My annual check up ...: Went to my... - Lung Conditions C...

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My annual check up ...

Blackbird8 profile image
Blackbird8
β€’126 Replies

Went to my annual review yesterday for my COPD check....Blood pressure 120 .58

Pulse 72 ... O2 saturations 97

Weight 7O kgs Height 5 ft ..

Nurse queried do I actually have COPD ... She's new to the practise and told me my last exacerbation was 2021 when I used my antibiotics and steroids ....

I should at least be having a chest infection once a year to claim to have COPD ....

My reply was don't talk rubbish I didn't have a chest infection in 2021 ... I got steroids and antibiotics as my rescue pack at home had run out of date and I needed more ... I haven't used the ones I was given in 2021 either ...

...

She then told me I looked very well for having stage 4 copd ... which made me snigger a little I don't ever really take much pride in my appearance as being a dog walker is not the cleanest of jobs I wear wellies all year round... with shorts and I'm covered in dog hair and slobber but always have a beaming smile as I'm happy in my bubble with the dogs ...

I did change for the appointment into jeans and a tshirt of sorts ....and put some lippy on...maybe that helped me look beautiful 😍 πŸ˜‚

She then gave me flow chart with my scores of 0 to 5

How do I feel after climbing the stairs

How do I feel at 4am after being woke yet again to go let my bladder do it'd thing for the 5th time in an hour πŸ™ƒ πŸ˜…

How do I feel at 5.30 when I have to wake up after being awake all night ...

Yep that form ....

She's now going to query with my doctor are the xrays and scans from the last 10 years ....all giving me the correct diagnosis and its not just athsma ....

I did inform her I don't have athsma I have do COPD .......

her reply was welllllll your the patient I'm the nurse...

Never have I felt more stung by someone's words ....

I asked had she looked at my medical records prior to my check up ...NO

I asked her had she met me before to give her the right to query my condition after 10 years of having it ... NO

Does she know me well enough to judge the lack of breath and chest tightness when I feel bad on bad days ...NO

Did she also know I'm a retired scrub nurse of 35 years most of it spent getting my hands dirty and smoking 60 ciggies a day (my doing).... NO

Query away I requested the GP will tell you what I have told you ...the hospital will tell you what I have told you ...

Is it a case of never judge the book by its cover because its looks good on the outside it dosent make for an interesting read ......

Or just a nurse who didn't take the time to read my notes prior to my appointment ..

I don't know why I have written this just felt the need .....

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Blackbird8
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126 Replies
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sassy59 profile image
sassy59

You needed to get that off your chest so to speak and you know your body better than anyone. You’re doing pretty well because you keep going…..walking the dogs in the fresh air does you good. Take no notice of someone who didn’t even read your notes before your check up, just keep on doing what you’re doing.

Love and hugs Bb8.

Carole πŸ‘β€οΈπŸ€—πŸ’‹πŸ©·πŸ₯°πŸŒžπŸ˜˜ xxxx

Blackbird8 profile image
Blackbird8 in reply to sassy59

Hi Carole I was just taken aback slightly by the comment "your just the patient..I'm the nurse " πŸ˜‚πŸ˜‚πŸ˜‚I nearly double flipped and cart wheeled across the room to give her a little opinion of my own ... stupid child πŸ™„ πŸ˜‚πŸ˜‚πŸ˜‚

And flow charts don't even get me started on those things look further than a piece of paper never ever in my career fill one of those things in unless it was for πŸ’© and urine ....

I'm heading back to bed to dream of how stunning I look πŸ˜‚πŸ˜‚πŸ˜‚

Love back you to you and yours 🩷

sassy59 profile image
sassy59 in reply to Blackbird8

Honestly, some people!πŸ˜€Dream the perfect dream of beautiful you. πŸ₯°πŸ‘

Stay well and happy xxx🩷❀️🩷

Blackbird8 profile image
Blackbird8 in reply to sassy59

Must wear more lippy πŸ˜‚

sassy59 profile image
sassy59 in reply to Blackbird8

πŸ’„πŸ’„πŸ’„πŸ’„πŸ’„πŸ‘„ just a start πŸ˜‚

Ergendl profile image
Ergendl in reply to Blackbird8

Arrogant wee besom of a nurse!

Blackbird8 profile image
Blackbird8 in reply to Ergendl

I totally agree 😊

Greenthorn profile image
Greenthorn

Good post and a damn good read. πŸ€ͺI actually feel a lot better after reading this! And I'm damn sure most of us will too!I guess your positivity will let this go. I think it is the nurse that is wearing wellington's, but that her wellington's are filled with cement.

But many of us would encourage you to write a formal letter of complaint to the surgery.

NB Next time you visit, take your photo album with you and encourage the nurse to look beyond the front page.

Blackbird8 profile image
Blackbird8 in reply to Greenthorn

Ohh I would never complain about her after telling her in my own words that's enough ....I can get quite spicy with my words and I'm sure she heard a few during my appointment....

As a scrub nurse I never spoke to my cases as obviously they were asleep due to anaesthetic...

