The Australian Sjögren's Syndrome Association | HealthUnlocked

Can anyone give advice on how to treat swollen and painful Carotid/ Salivary glands

hello I have been using Ilube eye drops for years. ( Acetylcysteine 5% )I have recently discovered it contains preservative benzalkonium chloride which is...

My sister is going on a coach trip and the coach has air conditioning, she is struggling with a dry nose and mouth with Sjogrens also she has earache with it....

Having read some of the comments about specialist I'm not going there.I have had autoimmune issues since I was 18, I'm 73 now and found information about this...

Hi I have had many changes to my health/body etc since I last sent a post. I now have Brachia Plexus which places further pressure on the heart...limited...

I have lupus SLE and have Sjrogens. I have been suffering with dry mouth. My full time job is taking care of my mouth. I am most uncomfortable at night. I use...

Hi all, have had sjogren's since 2012 but been managing okay. It's now going through my body and causing digestive problems. Food is taking longer to pass...

How do you get rheumatologists to take you seriously? I am almost convinced I have Sjogrens, but after seeing threee rheumys, they say no, because all my...

Hello all, I am posting this on behalf of J972 You’ll normally find her lurking on the Thyroid UK forum. I hope you don’t mind me popping over to ask...

has anyone found a gentle and effective deodorant or antiperspirant? I cannot find one that is effective without giving me a burning sensation on my arm pits

I've had Sjogren's for over 20 years now and am having issues with bloating, IBS, and food intolerances and constipation. Was wondering if anyone with...

I have various autoimmune conditions but it's the stage two Sjogrens that is of concern. I stopped sweating under my arms some time ago but I were profusely...

Hi everyone, was diagnosed with sjogrens in 2012 and after trial and error have been able to manage it most of the time. 2019 began to get heartburn etc. was...

Does anyone have this please? My sister has Sjogrene’s and has developed sores in the corner of her mouth along with spots. She wonders if it’s connected.

sjogrens and lung disease. I have alveolitis, asthma and now interstitial lung disease (ILD). My doc has now diagnosed pulmonary hypertension. My doc can...

If anyone else has experienced this condition i would be soo grateful to chat.

Hello, I am looking for a rheumatologist who is knowledgeable about treating Sjogren's, or at least care about hie/her patiens. I would appreciate any...

I would be very grateful for advice...it's probably something I should know already. I have Sjogrens, probably Lupus (or some sort of overlap) and...

hi I’m suffering a flare up of symptoms and feel isolated and lonely after being seen by medics 3 times in 3 days I would appreciate anyone sharing their...

I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome

Hi Looking for recommendations for a specialist in Perth who has a good understanding of Sjogrens. Diagnosed in March but felt lack of confidence in...

Hi., I would love some tips on how to minimise coughing due to dry throat

My NP has no idea what this is. They come and go hurt really bad and get very itchy when they are healing. I have raynauds and my mother has fibromalcia. I...

Hoping to get some suggestions on what to do as last few months have been getting flare-ups and problem lately is heartburn whenever I eat. Spoke to rheumy and...

It itches so much. I got one bump in left hand and another on right. Help

Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under...

HELP… had SS for 20 year mostly affects my eyes… but post covid… OMG… my lips feel like they are on fire… nothing helps… 🥲🥲🥲 best things to try???

Hi I have had some success with Cepharanthine (or Cepharan) reducing inflammation, swollen glands, sore throats and loss of my voice. I was taking 10-20mg per...

Hi . I have,PBC and possible sjorgrens as per rheumatologist. I have joint pain and mucle pain. Numbness in lower arms and hands. Dry eyes and mouth, and now...

I have had Sjogrens for 13 years and have never taken any pain meds or anti-inflammatory or immuno-suppressant. The rheumy and fibro have restricted me but...