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Out of the blue fast falling platelets. CLL and ITP since long. By pass surgery of heart one year ago.
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Troublesome ITP since 9 years. Past 6 months platelets has finally been stable, treated with Revolade (Eltrombopag) 25 mg and low dose Prednisolone. In January one year ago, two of my clogged arteries in heart had a by pass surgery. Survived serious complications. Slow heart rehabilitation. Was looking
Accordion
in
CLL Support
4 months ago
Outdoor working
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
Hi I was diagnosed with systemic sclerosis in Jan this year. I am concerned about the effect my job has on my condition and if I should be looking to change. I work outdoors 5 days a week all year round. I have really struggled this winter with the very cold and wet conditions but I have also read
ApusApus
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
My brother got into a car acciddent and nurses put him back to sleep eveytime he gets agitated (please help)
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
casleyva
in
ICUsteps
5 months ago
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Hello! New to the group
I was diagnosed with depression for about a decade and have been taking medicine since then. I also believe I have anxiety and A-PTSD. I am curious about how much a medicine helps or supports with depression because I feel like it helps but not all the time. Some days are difficult and some less or numb
I was diagnosed with depression for about a decade and have been taking medicine since then. I also believe I have anxiety and A-PTSD. I am curious about how much a medicine helps or supports with depression because I feel like it helps but not all the time. Some days are difficult and some less or numb
Pho3n1x
in
Mental Health Support
4 months ago
Remission
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
Preacherball
in
PMRGCAuk
4 months ago
Good Morning 🩷 new to the group....
Hello! I've just been recently diagnosed with APS after a fall down concrete stairs broke my left fibula (lower leg) January 11/24.When I was able to get the fracture clinic 2 weeks later (I live in a small northern Ontario Canada small town and the clinic is 1hour and 15 minutes away, not easily done
Hello! I've just been recently diagnosed with APS after a fall down concrete stairs broke my left fibula (lower leg) January 11/24.When I was able to get the fracture clinic 2 weeks later (I live in a small northern Ontario Canada small town and the clinic is 1hour and 15 minutes away, not easily done
NorthernShel
in
Hughes Syndrome APS Forum
4 months ago
Open heart surgery
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
I had my first meeting with the surgical team at Papworth yesterday . I’m now pencilled in for an aortic valve replacement in June. We discussed my AF , the effects of surgery on episodes after and anticoagulants . Interestingly they stated that oral anticoagulants reduce the risk of stroke by 60/70%
Hammerboy
in
Atrial Fibrillation Support
4 months ago
Apixaban
I wonder if there is anyone here who is over 80, weighs less than 55kg and is on Apixaban? I was on warfarin but due to my INR being very unstable and also my forgetting to take it sometimes, my cardiologist switched me to Apixaban which I found a great improvement in that there were no more diet restrictions
I wonder if there is anyone here who is over 80, weighs less than 55kg and is on Apixaban? I was on warfarin but due to my INR being very unstable and also my forgetting to take it sometimes, my cardiologist switched me to Apixaban which I found a great improvement in that there were no more diet restrictions
Greenhilldrive
in
Anticoagulation Support
4 months ago
Quitting work
Unsure of the purpose of this post but I guess if it helps someone else then that’s it! Well I finally had to quit my job aged 35 - my symptoms have become incompatible with it and I cannot keep calling in sick, nearly having accidents on the commute, sweating when someone is taking ages in the only
Unsure of the purpose of this post but I guess if it helps someone else then that’s it! Well I finally had to quit my job aged 35 - my symptoms have become incompatible with it and I cannot keep calling in sick, nearly having accidents on the commute, sweating when someone is taking ages in the only
Book_Worm5
in
IBS Network
5 months ago
3 years Runniversary
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
Yesletsgo
Graduate
in
Couch to 5K
4 months ago
Cll and Statins - Thank you for your responses
Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any concerns from a CLL perspective. Jules The Flyer Do these help Serum cholesterol level 4.0 mmol/L [0.0 - 5.2] Serum triglyceride levels 2.4 mmol
Hi All Had a Cholesterol test come back at 6.7 and automatically are suggesting statins. Seeing the Dr next week if I can get an appt to discuss. Any concerns from a CLL perspective. Jules The Flyer Do these help Serum cholesterol level 4.0 mmol/L [0.0 - 5.2] Serum triglyceride levels 2.4 mmol
TheFlyer
in
CLL Support
4 months ago
will you be the same again
You may be the same again. You will recover but you will always some type of setback and post PTSD. Hopefully you don’t not everyone does. Lots of luck to you.
