Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general.
I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
My symptoms started as episodes of left-side numbness or what a neurologist referred to as Jacksonian March seizures. They first suspected TIAs, then epilepsy. Finally, with a contrast MRI showing meningitis, I got two lumbar punctures to start ruling out all potential viral, bacterial and fungal causes. They ended up assuming the cause was autoimmune and did 5 days of high dose steroids.
I have been instructed to get a follow up MRI in 6 weeks HOWEVER, I am still experiencing persistent numbness in my left face and arm, as well as several other visual/brain symptoms that seem to increase when I'm tired. I finished my taper dose of prednisone and am still on Keppra to prevent seizures.
I would love to hear your experiences, especially if anyone has had rheumatoid meningitis. How long was the recovery? Did you ever relapse?
If you want to learn more, I found this case study useful ncbi.nlm.nih.gov/pmc/articl...
Thank you for welcoming me to your support group. 💗
