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I’m back😁. Used to be Dtech.
Been a while since I was last on here. I didn’t go on a lot unless I could help with anything. So jock update. I’m now happily retired. Dog walking and playing golf. Going on occasional holidays. Had a week in Seville to celebrate my 70th birthday. January I had a bad hip. Thought it was just a strain
Been a while since I was last on here. I didn’t go on a lot unless I could help with anything. So jock update. I’m now happily retired. Dog walking and playing golf. Going on occasional holidays. Had a week in Seville to celebrate my 70th birthday. January I had a bad hip. Thought it was just a strain
Retiredtech28
in
NRAS
1 month ago
PMR relapse?
I would be grateful for some advice! I was diagnosed with PMR end of 2022. I was put on 15 mg Prednisolone and started tapering around 2 months in. I stopped Pred December 23! Around 10 weeks ago started waking in early hours in bad pain chiefly in shoulders and hips but also shooting pains in limbs
I would be grateful for some advice! I was diagnosed with PMR end of 2022. I was put on 15 mg Prednisolone and started tapering around 2 months in. I stopped Pred December 23! Around 10 weeks ago started waking in early hours in bad pain chiefly in shoulders and hips but also shooting pains in limbs
Salukimama
in
PMRGCAuk
1 month ago
Doctors advice really upsetting, any support and advice would be appreciated
Due to my asthma, I have been on multiple courses of steroids, leading to a lot of weight gain and water retention (I have gone from size 8-10 to a size 16). I was trying my best to embrace my body as it has gone through an insane amount of medical trauma the past few years, as well as transitioning
Due to my asthma, I have been on multiple courses of steroids, leading to a lot of weight gain and water retention (I have gone from size 8-10 to a size 16). I was trying my best to embrace my body as it has gone through an insane amount of medical trauma the past few years, as well as transitioning
Bolt21
in
Weight Loss Support
1 month ago
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Tapering Steroids
Hi I've been in touch with the hospital about starting to taper the oral steroids I've been taking for the last few months and they have basically left it to me! I've been managing on 15mg per day and tried to cut down last week to 10mg but the pain was too much, I've injected again with Sarilumab
Hi I've been in touch with the hospital about starting to taper the oral steroids I've been taking for the last few months and they have basically left it to me! I've been managing on 15mg per day and tried to cut down last week to 10mg but the pain was too much, I've injected again with Sarilumab
3LittleBirds2
in
NRAS
1 month ago
New diagnose - GMG
Was diagnosed with FM January 2020, never got a follow-up because of COVID-19, just increasing the medication from GP. Previous winter 22-23 was BAD!!! Didn't leave the house, almost all the winter in bed. Horrible pain, itching that hurts, shaking, and on and on...Till began to slur words, chock on
Was diagnosed with FM January 2020, never got a follow-up because of COVID-19, just increasing the medication from GP. Previous winter 22-23 was BAD!!! Didn't leave the house, almost all the winter in bed. Horrible pain, itching that hurts, shaking, and on and on...Till began to slur words, chock on
Polly-S
in
Fibromyalgia Action UK
1 month ago
More steroids my third course 😭
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
My asthma is the worst it's ever been anything sets it off, I had to go to the doctors again today and good job I did needed yet another inhaler I'm on fostair, tiotropium and salbutamol now so yeah alot and the prednisolone tablets so hopefully this should help clear up what ever is aggrevating my breathing
Yumz199725
in
Lung Conditions Community Forum
1 month ago
Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab
I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and prevent further fractures in the future. Because the risk is so high given my age (young at 63 but post-menopause) and long-term steroids I may
I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and prevent further fractures in the future. Because the risk is so high given my age (young at 63 but post-menopause) and long-term steroids I may
tangocharlie
in
PMRGCAuk
1 month ago
Early weeks Prednisone V Adrenaline question?
I would like to ask the experienced team on here if they have seen or investigated if there is a link between the initial “prednisone euphoria” while the adrenal glands are still working…. where one feels like one can carefully manage a reasonable quality of life…. And reducing Prednisone successfully
I would like to ask the experienced team on here if they have seen or investigated if there is a link between the initial “prednisone euphoria” while the adrenal glands are still working…. where one feels like one can carefully manage a reasonable quality of life…. And reducing Prednisone successfully
RosyPollyandMe
in
PMRGCAuk
1 month ago
Alternative days taper
Hi all, I had an appointment with rheumi registrar yesterday. I have stayed on 5mg steroids for 3 months due to another flare. I have been advised to taper 5mg one day then 4mg the day after for one month, then 4mg for a month then alternate days 4 mg and 3mg etc. She did say if this doesn’t work will
Hi all, I had an appointment with rheumi registrar yesterday. I have stayed on 5mg steroids for 3 months due to another flare. I have been advised to taper 5mg one day then 4mg the day after for one month, then 4mg for a month then alternate days 4 mg and 3mg etc. She did say if this doesn’t work will
Lynlea
in
PMRGCAuk
1 month ago
WTAF do we do now, what do I ask for?
