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Piriformis
Hi everyone hope your well today. Okay so I've bern telling you about this episode of piriformis recently it's just not getting any better at all its disabling me and I'm crying all through the night. Cant cope much longer this is about 2 months now. My question is have any of you had a guided steroid
Hi everyone hope your well today. Okay so I've bern telling you about this episode of piriformis recently it's just not getting any better at all its disabling me and I'm crying all through the night. Cant cope much longer this is about 2 months now. My question is have any of you had a guided steroid
Betsy50
in
Pain Concern
1 year ago
Steroid tapering
I was diagnosed with PMR January 2023 my initial response to steroids was like a miricle...My journey has been very rocky with trying to reduce steroids and 7 mg seems to be my sticking point. I have now been following the 5 week tapering and got through 8, 71\2.to , 71\2 during which I had had some
I was diagnosed with PMR January 2023 my initial response to steroids was like a miricle...My journey has been very rocky with trying to reduce steroids and 7 mg seems to be my sticking point. I have now been following the 5 week tapering and got through 8, 71\2.to , 71\2 during which I had had some
purplesprouting
in
PMRGCAuk
10 months ago
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face
🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January 2021, my life took an unexpected turn when I found myself in the clutches of COVID-19. At first, I mistook the weakening of my body for a mere exacerbation of my asthma. Little did I know that this was just the
🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January 2021, my life took an unexpected turn when I found myself in the clutches of COVID-19. At first, I mistook the weakening of my body for a mere exacerbation of my asthma. Little did I know that this was just the
Ladysurvivor1
in
ICUsteps
6 months ago
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Methotrexate Confusion
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
LizMitchell
in
PMRGCAuk
10 months ago
prednisone and antibiotics
Has anyone had a problem with antibiotics wiping out prednisone. Was down to 2.5-lowest in 8 years. Took antibiotics (Bactrim) and all old PMR symptoms came back. Hurt all over. Read Bactrim and Cipro are quinolones and do not work well with Steroids. Neither Dr or pharmacist knew this. Not sure how
Has anyone had a problem with antibiotics wiping out prednisone. Was down to 2.5-lowest in 8 years. Took antibiotics (Bactrim) and all old PMR symptoms came back. Hurt all over. Read Bactrim and Cipro are quinolones and do not work well with Steroids. Neither Dr or pharmacist knew this. Not sure how
Cycles4fun
in
PMRGCAuk
9 months ago
Winter or Spring Covid Booster Vaccinations?
Winter or Spring Covid Booster Vaccinations? Good evening everyone, has anyone heard anything about "Covid Boosters Vaccinations" being available for Winter or Spring? The last Booster I received was early October 2023 as I have a weakened immune system. I have not seen much coverage on this by the
Winter or Spring Covid Booster Vaccinations? Good evening everyone, has anyone heard anything about "Covid Boosters Vaccinations" being available for Winter or Spring? The last Booster I received was early October 2023 as I have a weakened immune system. I have not seen much coverage on this by the
Joseph260268
in
Lung Conditions Community Forum
6 months ago
biliary atresia post kasai at 102 days after born
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
Babyjunten
in
Children's Liver Disease Foundation
10 months ago
Rash any advice?
I have noticed this rash over last 2 or 3 months. Its not itchy or raised. Any advice most welcome. Im taking 100mcg teva levo and 15mcg thybon henning. Vit d, magnesium glycinate. Any advice most welcome 🌸🌸🌸🌸🌸
I have noticed this rash over last 2 or 3 months. Its not itchy or raised. Any advice most welcome. Im taking 100mcg teva levo and 15mcg thybon henning. Vit d, magnesium glycinate. Any advice most welcome 🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
8 months ago
sjogens?
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
Yanico
in
MPN Voice
8 months ago
shingles vaccine
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Hi folks This is a brilliant site has keep me steady since my husband’s diagnosis of SLL now CLL. My Husband had been W&W for 6 years, now on acalabrutinib for two years with no side affect and doing well. He has been offered the shingles vaccine but he hasn’t had chickenpox’s, is it safe to get the
Charles4
in
CLL Support
8 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
6 months ago
Nose sprays for colds etc
I feel as if a have a cold brewing. Some time ago there were posts of a spray used in nose. Flu Guard ? I am not sure. I think a Vick one too. Could anyone advise please. Wish to nip in the bud. Thank you.
I feel as if a have a cold brewing. Some time ago there were posts of a spray used in nose. Flu Guard ? I am not sure. I think a Vick one too. Could anyone advise please. Wish to nip in the bud. Thank you.
Dottie11
in
Lung Conditions Community Forum
6 months ago
Question re:- White blood cell count
Having had further blood tests today, my ESR Sedimentation rate is normal again 8mm/h I have now reduced my steroid daily to 15mg. So my question is , having reduced the steroids and the ESR is remaining normal, is it likely that the White Blood Cell count which was high on initial dose of 25 mg
Having had further blood tests today, my ESR Sedimentation rate is normal again 8mm/h I have now reduced my steroid daily to 15mg. So my question is , having reduced the steroids and the ESR is remaining normal, is it likely that the White Blood Cell count which was high on initial dose of 25 mg
gillsky8
in
PMRGCAuk
10 months ago
Update: x-ray shock 😲
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Kristi74
in
British Heart Foundation
6 months ago
Hepatic Peliosis (What is it?)
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
RE: Hepatic Peliosis (What is it?) Hi all, I have been diagnosed with Hepatic Peliosis of the liver. What is it? and is there any treatments please? Does anyone else have Hepatic Peliosis ? How are your dealing with this etc? Any information would be helpful. Thank you. Regards, Kevin Walker
kevpwalker
in
British Liver Trust
5 months ago
A suggestion that is working well, for me at least. AT least for now.
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
lauraflora
in
Restless Legs Syndrome
6 months ago
CHANGING Room CHAT...WEEK 3.... Taking time out...to...
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Oldfloss
Administrator
in
Strength & Flex
6 months ago
Menopause and covid
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Dham
in
Menopause and Perimenopause Support
6 months ago
Sore perineum and vulvar
I have a pudendal nerve entrapment diagnosis of 8 years now but recently the pain from the anal area has now moved to my vaginal area causing really bad pain in vagina, vulva and perineum. I was given hormone cream to insert by gp as she thought it was menopausal symptoms. This didn't work. I revisited
I have a pudendal nerve entrapment diagnosis of 8 years now but recently the pain from the anal area has now moved to my vaginal area causing really bad pain in vagina, vulva and perineum. I was given hormone cream to insert by gp as she thought it was menopausal symptoms. This didn't work. I revisited
hoopwhirl2007
in
Pelvic Pain Support Network
8 months ago
Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
8 months ago
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