Experiences with

Uva Ursi

I have recurring cystitis, due to Vaginal Atrophy. ( I am about to start using A Vogel Uva Ursi complex) as well as the homeopathic remedies I am taking) many thanks

I even reacted the same ways to certain supplements as well, such as Uva Ursi, and supplements containing a lot of glycerol (this may be due to changes in osmolality). All would cause nerve pains. Anyway, by late summer 2023, I had to take Trimethoprim due to kidney pains from the infection.

I had annual travel insurance with the Nationwide. This year they changed their provider to Aviva. On contacting them to notify that I had PBC and narrowed arteries they refused cover. I am an Urso responder and therefore my liver readings fall within the normal range. I only know of the narrowed arteries

[i]This is a reminder really to always make sure you are taking the correct dose of Urso. [/i] [i]The dosage is 13-15mgs/kg of your body weight. It is ALWAYS and ONLY based on your weight - never your lab results or your symptoms. Please everyone make sure you are on the right dose.[/i

This last few months since I was diagnosed with PBC were incredibly hard, filled with uncertainty and fear, but I want to share some positive results from following a gradual increase in medication and dietary changes. Although I struggled at first with Urso, and had to start with a slow dose increase

Hello PBCers, Hope everyone is doing relatively well. I’ve been diagnosed with PBC years ago but started taking Urso few months ago. My liver enzymes and ALP are normal, however my TSH (thyroid) level has been going up drastically after Urso and my Synthroid dosage is being altered accordingly. Has

Hello, I ve been diagnosed with PBC about 3 yers ago and did quite well. With urso, diet and life style adjustments. My blood is in total check. Today I was diagnosed with endometrial cancer and was wondering if anyone in the group have PBC and cancer and how coop with it. Any comment is much appreciated

Hello everyone. I was diagnosed with PBC almost 3 years ago now. I'm on Urso, and my ALP and other liver enzymes are now all in the normal ranges. While I fully intend to ask my doctor, I'm wondering if any of you take glucosamine and/or chondroitin supplements for joints. I've noticed my shoulders are

Have been on Urso about 5 years. My specialty pharmacy will no longer have so they didn't refill and didn't notify me. As a result no meds for 2 months. Have gained nearly 20 lbs. Am trying to get gastro to find me new pharmacy. In the meantime worried about weight gain. Any thoughts?

I’m not sure why and I guess it doesn’t matter but the last few days I was wishing I would fall asleep and not wake up. I’m sure I’m not the only one that feels this way. I used to have so much energy! That went about 4 or so years ago and then I was diagnosed with PBC. I started on Urso and things

hi guys has anybody had their Fibroscan scores improved after taking urso? eleni

Good morning all! (Morning in the US. 24 degrees and freezing rain later today!), If you look at my posts you will see that I have had a "blip" on my PBC radar. My old doctor retired and I went to a new practice about 2.5 weeks ago. She did a lot of blood work I haven't had in a long time, and a

[i]Going on a vacation can be worrisome for someone with PBC.[/i] [i]If you are responding well to Urso, early stages of the disease, or are non cirrhotic then the risk of any untoward event happening is very low. Considerations are how much medical attention could potentially cost and whether

hi has anyone started this medication for pbc? I’ve just started 80mg of elafribnor with a 1000mg of Urso also… Just wondered if anyone has had any good results with it thanks

Hi All, anyone on IQIRVO (? Dr. wants to supplement my URSO with it. I take 1000mg a day of URSO, but my ALP level is still elevated. 178. The side effects of this drug scare the heck out of me! As of now. All blood work is normal, except ALP. Ultrasound is good, and Fibroscan was great. No cirrhosis

Trigger warning if you are easily pulled into depression or anxiety about your condition: Hello all. I posted on here a couple of days ago because I was going to get a Fibroscan yesterday to see where my liver is on the Fibrosis scale. I was diagnosed Stage 2 (PBC Stage) in 2014. Not sure

5 years ago, I tested positive for AMA. Although he said a weak positive. My liver enzymes at that time were slightly raised. My gastroenterologist/hepatologist started me on 500 mg Urso. I had GI issues immediately and he suggested taking 500 mg every other day, which I have been doing since October

Hi, I was diagnosed with PBC last year and am on urso, I have no symptoms and keep well and would like to go abroad on holiday this year. Two companies I've tried to get a quote from have refused me , I also have asthma which is really well controlled. Has anybody got any recommendations for cheap travel

hi all. PBC diagnosed in 2014. Been on urso since then and been with a gastroenterologist that basically just followed my disease with blood tests. Fibroscans were not really a major thing when I was diagnosed and my doctor really never used them. He has retired and I’m going to a new practice that wants

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods were all normal except Alp was 135, Consultant said I probably had a mild case which I was very pleased about, I have been getting bloods done