Experiences with

Uva Ursi

I even reacted the same ways to certain supplements as well, such as Uva Ursi, and supplements containing a lot of glycerol (this may be due to changes in osmolality). All would cause nerve pains. Anyway, by late summer 2023, I had to take Trimethoprim due to kidney pains from the infection.

TL;DR I was able to succesfully use Uva Ursi and Antibiotics by combing them with an antihistamine (Uva Ursi and the antibiotics previously caused severe burning sensation of my skin.)

[i]Taking Urso can often cause some stomach issues - bloating or nausea. Being a bile salt, it can cause many people GI issues until your body adjusts to it.[/i] [i]It's not always necessary to take your whole Urso dose right from the beginning. According to Dr. Jones, he often tells people

I was diagnosed with AIH in 2012 and a few years later crossover with PBC was confirmed. I also have alpha 1 antitrypsin deficiency. Triple whammy! I’ve been on Azathioprine and Urso for many years as I was diagnosed early. I’m fortunate that my liver results are within the normal range and I have

I was diagnosed with PBC 12 years ago & I have responded well to Urso. I now have hypothyroidism & NAFLD. My question to the group is whether others suffer from extremely dry skin & what product would you recommend or you have found to be effective on extremely dry skin. I have tried a number of products

[i]When Thursdays rolls around I often begin my day by asking what should I say today to my group?[/i] [i]What can I say that would matter? What would make a difference in someone's day?[/i] [i]Maybe all I can say is that "it's ok". You are "ok". I had PBC for 20 years before I was

I was diagnosed with PBC in July 2021. I have been on Urso since my diagnosis. I take 600 mg daily. I had lab a week ago & don't have the results but I decided to quit the Urso. My liver enzymes has never gotten anywhere near normal. They have come down. I'm just stopping the Urso for a few months

Over 2 years on Urso and my ALP is in the normal range. Ultrasounds show an unremarkable liver. Yet I experience periodic feelings of despair and panic at having this disease … and I think I’m one of the more fortunate individuals, so then I feel guilty for how I feel. Anyone else experience this periodically

I was diagnosed over 10 years ago. I’m on Urso for PBC. My levels went up slightly about 2 yrs ago. Prior to that my Dr said if he didn’t see my test results, he never think I had PBC. I read these posts & honestly it scares the crap out of me I don’t feel the way most of you feel. I have ADHD and have

I caught part of Dr. Jones' Q&A today from The PBC Foundation. One of the best suggestions from him has to do with what/how to ask questions of your doctor. He said be [u][i]very[/i][/u] specific with your questions. i.e. " Am I a responder to Urso?" "Am I a non responder?" Don't just reply

Having read Prof Jones’ book and listened to some of the webinars on YouTube I think I need to see someone who really understands this disease at one of the 6 centres, however I don’t know where these are or how I go about doing this. I’m currently waiting to be seen by local gastroenterologist but could

Hi all, does the PBC itch come from the PBC or the urso? Does the itch come and go? Are there things that can trigger the itch? Thanks in advance for your feedback. 🩷

My doctor thinks I should take meds for high cholesterol. My levels have been just into abnormal for several years. When I read the side effects of statins, I am concerned. My PBC is stable, but I have hypertension in the doctors office, rarely at home. I am currently taking Urso, Synthroid, Gabapentin

I am Mary Williams . I have had PBC for 20+ years and I have been taking URSO the whole time. I have no side effects from the medication. I have never met anyone else in person with PBC. It’s nice to be able to communicate with others and share.

Hi everyone I'm fairly new to this group and I've posted a couple of times but have never received any replies so not sure if anyone can see my posts? I posted the following yesterday (since deleted the post as reposting now): I started on Urso 2 months ago for suspected PBC. While liver biopsy didn't

How is everyone doing lately with their PBC? For some of us, the temps are cooler - maybe helping with less itching. Do you feel you are still living life as best you can despite any of the symptoms that may occur unexpectedly in your day? We all have PBC so differently, don't we? I hope you all try

[u][i]"upper limits of normal" [/i][/u] When we have any blood work done, there is always a 'normal' range given with our results. Hospitals or labs can somethings differ as to what their 'normal' is. Always look at what your results are according to that normal. According to Dr. Jones, in

Hi, hoping someone here can help/advise. I was diagnosed with PBC 18 months ago and thankfully I have responded to Urso Acid. From the start I was on Ursofalk but this month the prescription I have just collected is Cholurso. Are they all the same and it’s just a generic name from a manufacturer?

I have had PBC since 2004 with stable liver enzymes until approximately one year ago. I realize it may be disease progression but am wondering because I had an insurance company change just before their elevation and my new insurance company switched me to a different generic brand of ursodiol. Does

I have PBC and respond well to Urso. I am taking a holiday and need travel insurance. Any recommendations will be much appreciated