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Stem cell and bone marrow transplants
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Lung Transplantation
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
mrblue12
in
Lung Conditions Community Forum
6 months ago
Kidney Transplant & Primary Immune Deficiency
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
viviselphie
in
Kidney Disease
6 months ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
5 months ago
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Terrified - just dropped to stage 4 CKD
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
SOct91
in
Kidney Transplant
7 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving liver transplant almost 19 years ago. In about 25% of those with liver transplants the PBC returns. We have to remember that our body still has the tendency to 'attack' it's own bile ducts and bile duct
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
DAO Supplement + Lung Transplant.
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
mrblue12
in
Lung Conditions Community Forum
7 months ago
Struggle after transplant
Hi all,My partner had a liver transplant on 25/02/2024. The surgery was a bit more complex from an anurysm but went well. Unfortunately he was taken back into surgery less than 24 hours later due to a leaking artery which was thankfully treated. He was out of ITU two days later. Four days later he experienced
Hi all,My partner had a liver transplant on 25/02/2024. The surgery was a bit more complex from an anurysm but went well. Unfortunately he was taken back into surgery less than 24 hours later due to a leaking artery which was thankfully treated. He was out of ITU two days later. Four days later he experienced
Gemmax
in
British Liver Trust
7 months ago
Lung Transplant + Fermented Foods
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
mrblue12
in
Lung Conditions Community Forum
7 months ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Any experience with pregnancy after kidney transplant?
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
Hazzbaz
in
Kidney Transplant
7 months ago
Given Private Diagnosis But Antibody Test Is Negative? A Little Confused.
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
B12again
in
Pernicious Anaemia Society
1 month ago
Given Private Diagnosis But Antibody Test Is Negative?
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
I recently had a private diagnosis of Autoimmune Thyroiditis. This was given in the context of seeking a diagnosis of my B12 deficiency which was said to be linked with the above, Pernicious Anaemia, antibodies attacking thyroid and gastric parietal cells. I have been on levothyroxin for 15yrs. He based
B12again
in
Thyroid UK
1 month ago
Failing kidney transplant
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Nanatotwo
in
Kidney Transplant
7 months ago
Zicam post kidney transplant
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
Rocknlily
in
Kidney Transplant
7 months ago
A Celebration of Life
Good morning or afternoon! I've mentioned in some other posts that almost 19 years ago I had a liver transplant. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St
Good morning or afternoon! I've mentioned in some other posts that almost 19 years ago I had a liver transplant. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
Reintroduce myself for new members
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
I got my results back for pernicious anemia! Looks like folate deficiency, but would really appreciate any comments
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
Carrie234
in
Pernicious Anaemia Society
2 months ago
Three Times Kidney Transplant Recipient: "Third time's the charm."
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
JackieJ_NKF
Partner
in
Kidney Transplant
7 months ago
B12 how much and how often
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
Jeep13
in
Pernicious Anaemia Society
2 months ago
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