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Experiences with
Stem cell and bone marrow transplants
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My PBC Journey
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
Miamomma
in
PBC Foundation
3 years ago
How are you living life with spouses both Vaccinated against Covid but one has a kidney transplant and one is healthy?
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
Gardner-NY
in
Kidney Transplant
3 years ago
Exciting News!
I got a call from the transplant center I wiling with. An altruistic donor had stepped forward, and I am a match! If things go as planned, I will receive a kidney transplant on July 13th Still a bit overwhelmed by the news.
I got a call from the transplant center I wiling with. An altruistic donor had stepped forward, and I am a match! If things go as planned, I will receive a kidney transplant on July 13th Still a bit overwhelmed by the news.
ILMA54
in
Kidney Transplant
3 years ago
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3rd dose vaccine
Just came across an interesting article stating the benefits of a 3rd vaccine shot given to organ transplant recipients . https://www.acpjournals.org/doi/10.7326/L21-0282 In my limited understanding of the conclusions, it seemed to have resulted in a significant increase in antibody titers. Does anyone
Just came across an interesting article stating the benefits of a 3rd vaccine shot given to organ transplant recipients . https://www.acpjournals.org/doi/10.7326/L21-0282 In my limited understanding of the conclusions, it seemed to have resulted in a significant increase in antibody titers. Does anyone
Monetfan2017
in
CLL Support
3 years ago
Liver transplant
Hi my dad is 67 and a diabetic he was diagnosed with liver disease in April of this year and is in the process of scan after scan. He has passed the heart and lung/ fitness tests. The consultant suspects cancer in the liver bile duct but spy glass test broke on the last try so inconclusive. They have
Hi my dad is 67 and a diabetic he was diagnosed with liver disease in April of this year and is in the process of scan after scan. He has passed the heart and lung/ fitness tests. The consultant suspects cancer in the liver bile duct but spy glass test broke on the last try so inconclusive. They have
Audi123
in
British Liver Trust
3 years ago
More on HELP #3 Day in Hospital Possible Giant Cell Arteritis Biopsy Tomorrow. San Antonio Rose
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
All, More to add- after much discussion with Ophthalmology late yesterday afternoon, it was decided, based on pictures I sent them, that I might have shingles and they will postpone temple biopsy until more is known later,, Now trying to reach PCM and Rheumatologist for guidance on what to do for #
SARose
in
PMRGCAuk
3 years ago
Has anyone had more than one FISH test?
I asked my oncologist and he said if I did the
stem
cell
transplant
he would request it but have any of you had a second test?
I asked my oncologist and he said if I did the
stem
cell
transplant
he would request it but have any of you had a second test?
steve_canada
in
CLL Support
4 years ago
A third dose of COVID-19 vaccine increased antibody levels in organ transplant recipients
The antibody response after 2 doses of an mRNA vaccine against SARS-CoV-2 is excellent in the general population, but the response is different in recipients of solid organ transplants. For example, we have found markedly attenuated antibody responses in transplant recipients after 2 doses of an mRNA
The antibody response after 2 doses of an mRNA vaccine against SARS-CoV-2 is excellent in the general population, but the response is different in recipients of solid organ transplants. For example, we have found markedly attenuated antibody responses in transplant recipients after 2 doses of an mRNA
2greys
in
Lung Conditions Community Forum
3 years ago
Nanoparticle therapy shows promise at preventing fatal newborn lung disease
The disease is so rare and complex that its acronym is hard to pronounce. But for infants unlucky enough to be born with this lung disease, the outcome is usually fatal. The disease is called alveolar capillary dysplasia with misalignment of the pulmonary veins (ACDMPV). Research indicates the disease
The disease is so rare and complex that its acronym is hard to pronounce. But for infants unlucky enough to be born with this lung disease, the outcome is usually fatal. The disease is called alveolar capillary dysplasia with misalignment of the pulmonary veins (ACDMPV). Research indicates the disease
2greys
in
Lung Conditions Community Forum
3 years ago
Update after BMB
The good thing is my oncologist in hematology wants to put me in touch with a teaching hospital so if I would need a
stem
cell
transplant
.... hoping that is not needed but it's good to make a plan. I also am encouraged to enter a clinical trial if there is one in my area, so another plus.
The good thing is my oncologist in hematology wants to put me in touch with a teaching hospital so if I would need a
stem
cell
transplant
.... hoping that is not needed but it's good to make a plan. I also am encouraged to enter a clinical trial if there is one in my area, so another plus.
Androg
in
MPN Voice
3 years ago
Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19
The trial, called Octave, is to analyse patients suffering from cancer, inflammatory arthritis, kidney or liver disease and
stem
cell
transplant
patients, UKRI said in a statement.
