Search
Search
About
Log in
Join
Experiences with
Uva Ursi
Posts
Communities
1,367 public posts
Filter results
I figured out why I couldn't tolerate antibiotics (caused severe burning) after developing SFN from B12 Deficiency
TL;DR I was able to succesfully use
Uva
Ursi
and Antibiotics by combing them with an antihistamine (
Uva
Ursi
and the antibiotics previously caused severe burning sensation of my skin.)
TL;DR I was able to succesfully use
Uva
Ursi
and Antibiotics by combing them with an antihistamine (
Uva
Ursi
and the antibiotics previously caused severe burning sensation of my skin.)
Whoa182
in
Pernicious Anaemia Society
10 months ago
I am now able to tolerate antibiotics again after my nerves healed
I even reacted the same ways to certain supplements as well, such as
Uva
Ursi
, and supplements containing a lot of glycerol (this may be due to changes in osmolality). All would cause nerve pains. Anyway, by late summer 2023, I had to take Trimethoprim due to kidney pains from the infection.
I even reacted the same ways to certain supplements as well, such as
Uva
Ursi
, and supplements containing a lot of glycerol (this may be due to changes in osmolality). All would cause nerve pains. Anyway, by late summer 2023, I had to take Trimethoprim due to kidney pains from the infection.
Whoa182
in
Pernicious Anaemia Society
3 months ago
Rheumatoid?
So….because I was suffering from lower back pain (not sure if it is from PBC, URSO or an injury just before diagnosis!), i could not play Pickleball over the winter months. Instead, i decided to really invest my time into my fiddle. I spent many hours a day for almost four months practising (with an
So….because I was suffering from lower back pain (not sure if it is from PBC, URSO or an injury just before diagnosis!), i could not play Pickleball over the winter months. Instead, i decided to really invest my time into my fiddle. I spent many hours a day for almost four months practising (with an
Gaspereaux
in
British Liver Trust
3 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
another pharma update
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
This is in regards to the pharma Ipsen... They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
DonnaBoll
Administrator
in
PBC Foundation
4 days ago
Seladelpar update
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso. Cymabay, the pharma who manufacturers Seladelpar,
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso. Cymabay, the pharma who manufacturers Seladelpar,
DonnaBoll
Administrator
in
PBC Foundation
7 days ago
Introduction to our newer members
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
9 days ago
What if?
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
DonnaBoll
Administrator
in
PBC Foundation
10 days ago
Possible Sjogren’s
I was diagnosed with PBC in 2005 and have been on URSO since diagnosis. No significant change in my PBC in all these years. Also, have Hashimoto’s 2016, and Oral Lichen Planus 2021. Recently, I was in the ER because I developed a speech issue. My family thought it was a stroke. Bottom line is, all the
I was diagnosed with PBC in 2005 and have been on URSO since diagnosis. No significant change in my PBC in all these years. Also, have Hashimoto’s 2016, and Oral Lichen Planus 2021. Recently, I was in the ER because I developed a speech issue. My family thought it was a stroke. Bottom line is, all the
PB4857
in
PBCers Organization
15 days ago
Brain Fog
Good morning, I was diagnosed in November from routine bloodwork with PBC. Started URSO immediately, but at 750 mg URSO daily which, at 61 kg, may not be enough. I dont have tests again until mid May. Can it still have some positive effect? Can brain fog be a result of URSO not working? I can
Good morning, I was diagnosed in November from routine bloodwork with PBC. Started URSO immediately, but at 750 mg URSO daily which, at 61 kg, may not be enough. I dont have tests again until mid May. Can it still have some positive effect? Can brain fog be a result of URSO not working? I can
Gaspereaux
in
PBC Foundation
17 days ago
Ursodeoxycholic acid
Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has stopped working? Thank you for any help.
Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has stopped working? Thank you for any help.
Hidden
in
PBC Foundation
20 days ago
Please join!
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
For all of our new members, PLEASE make sure one of the first things you do after your diagnosis is to join The PBC Foundation. It's free. There is so much accurate and up to date information there on the disease itself, glossary of terms you might not be familiar with. place to record your lab results
DonnaBoll
Administrator
in
PBC Foundation
28 days ago
Hair loss from Urso
Hi all! Has anyone had hair loss from URSO that re-grew when/if you stopped? I seem to be thinning more + my eyebrows are thinning. I'm wondering also if TUDCA also causes hair loss. Or if that may be a good alternative.
Hi all! Has anyone had hair loss from URSO that re-grew when/if you stopped? I seem to be thinning more + my eyebrows are thinning. I'm wondering also if TUDCA also causes hair loss. Or if that may be a good alternative.
Pawsandchoc
in
PBCers Organization
29 days ago
Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
30 days ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
1 month ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
ALT and AST
I have been URSO for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
I have been URSO for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
Gaspereaux
in
PBC Foundation
1 month ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Mrs d
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
Hi i was diagnosed with PBC 15 years ago by chance, I have responded well to Urso my Alkaline Phosphate is now 130 initially 400. I have very dry eyes get the itch off and on for a few days at a time i do get very fatigued and call myself a half a day person, I also have asthma that is well controlled
coronavirus19
in
PBC Foundation
2 months ago
overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
2 months ago
1
2
...
69
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
PBC Foundation
1217 results
British Liver Trust
72 results
PBCers Organization
34 results
View top 10 communities
Sort by
Most Relevant
Newest