When I did anaesthetics I knew my patient back to front and inside out prior to meeting them .. it gave me an insight to them rather than operative sight or condition.. Back then I could and had to bring a lot of people down of the ceiling as they were terrified ....so even the slightest bit of pyjama paralysis has to be recognised... patients are human and had to be treated as such ...communication was and still should be key ...Paperwork was minimal ....now its flow charts and duplication of every words ....(one of the reasons I retired early)

I'm bending everyone's ear now so leaving quietly πŸ€£πŸ˜‚

Shirazmataz profile image
Shirazmataz

Rather patronising comment from the nurse. Your the patient and I'm the nurse. Very annoying. Presumably saying she knows best! Once you have retired you can loose your identity so easily, and if she had known you and your background she would not have said that, but she shouldnt say it to anyone whatever their background.. A person with a chronic illness knows their condition and body very well, much better than a new nurse who hasnt had time to read your notes. One point in her favour though is she is a questioning person which is always a good thing. You sound like you are doing brilliantly well so that is great πŸ˜„ all the best Sally

Blackbird8 profile image
Blackbird8 in reply to Shirazmataz

Exactly that shouldn't be saying it to anyone....Her questions came from the computer sadly with all this pc tablet etc it's a world where nobody can think for themselves as its all written down in performance criteria that must be adhered to ...

Most days I'm fine and can walk 15 kms with dogs ...

How can one flow chart numbered 0 to 5 describe how I feel on bad days which are few thank goodness 😳 πŸ˜‚πŸ˜‚

HungryHufflepuff profile image
HungryHufflepuff

most people make an effort to tidy themselves up a bit for a medical appointment. A nurse ought to know better that, just because someone looks smart or looks well, doesn’t mean they’re suddenly in good health πŸ™„ If only!

Good for you for standing up for yourself.

🐢 πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘

Blackbird8 profile image
Blackbird8 in reply to HungryHufflepuff

I was still wearing my wellies πŸ˜‚πŸ˜‚πŸ˜‚

HungryHufflepuff profile image
HungryHufflepuff in reply to Blackbird8

Nothing wrong with that! ☺️

Blackbird8 profile image
Blackbird8 in reply to HungryHufflepuff

Exactly πŸ’― πŸ˜‚πŸ˜‚

Shirazmataz profile image
Shirazmataz

Yes bit like the 1 to 10 scale they like to ask you out of the blue about pain. That is exasperating in comparison to what!!

Blackbird8 profile image
Blackbird8 in reply to Shirazmataz

That was the start of it the Pain Score Charts .....I have seen some people laying quiet and in agony but don't say anything cause they were expecting pain ... so because they are quiet dosent mean they are comfortable ask them ...

Then you get those that scream and shout and the pain is off the scale...when in fact they are fine ...

Scene of any accident I'm heading to the quiet one they need me most..

The words "how are you feeling " mean a lot to somone....😊

Dottie11 profile image
Dottie11

I agree 100%. Since covid and with gp mutilple retired I dont see the same Gp. I am tired of havind to go over things so much more than before. Your replies are excellent. I have taken some notes as might help for me on times. Struugling atm so excuse my spelling. tknak you for post xx

Patk1 profile image
Patk1 in reply to Dottie11

Hope u soon pick up Dottie11.we r both having a long difficult infection.hope u r coping and have a little support xx

Alberta56 profile image
Alberta56 in reply to Patk1

Bless you Pat. I hope you soon start to mend. xxxx

Patk1 profile image
Patk1 in reply to Alberta56

Thanku Alberta56.its been a tough few months but I'm hoping antibiotics r taking effect,finally xxx

Blackbird8 profile image
Blackbird8 in reply to Dottie11

Take what you need to use anytime Dottie ...hope you pick up soon rest easy 😍

Alberta56 profile image
Alberta56 in reply to Dottie11

Hope you're soon feeling better, Dottie. xxxx

Pat128 profile image
Pat128

Hi,I lost a lung due to cancer and developed COPD on my remaining lung, Breathing is not my best friend as you can see. Some days I struggle to go more than 10 meters and more than once I think I'm going to leave the earth.

But you wouldn't see that on me. If it wasn't that I was constantly on oxygen people and nurses would also be confused.

But sometimes the package doesn't tell what's inside.

They can't blame COPD suffering people to keep clear from infection and flair ups. It mean they be careful.

Blackbird8 profile image
Blackbird8 in reply to Pat128

You have been through so much Pat and are still around to tell us that means your made of strong stuff...Some days are worse than others I know that ...

Take great care 😍

Dottie11 profile image
Dottie11 in reply to Pat128

take care.xx

Snackjack profile image
Snackjack

Good to get it off your chest!!!

Blackbird8 profile image
Blackbird8 in reply to Snackjack

It is I'm afraid of saying tooo much I'm off my soap box now πŸ˜‚

Patk1 profile image
Patk1

I loved Yr post Blackbird8.a tick-box exercise with an inexperienced nurse "who knows best".she's a lot to learn.the problem is with some,they aren't open to the fact.she'd have been better asking how do u cope so well & keep so well, which wld have given her some insight into you,& advice for others.head up the backside springs to mind )) xxx

Blackbird8 profile image
Blackbird8 in reply to Patk1

Thanks so much Pat ...I hate tick box exercises always have ...

