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CMV Update
Kidney transplant: Nov 16, 2022 ( donor kidney CMV+, recipient CMV-) kidney (I’ve named Cindy): Doing very well (creatinine .81, eGFR 78) Struggles: very low white blood cell count from Feb through July & CMV from May to date CMV: 4 flare-ups to date I was referred out to see an infectious disease
Kidney transplant: Nov 16, 2022 ( donor kidney CMV+, recipient CMV-) kidney (I’ve named Cindy): Doing very well (creatinine .81, eGFR 78) Struggles: very low white blood cell count from Feb through July & CMV from May to date CMV: 4 flare-ups to date I was referred out to see an infectious disease
Jayhawker
in
Kidney Transplant
6 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
6 months ago
CR Advanced Prostrate Ca, and start of chemotherapy after PSMA
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Ij2023
in
Advanced Prostate Cancer
6 months ago
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PV & Gene Editing for Sickle cell anemia
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
ERei
in
MPN Voice
5 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
6 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
KateyC_NKF
Partner
in
Kidney Disease
6 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
6 months ago
zookeeper54
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
zookeeper54
in
Kidney Transplant
6 months ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
7 months ago
Hi... was blessed to have a kidney transplant 6 weeks ago... anyone eve struggle with the meds?
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
Highgfr
in
Kidney Disease
7 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
7 months ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
10 months ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
4 days ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
14 days ago
liver gal
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
Livergal
in
British Liver Trust
7 months ago
Dilated Cardiomyopathy/ Heart Transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
Jobby85
in
British Heart Foundation
7 months ago
Diagnosis at last! Haemochromotosis?
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
RugbyMama
in
British Liver Trust
7 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
7 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
1 month ago
Lympahdinitis
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
bal_123
in
Kidney Transplant Patient Support
7 months ago
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