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Tiredness and feeling weak, any tips?
These last few days I've felt tired and weak, even after just waking up. Walking up the stairs is tiring, I took a short walk on Friday, and on the way back I had to make stops to sit down and rest. My legs have been aching but it's not like I've done anything strenuous. I'm coming down on steroids which
These last few days I've felt tired and weak, even after just waking up. Walking up the stairs is tiring, I took a short walk on Friday, and on the way back I had to make stops to sit down and rest. My legs have been aching but it's not like I've done anything strenuous. I'm coming down on steroids which
poppies_are_red
in
LUPUS UK
10 months ago
Lupus and the lungs
My wife was formally diagnosed with SLE in 2019 after struggling with her health for many years. One the curious things about how SLE impacts my wife is how it impacts the lungs. She had two spells of hospitalisation and very recently a bad flare which is ongoing. The curious thing is it has been
My wife was formally diagnosed with SLE in 2019 after struggling with her health for many years. One the curious things about how SLE impacts my wife is how it impacts the lungs. She had two spells of hospitalisation and very recently a bad flare which is ongoing. The curious thing is it has been
jimbo1605
in
LUPUS UK
10 months ago
COVID
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Guinness4822
in
CLL Support
6 months ago
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Methotrexate and sinus/nasal issues
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
I've been on MTX for a year now and over the months I keep saying I feel like I'm coming down with a cold but it doesn't happen. I get a blockage in the back of my nasal passage and that causes post nasal drip and a sore throat. I was taking sulphasalazine but have stopped that as I felt so tired on
Gottarelax
in
NRAS
8 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
6 months ago
Covid vaccine decision time…
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
Samazeuilh2
in
Atrial Fibrillation Support
6 months ago
Living with Long Covid but now Tinnitus too!
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
santosha72
in
Tinnitus UK
6 months ago
Fragility score on Osteoscan and different meds.
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Nightingales
in
PMRGCAuk
10 months ago
Me Again
Hi everyone, just an update in my miserable journey. My private as I still haven’t even reached the waiting list for an NHS one I am on the waiting list to get to the actual waiting list. Had informed me I have Inflammatory arthritis as well as PMR. I Am unable to take methotrexate so am on Hydroxychloroquine
Hi everyone, just an update in my miserable journey. My private as I still haven’t even reached the waiting list for an NHS one I am on the waiting list to get to the actual waiting list. Had informed me I have Inflammatory arthritis as well as PMR. I Am unable to take methotrexate so am on Hydroxychloroquine
Wonderfullifeandmore
in
PMRGCAuk
10 months ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
8 months ago
one year olds vaccines
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Our grandson aged one is having jabs. I looked up and these are scheduled for one year olds. MMR is a weakened vaccine. Does anyone know if it’s safe to be around him as a immunosuppressed or where to find out in green book please ? Hib/MenC Pneumococcal conjugate vaccine (PCV13) Meningococcal
Mozart150
in
NRAS
8 months ago
COVID, Pneumonia and healthcare
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
shazie
in
CLL Support
4 months ago
Covid and prednisone
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
perceptual63
in
PMRGCAuk
6 months ago
stomach acid
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
I don't understand this stomach acid 'thing'. I take a proton pump inhibitor for high stomach acid but people insist that as you get older you're stomach acid reduce. I'm 79. Also that doctors erroneously mistake low stomach acid for high!! What is going on? Any thoughts
fiftyone
in
Thyroid UK
8 months ago
Most know the story. Something I can't figure out.
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
ceward204
in
British Liver Trust
6 months ago
Covid Positive
Wednesday evening saw me get a positive Covid test result after me thinking I was immune 🤦♂️. I’d previously been told I’d need antiviral medication ( as I’m on 8L of oxygen upon movement) so Thursday morning we rang the doctor and a paramedic was sent to our house . A lovely guy came out and because
Wednesday evening saw me get a positive Covid test result after me thinking I was immune 🤦♂️. I’d previously been told I’d need antiviral medication ( as I’m on 8L of oxygen upon movement) so Thursday morning we rang the doctor and a paramedic was sent to our house . A lovely guy came out and because
Rich1957
in
Lung Conditions Community Forum
9 months ago
A new year, a new (re)start, and another memento from covid.
A lovely vrb asked after me the other day, and I realised I haven't posted since I got my ear infection, so here's what's been happening - or not! So, the ear infection back in November caused vertigo, which stopped me from running because it just felt too weird. I was just getting back from that when
A lovely vrb asked after me the other day, and I realised I haven't posted since I got my ear infection, so here's what's been happening - or not! So, the ear infection back in November caused vertigo, which stopped me from running because it just felt too weird. I was just getting back from that when
grumpyoldgirl
Graduate
in
Couch to 5K
6 months ago
Timings
I have managed to get down to 5mg which I have been taking now for 2weeks after being diagnosed with PMR 2 years ago. In that time I have put on 11kg! partially due to changing my job from ward based and very busy to a mainly office based job for the probation service. I feel like a whale going from
I have managed to get down to 5mg which I have been taking now for 2weeks after being diagnosed with PMR 2 years ago. In that time I have put on 11kg! partially due to changing my job from ward based and very busy to a mainly office based job for the probation service. I feel like a whale going from
Holycow2
in
PMRGCAuk
10 months ago
Ibs worse since Covid
Just wondering has anyone else's symptoms worsened since Covid ? mine certainly have and I have noticed that a lot of people on here are saying that they are feeling worse in the last one to two years, I am just reeling from my latest bout and it's been gradually worsening over the last 18 months or
Just wondering has anyone else's symptoms worsened since Covid ? mine certainly have and I have noticed that a lot of people on here are saying that they are feeling worse in the last one to two years, I am just reeling from my latest bout and it's been gradually worsening over the last 18 months or
buggins55
in
IBS Network
6 months ago
iga vasculitis
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
Frosty_nights89
in
Vasculitis UK
6 months ago
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