any advice??
Hi, my son is six months old, and since having his kasai at 9 weeks he has been really good at taking his medicines and vitamins. But over the last few weeks he's great at taking morning urso and vitamins, but when it comes to night time he takes most of the urso, but he'll spit most of the phenobarbital
Hi, my son is six months old, and since having his kasai at 9 weeks he has been really good at taking his medicines and vitamins. But over the last few weeks he's great at taking morning urso and vitamins, but when it comes to night time he takes most of the urso, but he'll spit most of the phenobarbital
AlisonM
in
Children's Liver Disease Foundation
11 years ago
Is urso the only treatment ?
hi, Has anyone out there taken anything other than urso for pbc ? I cant tolerate it , very bad nausea and vomitting and have to go back to the consultant !!
hi, Has anyone out there taken anything other than urso for pbc ? I cant tolerate it , very bad nausea and vomitting and have to go back to the consultant !!
meandmypbc
in
PBC Foundation
11 years ago
What dose of Urso are you on ? MD says it goes according to weight ( here in the USA pounds ).
Chippy45
in
PBC Foundation
11 years ago
Lightheadedness
Been on Urso now for a month, last few days been getting lightheaded , dizzy and really hot has any one else experienced this?
Been on Urso now for a month, last few days been getting lightheaded , dizzy and really hot has any one else experienced this?
Kieraferret
in
PBC Foundation
11 years ago
constipation and pbc
and urso , help my bum is soooo sore from trying to go to the loo, is it the meds. I ate 20 prunes yesterday and at 5 am success, if that's what you call it. went to the dr today to ask if he could give me some thing , anything to reduce my loo hours.. you guessed it prunes. he said because its a specialist
and urso , help my bum is soooo sore from trying to go to the loo, is it the meds. I ate 20 prunes yesterday and at 5 am success, if that's what you call it. went to the dr today to ask if he could give me some thing , anything to reduce my loo hours.. you guessed it prunes. he said because its a specialist
dm1360
in
PBC Foundation
11 years ago
9months taking urso and amitriptyline and gained 4 stone in weight only 5ft and 12stone plus healthy or what
karenlesley
in
PBC Foundation
11 years ago
Side effects of urso
I started urso on the full dose 1000mg a day, had awful nausea and vomiting, the gp has taken me off for 4 days to reintroduce at a slower pace. Hs anyone out there had similiar experiences of this ? And how did you manage the nausea etc. ?
I started urso on the full dose 1000mg a day, had awful nausea and vomiting, the gp has taken me off for 4 days to reintroduce at a slower pace. Hs anyone out there had similiar experiences of this ? And how did you manage the nausea etc. ?
meandmypbc
in
PBC Foundation
11 years ago
Pregnancy
I'm 20 weeks pregnant and was diagnosed with pbc 7 weeks ago and am currently taking urso. Has anyone else been diagnosed whilst pregnant or had a pregnancy whilst having the condition. If so how was the pregnancy affected?
I'm 20 weeks pregnant and was diagnosed with pbc 7 weeks ago and am currently taking urso. Has anyone else been diagnosed whilst pregnant or had a pregnancy whilst having the condition. If so how was the pregnancy affected?
Hattyson
in
PBC Foundation
11 years ago
Stomach cramps
I've only been on Urso for 1 week but I've been getting stomach cramps for the first time in my life. Has anyone else had this reaction and, if so, do they go away or continue?
I've only been on Urso for 1 week but I've been getting stomach cramps for the first time in my life. Has anyone else had this reaction and, if so, do they go away or continue?
Goose60
in
PBC Foundation
11 years ago
Hi All, want to know your thoughts on ..............
Hi everyone, I was reading through another members question and I want my fears assured. Does it matter what brand of medication is taken for Pbc. I am on questran, urso, sertraline, naltrexone, rifampicin, calcichew, thyroxine, chloraphenamine as well as eye drops and menthol/epaderm creams. I am
Hi everyone, I was reading through another members question and I want my fears assured. Does it matter what brand of medication is taken for Pbc. I am on questran, urso, sertraline, naltrexone, rifampicin, calcichew, thyroxine, chloraphenamine as well as eye drops and menthol/epaderm creams. I am
florrie505
in
PBC Foundation
11 years ago
Does anyone suffer from blood ulsers on the tongue & inside of cheeks? I'm on Urso (PBC) & Azathioprine (AIH).
Jtxx
in
PBC Foundation
11 years ago
Positive mental attitude just washed away by Hospital Consultant
Don't want people to feel sorry for me but needed to vent my feelings out to the big wide world. Have Crohn's disease, pbc and early menopause so can't have children but have good life and work full time. Always try and stay positive and everything going well until I saw consultant today. Liver
Don't want people to feel sorry for me but needed to vent my feelings out to the big wide world. Have Crohn's disease, pbc and early menopause so can't have children but have good life and work full time. Always try and stay positive and everything going well until I saw consultant today. Liver
Mcinnel2
in
PBC Foundation
11 years ago
Catch 22
Came off Urso as they make me feel ill but i feel ill off them also. :-( I know i have to suffer it till my body gets use to them but i cant suffer them and go to work. My work very understanding to a certain extent and offered me part time till i feel better but cant afford to financially.
Came off Urso as they make me feel ill but i feel ill off them also. :-( I know i have to suffer it till my body gets use to them but i cant suffer them and go to work. My work very understanding to a certain extent and offered me part time till i feel better but cant afford to financially.
Hidden
in
PBC Foundation
11 years ago
Feeling positive..
Yesterday I took my brother who suffers from PSC, another autoimmune liver condition, to his support group meeting in Oxford. A doctor - Roger Chapman spoke at the meeting and although it was a PSC event, he did refer to other conditions, PBC and hepatitis, overlaps etc. he discussed his and other ongoing
Yesterday I took my brother who suffers from PSC, another autoimmune liver condition, to his support group meeting in Oxford. A doctor - Roger Chapman spoke at the meeting and although it was a PSC event, he did refer to other conditions, PBC and hepatitis, overlaps etc. he discussed his and other ongoing
Hidden
in
PBC Foundation
11 years ago
Liver Panel Results & Urso
Wonderful news! After almost 8 months on URSO, my liver panel bloodwork result were ALL within normal range! First time in over 8 yrs. So, Urso, DOES work!
Wonderful news! After almost 8 months on URSO, my liver panel bloodwork result were ALL within normal range! First time in over 8 yrs. So, Urso, DOES work!
WendyMarie
in
PBC Foundation
11 years ago
hi just had a bone density scan yesterday, liver biopsy showed severe bile duct damage ??? I also have had fatty liver for 3 yrs, started
urso,makde me feel spewy and like a puffer fish waiting to explode, none of my clothes fit and I don't want to wear kaftans for the rest of my days. im looking into chinese medicinal medicines atm as an alternative,thought my energy levels would have picked up but alas no, I never know when nap time
urso,makde me feel spewy and like a puffer fish waiting to explode, none of my clothes fit and I don't want to wear kaftans for the rest of my days. im looking into chinese medicinal medicines atm as an alternative,thought my energy levels would have picked up but alas no, I never know when nap time
dm1360
in
PBC Foundation
11 years ago
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