The trial, called Octave, is to analyse patients suffering from cancer, inflammatory arthritis, kidney or liver disease and
stem
cell
transplant
patients, UKRI said in a statement.
Iupiter
in
CLL Support
3 years ago
Long term tocilizumab use
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
Hello all - I wonder if anyone has experience of long term tocilizumab use. I have been having injections every 4 weeks. I began weekly and gradually moved to 4 weekly. I have been on TZ for 3 1/2 years now. I am now getting fairly regular relapses - especially after overdoing it. Have felt really
christine2715
in
PMRGCAuk
3 years ago
Online support group with meetings for kids with kidney transplant?
Hi, My best friend's daughter had a kidney transplant about a year ago and sometimes she really struggles living with all the hard things that they still face. Does anyone attend (or be interested in creating) some kind of virtual meeting for parents with similar situations? She is a mom of two young
Hi, My best friend's daughter had a kidney transplant about a year ago and sometimes she really struggles living with all the hard things that they still face. Does anyone attend (or be interested in creating) some kind of virtual meeting for parents with similar situations? She is a mom of two young
jsalute
in
Parents of Children with Kidney Disease
3 years ago
kiddny transplant patient
Hello guys , I had a kidney transplant for 8 months and now I have a lot of hair loss. if someone experienc with this issue how to stop hair fall ?
Hello guys , I had a kidney transplant for 8 months and now I have a lot of hair loss. if someone experienc with this issue how to stop hair fall ?
omid13
in
Kidney Transplant
3 years ago
Impending surgery concerns
Impending knee replacement and worried about impact anesthesia and post surgery pain killers could have on already level 3 liver disease. Has anyone undergone orthopedic surgery and how did it go? What I don’t want to happen is to get a new knee and then need liver transplant because of meds.
Impending knee replacement and worried about impact anesthesia and post surgery pain killers could have on already level 3 liver disease. Has anyone undergone orthopedic surgery and how did it go? What I don’t want to happen is to get a new knee and then need liver transplant because of meds.
Rosebud1027
in
Living with Fatty Liver and NASH
3 years ago
Online support group meetings for parents of children with kidney transplants?
Hi, My name is Jessica and my best friend has a 4 year old daughter with kidney disease and she just got a transplant a little over a year ago. My friend really struggles to cope with the pain of seeing all that her daughter goes through and the things she has to miss out on because of her health. Can
Hi, My name is Jessica and my best friend has a 4 year old daughter with kidney disease and she just got a transplant a little over a year ago. My friend really struggles to cope with the pain of seeing all that her daughter goes through and the things she has to miss out on because of her health. Can
jsalute
in
Kidney Transplant
3 years ago
Liver transplant
Hi everyone. I had a phone call early morning today for liver transplant, I’m going now but so worried and terrified.
Hi everyone. I had a phone call early morning today for liver transplant, I’m going now but so worried and terrified.
Rose2000
in
British Liver Trust
3 years ago
Liver Transplant assessment? any experience.. Fluid in pleural cavity ? Blood clot ?
Hello everyone, so my dad is in the middle of Liver Transplant assessment. So confusing. A social worker asked me if i was willing to stay with my dad to help recovery and I said yes, I will rent an apartment by the hospital and stay with him for the first month or so of recovery and then hire home
Hello everyone, so my dad is in the middle of Liver Transplant assessment. So confusing. A social worker asked me if i was willing to stay with my dad to help recovery and I said yes, I will rent an apartment by the hospital and stay with him for the first month or so of recovery and then hire home
alcoholicFATHERsad
in
British Liver Trust
3 years ago
Can a Kidney Transplant patient study abroad?
I received kidney transplant surgery on feb 22 ,2021. I want to go abroad and study MS.(US) in aug 2022 /jan 2023. Can we study abroad? If yes can anyone tell me safety tips? Thanks in advance
I received kidney transplant surgery on feb 22 ,2021. I want to go abroad and study MS.(US) in aug 2022 /jan 2023. Can we study abroad? If yes can anyone tell me safety tips? Thanks in advance
PatientWhizbang
in
Kidney Transplant
3 years ago
Driving me mad!
Hello, my name is Alec. I've been diagnosed with end stage cirrhosis and need a liver transplant. I'm struggling to sleep. I'm really restless and itch like mad. It's horrible and lack of sleep is making me ill. Awake for hours then suddenly hit with fatigue. My sleep pattern is all over place. I was
Hello, my name is Alec. I've been diagnosed with end stage cirrhosis and need a liver transplant. I'm struggling to sleep. I'm really restless and itch like mad. It's horrible and lack of sleep is making me ill. Awake for hours then suddenly hit with fatigue. My sleep pattern is all over place. I was
Nevergivup
in
British Liver Trust
3 years ago
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