Living with Interstitial Lung Disease (ILD) | HealthUnlocked

Hi The Astham/Lung dsease UK has set up a set of harmonica classes which started last week .to strenthen the breathing I loved it -it . its on a...

Hi I havent been on for a long time My ILD specialist has got me an appointment as a day patient at sheffield hospital on 1st feb Thankfully an...

I'm posting for my Mom, who is 88 and lives with me. She was diagnosed a year ago with ILD- Fibrosis. She's on oxygen 24/7 ( but only 2 liters). Her O-sat...

Hi All I have now got 2 oxygen concentrators in my house one in my lounge & one in my bedroom ,& my prescription is it must be up on 4 litres whilst im...

hi all, Been having this chronic IPF cough for 2 months now and tried everything including the kitchen sink at it to no avail. GP suggested, as another throw...

Hi I have just joined, my name is Hazel and I live in West Sussex. I was diagnosed with IPF in June this year and was started on Nintedanib in September...

Hi everyone Sorry I've not been around for ages -Been in & out of hospital because of my oxygen levels dangerously dropping AGAIN When I came out of...

Hi guys Apologies I shouldve introduced myself a little bit first Im from the UK & also have epilepsy & high blood pressure My favourite sport is...

I was diagnosed with ILD in 2019 -im on mycophenalate for it & having regular blood tests I have to use Salmetorol & salbuterol sprays to help me when Im...

I have been existing with ILD for over 7yrs now and the condition has started to become progressively worse. I am 63yrs old and with continuous steroids and...

I’ve been on Nintedanib for some time now but may be offered a switch to Pirfenidone when I next speak to my consultant. Has anyone had any side effects from...

Yet, no drugs or therapy were suggested or prescribed which may have prevented the stroke i subsequently had in mid January. I am one angry bunny...

I started a reducing dose of Prednisolone January 2021 and also Mycophenolate in January 2021. I dont get breathless or any other symptoms except occasional...

Hello Everyone! CHEST would like to share patient related guides for navigating and understanding Oxygen Therapy: Getting Started:...

Hi. I’m new to this forum, my husband just got diagnosed with Hypersensitivity Pneumonitis yesterday. Does anyone else on here have this form of ILD? I’m...

Hi there. I'm having a Flare up of my ILD for two weeks now taking 30mg Prednisone, usually I see improvement after 1zt course but I'm on my 2nd pack and...

Welcome to the CHEST Foundation Interstitial Lung Disease (ILD) Community for support of Interstitial Lung Diseases (ILD)! We’re very glad you have chosen to...

Yesterday, I saw my chest cat scan for the first time. I was at a consultation with a neurosurgeon regarding a spinal cord stimulator. My rheumatologist told...

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own questions here:...

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