The Australian Sjögren's Syndrome Association | HealthUnlocked

Hi, Does anyone get this kind of rash on the backs of the tops of their arms. No itching but this area is always freezing cold to touch. I've had them for...

Hi all , please can you help me , I have APS (diagnosed 3 years ago ) now I have a very dry mouth , I am pretty sure it's going to be Sjorgrens as I am very...

It’s been there for almost 6 months took 2 months to get this size hasn’t got any bigger. Now there are more small ones. Very painful if bumped. Don’t itch....

i got these a few days ago and they won’t go away.. what are they?

Hi Im new to the forum. I was diagnosed with ME/CFS approx 8 years ago and also have Sjogrens, restless legs and osteoarthritis. I am 57 and can no longer work...

Hi Has anyone had any advice on timings of Rituximab and the covid vaccine? I have been told that Rituximab cannot be given until a month after the second...

I have finally got a date for my salivary gland ultrasound - but whilst I was waiting I had to see my GP as I was getting really weird dents appearing in my...

What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been...

Hi everyone and Happy New Year. I use Hyloforte 2mg from my dry eyes which has been working very well for me but I've recently been having some trouble with...

I am wondering if someone can help. I am being investigated for Sjorgrens and today I had tear test however was in normal range. I have to go for lip biopsy...

Hello Everyone, Please help:( I’ve been getting these small bumps over my knuckles for a while now. I’m 26 and have no health issues that I know of. I really...

I recieved the results of my lip biopsy it shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas...

I'm having my lip biopsy this afternoon, I'm quite nervous 😕. I've had it done now, it wasn't as bad as I thought it would be. I've added a photo.

I've had eye problems for the past 9 years, sore, very dry all the time, and more recently extremely light sensitive. I've been on so many different...

Letter I recieved after ultrasound but I don't understand it

Hi all I’m new to this group. I’ve decided to join to get some advice since I’m so confused I’m only 17 and I’ve had something wrong with me for 8 months now...

I just want to see if anyone else thinks they have symptoms in a cycle? I only ask as I find my symptoms are cyclonic. Sometimes I am very dry throughout my...

I suffer from nonspecific autoimmune myositis, small fiber/autonomic neuropathy and dysautonomia. My autonomic doctor I just started seeing sent me for a lip...

I think I'm having some kind of flare up,I'm still undiagnosed at the moment but have had several tests and waiting for others which keep being rearranged due...

I am based in the UK - and have had a negative blood test for Sjogren's - but have been offered an ultrasound scan of my salivary glands. Just wondered if...

Hi everyone I am hoping for suggestions of a neurologist in NSW with a speciality in autonomic dysfunction associated with Sjogren’s disease. I have had SS...

Hi would anyone know what it is on my finger I been having it for over 4 months now at first it was super red and swollen and it started to bleed a little but...

Can you have Sjögren’s without having a positive blood test or positive lip biopsy? I have an extremely dry mouth, dry eyes, all over pain/aching, fatigue, and...

Red bumps in hands

I have an appointment coming up for an ultrasound of salivary glands.has anyone ha done and what does it involve please?

Is unintentional weight loss a normal symptom of Sjogrens?

Hi I am new here and new to these symptoms of extremely dry mouth and dry eyes, I have weight loss and fatigue also. I recently had blood tests which came back...

I have sjogrens and ate hot chips with salt. The salt burnt my tongue and mouth. Any suggestions to help soothe the burn and pain. There are no visible marks...

Hi I'm in the UK.. Struggling to get diagnosed... Ibs, dry eye, dry mouth, fatigue, breathless... Mother ra, brother lupus, Aunty sjogren's.. No antibodies.....

Hi everyone, My GP and I think I may have Sjögren’s syndrome, but so far have been seronegative for antibody testing. I would like to pursue other forms of...