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Possible Behçet's Syndrome
Hi there, I have suffered with recurrent bacterial vaginosis since I was a kid. I've had pretty constant canker sores since I was a kid and a year ago I had to have a steroid injection in my eye due to "unexplained inflammation". When I put all 3 of these symptoms together I get Behçet's Syndrome. I
Hi there, I have suffered with recurrent bacterial vaginosis since I was a kid. I've had pretty constant canker sores since I was a kid and a year ago I had to have a steroid injection in my eye due to "unexplained inflammation". When I put all 3 of these symptoms together I get Behçet's Syndrome. I
Butterflyshy88
in
Behçet's UK
7 years ago
Injection into hip??
This is my first post here- I am a member of the PMR/GCA forum too as I have had PMR for nearly 5 years and been on steroids for all that time. I think, due to putting on weight and being less mobile, I have developed OA in both knees and my right hip. I get a lot of pain but am not yet bad enough for
This is my first post here- I am a member of the PMR/GCA forum too as I have had PMR for nearly 5 years and been on steroids for all that time. I think, due to putting on weight and being less mobile, I have developed OA in both knees and my right hip. I get a lot of pain but am not yet bad enough for
suzy1959
in
Arthritis Action
7 years ago
Confused 😳
Hi All Thank-you all for your support & kind messages.. Just got home from my first Rheumatologist appoint and don't know what to think.... Doc seems to think it's too early to diagnose RA as he said it may be linked to the pneumonia I had just before Christmas... I wasn't told I had pneumonia before
Hi All Thank-you all for your support & kind messages.. Just got home from my first Rheumatologist appoint and don't know what to think.... Doc seems to think it's too early to diagnose RA as he said it may be linked to the pneumonia I had just before Christmas... I wasn't told I had pneumonia before
Stats12
in
NRAS
7 years ago
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methotrexate worry
hi everyone hope you are all as well as can be. my rheumatologist is very good and lovely. on my last visit 12th January 2017,i told the rheumy how well I had felt after the steroid injection in my bottom given on 12th November 2016, so she thought it would help if I started methotrexate with my hydroxychloroquine
hi everyone hope you are all as well as can be. my rheumatologist is very good and lovely. on my last visit 12th January 2017,i told the rheumy how well I had felt after the steroid injection in my bottom given on 12th November 2016, so she thought it would help if I started methotrexate with my hydroxychloroquine
dillydally1
in
NRAS
7 years ago
Working with CND/Lupus
Hi there, I have been given a provisional diagnosis of CND/SLE as might symptoms fit, but my bloodwork is unremarkable. I have been started on Hydroxycloroquine and have been given another Steriod injection. Sadly I have had shingles and tonsilitis again so I missed out on the benefits of the steroid
Hi there, I have been given a provisional diagnosis of CND/SLE as might symptoms fit, but my bloodwork is unremarkable. I have been started on Hydroxycloroquine and have been given another Steriod injection. Sadly I have had shingles and tonsilitis again so I missed out on the benefits of the steroid
dotty2203
in
LUPUS UK
7 years ago
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with ..
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has ended up as SLE? I was diagnosed with SCLE in October/November 2013. Here are some of my blood test results: ANA positive (but crucially no level
Wendy39
in
LUPUS UK
7 years ago
Test results help please
Feeling lousy ----again/as I do most of the time. I saw my rheumatologist again today who has given me a steroid injection to see if it helps. She says my blood test results don't signify my numerous aches and pains fatigue and general feeling of unwell are anything to do with my thyroid. My Levo was
Feeling lousy ----again/as I do most of the time. I saw my rheumatologist again today who has given me a steroid injection to see if it helps. She says my blood test results don't signify my numerous aches and pains fatigue and general feeling of unwell are anything to do with my thyroid. My Levo was
AliF
in
Thyroid UK
7 years ago
Steroid injection and pip
Hello everyone I got my decision today on pip I got the lower award which I pleased with because I had a steroid injection which I think masked my symptoms so I am happy as didn't think I would get anything. 😊 Can anyone tell me how long the steroid injection lasts for it's not taken the pain away completely
Hello everyone I got my decision today on pip I got the lower award which I pleased with because I had a steroid injection which I think masked my symptoms so I am happy as didn't think I would get anything. 😊 Can anyone tell me how long the steroid injection lasts for it's not taken the pain away completely
Lomo1964
in
NRAS
7 years ago
Hey, i'm new on here and want some support and advise :)
Hey so I'm 20, I was diagnosed with Endometriosis 2 years ago. They found it because I was having my appendix out. Later that year they did a laparoscopy to remove some of my endometriosis as it was quite severe and very painful. After a few months it grew back and they don't want to operate again just
Hey so I'm 20, I was diagnosed with Endometriosis 2 years ago. They found it because I was having my appendix out. Later that year they did a laparoscopy to remove some of my endometriosis as it was quite severe and very painful. After a few months it grew back and they don't want to operate again just
serencatrin
in
Endometriosis UK
7 years ago
What now?
I saw a rheumatologist yesterday , my appointment had been brought forward as I have been having increased pain while on Benepali and steroids. It seems each time I reduce to 15mg pred pain starts coming back. I got down to 13mg and was in so much pain and could barely move that I rang the Biologic nurse
I saw a rheumatologist yesterday , my appointment had been brought forward as I have been having increased pain while on Benepali and steroids. It seems each time I reduce to 15mg pred pain starts coming back. I got down to 13mg and was in so much pain and could barely move that I rang the Biologic nurse
Bailybiscuit
in
NRAS
7 years ago
Going downhill or is it winter?
