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long awaited rheumy appointment
He said I mustn’t have any more steroids, I mustn’t increase oral steroids & no more
steroid
injections
. He was very forceful & somewhat pacing the floor. He said my CRP levels had never been high (& i don’t think he thinks I have polymyalgia).
He said I mustn’t have any more steroids, I mustn’t increase oral steroids & no more
steroid
injections
. He was very forceful & somewhat pacing the floor. He said my CRP levels had never been high (& i don’t think he thinks I have polymyalgia).
Pixix
in
PMRGCAuk
1 year ago
Will a COVID (or flu) vaccination affect my blood results?
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
mantana
in
CLL Support
6 months ago
Prothrombin time
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Is 11.3 seconds prothrombin time normal partial thromboplastin 22.3 seconds are they in normal range
Sheliabee
in
British Liver Trust
8 months ago
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B12 deficiency
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
Michbell45
in
Pernicious Anaemia Society
6 months ago
Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
Classicaljazz
in
CLL Support
6 months ago
Measles
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
With info about measles cases increases I wondered if anyone had experience of being vaccinated against measles since RA diagnosis. I thought I was vaccinated as a child (pre MMR vaccine) but GP doesn't have a record of it.Thanks in advance for any info
Sky42
in
NRAS
6 months ago
Newly diagnosed
I’m a retired lecturer in English at Hull university. I was diagnosed with PMR in August 2023. My wife Les was diagnosed with rheumatoid arthritis in the mid 1980s in her mid 40s and then developed lupus and later diverticulitis and cauda equina after I retired in 2013. She was severely ill for the
I’m a retired lecturer in English at Hull university. I was diagnosed with PMR in August 2023. My wife Les was diagnosed with rheumatoid arthritis in the mid 1980s in her mid 40s and then developed lupus and later diverticulitis and cauda equina after I retired in 2013. She was severely ill for the
Sibelius5
in
PMRGCAuk
10 months ago
dental work with liver disease
I need dental work as in extractions. What procedures do I need to ask my doctor and dentist . I moved and need a new dentist.
I need dental work as in extractions. What procedures do I need to ask my doctor and dentist . I moved and need a new dentist.
Rumpleblack
in
British Liver Trust
8 months ago
Nausea & head fog
I’m being treated for PMR and currently on 15mg of steroids. Is there any advice on dealing with nausea and head foggy mess?
I’m being treated for PMR and currently on 15mg of steroids. Is there any advice on dealing with nausea and head foggy mess?
SpaghettiWestern99
in
PMRGCAuk
10 months ago
⭐️⭐️my COVID journey ⭐️⭐️
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
Ladysurvivor1
in
ICUsteps
6 months ago
Finally failed at side-stepping the “rona”
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Aldebaran25
in
MPN Voice
6 months ago
Shingles pain
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
FinneUK
in
Thyroid UK
6 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
8 months ago
Interesting article about the effects of Covid19 on your blood
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Jm954
Administrator
in
CLL Support
6 months ago
covid vaccine and prostate cancer
I was surprised that the post about the covid vaccine was abruptly terminated as if the subject was closed and the answer is settled. That is not true in my opinion. This is a brand new technology that was only tested for about a year. No definitive study has been done about the long term impact (if
I was surprised that the post about the covid vaccine was abruptly terminated as if the subject was closed and the answer is settled. That is not true in my opinion. This is a brand new technology that was only tested for about a year. No definitive study has been done about the long term impact (if
Schwah
in
Advanced Prostate Cancer
6 months ago
covid vaccine & prostate cancer
Any concerns/studies re covid vaccines bringing prostate cancer back? No politics just want to know if there are any reasons to be concerned.
Any concerns/studies re covid vaccines bringing prostate cancer back? No politics just want to know if there are any reasons to be concerned.
BL2023
in
Advanced Prostate Cancer
6 months ago
Piriformis
Hi everyone hope your well today. Okay so I've bern telling you about this episode of piriformis recently it's just not getting any better at all its disabling me and I'm crying all through the night. Cant cope much longer this is about 2 months now. My question is have any of you had a guided steroid
Hi everyone hope your well today. Okay so I've bern telling you about this episode of piriformis recently it's just not getting any better at all its disabling me and I'm crying all through the night. Cant cope much longer this is about 2 months now. My question is have any of you had a guided steroid
Betsy50
in
Pain Concern
1 year ago
eosinophilia and nasty chest cold
everything has been good for a year now. I have been prescribed another bio - Tezzy which has been life savingly wonderful. I have reduced steroids and consultant is hopeful of elimination soon. Energy levels have really improved too. So, in the last two days I have nosedived. I put this down to cold
everything has been good for a year now. I have been prescribed another bio - Tezzy which has been life savingly wonderful. I have reduced steroids and consultant is hopeful of elimination soon. Energy levels have really improved too. So, in the last two days I have nosedived. I put this down to cold
Villager2
in
Asthma Community Forum
8 months ago
Steroid tapering
I was diagnosed with PMR January 2023 my initial response to steroids was like a miricle...My journey has been very rocky with trying to reduce steroids and 7 mg seems to be my sticking point. I have now been following the 5 week tapering and got through 8, 71\2.to , 71\2 during which I had had some
I was diagnosed with PMR January 2023 my initial response to steroids was like a miricle...My journey has been very rocky with trying to reduce steroids and 7 mg seems to be my sticking point. I have now been following the 5 week tapering and got through 8, 71\2.to , 71\2 during which I had had some
purplesprouting
in
PMRGCAuk
10 months ago
Methotrexate Confusion
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
LizMitchell
in
PMRGCAuk
10 months ago
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