It's all about personal information peeling the layers away and finding the person 😍

Patk1 profile image
Patk1 in reply to Blackbird8

I do too.yes it is & being open to learning from patients+ interested enough.too many staff don't read even the briefest outline of notes - so they miss the 1st step .. i love yr responses ,))xx

Blackbird8 profile image
Blackbird8 in reply to Patk1

Thanks so much Pat that's kind I guess it comes from 35 years of learning and still keep my registration up ... They asked me at Covid time to go back to work I declined off course xx

Annscottie profile image
Annscottie

Gosh Blackbird I'm impressed you had a face to face. My annual review was a phone call with a nurse with a checklist.

Glad you held your own with Nurse Know-it -All. πŸ‘

Blackbird8 profile image
Blackbird8 in reply to Annscottie

To be honest I would prefer a call rather than having to face a person who has nothing between her ears 🀣

Annscottie profile image
Annscottie in reply to Blackbird8

That's true!

Yumz199725 profile image
Yumz199725

Aw that's so awful they all do it they take one look at you like they know you better then you know yourself when they literally just met you and start judging you that's how I ended up having another asthma attack all could of been avoided. So sorry you had to go through that! ❀️

Blackbird8 profile image
Blackbird8 in reply to Yumz199725

Oh my god that's terrible you had an athsma attack in what appears to have been a totally avoidable situation...It's all about treating the person with the condition not just the condition 😌

Yumz199725 profile image
Yumz199725 in reply to Blackbird8

Yeah I hadn't been feeling well for months went to my GP like 20 times and eventually I got in touch with asthma helpline and sure enough I was right something was seriously wrong and early hours of last Friday had an asthma attack πŸ’”. Luckily I went to the hospital because at the time I didn't realise that's what it was who knows if I had listend to my GP probably wouldn't be here right now. The worst part is being told your chest sounds and looks clear on Xrays yet your wheezing, breathless, exhausted tight chested and can hardly stand up and talking is exhausting! I really feel for you though cause you know your own body and then they talk to you like your an idiot!!! πŸ’”πŸ˜ž

Blackbird8 profile image
Blackbird8 in reply to Yumz199725

I'm hoping you got the treatment and respect you deserve and your condition is under the best control it can be ...Nothing worse than being looked at ... when they don't stop to actually look and listen ...πŸ₯°

Yumz199725 profile image
Yumz199725 in reply to Blackbird8

Thanks hun yeah just finished my second set of steroids and I'm on 3 different inhalers now so hopefully should see some improvement soon x

Blackbird8 profile image
Blackbird8 in reply to Yumz199725

πŸ©·πŸ§‘πŸ’›πŸ’š

Alberta56 profile image
Alberta56

Grr! to that nurse. I hope, but don't really expect, that she will learn from this encounter. I'm glad you were able to tell her some home truths, though you really should not have needed to. I hope you're having some nice soothing walks with lots of happy dogs, who no doubt will appreciate the extra lippy. 😍😍😍 xxxx

Blackbird8 profile image
Blackbird8 in reply to Alberta56

I'm hoping something went in to her head...No walks today Sadie was walked this morning with my hubby and I stay in bed on a Saturday morning and rest ... I will take Sadie out later for some training and a mooch around the pond ....

I'm waiting in for AO .COM to collect a fridge freezer that broke down a few weeks back sadly as it was a large one with plenty of room for the online shop and Sadies meat πŸ– πŸ˜…

Welshcatlady profile image
Welshcatlady

Wow! What a way to talk to a patient! I'm glad you told her how things are with you. And don't worry about venting on here, you needed to get it off your chest so to speak! Have a good weekend. x

Blackbird8 profile image
Blackbird8 in reply to Welshcatlady

It's not the normal for me to vent but needs must you enjoy your weekend also πŸ₯°

Nicholatracy profile image
Nicholatracy

it’s good to vent 🐞🐞

Blackbird8 profile image
Blackbird8 in reply to Nicholatracy

It is yes feels better 😌

Issy22 profile image
Issy22

Iam appalled by this nurse. Totally unprofessional to speak to a patient like that. I wouldn’t dare question somebody’s diagnosis from a doctor or judge someone how their disability affects them. Is she with you 24/7. She obviously has no compassion when seeing patients. Iam glad you stood up to her. Copd and other lung diseases, affect everybody differently, it’s not a one sock fits all scenario. You keep doing whatever makes you feel better blackbird 8 πŸ’œβ€οΈπŸ’œ

Blackbird8 profile image
Blackbird8 in reply to Issy22

That's the thing with COPD or lung conditions nobody's the same so totally agree with you ...I was quite taken aback by her but then after venting and thinking on it I guess she's just a bit young and nieve in herself she certainly will have some knocks on her journey if she is going to continue in that manner....but that's her life choice and today's educational ways I suppose...