You may be the same again. You will recover but you will always some type of setback and post PTSD. Hopefully you don’t not everyone does. Lots of luck to you.
muneca4
in
ICUsteps
4 months ago
Soiling Issue
After 2 years of chronic constipation I disimpacted my 6 year old last October which resulted in less soiling. My son was even getting the sensation of needing to go again maybe 3-4 times per week. We managed to wean him off Senna (started to give him tummy cramps) and have stayed on a maintenance dose
After 2 years of chronic constipation I disimpacted my 6 year old last October which resulted in less soiling. My son was even getting the sensation of needing to go again maybe 3-4 times per week. We managed to wean him off Senna (started to give him tummy cramps) and have stayed on a maintenance dose
BabT
in
ERIC
5 months ago
Gummie relief for degarelix shots?
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
Chipnick
in
Advanced Prostate Cancer
4 months ago
following last post
Objective: Platelet activation and aggregation play major role in the pathophysiology of atherothrombosis. Mean platelet volume (MPV), a determinant of platelet function, is a newly emerging risk factor for atherosclerosis. The present study was designed to evaluate levels of MPV before and after the
Objective: Platelet activation and aggregation play major role in the pathophysiology of atherothrombosis. Mean platelet volume (MPV), a determinant of platelet function, is a newly emerging risk factor for atherosclerosis. The present study was designed to evaluate levels of MPV before and after the
Mostew
in
MPN Voice
4 months ago
Multiple periods while on the PO pill
Hey everyone! I've been on Desogestrel (progesterone only pill) for about 5 weeks now to try and control my pain and bleeding while I wait for my excision surgery. I've had a lot of spotting but yesterday I came on a very heavy period only 8 days after finishing my last period and I'm wondering if
Hey everyone! I've been on Desogestrel (progesterone only pill) for about 5 weeks now to try and control my pain and bleeding while I wait for my excision surgery. I've had a lot of spotting but yesterday I came on a very heavy period only 8 days after finishing my last period and I'm wondering if
endo_the_stigma
in
Endometriosis UK
4 months ago
Bit old fashioned...
I discovered that a castor oil pack really helps with knee pain. It's horrible sticky oil, but it works topically (for me at least). I have bad memories of this stuff from my childhood. Any hint of sickness and out came the bottle. I would not recommend injesting it! 🤮 it's better than the deep heat
I discovered that a castor oil pack really helps with knee pain. It's horrible sticky oil, but it works topically (for me at least). I have bad memories of this stuff from my childhood. Any hint of sickness and out came the bottle. I would not recommend injesting it! 🤮 it's better than the deep heat
Blackberrywine
in
NRAS
4 months ago
Flecainide when to take and burping sensation
Good Evening I've been taking Flecainide 50mg,Soltalol 40mg & Apixaban 5mg twice a day. Could anyone give me their thoughts on the best way to take these tablets reference before or after food. Since taking Flecainide I seem to have burping & seems like trapped wind in the chest windpipe area.Kind
Good Evening I've been taking Flecainide 50mg,Soltalol 40mg & Apixaban 5mg twice a day. Could anyone give me their thoughts on the best way to take these tablets reference before or after food. Since taking Flecainide I seem to have burping & seems like trapped wind in the chest windpipe area.Kind
RagdollRagdoll
in
Atrial Fibrillation Support
4 months ago
Steroids
I posted a few months ago about my wife's breathing problems. This is an update.Wife age 64 diagnosed with sle six years ago. She is currently on hydroxy, azathioprine and lots of steroids up to 40 mg. In the last six months she had a ruptured calf muscle, 3 spine fractures and severe breathing problems
I posted a few months ago about my wife's breathing problems. This is an update.Wife age 64 diagnosed with sle six years ago. She is currently on hydroxy, azathioprine and lots of steroids up to 40 mg. In the last six months she had a ruptured calf muscle, 3 spine fractures and severe breathing problems
jimbo1605
in
LUPUS UK
4 months ago
Generic Apixaban
Greetings! The US insurance I have for Medicare recipients increased the Eliquis price by about $900 for 2024. That puts my total price for the year, including the deductible, at about $2,000. I simply can't afford it so I'm considering alternatives. Does anyone in the UK have experience with the
Greetings! The US insurance I have for Medicare recipients increased the Eliquis price by about $900 for 2024. That puts my total price for the year, including the deductible, at about $2,000. I simply can't afford it so I'm considering alternatives. Does anyone in the UK have experience with the
LJjr
in
AF Association
4 months ago
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