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Going downhill or is it winter?
PMR diagnosed Nov. 2014. Initial dose 15mg moved to 30mg before feeling O.K. 18 months later I was down to 9mg, PMR flared, back up to 19mg. Started DSNS at 17mg at 26 months down to 8mg. Thinking of moving to 7mg. Then it started to go wrong again. Left shoulder continues to hurt upper arm, been like
PMR diagnosed Nov. 2014. Initial dose 15mg moved to 30mg before feeling O.K. 18 months later I was down to 9mg, PMR flared, back up to 19mg. Started DSNS at 17mg at 26 months down to 8mg. Thinking of moving to 7mg. Then it started to go wrong again. Left shoulder continues to hurt upper arm, been like
DavidMF
in
PMRGCAuk
7 years ago
Side effects of oral steroids and lefludomide
So called my hospital this morning. They want to see me tomorrow as an urgent case. I have not been able to tolerate, methotrexate, sulfasalazine or hydroxycholquinine. I have had two steroid injections but with no effect. They are now saying they think I need oral steroids and also to try lefludomide
So called my hospital this morning. They want to see me tomorrow as an urgent case. I have not been able to tolerate, methotrexate, sulfasalazine or hydroxycholquinine. I have had two steroid injections but with no effect. They are now saying they think I need oral steroids and also to try lefludomide
Frankiefarr
in
NRAS
8 years ago
Hello, I'm new to posting.
I have been reading posts on here for a few months but it is the first time I have posted. I am 62 years old , a retired teacher. I was diagnosed with PMR in May 2016. I had been feeling very stiff in my neck and shoulders for a few weeks but put it down to a long haul flight back from Oz. I then had
I have been reading posts on here for a few months but it is the first time I have posted. I am 62 years old , a retired teacher. I was diagnosed with PMR in May 2016. I had been feeling very stiff in my neck and shoulders for a few weeks but put it down to a long haul flight back from Oz. I then had
York54
in
PMRGCAuk
8 years ago
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Pip assessment
Hello all yesterday I had my PIP assessment can anyone tell me if it is refused do they give the reasons why I am a bit worried because two weeks ago I had a steroid injection although I am still in pain it took the edge off and the swelling down and I am concerned the assessor took this into account
Hello all yesterday I had my PIP assessment can anyone tell me if it is refused do they give the reasons why I am a bit worried because two weeks ago I had a steroid injection although I am still in pain it took the edge off and the swelling down and I am concerned the assessor took this into account
Lomo1964
in
NRAS
8 years ago
Hip pain
I have had hip pain for over 3 years but it has suddenly become worse. I find getting up from a chair or sitting with my feet up, also getting out of bed are just so painful. I had a biopsy done of my hip two years ago but it only showed inflammation and although the hip is worn away there seems nothing
I have had hip pain for over 3 years but it has suddenly become worse. I find getting up from a chair or sitting with my feet up, also getting out of bed are just so painful. I had a biopsy done of my hip two years ago but it only showed inflammation and although the hip is worn away there seems nothing
Bailybiscuit
in
NRAS
8 years ago
pain pain go away and dont come back another day ......
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
WAGS56
in
Pain Concern
8 years ago
Dont forget your meds ..
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
WAGS56
in
Anxiety Support
8 years ago
Shoulder issues and PMR
I have been struggling away with shoulder issues for a couple of months now and find it is really getting me down. After my initial pmr diagnosis back in April I reduced too quickly and suffered the inevitable flare. Back to 17mg in Septemebr and on the gradual reduction now. All pretty good until severe
I have been struggling away with shoulder issues for a couple of months now and find it is really getting me down. After my initial pmr diagnosis back in April I reduced too quickly and suffered the inevitable flare. Back to 17mg in Septemebr and on the gradual reduction now. All pretty good until severe
Lochy
in
PMRGCAuk
8 years ago
Sulfasalasine
Hi all. As you probably remember, i was diagnosed with ra in august, and started 500 mg sulfasalasine daily, increasing by 500 mg daily each week to maximum of 4x500mg tablets daily in september. I was also prescribed a steroid injection and, as that gave no relief a 3 week course of prednisone tablets
Hi all. As you probably remember, i was diagnosed with ra in august, and started 500 mg sulfasalasine daily, increasing by 500 mg daily each week to maximum of 4x500mg tablets daily in september. I was also prescribed a steroid injection and, as that gave no relief a 3 week course of prednisone tablets
PennyW1
in
NRAS
8 years ago
Oral pred & steroid injection in joint
I had an injection of steroids in my left TMJ joint this past friday to help manage arthritis pain. I am still on a high dose of oral prednisone also. I know the injection is supposed to stay in the joint, but i wondering if it has gotten into my system adding to the overall dose. I am having some worrisome
I had an injection of steroids in my left TMJ joint this past friday to help manage arthritis pain. I am still on a high dose of oral prednisone also. I know the injection is supposed to stay in the joint, but i wondering if it has gotten into my system adding to the overall dose. I am having some worrisome
missmylefteye
in
PMRGCAuk
8 years ago
Frozen shoulder
Hi im Diane, im 38. Im diabetic and for the last 3 years ive had chronic pain in my shoulders. It started as a calcified tendon in my left shoulder. It was so painful and affected my sleep, my day to day life etc. I was given steroid injections which helped initially followed by physio but this did
Hi im Diane, im 38. Im diabetic and for the last 3 years ive had chronic pain in my shoulders. It started as a calcified tendon in my left shoulder. It was so painful and affected my sleep, my day to day life etc. I was given steroid injections which helped initially followed by physio but this did
Otter100
in
Pain Concern
8 years ago
Steroid injection
Hello. I have had a steroid injection today in my bottom. Does anyone know how long it takes to help with pain? X
Hello. I have had a steroid injection today in my bottom. Does anyone know how long it takes to help with pain? X
Lomo1964
in
NRAS
8 years ago
Back to methotrexate...which I'm allergic to?!?!
