Sinus infections?!?!?: Was wondering if anyone else... - LUPUS UK

LUPUS UK

32,249 members28,608 posts

Sinus infections?!?!?

Loopydroopy profile image
5 Replies

Was wondering if anyone else has Teri le sinus infections. I have about 4 per year. They used to come on slowly and I could get treatment with time but the las couple I've just woken up and BOOM!!! I was in the car for about an hour yesterday with sun blaring on me also had to get steroid injections in both knees yesterday as to permit me to walk an bend. Just would like some input for you guys you all are so knowledgeable. I'm very new to this. Thanks in advance.

Written by
Loopydroopy profile image
Loopydroopy
To view profiles and participate in discussions please or .
Read more about...
5 Replies
weathervane profile image
weathervane

Hi there, i have the same problem, the only advice i have is saline nasal spray at least twice a day and when it is bad steam yourself 3-4 times a day. Its horrible as you feel miserable ☹️

EOLHPC profile image
EOLHPC

Yes, I agree with weathervane...chronic sinusitis has been my lot all my life...it's always there, and flares worse given the least excuse...it's miserable

Years ago ENT told me to use Neilmed sinus rinses. The extra strong yellow spray cans are especially good...also the neilmed sinus rinse bottles (I get this from Amazon)

Immunology has been investigating me for 2 years. This year the chief consultant decided I have been living with persistent"pockets of chronic bacteria driven sepsis" (specifically of the sinus, urinary tract & stomach...and probably elsewhere in my bod). The underlying cause seems to be my early onset lymphopenia & hypogammaglobulinaemia G, A & M. So the chief put me on daily antibiotics indefinitely...even though nasal swab & MSU sample lab tests indicated no infections (just goes to prove lab results aren't always the whole story 😉)....well, now we're all DELIGHTED cause my sinusitis symptoms immediately damped down...after many years of daily am & pm Neilmed treatments, I hardly use Neilmed products even once a week! And I'm doing fine after nearly 1 year on daily antibiotics

So, who knows...maybe you'd do well to discuss a trial of long course of high dose antibiotics with your medics?

Wishing you success with this

🍀🍀🍀🍀 coco

LucyK5821 profile image
LucyK5821

Yes! I have been having over a year and a half of non stop sinusitis. ENT wanted me to get surgery to clear out all the inflammation but I refused. This is only one of the areas of my body where I have inflammation.

What keeps me clear is beconase nasal spray morning and night and a Claritin everyday. When things start to get bad, saline nasal rinse every morning. Good luck!!

Loopydroopy profile image
Loopydroopy

Thanks guys for the support and info!!

Not what you're looking for?

You may also like...

Infections

Hi im just interested to hear how other peoples GP's deal with Infections. I have recently had two...
LULU85 profile image

Sinus inflammation

A sinus ct scan showed sinus inflammation which reached very close to my optic nerve causing a scar...
Tulipano profile image

Sinus and cough

Morning everyone, I was diagnosed with Sjogrens about 4 months ago and started taking Pilocarpine...
Mctd profile image

Constant sinus infections and loose toenails

Does anyone with connective tissue disease and lupus have constant sinus infections,iv had 4 ops to...
Jeffscott69 profile image

Managing infections, antibiotics and immune suppressants

Hello again, I am new to lupus (currently on 20mg prednisilone and 400mg hydroxy), so I hope...
whisperit profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.