Enjoy the weekend πŸ₯°

Issy22 profile image
Issy22 in reply to Blackbird8

Enjoy your weekend too πŸ’œ

rosco59 profile image
rosco59

You seem to have a very positive outlook on life with the beautiful photos you post from the lovely part of our country that you live in. I wonder if that’s what helps you look and feel so well. I know if I get bogged down too much with my health issues it just seems that I get worse, but if I can make myself get up and get on, it can improve my whole outlook on life and then that seems to have a better effect on my health. Of course this isn’t always true and there are many days when we simply can’t do anything except try to get through the day and hope things begin to improve again. I have learned to really enjoy the good spells of feeling well and try to accept the difficult days. Wishing you all many good days.

Blackbird8 profile image
Blackbird8 in reply to rosco59

I never have been one to stay too long in the doldrums of life ...It's possible living here has helped me immensely with the area I'm in ... I'm still blown away daily at things I see .

I hope the young lady has a rewarding career just as I did ... I still can never remember being rude to a patient in my 35 years and any of my students I had for teaching were taught first and foremost how to communicate and have manners ...

Thankyou so much for your kind comment 😊

Suzie42 profile image
Suzie42

Funny enough I've had similar the past. I have IPF but do not have the most common symptoms , coughing most of the day, andclub fingers. I rarely cough. A registrar told me once I just had asthma with a chest infection, he could hear crackles at base of lungs. I laughed at him and said, have you seen my ct scan showing IPF and crackles in lungs are the symptoms of IPF and not an infection, I do not need antibiotics. The next time I went to the hospital, I refused to see him and saw consultant who was confused by what the registrar said and apologised profusely to me. I need to start wearing makeup 🀣🀣

Blackbird8 profile image
Blackbird8 in reply to Suzie42

I have met and trained a few registrars that were very wet behind the ears lets say ... Full of cotton wool balls πŸ˜‚πŸ˜‚πŸ˜‚

Suzie42 profile image
Suzie42 in reply to Blackbird8

🀣🀣

B0xermad profile image
B0xermad

So true and very quick to judge some professionals, I have also been asked the same question although I have bronchiectasis in the mix .fools

Blackbird8 profile image
Blackbird8 in reply to B0xermad

It must be because we are so beautiful 😍

B0xermad profile image
B0xermad in reply to Blackbird8

😁😁😁😁😁

Bingofox007 profile image
Bingofox007

hope you feel better for getting it off yr chest. She’s a disgrace to yr gp practice and nursing profession. Hope you don’t have to encounter her again. She should have been full of praise for you for keeping so well and active with yr lung condition and praising the prescriber who has got yr medication and management just right with you. Take care 🦊x

Blackbird8 profile image
Blackbird8 in reply to Bingofox007

Thanks so much for your comment...She's young and nieve by the looks of things no excuse really hey ho 😍

Bingofox007 profile image
Bingofox007 in reply to Blackbird8

No excuse at all. No people skills. 🦊x

Tiggertheterrier profile image
Tiggertheterrier

I have a special 'look over the top of my specs' that I reserve for medics that haven't read my (admittedly pretty long & complicated) notes before I see them! It conveys the word "REALLY??!" without me saying it. I was brought up in a house where my Dad was a doc & my mum a nurse. I keep educated and do my research on my medical conditions. It is frustrating beyond human patience sometimes when you meet with medics who don't seem to have done their homework!

Blackbird8 profile image
Blackbird8 in reply to Tiggertheterrier

I have practiced that look many times over many years ....My mouth dosent open a lot these days ...but my face speaks volumes all by itself πŸ˜‚πŸ˜‚πŸ˜‚

Puzzled8 profile image
Puzzled8

Loved your post and can totally relate. Lost count of the number of times I’ve been told by drs/nurses β€œbut you look great”. Was seriously anaemic once, lost equivalent to 7 pints of blood. GP said last time she’d seen anyone like that, they were in hospital, β€œ but look at you, you look great !” Overheard nurse in A&E discussing me on phone to consultant re afib/tachycardia β€œ but she looks great β€œ. Like you, I tend to just keep going through everything, have a high pain threshold, never lose my appetite no matter what , so I suppose it’s a compliment really !

Blackbird8 profile image
Blackbird8 in reply to Puzzled8

I'm over it now I'm not often offended by anyone so have no idea why her words niggled at me ...I just think due to my past career I don't think I ever addressed a patient like that ...

Anyhow moved on and we both must be stunning 😍 πŸ˜‚

armstrong2 profile image
armstrong2

good on you ...get it off your chest girl ....hope you feel better now ..lol take care

Blackbird8 profile image
Blackbird8 in reply to armstrong2

I do feel better for it thankyou ☺️

kev60 profile image
kev60

hi, well done you loved the post, I am waiting for my COPD review. Last year it was a phone call lasting less than 10 minutes when I checked my records online I got a score of 6/40 , when I did my own test it was 18/40 and told them what I had done and they changed my records. Turned out she only asked a few questions and forgot to turn the page. But I remember when I was diagnosed in 2017 the oncologist told me I have 3-4 holes in the top of my lungs and it’s emphysema (COPD) , one year later gp told me I didn’t have COPD until I reminded him who diagnosed me. Have a good weekend. Kevin

Blackbird8 profile image
Blackbird8 in reply to kev60

Gosh thats a right muddle up by the sounds of it least you got sorted one way or another it worked out 😊

Tykelady profile image
Tykelady

I'm glad you mentioned how you feel on a bad day. It makes me realise that despite doing our best and being loaded with medication, in my case for heart failure as well as COPD, we cannot expect to feel in perfect health any more.

