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Cracked tongue.
Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?
Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?
Merryfield
in
PMRGCAuk
1 year ago
Biopsy results
As I suspected given the delay the biopsy results came back negative. Most recent blood tests now show ESR and CRP completely normal, having been very raised at initial presentation three weeks ago , and the initial ultrasound showed no signs. So was it /is it GCA or not? Who knows.? Some initial symptoms
As I suspected given the delay the biopsy results came back negative. Most recent blood tests now show ESR and CRP completely normal, having been very raised at initial presentation three weeks ago , and the initial ultrasound showed no signs. So was it /is it GCA or not? Who knows.? Some initial symptoms
Menno1525
in
PMRGCAuk
1 year ago
Is there always a rash with vasculitis?
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Muddywater100
in
Vasculitis UK
1 year ago
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Lupkynis approved in Switzerland to treat adults with lupus nephritis
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Advice and have you felt like this reducing pred ?
Hello folksLooking for some advicePlease have been trying to reduce my pred My doctor asked me to in order to get a rheumatologist appointment for them to see me. I have to reduce on my steroids doctor 1st asked me to drop from seven. 5 to 5 felt unwell doing this asked for advice here I have been Reducing
Hello folksLooking for some advicePlease have been trying to reduce my pred My doctor asked me to in order to get a rheumatologist appointment for them to see me. I have to reduce on my steroids doctor 1st asked me to drop from seven. 5 to 5 felt unwell doing this asked for advice here I have been Reducing
Staffieblue
in
PMRGCAuk
1 year ago
Rheumatoid Meningitis
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
FieryBones - RA Community
1 year ago
Steroids
Hi guys, are there any of you out there on only 5mg Pred., and feeling O.K. Thank you.
Hi guys, are there any of you out there on only 5mg Pred., and feeling O.K. Thank you.
tyncwmmarchhywel
in
NRAS
1 year ago
Prednisone and blurry vision
I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs in April labs were higher than at the start , but no increased pain etc. ( ESR 44 , CRP 19.7 . Rheumatologist said to stay on 15 until I see
I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs in April labs were higher than at the start , but no increased pain etc. ( ESR 44 , CRP 19.7 . Rheumatologist said to stay on 15 until I see
GMA74
in
PMRGCAuk
1 year ago
Newbie
Hi I’ve been checking this site out for awhile. I am currently 200 lbs. I started at 232. I have been up and down with my weight all my life. I never was too heavy until I started battling depression. My weight got worse when I had multiple health issues and had to go on oxygen and steroids. My health
Hi I’ve been checking this site out for awhile. I am currently 200 lbs. I started at 232. I have been up and down with my weight all my life. I never was too heavy until I started battling depression. My weight got worse when I had multiple health issues and had to go on oxygen and steroids. My health
Bobbi6
in
Weight Loss Support
1 year ago
Antihistamines
Hi all again thanks to everyone who replied to my recent post about steroids. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ? He says no but I don't like
Hi all again thanks to everyone who replied to my recent post about steroids. Now my question is about the use of antihistamines,at present my dermatologist has said take two 180 mg fexofenadine a day which I have been when flares appear . Again is the a danger of overuse ? He says no but I don't like
cartwheels
in
Vasculitis UK
1 year ago
Two Questions
My sister and I, both in our '80's, take Omeprazole. She takes it because she has digestive problems. She says I should take it ate least half an hour before breakfast. Is she right? It says nothing on the information leaflet and my GP never told me that either. Question no. 2 is about sugar.
My sister and I, both in our '80's, take Omeprazole. She takes it because she has digestive problems. She says I should take it ate least half an hour before breakfast. Is she right? It says nothing on the information leaflet and my GP never told me that either. Question no. 2 is about sugar.
caftan
in
PMRGCAuk
1 year ago
Donor eggs/embryos and reproductive immunology did you need/do both for success?
Those of you who finally had success with donor eggs or embryos did you also need a reproductive immunology protocol (eg did you have steroids , hydroxychloroquine, intralipids neupogen, lit treatment anything like that) or did donor option work all by itself???I have had many failed rounds including
Those of you who finally had success with donor eggs or embryos did you also need a reproductive immunology protocol (eg did you have steroids , hydroxychloroquine, intralipids neupogen, lit treatment anything like that) or did donor option work all by itself???I have had many failed rounds including
Flora14
in
Fertility Network UK
1 year ago
Night sweats after steroid injection?