Sorry for a long post. Feeling more than a little fragile, defeated and lost. We just heard from our clinic's counsellor as our PGT test results came back - our 1 embryo from our 2nd round is missing a chromosome and would not have been a viable pregnancy - and all they can say is it is sporadic and
Sorry for a long post. Feeling more than a little fragile, defeated and lost. We just heard from our clinic's counsellor as our PGT test results came back - our 1 embryo from our 2nd round is missing a chromosome and would not have been a viable pregnancy - and all they can say is it is sporadic and
Darcy1996
in
Fertility Network UK
1 month ago
Luke’s Liver
Good evening all. Since January I have experienced liver issues which was initially thought to of been caused by a virus and assumed I’d make a full recovery despite my liver being inflamed and having highly elevated liver counts after a course of Steroids My levels did return to normal and I seemed
Good evening all. Since January I have experienced liver issues which was initially thought to of been caused by a virus and assumed I’d make a full recovery despite my liver being inflamed and having highly elevated liver counts after a course of Steroids My levels did return to normal and I seemed
Lukeliver
in
British Liver Trust
1 month ago
diazepam tapering added prednisilone
i was put on diazepam 7 weeks ago for excruciating muscle spasms left side of back. Didn’t wirk so after 4 weeks started tapering. On Saturday dr added prednisilone. Spasms stopped within 24hrs. I’ve now been told that to take steroids while tapering makes withdrawals much worse. Is this true
i was put on diazepam 7 weeks ago for excruciating muscle spasms left side of back. Didn’t wirk so after 4 weeks started tapering. On Saturday dr added prednisilone. Spasms stopped within 24hrs. I’ve now been told that to take steroids while tapering makes withdrawals much worse. Is this true
130396
in
Anxiety and Depression Support
1 month ago
Venting about my latest flare
I don't have a question or useful info to share. Just wanted to get this rant off my chest! I've had 3 major flares of lupus since I was diagnosed 7-8 years ago. The first brought about my initial diagnosis. The second was 4 years later in 2020 when I stopped my medication for a few weeks because I
I don't have a question or useful info to share. Just wanted to get this rant off my chest! I've had 3 major flares of lupus since I was diagnosed 7-8 years ago. The first brought about my initial diagnosis. The second was 4 years later in 2020 when I stopped my medication for a few weeks because I
lingdings
in
LUPUS UK
1 month ago
is this lichen sclerosus ?
Hi everyone after months trying to understand what this little white spots on my glands are , and after my gp and some urologist said literally they didn't know , on a prive dermatologist visit in italy they said it was LS. prescribed me steroids and vit E. Meantime i send this pic to a famous dermatologist
Hi everyone after months trying to understand what this little white spots on my glands are , and after my gp and some urologist said literally they didn't know , on a prive dermatologist visit in italy they said it was LS. prescribed me steroids and vit E. Meantime i send this pic to a famous dermatologist
Mrperry89
in
Men's Health Forum (Penis Health)
1 month ago
Advice on liver and kidney results on latest blood test
Diagnosed end of April, 2 days of intravenous pred @ 500, 1 day at intravenous @ 1mg and then onto 60, 50, 40, 35 - just started on 30 today. Bloods from 3rd June came back with liver and kidney markers out of range ....... steroids 🤷♀️ Have a slot to discuss the results with the surgery pharmacy
Diagnosed end of April, 2 days of intravenous pred @ 500, 1 day at intravenous @ 1mg and then onto 60, 50, 40, 35 - just started on 30 today. Bloods from 3rd June came back with liver and kidney markers out of range ....... steroids 🤷♀️ Have a slot to discuss the results with the surgery pharmacy
Anne241262
in
PMRGCAuk
1 month ago
Chronic Fatigue with PMR
Could anybody please clarify is it the inflammation related to PMR or is it the Steroids (Preds) that cause this very debilitating fatigue and brain fog? Thanking you
Could anybody please clarify is it the inflammation related to PMR or is it the Steroids (Preds) that cause this very debilitating fatigue and brain fog? Thanking you
Mariemcdo
in
PMRGCAuk
1 month ago
Sjogrens
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited capabilities in both arms...Sleeping is a very painful/frightening challenge. From inflamed/painful armpits (more so on the left) which ascerbates
Heritage1961
in
The Australian Sjögren's Syndrome Association
1 month ago
Autoimmune issues and IVF - a question
Hi all, I'll be having my first FET in a few weeks time, and something has been bugging me for a while. I suffer from a few autoimmune issues - I have psoriasis, psoriatic arthritis and also elevated thyroid antibodies (sidenote: my thyroid is otherwise under control with levothyroxine). Generally my
Hi all, I'll be having my first FET in a few weeks time, and something has been bugging me for a while. I suffer from a few autoimmune issues - I have psoriasis, psoriatic arthritis and also elevated thyroid antibodies (sidenote: my thyroid is otherwise under control with levothyroxine). Generally my
orangecatmum
in
Fertility Network UK
1 month ago
Transfer #3 protocol decisions- would love some input on medicated vs natural FET and Steroid use
Hi, I'm trying to make a decision about our next transfer, and finding it difficult so would really appreciate any insight or experience from the group. I've had 2 frozen transfers of good quality 5-day embryos created with donor eggs. First was a fully medicated transfer, I had a missed miscarriage
Hi, I'm trying to make a decision about our next transfer, and finding it difficult so would really appreciate any insight or experience from the group. I've had 2 frozen transfers of good quality 5-day embryos created with donor eggs. First was a fully medicated transfer, I had a missed miscarriage
Coming_up_Roses
in
Fertility Network UK
1 month ago
My annual check up ...
Went to my annual review yesterday for my COPD check....Blood pressure 120 .58 Pulse 72 ... O2 saturations 97 Weight 7O kgs Height 5 ft .. Nurse queried do I actually have COPD ... She's new to the practise and told me my last exacerbation was 2021 when I used my antibiotics and steroids .... I should
Went to my annual review yesterday for my COPD check....Blood pressure 120 .58 Pulse 72 ... O2 saturations 97 Weight 7O kgs Height 5 ft .. Nurse queried do I actually have COPD ... She's new to the practise and told me my last exacerbation was 2021 when I used my antibiotics and steroids .... I should
Blackbird8
in
Lung Conditions Community Forum
1 month ago
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