Blackbird8 profile image
Blackbird8 in reply to Tykelady

I couldn't help it had to say something at the time ...I never do my best with how I look maybe I should change that but I find my dogs I walk don't judge like humans do ...they love you no matter ...so in my wellies and shorts I stay with no lippy πŸ˜‚

Izb1 profile image
Izb1

Glad you felt the need to get it off your chest BB it was a good read and can relate to your reaction over what the nurse said. Some nurses just don't get it that you can look well but be unwell. I feel that we have become too americanised in the form filling business in all areas in the UK. We know our own bodies best . Good for you putting on a little tutty , it all helps to make us feel better x

Blackbird8 profile image
Blackbird8 in reply to Izb1

It's very American... I'm not judging tic boxes and go by questions answered...That's how it's done in most places now...

My day it was more patient less paperwork...

Today it's all paperwork less patient...

I'm just glad I retired when I did and the paperwork and a few other reasons made me walk through the doors and not look back ....

I was taught to use my eyes for overall observation...

I was taught to use communication and manners ...

Don't see through me... Just see me ...

was my old saying to my students to me that's how patients had to be treated ...

Happy days πŸ˜‚πŸ˜‚πŸ˜‚

Izb1 profile image
Izb1 in reply to Blackbird8

Much better days that's for sure. When I was young we had a family doctor that knew each and every one of us, maybe its my age but things seem to run better then. Even down to having a matron running the wards . Progress isnt always beneficial . Take care x

Blackbird8 profile image
Blackbird8 in reply to Izb1

Same as our family doctor knew everyone by name popped by a cup of tea when passing...The matrons were amazing people ruled the wards with iron rods and infection rates were very low as everything was so clean..

Patients were inspected before visiting times ... πŸ˜‚

Otto11 profile image
Otto11

Good for you. It’s good to have a rant now & then.

Blackbird8 profile image
Blackbird8 in reply to Otto11

It certainly is πŸ˜‚

Kristicats profile image
Kristicats

All this without a spirometry test! Unbelievable. As you well know nurses are not there to diagnose and that one could be dangerous to somebody just with her unprofessional, totally wrong comments?

Personally now I’m at a certain age I get really offended how some young people talk to me and certainly would not expect it from a nurse/ medic etc. I would certainly be mentioning that to my GP if just to save someone else relying on her information. Hope you are well. Christi

Blackbird8 profile image
Blackbird8 in reply to Kristicats

I'm very well according to my nurse πŸ˜‚... in saying that I'm absolutely fine... thankyou hope you are to 😍

JJ_7 profile image
JJ_7

Sorry to hear about your negative experience and the cursory assessment by the nurse. It is simply negligence. I fear that it is only going to get worse because of government policy to upgrade nurses to become pretend doctors . This group of "Noctors" will continue to erode NHS standards and is an attempt to provide cheaper services. I heard an interesting saying from a junior doctor. They are saying "CCT and flee". Meaning- Certificate of Completion of Training and flee to another country. I am disheartened but encouraged by the tenacity of doctors to provide a good service in the face of eroding standards. Keep well BB8 xxx

Blackbird8 profile image
Blackbird8 in reply to JJ_7

I would certainly consider emigrating to another role and country today if I was where I was 40 years ago ...I was going to Canada at one point but my children didn't want to move... so I stayed and made my career in the large teaching hospital in Hampshire...

Stay safe xxx

Wheezes profile image
Wheezes

I am sure writing your narrative and experience has helped towards putting your frustration to bed! Well done you!

Blackbird8 profile image
Blackbird8 in reply to Wheezes

Thanks and yes it has somewhat improved my mood 😍

Wheezes profile image
Wheezes in reply to Blackbird8

Excellent, do it more often! Constantly remind people around you that you are older and not old! X

Keep strong!

Karenanne61 profile image
Karenanne61

Grrrrr to that nurse! As if we don't know our own conditions and bodies! I have had doctors say to me that I don't match my numbers! In my head I just say it's "all smoke and mirrors, and lippy!"🀣

Blackbird8 profile image
Blackbird8 in reply to Karenanne61

Absolutely must be the lippy I never wear anything much else in my line of work ...I hope your well and beautiful just like me πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

Karenanne61 profile image
Karenanne61 in reply to Blackbird8

🀣 I'm well just pleasantly tired after a day walking the catwalk . . . Or, going to a fete in the beautiful grounds of a local manor. 🀣🍰

Horse sculptures in the beautiful grounds of a local manor house.
Blackbird8 profile image
Blackbird8 in reply to Karenanne61

They look interesting is it like a wicker or willow wood ....Beautiful handiwork of somone 😍

Wheezes profile image
Wheezes in reply to Karenanne61

Wonderful

Mooka profile image
Mooka

Wow she opened her mouth to the wrong person 🀣 We obviously don’t need medical school if we can just be judged on how well we look. Personally I see a lack of infections as an achievement. Great that you’ve not had any for a long time.

