The Australian Sjögren's Syndrome Association | HealthUnlocked

The Australian Sjögren's Syndrome Association

2,429 members779 posts

Diagnosis?

How do you get rheumatologists to take you seriously? I am almost convinced I h...

Please consider signing this petition for better understanding and funding of thyroid conditions. 🙏

Hello all, I am posting this on behalf of J972 You’ll normally find her lurki...

Effective deodorant or antiperspirant that doesn’t “burn”

has anyone found a gentle and effective deodorant or antiperspirant? I cannot fi...
harmony2 profile image

Sjogren's Syndrome and Coeliac disease.

I've had Sjogren's for over 20 years now and am having issues with bloating, IBS...
maxie4969 profile image

Chronic over heating and night sweats anyone?

I have various autoimmune conditions but it's the stage two Sjogrens that is of ...
Jillymo profile image

gastro problems

Hi everyone, was diagnosed with sjogrens in 2012 and after trial and error have ...
Cassiecat profile image

Angular Cheilitis

Does anyone have this please? My sister has Sjogrene’s and has developed sores i...

ILD and pulmonary hypertension caused by sjogrens

sjogrens and lung disease. I have alveolitis, asthma and now interstitial lun...
Xxxxxxx profile image

Pressure, tightness in the lower throat area, does anyone suffer with this condition? Ive now had it for 6 months and suffering daily.

If anyone else has experienced this condition i would be soo grateful to chat.
GJGJ33 profile image

Seeking a good Rheumatologist in Melbourne ?

Hello, I am looking for a rheumatologist who is knowledgeable about treating S...
rosegardens profile image

Sjogrens etc

I would be very grateful for advice...it's probably something I should know alre...
puffyface profile image

suffering a flare up of symptoms

hi I’m suffering a flare up of symptoms and feel isolated and lonely after bein...
WhatSayU profile image

Connecting with someone with similar diagnoses

I am wanting to connect with anyone who has been diagnosed with both generalised...

Sjogrens specialist recommendations for Perth WA

Hi Looking for recommendations for a specialist in Perth who has a good underst...
FloraM profile image

Sjoegrens journey

Hi., I would love some tips on how to minimise coughing due to dry throat
SJWS profile image

Mystery bumps

My NP has no idea what this is. They come and go hurt really bad and get very it...
Sk8realthing profile image

High inflammation

Hoping to get some suggestions on what to do as last few months have been gettin...
Cassiecat profile image

What is itchy thing?

It itches so much. I got one bump in left hand and another on right. Help
Krk_fob profile image

Lip biopsy results

Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm s...

Help… burning lips!

HELP… had SS for 20 year mostly affects my eyes… but post covid… OMG… my lips fe...
MawMawM profile image

Cepharanthine

Hi I have had some success with Cepharanthine (or Cepharan) reducing inflammatio...

Possible sjorgrens

Hi . I have,PBC and possible sjorgrens as per rheumatologist. I have joint pain...
Nellies47 profile image

My fibro and rheumatism have been more severe since my second pfizer shot. It's been a month with no let up. Is this my new normal?

I have had Sjogrens for 13 years and have never taken any pain meds or anti-infl...
grahamb profile image

Okay

After suffering with chronic constipation for 4 years was wondering has anyone g...
Bombers18 profile image

Sjogrens Disease

I start Rituximab infusions today as my Sjogrens has become severe- I have lost ...
Dynamic63 profile image

I start Rituximab infusions today -my sjogrens disease has become severe . I’ve lost 9 teeth in 15 months & can’t have implants - terrified

Sjogren Syndrome
Dynamic63 profile image

Is it ok to have lecithin if you are hypothyroid?

Is it ok to have lecithin if you are hypothyroid?
Josussex profile image

Scalp problems

This winter having problems with very dry, itchy scalp which gets tender. Have t...
Cassiecat profile image

Rash on back of arms

Hi, Does anyone get this kind of rash on the backs of the tops of their arms. N...
Yellow-Petal profile image

Dry mouth

Hi all , please can you help me , I have APS (diagnosed 3 years ago ) now I have...
Sevenstar profile image
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About us

The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to ill...

Read more about The Australian Sjögren's Syndrome Association

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