Hi I eventually got steroid injections in my knees and fluid drained off on Thursday. Even after starting Hyrimoz my CRP had gone from 41 in May to 78 a week ago. Since the injection, I’ve woken up soaked in sweat around my shoulders, neck and back of my head, when I lookin the mirror my cheeks are
Hi I eventually got steroid injections in my knees and fluid drained off on Thursday. Even after starting Hyrimoz my CRP had gone from 41 in May to 78 a week ago. Since the injection, I’ve woken up soaked in sweat around my shoulders, neck and back of my head, when I lookin the mirror my cheeks are
Akaka
in
NRAS
1 year ago
facial hair
Hi Any one have any tips on unwanted facial hair due to steroids
Hi Any one have any tips on unwanted facial hair due to steroids
Harry8388
in
Weight Loss Support
1 year ago
Bursitis and Tendonitis in hips, knees, shoulders and ankles
I saw a Rhumetologist yesterday for ongoing pains which got worse when I was diagnosed with Hypothyroidism 10 months ago. He is referring me for an ultrasound to check it's bursitis/ tendonitis and they will inject steroids into it (shoulders first) if it is. Has anyone else had this combination of
I saw a Rhumetologist yesterday for ongoing pains which got worse when I was diagnosed with Hypothyroidism 10 months ago. He is referring me for an ultrasound to check it's bursitis/ tendonitis and they will inject steroids into it (shoulders first) if it is. Has anyone else had this combination of
Noona123
in
PMRGCAuk
1 year ago
Oral steroids
Hi I'm still new to vasculitis DX 3 months ago at dermatology NHS after persistent skin rash mainly upper body,scalp,face groin area. Original I was started on Doxycycline ànd steroid ointment which worked but kept coming back . Then 10 course of oral steroids and antihistamines which again worked but
Hi I'm still new to vasculitis DX 3 months ago at dermatology NHS after persistent skin rash mainly upper body,scalp,face groin area. Original I was started on Doxycycline ànd steroid ointment which worked but kept coming back . Then 10 course of oral steroids and antihistamines which again worked but
cartwheels
in
Vasculitis UK
1 year ago
Anxiety hurting relationship
I’ve been suffering from anxiety and depression for the last 4 or 5 years. It started with work pressure and my late mothers dementia, but it got 1000 times worse with Covid to the point I took early retirement. I tried CBT and counselling but neither really helped. It’s now affecting my relationship
I’ve been suffering from anxiety and depression for the last 4 or 5 years. It started with work pressure and my late mothers dementia, but it got 1000 times worse with Covid to the point I took early retirement. I tried CBT and counselling but neither really helped. It’s now affecting my relationship
Alan7690
in
Anxiety Support
1 year ago
Bronchocentric Glanulomatosis?
We have literally had to fight to get a diagnosis of bronchocentric glanulomatosis for my Mum, after 5 weeks of steroids and her literally being reduced to a shell of a woman. She is currently battling with the terrible side effects of extreme depression, anxiety, insomnia and paranoia. I have been
We have literally had to fight to get a diagnosis of bronchocentric glanulomatosis for my Mum, after 5 weeks of steroids and her literally being reduced to a shell of a woman. She is currently battling with the terrible side effects of extreme depression, anxiety, insomnia and paranoia. I have been
Muddywater100
in
Vasculitis UK
1 year ago
Inhaler allergies
Hello, I have had asthma for many years, only recently I have found a few things out. I have been using clenil modulite inhaler, but I have periods of being well and periods of feeling ill and have skin issues at same time when unwell. My asthma has now got out of control with many exacerbations,
Hello, I have had asthma for many years, only recently I have found a few things out. I have been using clenil modulite inhaler, but I have periods of being well and periods of feeling ill and have skin issues at same time when unwell. My asthma has now got out of control with many exacerbations,
Vitali-ep
in
Asthma Community Forum
1 year ago
Red marks on face
Does anyone use Elocon steroid cream, I used it on my red lupus marks a few years ago and they cleared up. I now have a couple of red marks on face, quite small, and have started using Elocon on them as they just won’t disappear. Some days they look really faded and other days look red again. I’m going
Does anyone use Elocon steroid cream, I used it on my red lupus marks a few years ago and they cleared up. I now have a couple of red marks on face, quite small, and have started using Elocon on them as they just won’t disappear. Some days they look really faded and other days look red again. I’m going
0105luppyabby
in
LUPUS UK
2 years ago
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