pain pain go away and dont come back another day ......

[WAGS56]

Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i was a keen sportsman at the time and being a man decided to ignore it until my symptons were worsening ,Falling over was a regular thing i could not walk in the dark and still cant unless i have a torch,pitch black i have to get on my hands and knees or i fall,i was also losing sensation down my left side my left leg is immune to any temperature changes due to nerve damage to my cord i could not walk and cannot walk now unless i could see my feet as i have no sensation as such so not sure where the floor is as i cannot feel my foot feels like am on the moon at times when i walk trampoline style feelings,all my hairs fell out my left leg still do now,i could go on and on,In late 2012 i had an mri on my kneck as was suffering with severe pain,within 2 weeks of this i was rushed in doctors orders as damage so severe may put you in a wheelchair for the rest of your days frightening thing at 46 so i had my 1st spinal fusion operation on my c5 c6 which was an unsuccesfull op as i still had the same sensations from nerve damage and my balance was all over the place with the added pleasure of severe nerve pain different from my last symptons upon investigating this early 2013 with an mri scan, it was decided to operate again by the posterior approach as the last op which was around 4 months prior to this did not work at all,The bone spurs on the back of my spine were creating a trapping point so it was decided to go in from the back of my neck and cut of the c5 c6 c7 bone spurs of my spine, which will so they said stop the pain from getting any worse that,s an understatement for sure,upon having this done i was discharged,over the months that followed i was having all sorts of problems,with severe nerve pain all over to loss of sensations in my hands and feet,left leg cant tell if its hot or cold no sensations,hands and feet cramp up, trigger finger the docs say cant do anything its down to your spinal cord damage so every few months i have to have steroid injections to stop the pains,could not sleep with the pain and the feelings so was prescribed the amaitriptyline for both nerve pain and to help me sleep,Crikey i was ill for a few days with them as they was obviously making themselves at home, feeling nausea and hot sweats and throwing up for a few minutes in the mornings,This was obviously down to the strength of the pills and perhaps my other meds were clashing,I am 18 months in with them and they have helped me with the pains and my mindset, its only recent i have had these funny episodes of fearing am going to stop breathing,Could it be sometimes that i dont take my or some of my meds at times ? Tried coming of them but cant as the feelings and thoughts go awol.For me i have that many issues at 49 yr and take a fair whack of meds daily it took a while to work out that its the amil or lack off thats making me panic without knowing am in a panic if you no what i mean sort of thing,I had a heart attack in 2014 stents were fitted but now i have the added addition that i will be on more medication for the rest of my days,Currently take for my heart condition - ramiprill,bisoprolol,aspirin,statins,and my heart spray which i take with me where ever i go,My spinal meds consist off on a daily basis --

Gabapentin - 3600 mg daily

paracetomol - 4000 mg daily

permanent buprenorthine 35mcg pain patches which i change every 3 days

amitriptyline - 200mg at night

atorvostatin - 80mg at night

Ranitadine - 300 mg

Plus various laxatives daily like senna and laxido purely due to the meds, bungs you up,Suffer with loss of appetite as well as getting a bloated stomach upon completion of a meal,Sounds as though reading between the lines its best to stop on them as the feelings you get weening of them are terrible,been their with them not nice,Anyhow enough of my rambling on am going to look on this website as its very informative and ts nice to chat with folk that no what your going through.

HAPPY NEW YEAR ...

Regards Lou

[luckyjim]

Lou

Welcome to the forum.

The picture you paint is a pretty grim one that would be difficult to surpass. Many of the people who post here will recognize your individual difficulties but few if any will have your collection. Your daily battles must weigh heavily on you.

Others will comment and try to help from their experience of their own problems, many of which you describe in your post.

I detect a desire on your part to continue the fight, which is what you must do. There are issues which I share with you but I could not pretend to match. You find yourself in a very low position, the spin must be that you have bags of room to improve.

I will not try to comment area by area, but would suggest that one aspect that plays an important part of your wellbeing is the meds you are taking, this is also something which you can influence and be proactive.

I wish you luck for the new year.

Jim

[bettyfl]

So sorry to hear your story. I too suffer with chronic pain Dom among other things nerve damage. I found this site a few months or so back and yes it is the best site for health talk I have ever been on.

Happy New Year