Living with Interstitial Lung Disease (ILD) | HealthUnlocked

Thank you for taking time out to reply to my post, it really helps to know that we are not facing all this alone. The CMDU doctor did eventually get in touch...

Hi lovely group I wonder if anyone can help with some advice I’ve been taking metoclopramide to help with the the nausea side effects of pirfenidone , but...

I’ve recently been diagnosed with moderate NSIP and IPAF. I’m wondering if anyone else has this type of ILD. What are your treatment options, how do you keep...

I c this in on my notes and basically googling all what certain wording means ? I feel sick with worry as I don’t know what to do or expect

Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific interstitial lung pneumonitis...

hi does anyone have restrictive lungs

hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with ILD. Despite being very cautious and...

hi guys I’ve had numerous tests and lately hosp are saying possibly ILD out if 200 diseases on the letter it said. probable diffuse parenchymal lung disease....

just received my first supply of ninintab in the post, sa bit wary about it as I've read about so many problems with it, has anyone taken NAC with it x

Good afternoon I have posted on here before but not very good at it ! I am going to get my first lot of Minitab beginning of January was wondering if...

hi everyone I have been prescribed ninintab haven't taken yet but the nurse said can't take NAC and quercetin and lots of other vitamins and alchhol and...

Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought...

Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at...

hi has anyone experinenced oxygen dropping due to not going straight to the lungs it goes from vein /arteries

Interested to know how well others get on with Nintedanib? Since starting on it in March I have been feeling ill most days (like coming down with flu). It...

Hi I'm Sara from ManchesterI was diagnosed with ILD in 2019 which has left me absolutely breathless making the slightest movement I spend my days attached to...

wondering how anyone gets around taking a portable concentrator abroad. The nhs one I was given has not to leave the uk. Hiring one is quite expensive.

Hi all I have Hypersensitivity Pneumonitis Interested to know how others get on with Mycophenolate? It seems to make me incredibly drowsy ie really...

Hi everyone Sorry Ive been away for so long Ive not been well at all & having to do my 2 litres oxygen survivial days (except today as its bank hol) Ive...

Hi everyone My name is Sara sorry ive been away for so long Ive been in & out of hosputal over the dangerous drop of my oxygen levels This is my 11the stay...

My partner has several ailments. Prostate cancer, heart failure, etc and interstitial lung disease. He was taking methotrexate, last may he went in hospital...

I have RA and rheumatoid ILD. I started taking nintedanib in July last year, I had a medication review in January and I explained all the side effects I was...

Hi has anyone flown with pulmonary fibrosis to Canada taking portable ambulatory Imogen gadget x

Hi The Astham/Lung dsease UK has set up a set of harmonica classes which started last week .to strenthen the breathing I loved it -it . its on a...

Hi I havent been on for a long time My ILD specialist has got me an appointment as a day patient at sheffield hospital on 1st feb Thankfully an...

I'm posting for my Mom, who is 88 and lives with me. She was diagnosed a year ago with ILD- Fibrosis. She's on oxygen 24/7 ( but only 2 liters). Her O-sat...

Hi All I have now got 2 oxygen concentrators in my house one in my lounge & one in my bedroom ,& my prescription is it must be up on 4 litres whilst im...

hi all, Been having this chronic IPF cough for 2 months now and tried everything including the kitchen sink at it to no avail. GP suggested, as another throw...

Hi I have just joined, my name is Hazel and I live in West Sussex. I was diagnosed with IPF in June this year and was started on Nintedanib in September...

Hi everyone Sorry I've not been around for ages -Been in & out of hospital because of my oxygen levels dangerously dropping AGAIN When I came out of...