So since my hospital admission in July I've been off all ra drugs, I can tell you it's not been easy. After all the issues with my lungs and how every drug has given me the worst of its side effects I really believed in myself that I would go into my future without anymore ra drugs, that I would just
So since my hospital admission in July I've been off all ra drugs, I can tell you it's not been easy. After all the issues with my lungs and how every drug has given me the worst of its side effects I really believed in myself that I would go into my future without anymore ra drugs, that I would just
orchidcass77
in
NRAS
8 years ago
Physio for knee pain. How quick will it improve the pain?
Hi. Sorry for the long post. I injured my knee nearly 5 months ago. After many visits to the doctor and walk in centre, have been given various pain killers and a steroid injection. I was finally referred to hospital by a doctor who examined me and said he was 100% sure that there was some loose cartilage
Hi. Sorry for the long post. I injured my knee nearly 5 months ago. After many visits to the doctor and walk in centre, have been given various pain killers and a steroid injection. I was finally referred to hospital by a doctor who examined me and said he was 100% sure that there was some loose cartilage
Penguin184
in
Pain Concern
8 years ago
Hair - A bit shallow, I know. What can I do?
I'm having problems with my hair. I lost a very large patch last year, and although it is growing back quickly, it is growing back almost jet black. I am losing other patched of hair, but much less severely. It's going in my hairline at the front and has thinned significantly at the back. I usually
I'm having problems with my hair. I lost a very large patch last year, and although it is growing back quickly, it is growing back almost jet black. I am losing other patched of hair, but much less severely. It's going in my hairline at the front and has thinned significantly at the back. I usually
dotty2203
in
LUPUS UK
8 years ago
Feeling poorly can you help
Hi, question has RD anything to do with allergies? Symptoms : sneezing coughing wheezing & iching History : 5 years ago I was (bar a serious accident) very healthy. Then all sorts of weird things started happening, to cut a long story short I have RD OA Inflammatory A & palindromic rheumatism. My body
Hi, question has RD anything to do with allergies? Symptoms : sneezing coughing wheezing & iching History : 5 years ago I was (bar a serious accident) very healthy. Then all sorts of weird things started happening, to cut a long story short I have RD OA Inflammatory A & palindromic rheumatism. My body
Caza
in
NRAS
8 years ago
Steroid injections-information needed!
Hello, I have been suffering with awful pain in my shoulder so much that all I can do is cry. My doctor has told me that he's going to try a steroid injection into my joint. I have never had one before so am very anxious. Does it hurt? How long until it takes affect? If it doesn't work how long after
Hello, I have been suffering with awful pain in my shoulder so much that all I can do is cry. My doctor has told me that he's going to try a steroid injection into my joint. I have never had one before so am very anxious. Does it hurt? How long until it takes affect? If it doesn't work how long after
Hidden
in
NRAS
8 years ago
Sinus infections?!?!?
Was wondering if anyone else has Teri le sinus infections. I have about 4 per year. They used to come on slowly and I could get treatment with time but the las couple I've just woken up and BOOM!!! I was in the car for about an hour yesterday with sun blaring on me also had to get steroid injections
Was wondering if anyone else has Teri le sinus infections. I have about 4 per year. They used to come on slowly and I could get treatment with time but the las couple I've just woken up and BOOM!!! I was in the car for about an hour yesterday with sun blaring on me also had to get steroid injections
Loopydroopy
in
LUPUS UK
8 years ago
fibro related post.
I met my doctor today and he said all my symtoms are fibro related and I told him I was against steroid pills and he agreed that I did not need steroids. I have had elbow steroid injections that helped for a while but it didn't last long.
I met my doctor today and he said all my symtoms are fibro related and I told him I was against steroid pills and he agreed that I did not need steroids. I have had elbow steroid injections that helped for a while but it didn't last long.
Linzyandsamsmom46
in
Fibromyalgia Action UK
8 years ago
B12 deficient but could I have underactive thyroid too?
Last March I went to the GP with muscle pain in hands, neck and back. Initially told I had sciatica. Took the naproxen but still didn't improve. Returned to GP who did a blood test and my B12 returned at 87, which is very low. I had been having symptoms of B12 deficiency such as fatigue, brain fog etc
Last March I went to the GP with muscle pain in hands, neck and back. Initially told I had sciatica. Took the naproxen but still didn't improve. Returned to GP who did a blood test and my B12 returned at 87, which is very low. I had been having symptoms of B12 deficiency such as fatigue, brain fog etc
Paffette71
in
Thyroid UK
8 years ago
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