Blackbird8 profile image
Blackbird8 in reply to Mooka

Ohh I know as I was preaching at her my mouth was moving and my head was saying ....shut up ....Needless to say I didn't shut up .. I can't remember any infections for years ... I remember being unwell a few months back and I was rough πŸ˜”....but it wasn't an antibiotic or steroid combo needed.....

It's over for another year at least ...I hope your well and behaving ..πŸ₯°

Mooka profile image
Mooka in reply to Blackbird8

Sometimes it has to be said for your own sanity. I can remember snapping at a junior doctor who said something ridiculous when I was an impatient. I’m keeping well and trying not to behave. Pleased to hear you’re doing okay. Could do with some dryer weather β˜€οΈ not too hot though.

Blackbird8 profile image
Blackbird8 in reply to Mooka

The dry weather has arrived here not seen any rain for 2 weeks ish .. its not hot by any means but just nice not to walk through mud ....πŸ©·πŸ§‘πŸ’›

watergazer profile image
watergazer

Oh my bb! You need a rant after that. I find our nurse at our GP to be lacking in knowledge and good patient relationship

I’m sure your lifestyle is keeping you looking fit for someone at stage 4 COPD. However I’m sure the nurse shouldn’t be questioning whether you have it.

I was in a car shunt and acquired a bad back and after months of physio I remember the doctor who was assessing me saying I was putting it on as I could touch my toes. The fact l found it hard to lean back didn’t seem to matter. I still suffer with my back now many years later and I can still touch my toes ! Sending love and hugs πŸ€—πŸ€—πŸ€—πŸ€— and dream away about how good you look

Blackbird8 profile image
Blackbird8 in reply to watergazer

That's a horrible way to be treated by anyone ....You can touch your toes I'm impressed by that ....

It must be horrible to have back pain nothing worse 😫 I don't suffer with mine it's my left hip that squeals at me every now and again ..love and hugs to you πŸ€—

Caspiana profile image
Caspiana

Hi BB. This is awful . I do understand how you feel. I had a Rhuematologist question whether I actually have Rhuematoid arthritis. Yes, the Rhuematoid arthritis that gave me lung disease and lead up to me having a transplant, because I look so well and don't have significant joint pain. The irony is I was diagnosed at his hospital in the consultation room next door and the diagnosis confirmed by two other doctors. πŸ˜•It was awfully confusing and crushing to hear this from a professional. I felt like a fraud until I regained my composure. So I can well imagine your frustration and I can't blame you one bit! I don't know if this nurse knows you are a dog walker, you walk a lot and that definitely helps your lung function and overall health, although it cannot take away from the fact you have stage 4 COPD.

I am sorry this happened to you. And please do rant away. I always feel much better after writing things down.

Love,

Cas and Chom xx πŸ™‹πŸΆ

Blackbird8 profile image
Blackbird8 in reply to Caspiana

It's uncanny how many people in the medical profession look at us and see nothing ....You have been through so much and you're a trooper in my eyes I think your amazing ...

I told her what I did for a living and had done so for 10 years in all weathers ...

My rant is over and my equilibrium has returned to normal after a long walk with and training session with Sadie who is flowering into a beautiful and strong confident dog ...

Love to you and Chom both ❀️

Timberman profile image
Timberman

You are a strange one. You are rated you say a stage 4 COPD; as am I. I am 80. My last FEV1 test was 28 and after my last hospital visit they put me on end of life care. I ignored that you can guess!

Given how you appear to present I am not at all surprised that the nurse queried your diagnosis.

So no asthma. Good.

Sedentary stats 97 - extraordinary if stage 4 COPD. 88-92 is the accepted range. I am on 24x7 oxygen and can get to 95% if I really work at it and use at least 4 litres augmentation per minute! (I am prescribed at 2.5 with brief maximum 4 if needed)

I assume you do no have emphysema, although a full diagnosis is not possible without extensive pathology; I had a lung biopsy which confirmed it.

Ditto bronchiectasis which i was diagnosed with at the same time.

I have the same emergency pack as you do and end up using it twice a year at least; and this year involved two 999 visits to the A&E.

So while I do not wish you any ill at all I would urge you to get your clinicians to take a longer, harder look at your symptoms and go for a much more robust diagnosis.. You sound like you at a very early stage and should be treated as such.

I would urge that if this is so lots of exercise, a very good and well controlled diet; the right and not too much medication and a very regular check up by COPD experts and NOT just your GP.

I was identified 22 years ago, confirmed 16 and have been under attentive treatment since. I reckon I have a bit more left in me!

Blackbird8 profile image
Blackbird8 in reply to Timberman

I'm 68 and I work as a self employed dog walker... I walk 12 km daily ...I choose not to smoke on the day of my diagnosis with COPD stage 4 ... my lung function was 37 % ..

I have had all the tests all the bloods taken and since all the tests confirmed it .As a retired theatre nurse I knew I had it prior ...

