Experiences with

Uva Ursi

I have recurring cystitis, due to Vaginal Atrophy. ( I am about to start using A Vogel Uva Ursi complex) as well as the homeopathic remedies I am taking) many thanks

I even reacted the same ways to certain supplements as well, such as Uva Ursi, and supplements containing a lot of glycerol (this may be due to changes in osmolality). All would cause nerve pains. Anyway, by late summer 2023, I had to take Trimethoprim due to kidney pains from the infection.

I’m not sure why and I guess it doesn’t matter but the last few days I was wishing I would fall asleep and not wake up. I’m sure I’m not the only one that feels this way. I used to have so much energy! That went about 4 or so years ago and then I was diagnosed with PBC. I started on Urso and things

hi guys has anybody had their Fibroscan scores improved after taking urso? eleni

Good morning all! (Morning in the US. 24 degrees and freezing rain later today!), If you look at my posts you will see that I have had a "blip" on my PBC radar. My old doctor retired and I went to a new practice about 2.5 weeks ago. She did a lot of blood work I haven't had in a long time, and a

[i]Going on a vacation can be worrisome for someone with PBC.[/i] [i]If you are responding well to Urso, early stages of the disease, or are non cirrhotic then the risk of any untoward event happening is very low. Considerations are how much medical attention could potentially cost and whether

hi has anyone started this medication for pbc? I’ve just started 80mg of elafribnor with a 1000mg of Urso also… Just wondered if anyone has had any good results with it thanks

Hi All, anyone on IQIRVO (? Dr. wants to supplement my URSO with it. I take 1000mg a day of URSO, but my ALP level is still elevated. 178. The side effects of this drug scare the heck out of me! As of now. All blood work is normal, except ALP. Ultrasound is good, and Fibroscan was great. No cirrhosis

Trigger warning if you are easily pulled into depression or anxiety about your condition: Hello all. I posted on here a couple of days ago because I was going to get a Fibroscan yesterday to see where my liver is on the Fibrosis scale. I was diagnosed Stage 2 (PBC Stage) in 2014. Not sure

5 years ago, I tested positive for AMA. Although he said a weak positive. My liver enzymes at that time were slightly raised. My gastroenterologist/hepatologist started me on 500 mg Urso. I had GI issues immediately and he suggested taking 500 mg every other day, which I have been doing since October

Hi, I was diagnosed with PBC last year and am on urso, I have no symptoms and keep well and would like to go abroad on holiday this year. Two companies I've tried to get a quote from have refused me , I also have asthma which is really well controlled. Has anybody got any recommendations for cheap travel

hi all. PBC diagnosed in 2014. Been on urso since then and been with a gastroenterologist that basically just followed my disease with blood tests. Fibroscans were not really a major thing when I was diagnosed and my doctor really never used them. He has retired and I’m going to a new practice that wants

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods were all normal except Alp was 135, Consultant said I probably had a mild case which I was very pleased about, I have been getting bloods done

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good since last August. They've never been overly high according to my consultant who thinks its a very mild case but I've now been getting different

Hello I understand that there are few males that have developed this terrible disease. Probably less than 8 % and growing due to improved diagnostic procedures. I have had PBC for over 15 years. My liver does show significant cirrhosis. Luckily Urso has helped bring down my Alc Phosphatase and kept

Hi I'm new to the site but not new to pbc diagnosed in 2018.Think I've been neglected over the years by my consultant as I've only just in the last 7 months seen a liver specialist and even that didn't go to plan I was with my daughter at my 1st appointment and the consultant assumed it was my daughter

https://www.fda.gov/safety/medical-product-safety-information/ocaliva-obeticholic-acid-intercept-pharmaceuticals-drug-safety-communication-serious-liver-injury Thanks for someone bringing this to my attention in her recent post. I think this really enforces the need for close monitoring of our liver

I was diagnosed with PBC in September and started Urso thereafter. My bloods have all come back to normal range so I guess I’m an Urso responder which is great. However I can’t say I feel great… I have periodic fluey symptoms( aches and tiredness), get a lot of headaches and have developed a slight

Does anyone in the UK know if the secondary drug that can be used with Urso, called Livdelzi, is available yet in the UK? And if so, is it available on a regular NHS prescription?

hi everybody, in April I started second line therapy as my alp wasn’t comeing down enough with urso, in march my alp was 465 October went down too 292 I then had my dose upped too the maximum 10mg just had my bloods come back today and alp 281!!! So dishearten it hasn’t come down more!!!! On a good note