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Shingles
My partner has been diagnosed with shingles today. Is there any risk to myself , I have lupus Hughes and raynauds. I had a steroid injection 3 weeks ago and I have had chicken pox as a child
My partner has been diagnosed with shingles today. Is there any risk to myself , I have lupus Hughes and raynauds. I had a steroid injection 3 weeks ago and I have had chicken pox as a child
clova
in
LUPUS UK
7 years ago
Methotrexate and painkillers
So my regular methotrexate query for those with more experience - I'm struggling a bit this evening with really painful tendons/joints especially in my hips and elbows. It's that really annoying pain where no matter what you do you just can't get comfortable and my shoulders are quite sharp pain. I don't
So my regular methotrexate query for those with more experience - I'm struggling a bit this evening with really painful tendons/joints especially in my hips and elbows. It's that really annoying pain where no matter what you do you just can't get comfortable and my shoulders are quite sharp pain. I don't
Mifford
in
LUPUS UK
7 years ago
Casey09
Hi I've had bac probs for almost 7yrs ,I've had al the treatment s ,4 steroid injections ,physio ,I'm on pregablin an morphine ,my pains are realy bad my joints are sore ,keep goin bac to my GP an no help at all ,I'm at my wit's end ,bein referred bac to pain clinic ,they won't do anything ,
Hi I've had bac probs for almost 7yrs ,I've had al the treatment s ,4 steroid injections ,physio ,I'm on pregablin an morphine ,my pains are realy bad my joints are sore ,keep goin bac to my GP an no help at all ,I'm at my wit's end ,bein referred bac to pain clinic ,they won't do anything ,
Casey09_
in
Pain Concern
7 years ago
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SPINE PROCEDURE
I went to see my spine specialist on Tuesday and he has offered to do steroid injections in my spine. This will be the 4th procedure on my spine. I have had vertbroplasty, lazor to my nerves and steroids injections to the bottom of my spine. I would prefer this to the lazor of the nerves as I will only
I went to see my spine specialist on Tuesday and he has offered to do steroid injections in my spine. This will be the 4th procedure on my spine. I have had vertbroplasty, lazor to my nerves and steroids injections to the bottom of my spine. I would prefer this to the lazor of the nerves as I will only
Jan101
in
Fibromyalgia Action UK
7 years ago
Anyone else get weakness/heaviness in legs and arms when flaring???
The main characteristic of my major flares seems to be weakness and heaviness of my limbs, to the point that all my movements and walking pace slow down to the speed of a 90 year old (I'm 35). It's an effort to stay standing up or walk further than my kitchen. Does anyone else get this? I have UCTD
The main characteristic of my major flares seems to be weakness and heaviness of my limbs, to the point that all my movements and walking pace slow down to the speed of a 90 year old (I'm 35). It's an effort to stay standing up or walk further than my kitchen. Does anyone else get this? I have UCTD
LuckyJC
in
LUPUS UK
7 years ago
Rheumy keeps saying everything is due to fibromyligia not my RA & I don't think I even have fibromyligia
Been diagnosed with RA just over a year but I had symptoms for at least 2 years previously. 4 years ago had diagnosis of underactive thyroid and docs made me believe all symptoms were due to that. The RA is everywhere, no joint has been missed!!! I'm on leflunomide (off MTX as awful side effects). My
Been diagnosed with RA just over a year but I had symptoms for at least 2 years previously. 4 years ago had diagnosis of underactive thyroid and docs made me believe all symptoms were due to that. The RA is everywhere, no joint has been missed!!! I'm on leflunomide (off MTX as awful side effects). My
RAgemz81
in
NRAS
7 years ago
Whether or not I should take MXT today
I have a head cold for the last 3 days which always lead to a chesty cough that I now have. Last time I had similar problem in October I continued to take MXT but cough lasted 8 weeks. I saw GP after 3 weeks who said there was a virus about that's lingering and my cough lasted 8 weeks. I recently
I have a head cold for the last 3 days which always lead to a chesty cough that I now have. Last time I had similar problem in October I continued to take MXT but cough lasted 8 weeks. I saw GP after 3 weeks who said there was a virus about that's lingering and my cough lasted 8 weeks. I recently
Matilda_1922
in
NRAS
7 years ago
RA Synovitis and Tendonitis advice please.
Hi this is my first post but have been following the site for about a year now. I ve had R A for 3 years now and generally it's is reasonably controlled with weekly Methotrexate tablets and Naproxen when needed.My blood test result are all fine and showing a low level of inflammation. However since
Hi this is my first post but have been following the site for about a year now. I ve had R A for 3 years now and generally it's is reasonably controlled with weekly Methotrexate tablets and Naproxen when needed.My blood test result are all fine and showing a low level of inflammation. However since
L-ttie
in
NRAS
7 years ago
Plodding on
Had my first rheumatologist appointment a few weeks ago. Was given a steroid injection for the myofacial pain in neck and back of head which has really helped me. Told is was okay to take ibuprofen when needed when tapering, not taken any yet as not needed it. Having a dexa scan this Thursday been on
Had my first rheumatologist appointment a few weeks ago. Was given a steroid injection for the myofacial pain in neck and back of head which has really helped me. Told is was okay to take ibuprofen when needed when tapering, not taken any yet as not needed it. Having a dexa scan this Thursday been on
Hidden
in
PMRGCAuk
7 years ago
Lupus, Shingles and Acyclovir
Last month, I had my 4th bout of Shingles in the last 4 years. I once again took the Acyclovir prescribed. After two days I developed a nasty case of Tonsillitis. I had no other symptoms, no cold etc, so I was prescribed Antibiotics. I stopped taking the Acyclovir as I couldn't swallow them (they are
Last month, I had my 4th bout of Shingles in the last 4 years. I once again took the Acyclovir prescribed. After two days I developed a nasty case of Tonsillitis. I had no other symptoms, no cold etc, so I was prescribed Antibiotics. I stopped taking the Acyclovir as I couldn't swallow them (they are
dotty2203
in
LUPUS UK
7 years ago
Possible Behçet's Syndrome
Hi there, I have suffered with recurrent bacterial vaginosis since I was a kid. I've had pretty constant canker sores since I was a kid and a year ago I had to have a steroid injection in my eye due to "unexplained inflammation". When I put all 3 of these symptoms together I get Behçet's Syndrome. I
Hi there, I have suffered with recurrent bacterial vaginosis since I was a kid. I've had pretty constant canker sores since I was a kid and a year ago I had to have a steroid injection in my eye due to "unexplained inflammation". When I put all 3 of these symptoms together I get Behçet's Syndrome. I
Butterflyshy88
in
Behçet's UK
7 years ago
Injection into hip??