I ignored I had it for some years so it's my doing for continuing to smoke until I decided enough was enough and went through the correct channels to get the treatment I needed ....

Having a career as a nurse in theatres gave me a jumping board to all the clinical staff I needed to see and still do to this day leading Respiratory Consultants surgeons anaesthetists so it's nothing to do with my GP although if I need a referral I do go via the surgery and inform them ...

I'm still very much in contact with consultants who I can call and ask to see them if I need to ...

I don't think I could have had a much more robust diagnosis...Do you ?

I'm fully aware of dietary requirements and have no need for advice on it thankyou ...

So the nurse as I explained was very young and lacking in manner and made the mistake of contradicting all of the above knowledge ....people in the medical profession should never assume anything ....as I said to her.. look at me ...not through me ....

Hope that helps you and you don't see me as strange now

Timberman profile image
Timberman in reply to Blackbird8

My use of strange rattled you - sorry. I meant only unusual, different. You see 47% FEV1 is not stage 4 COPD. And with all you know I am sure I need not tell you that. Have you any COPD expertise support? After all you are an expert in your field so seeking expertise ikn this field would seem to make sense.

I am assuming you have given up smoking. By the way I gave up smoking on Jul 23rd 1993 which is 31 years ago. Apparently I was ten years too late! But anyway there is a very strong genetic marker on my mother's side and my entire family were nicotine addicts!

Blackbird8 profile image
Blackbird8 in reply to Timberman

Me rattled ...not at all Your assuming I gave up smoking never assume makes an ass out of u and me ....

Just like the practice nurse assuming No need to reply again enjoy your evening

SuziElley profile image
SuziElley

Don’t get me started on them not reading the notes……I went for a spirometry test. She asked me why I was there, I told her I was there for the spirometry test. Oh, she didn’t know that, didn’t know where the spirometer was, eventually found it then told me she didn’t know how to work it. I’m another ex nurse but was NOT going to show her how. She then asked again why I was there. I asked if she’d read my notes, no she didn’t have time to do that. I asked what time she started on duty and asked what time she actually got in. Half an hour before her stint began. I queried why she didn’t look at her patients’ notes for the day. Oh, she doesn’t have time to do that, by the time she’s got a coffe and had a chat with all the other staff…… I wasn’t impressed. I to,d her I volunteer as a complementary therapist in our local hospice and make sure I’ve read through all the notes for my patients for my day, a full day I might add…. I did actually lodge a complaint but it didn’t go anywhere 😑

Blackbird8 profile image
Blackbird8 in reply to SuziElley

I hear you and feel your pain ...I won't lodge a complaint she will make her own mistakes in life ..

I'm over it now and don't normally say a lot I'm quite insular as a person...

I move and work in a little bubble but sometimes it's pops just like yesterday πŸ˜‚

dunnellon profile image
dunnellon

What an unprofessional thing to say to you about 'I'm the nurse' ! If she really wanted to question your diagnosis, she should have reviewed your notes ahead of time and prepared some pertinent questions, not gone on how you look. That's like telling someone with depression that you saw them smile yesterday! What a goober!

Blackbird8 profile image
Blackbird8 in reply to dunnellon

Love that word Goober ....Will use that as in my vocabulary sometimes .... its made me chuckle πŸ˜ƒ

Topgunele profile image
Topgunele

hey, hope you are doing well. Can’t believe the attitude of the nurse and sorry to hear you were treated so insensitively…..but I can’t help but think there’s something going on with respiratory consultations at the moment. I was diagnosed with Asthma COPD overlap last year, there is a strong history of COPD in my family and unfortunately I smoked for 17 years of my life. I was diagnosed via spirometry and was hospitalised for a short time 2 months ago with respiratory illness……while in hospital I was asked by a nurse what made me think I had ACOS…I said because that’s what I was diagnosed as my Asthma nurse. She then replied well I think you have just asthma…..no tests were carried out while I was in hospital ….very strange. I am being referred for further tests but I find it strange that it was just assumed that I have only asthma without having tests. They did discover inflammation and scarring on my lung on CT scan so I’ll be having a follow up scan in few months….but it’s all been very confusing. I’m glad you’ve written this post, it’s great. And very helpful Hope you’re doing ok

Blackbird8 profile image
Blackbird8 in reply to Topgunele

I'm doing great thanks so much for asking ...Sounds like your having a time of it at the moment hoping you get all the medical information you need and get confirmation of what condition you have ...

I think as young as my practice nurse was she will learn through time and education to learn about people and not just patients ...

You take care and fingers crossed you get sorted this is a great site for us all πŸ₯°

ilos profile image
ilos

Someone that I hadn't seen for a couple of years came up to me today and told me how well I looked. My oxygen saturation this morning was down to 75%. I had an exacerbation last week and nearly died. My spirometry test 2 weeks ago said my lung function is 35% of that expected of a 74 year old. I feel rubbish but she insisted that she was pleased to see me looking so well!

Blackbird8 profile image
Blackbird8 in reply to ilos

Isn't it strange how friends perceive us ... I'm sorry you feel rubbish 🩷

djbctla profile image
djbctla

You know your own body Blackbird. It reminds me of the baby books, babies should sleep in between feeds, ha ha.

