Experiences with

Uva Ursi

I have recurring cystitis, due to Vaginal Atrophy. ( I am about to start using A Vogel Uva Ursi complex) as well as the homeopathic remedies I am taking) many thanks

I even reacted the same ways to certain supplements as well, such as Uva Ursi, and supplements containing a lot of glycerol (this may be due to changes in osmolality). All would cause nerve pains. Anyway, by late summer 2023, I had to take Trimethoprim due to kidney pains from the infection.

TL;DR I was able to succesfully use Uva Ursi and Antibiotics by combing them with an antihistamine (Uva Ursi and the antibiotics previously caused severe burning sensation of my skin.)

Diagnosed with Pbc last Feb through routine blood test, very high LFT'S, no symptoms, ultrasound normal, fibroscan 7.5, after taking urso within 3 weeks bloods were all normal except Alp was 135, Consultant said I probably had a mild case which I was very pleased about, I have been getting bloods done

Hi Just wondering if anyone stopped their Urso for a week to see if it helped with stomach issues. I've been on it now for 2 years and my numbers are all good since last August. They've never been overly high according to my consultant who thinks its a very mild case but I've now been getting different

Hello I understand that there are few males that have developed this terrible disease. Probably less than 8 % and growing due to improved diagnostic procedures. I have had PBC for over 15 years. My liver does show significant cirrhosis. Luckily Urso has helped bring down my Alc Phosphatase and kept

Hi I'm new to the site but not new to pbc diagnosed in 2018.Think I've been neglected over the years by my consultant as I've only just in the last 7 months seen a liver specialist and even that didn't go to plan I was with my daughter at my 1st appointment and the consultant assumed it was my daughter

https://www.fda.gov/safety/medical-product-safety-information/ocaliva-obeticholic-acid-intercept-pharmaceuticals-drug-safety-communication-serious-liver-injury Thanks for someone bringing this to my attention in her recent post. I think this really enforces the need for close monitoring of our liver

I was diagnosed with PBC in September and started Urso thereafter. My bloods have all come back to normal range so I guess I’m an Urso responder which is great. However I can’t say I feel great… I have periodic fluey symptoms( aches and tiredness), get a lot of headaches and have developed a slight

Does anyone in the UK know if the secondary drug that can be used with Urso, called Livdelzi, is available yet in the UK? And if so, is it available on a regular NHS prescription?

hi everybody, in April I started second line therapy as my alp wasn’t comeing down enough with urso, in march my alp was 465 October went down too 292 I then had my dose upped too the maximum 10mg just had my bloods come back today and alp 281!!! So dishearten it hasn’t come down more!!!! On a good note

[i]Pain is frequently felt as a dull to severe sensation in the right upper quadrant of your abdomen. It can often be an indication of gallstones, especially after a fatty meal. PBC patients can suffer from these due to the fact that with PBC the flow of bile is already impeded to some degree. However

Hi, I’ve been really unwell this year with scleroderma/PBC/Sjögren’s syndrome and I also have hypothyroidism. I started methotrexate a few weeks ago and I’m trying to get used to that, and now I’ve been told after many years of dodging it, that I have to start urso as my alk phos has been elevated

[i]Taking Urso can often cause some stomach issues - bloating or nausea. Being a bile salt, it can cause many people GI issues until your body adjusts to it.[/i] [i]It's not always necessary to take your whole Urso dose right from the beginning. According to Dr. Jones, he often tells people

I was diagnosed with AIH in 2012 and a few years later crossover with PBC was confirmed. I also have alpha 1 antitrypsin deficiency. Triple whammy! I’ve been on Azathioprine and Urso for many years as I was diagnosed early. I’m fortunate that my liver results are within the normal range and I have

I was diagnosed with PBC 12 years ago & I have responded well to Urso. I now have hypothyroidism & NAFLD. My question to the group is whether others suffer from extremely dry skin & what product would you recommend or you have found to be effective on extremely dry skin. I have tried a number of products

[i]When Thursdays rolls around I often begin my day by asking what should I say today to my group?[/i] [i]What can I say that would matter? What would make a difference in someone's day?[/i] [i]Maybe all I can say is that "it's ok". You are "ok". I had PBC for 20 years before I was

I was diagnosed with PBC in July 2021. I have been on Urso since my diagnosis. I take 600 mg daily. I had lab a week ago & don't have the results but I decided to quit the Urso. My liver enzymes has never gotten anywhere near normal. They have come down. I'm just stopping the Urso for a few months

Over 2 years on Urso and my ALP is in the normal range. Ultrasounds show an unremarkable liver. Yet I experience periodic feelings of despair and panic at having this disease … and I think I’m one of the more fortunate individuals, so then I feel guilty for how I feel. Anyone else experience this periodically

I was diagnosed over 10 years ago. I’m on Urso for PBC. My levels went up slightly about 2 yrs ago. Prior to that my Dr said if he didn’t see my test results, he never think I had PBC. I read these posts & honestly it scares the crap out of me I don’t feel the way most of you feel. I have ADHD and have