The Australian Sjögren's Syndrome Association | HealthUnlocked

I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome

Hi Looking for recommendations for a specialist in Perth who has a good understanding of Sjogrens. Diagnosed in March but felt lack of confidence in...

Hi., I would love some tips on how to minimise coughing due to dry throat

My NP has no idea what this is. They come and go hurt really bad and get very itchy when they are healing. I have raynauds and my mother has fibromalcia. I...

Hoping to get some suggestions on what to do as last few months have been getting flare-ups and problem lately is heartburn whenever I eat. Spoke to rheumy and...

It itches so much. I got one bump in left hand and another on right. Help

Hi. I had a lip biopsy 3 weeks ago. Rheumatologist feels I've sjogrens but I'm serum neg. I have had dry eyes +mouth, mouth ulcers, sore swollen glands under...

HELP… had SS for 20 year mostly affects my eyes… but post covid… OMG… my lips feel like they are on fire… nothing helps… 🥲🥲🥲 best things to try???

Hi I have had some success with Cepharanthine (or Cepharan) reducing inflammation, swollen glands, sore throats and loss of my voice. I was taking 10-20mg per...

Hi . I have,PBC and possible sjorgrens as per rheumatologist. I have joint pain and mucle pain. Numbness in lower arms and hands. Dry eyes and mouth, and now...

I have had Sjogrens for 13 years and have never taken any pain meds or anti-inflammatory or immuno-suppressant. The rheumy and fibro have restricted me but...

After suffering with chronic constipation for 4 years was wondering has anyone gone down the path of a bowel operation

I start Rituximab infusions today as my Sjogrens has become severe- I have lost 9 teeth over 15 months and can’t have implants as bones have shrunk -...

Sjogren Syndrome

Is it ok to have lecithin if you are hypothyroid?

This winter having problems with very dry, itchy scalp which gets tender. Have tried different treatments, some too severe as scalp sensitive but still have...

Hi, Does anyone get this kind of rash on the backs of the tops of their arms. No itching but this area is always freezing cold to touch. I've had them for...

Hi all , please can you help me , I have APS (diagnosed 3 years ago ) now I have a very dry mouth , I am pretty sure it's going to be Sjorgrens as I am very...

It’s been there for almost 6 months took 2 months to get this size hasn’t got any bigger. Now there are more small ones. Very painful if bumped. Don’t itch....

i got these a few days ago and they won’t go away.. what are they?

Hi Im new to the forum. I was diagnosed with ME/CFS approx 8 years ago and also have Sjogrens, restless legs and osteoarthritis. I am 57 and can no longer work...

Hi Has anyone had any advice on timings of Rituximab and the covid vaccine? I have been told that Rituximab cannot be given until a month after the second...

I have finally got a date for my salivary gland ultrasound - but whilst I was waiting I had to see my GP as I was getting really weird dents appearing in my...

What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been...

Hi everyone and Happy New Year. I use Hyloforte 2mg from my dry eyes which has been working very well for me but I've recently been having some trouble with...

I am wondering if someone can help. I am being investigated for Sjorgrens and today I had tear test however was in normal range. I have to go for lip biopsy...

Hello Everyone, Please help:( I’ve been getting these small bumps over my knuckles for a while now. I’m 26 and have no health issues that I know of. I really...

I recieved the results of my lip biopsy it shows features consistent with sjogren's but level of inflammation is low, with a focus score of 1.2.Any ideas...

I'm having my lip biopsy this afternoon, I'm quite nervous 😕. I've had it done now, it wasn't as bad as I thought it would be. I've added a photo.

I've had eye problems for the past 9 years, sore, very dry all the time, and more recently extremely light sensitive. I've been on so many different...