PMR diagnosed Nov. 2014. Initial dose 15mg moved to 30mg before feeling O.K. 18 months later I was down to 9mg, PMR flared, back up to 19mg. Started DSNS at 17mg at 26 months down to 8mg. Thinking of moving to 7mg. Then it started to go wrong again. Left shoulder continues to hurt upper arm, been like
PMR diagnosed Nov. 2014. Initial dose 15mg moved to 30mg before feeling O.K. 18 months later I was down to 9mg, PMR flared, back up to 19mg. Started DSNS at 17mg at 26 months down to 8mg. Thinking of moving to 7mg. Then it started to go wrong again. Left shoulder continues to hurt upper arm, been like
DavidMF
in
PMRGCAuk
7 years ago
Side effects of oral steroids and lefludomide
So called my hospital this morning. They want to see me tomorrow as an urgent case. I have not been able to tolerate, methotrexate, sulfasalazine or hydroxycholquinine. I have had two steroid injections but with no effect. They are now saying they think I need oral steroids and also to try lefludomide
So called my hospital this morning. They want to see me tomorrow as an urgent case. I have not been able to tolerate, methotrexate, sulfasalazine or hydroxycholquinine. I have had two steroid injections but with no effect. They are now saying they think I need oral steroids and also to try lefludomide
Frankiefarr
in
NRAS
7 years ago
Hello, I'm new to posting.
I have been reading posts on here for a few months but it is the first time I have posted. I am 62 years old , a retired teacher. I was diagnosed with PMR in May 2016. I had been feeling very stiff in my neck and shoulders for a few weeks but put it down to a long haul flight back from Oz. I then had
I have been reading posts on here for a few months but it is the first time I have posted. I am 62 years old , a retired teacher. I was diagnosed with PMR in May 2016. I had been feeling very stiff in my neck and shoulders for a few weeks but put it down to a long haul flight back from Oz. I then had
York54
in
PMRGCAuk
7 years ago
Pip assessment
Hello all yesterday I had my PIP assessment can anyone tell me if it is refused do they give the reasons why I am a bit worried because two weeks ago I had a steroid injection although I am still in pain it took the edge off and the swelling down and I am concerned the assessor took this into account
Hello all yesterday I had my PIP assessment can anyone tell me if it is refused do they give the reasons why I am a bit worried because two weeks ago I had a steroid injection although I am still in pain it took the edge off and the swelling down and I am concerned the assessor took this into account
Lomo1964
in
NRAS
7 years ago
Hip pain
I have had hip pain for over 3 years but it has suddenly become worse. I find getting up from a chair or sitting with my feet up, also getting out of bed are just so painful. I had a biopsy done of my hip two years ago but it only showed inflammation and although the hip is worn away there seems nothing
I have had hip pain for over 3 years but it has suddenly become worse. I find getting up from a chair or sitting with my feet up, also getting out of bed are just so painful. I had a biopsy done of my hip two years ago but it only showed inflammation and although the hip is worn away there seems nothing
Bailybiscuit
in
NRAS
7 years ago
pain pain go away and dont come back another day ......
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
WAGS56
in
Pain Concern
7 years ago
Dont forget your meds ..
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
WAGS56
in
Anxiety Support
7 years ago
Shoulder issues and PMR
I have been struggling away with shoulder issues for a couple of months now and find it is really getting me down. After my initial pmr diagnosis back in April I reduced too quickly and suffered the inevitable flare. Back to 17mg in Septemebr and on the gradual reduction now. All pretty good until severe
I have been struggling away with shoulder issues for a couple of months now and find it is really getting me down. After my initial pmr diagnosis back in April I reduced too quickly and suffered the inevitable flare. Back to 17mg in Septemebr and on the gradual reduction now. All pretty good until severe
Lochy
in
PMRGCAuk
7 years ago
Sulfasalasine
Hi all. As you probably remember, i was diagnosed with ra in august, and started 500 mg sulfasalasine daily, increasing by 500 mg daily each week to maximum of 4x500mg tablets daily in september. I was also prescribed a steroid injection and, as that gave no relief a 3 week course of prednisone tablets
Hi all. As you probably remember, i was diagnosed with ra in august, and started 500 mg sulfasalasine daily, increasing by 500 mg daily each week to maximum of 4x500mg tablets daily in september. I was also prescribed a steroid injection and, as that gave no relief a 3 week course of prednisone tablets
PennyW1
in
NRAS
7 years ago
Oral pred & steroid injection in joint
I had an injection of steroids in my left TMJ joint this past friday to help manage arthritis pain. I am still on a high dose of oral prednisone also. I know the injection is supposed to stay in the joint, but i wondering if it has gotten into my system adding to the overall dose. I am having some worrisome
I had an injection of steroids in my left TMJ joint this past friday to help manage arthritis pain. I am still on a high dose of oral prednisone also. I know the injection is supposed to stay in the joint, but i wondering if it has gotten into my system adding to the overall dose. I am having some worrisome
missmylefteye
in
PMRGCAuk
7 years ago
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