I think your nurse has read the lung function book, but has not realised it’s only a guideline, not set in stone, as each person is different, with different symptom's/levels of the same disease. Perhaps in hind sight she learned something herself.

Good women yourself for getting it off your chest. Take care.

BERNARDINE 🌹🌹

Blackbird8 profile image
Blackbird8 in reply to djbctla

Babies feeds sleep repeat ... I don't who wrote that book πŸ˜‚ ....I'm absolutely fine now ... not often I get fired up these days but it was worth the rant... take care 🧑

syntax profile image
syntax

And I just have to say that if you still walk your dogs,then, your COPD cannot be as bad as you think ! I would give anything to be able to do that with ours. I do not have exacerbations either so medication becomes out of date same as your's,this I put down to the Amoxicillin I take twice a day and have done for at least 10 yrs if not more..But walking restricted to either up or down stairs,out to the car or from car to bar !! πŸ€£πŸ˜‚πŸ˜‚πŸ€£πŸ˜˜πŸ˜˜πŸ˜„

Blackbird8 profile image
Blackbird8 in reply to syntax

My COPD isn't as bad as I think ?? I'm a self employed dog walker it's my work ...its how I support myself ...

They are not all my dogs lots of people walk their dogs with lung conditions and other disabilities...

I'm sorry you don't have that opportunity ...🧑

Badbessie profile image
Badbessie

To be honest after my last spell in hospital both doctors and nurses should read patients notes before seeing them. I found it very tiring having to explain all my conditions, who diagnosed me, why I am on this medication etc etc etc.

Badbessie profile image
Badbessie

To be honest after my last spell in hospital both doctors and nurses should read patients notes before seeing them. I found it very tiring having to explain all my conditions, who diagnosed me, why I am on this medication etc etc etc.

Blackbird8 profile image
Blackbird8 in reply to Badbessie

Completely agree with you πŸ’―

strongmouse profile image
strongmouse

Yes, you make an effort to get to an appointment, and give yourself enough time to not be out of breath or tired and yes, sometimes, all the staff see is someone who is externally, at that moment in time, looking well.

Had the same experience recently at the hospital. The doctor noted how fit I seemed as I didn't need any help getting onto the couch (which was much lower than the one at my GP's surgery) and had made an effort not to tire myself out and had taken the necessary medication before going out! (On PIP, have a blue badge etc.) Wow who knew? 🀣🀣

ps the doctor did say he didn't have my notes as the notes are all archived elsewhere not on site, and the computer only recorded events from 2019. I'd taken a cancellation appointment and had only taken a copy of my last two operations not whole medical history. He didn't know I'd had major surgery (abdominal) nor any of the other health issues.

Blackbird8 profile image
Blackbird8 in reply to strongmouse

That's so bad ... it seems to be the normal thing now not to look at patients notes and their medical history is so important...When I worked for the NHS all staff were very stringent on finding medical history of all patients...

The pressure of paperwork now would take the absolute joy of the job away for me ...

I hope you wear lippy πŸ˜‚πŸ˜‚πŸ˜‚

pepparuby1 profile image
pepparuby1

lots of replies here - certainly triggered us all! My Gp nurse thing couldn’t help me and I said considering I’ve had this 15 years surely I should be seeing someone who can help! Waited five months to get to see the respiratory team. They’re now arranging scans ( in their time) bloods tomorrow and spirometer when they can get one! Shocking but I wonder

Blackbird8 profile image
Blackbird8 in reply to pepparuby1

Ahh lovley I hope you get sorted in the mayhem of the medical madness...It's definitely lacking something and the replies are amazing to be honest I think we all have a tale to tell sadly....

Good luck with your blood tests tomorrow and the spirometer test πŸ’›

pepparuby1 profile image
pepparuby1 in reply to Blackbird8

I don’t think the spirometer test will be anytime soon but at least they’ve arranged bloods tomorrow- I’ve just gone under the radar for years and because I did clinical trials I got a lot of help with meds etc

Turnipgirl profile image
Turnipgirl in reply to pepparuby1

Back in 2018 I had a spirometry test at outpatients as part of a check up after I had blood clots in the lungs and they make you blow into a machine!

How are the kitties getting on and is Hector still Hectoring and being bossy?

Baby is well even at 20 years old due to getting spoilt!

It's so frustrating isn't it when you don't feel well and have to wait an age to be seen!

pepparuby1 profile image
pepparuby1 in reply to Turnipgirl

Yes I’ve had plenty of spirometer tests through clinical trials but to get one on nhs is like winning the lottery.

Hector has good days where he’s in charge and days where he sleeps most of the day he’s 17 next month

Baby what a great age

syntax profile image
syntax

It is not lacking anything it just has too many people who have not paid into it abusing it. !!!!!😠😠😠😠

Blackbird8 profile image
Blackbird8 in reply to syntax

I'm not sure I understand why the angry faces πŸ€”

Turnipgirl profile image
Turnipgirl in reply to syntax

It's frustrating isn't it when that happens!

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