This is my first post here- I am a member of the PMR/GCA forum too as I have had PMR for nearly 5 years and been on steroids for all that time. I think, due to putting on weight and being less mobile, I have developed OA in both knees and my right hip. I get a lot of pain but am not yet bad enough for
This is my first post here- I am a member of the PMR/GCA forum too as I have had PMR for nearly 5 years and been on steroids for all that time. I think, due to putting on weight and being less mobile, I have developed OA in both knees and my right hip. I get a lot of pain but am not yet bad enough for
suzy1959
in
Arthritis Action
7 years ago
Confused 😳
Hi All Thank-you all for your support & kind messages.. Just got home from my first Rheumatologist appoint and don't know what to think.... Doc seems to think it's too early to diagnose RA as he said it may be linked to the pneumonia I had just before Christmas... I wasn't told I had pneumonia before
Hi All Thank-you all for your support & kind messages.. Just got home from my first Rheumatologist appoint and don't know what to think.... Doc seems to think it's too early to diagnose RA as he said it may be linked to the pneumonia I had just before Christmas... I wasn't told I had pneumonia before
Stats12
in
NRAS
7 years ago
methotrexate worry
hi everyone hope you are all as well as can be. my rheumatologist is very good and lovely. on my last visit 12th January 2017,i told the rheumy how well I had felt after the steroid injection in my bottom given on 12th November 2016, so she thought it would help if I started methotrexate with my hydroxychloroquine
hi everyone hope you are all as well as can be. my rheumatologist is very good and lovely. on my last visit 12th January 2017,i told the rheumy how well I had felt after the steroid injection in my bottom given on 12th November 2016, so she thought it would help if I started methotrexate with my hydroxychloroquine
dillydally1
in
NRAS
7 years ago
Working with CND/Lupus
Hi there, I have been given a provisional diagnosis of CND/SLE as might symptoms fit, but my bloodwork is unremarkable. I have been started on Hydroxycloroquine and have been given another Steriod injection. Sadly I have had shingles and tonsilitis again so I missed out on the benefits of the steroid
Hi there, I have been given a provisional diagnosis of CND/SLE as might symptoms fit, but my bloodwork is unremarkable. I have been started on Hydroxycloroquine and have been given another Steriod injection. Sadly I have had shingles and tonsilitis again so I missed out on the benefits of the steroid
dotty2203
in
LUPUS UK
7 years ago
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with ..
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
Wendy39
in
LUPUS UK
7 years ago
Test results help please
Feeling lousy ----again/as I do most of the time. I saw my rheumatologist again today who has given me a steroid injection to see if it helps. She says my blood test results don't signify my numerous aches and pains fatigue and general feeling of unwell are anything to do with my thyroid. My Levo was
Feeling lousy ----again/as I do most of the time. I saw my rheumatologist again today who has given me a steroid injection to see if it helps. She says my blood test results don't signify my numerous aches and pains fatigue and general feeling of unwell are anything to do with my thyroid. My Levo was
AliF
in
Thyroid UK
7 years ago
Steroid injection and pip
Hello everyone I got my decision today on pip I got the lower award which I pleased with because I had a steroid injection which I think masked my symptoms so I am happy as didn't think I would get anything. 😊 Can anyone tell me how long the steroid injection lasts for it's not taken the pain away completely
Hello everyone I got my decision today on pip I got the lower award which I pleased with because I had a steroid injection which I think masked my symptoms so I am happy as didn't think I would get anything. 😊 Can anyone tell me how long the steroid injection lasts for it's not taken the pain away completely
Lomo1964
in
NRAS
7 years ago
Hey, i'm new on here and want some support and advise :)
Hey so I'm 20, I was diagnosed with Endometriosis 2 years ago. They found it because I was having my appendix out. Later that year they did a laparoscopy to remove some of my endometriosis as it was quite severe and very painful. After a few months it grew back and they don't want to operate again just
Hey so I'm 20, I was diagnosed with Endometriosis 2 years ago. They found it because I was having my appendix out. Later that year they did a laparoscopy to remove some of my endometriosis as it was quite severe and very painful. After a few months it grew back and they don't want to operate again just
serencatrin
in
Endometriosis UK
7 years ago
What now?
I saw a rheumatologist yesterday , my appointment had been brought forward as I have been having increased pain while on Benepali and steroids. It seems each time I reduce to 15mg pred pain starts coming back. I got down to 13mg and was in so much pain and could barely move that I rang the Biologic nurse
I saw a rheumatologist yesterday , my appointment had been brought forward as I have been having increased pain while on Benepali and steroids. It seems each time I reduce to 15mg pred pain starts coming back. I got down to 13mg and was in so much pain and could barely move that I rang the Biologic nurse
Bailybiscuit
in
NRAS
7 years ago
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