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Never give up .
Hi all I just want to say what a brilliant site this is and seeing all the different posts with information and experiences people have had is really helpful. I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and
Hi all I just want to say what a brilliant site this is and seeing all the different posts with information and experiences people have had is really helpful. I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and
LondonStadium
in
Glaucoma UK
5 months ago
Turning Hurdles into Hope: How one Hospital Overcomes Kidney Transplant Obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
JackieJ_NKF
Partner
in
Kidney Donation
5 months ago
Turning Hurdles into Hope: How one Hospital Overcomes Kidney Transplant Obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
JackieJ_NKF
Partner
in
Kidney Transplant
5 months ago
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Increased Creatinine -
I have a kidney transplant since 2009. I have had 4 ablations on my heart for afib since 2019. It has affected my creatinine adversely at times. I just changed from Flecanide to Propafenone for afib, & we are hoping this will lower my creatinine, which has slowly been increasing since starting the Flecanide
I have a kidney transplant since 2009. I have had 4 ablations on my heart for afib since 2019. It has affected my creatinine adversely at times. I just changed from Flecanide to Propafenone for afib, & we are hoping this will lower my creatinine, which has slowly been increasing since starting the Flecanide
Tashikat
in
Kidney Transplant
5 months ago
Mycophenolate instead of Perfinedine or Nintenanib?
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
DaveLister
in
Lung Conditions Community Forum
5 months ago
creatinine levels
I’m 9 months out from my kidney transplant and all is going well except this month my bloods show my creatinine level went up from 121 to 135 and I was getting a few dizzy spells and weak bouts seems that has gone now but this is the first time my level rose sinse transplant
I’m 9 months out from my kidney transplant and all is going well except this month my bloods show my creatinine level went up from 121 to 135 and I was getting a few dizzy spells and weak bouts seems that has gone now but this is the first time my level rose sinse transplant
Bmw520d
in
Kidney Transplant
5 months ago
ESRD Treatment Choices Model report
Since January 2012, CMS has implemented a ESRD Treatment Choices Model in 30% of the US. The goal was to increase home dialysis, increase kidney transplants. Home dialysis and kidney transplants in the US are FAR FAR below other developed nations. Only 12% use home dialysis and only 2.85 have transplants
Since January 2012, CMS has implemented a ESRD Treatment Choices Model in 30% of the US. The goal was to increase home dialysis, increase kidney transplants. Home dialysis and kidney transplants in the US are FAR FAR below other developed nations. Only 12% use home dialysis and only 2.85 have transplants
barbara55109
in
Kidney Disease
5 months ago
caregiver for family member
My mil is a 65-year-old woman who has been on dialysis for over a year. She has had CKD for 20+ years, along with diabetes, HTN, and arthritis. I was looking for community online support because sometimes we feel information overloaded. She has been suffering from severe itching, and nothing seems to
My mil is a 65-year-old woman who has been on dialysis for over a year. She has had CKD for 20+ years, along with diabetes, HTN, and arthritis. I was looking for community online support because sometimes we feel information overloaded. She has been suffering from severe itching, and nothing seems to
sehaj
in
Kidney Disease
5 months ago
decompensated cirrhosis
hi I was diagnosed with decompensated cirrhosis in march , I have quit alcohol since but and had scan last month, my next appointment is 6 month time, is this Normal just to carry on as if nothing is wrong, I asked about liver transplant and was told a would have passed before one is available so basically
hi I was diagnosed with decompensated cirrhosis in march , I have quit alcohol since but and had scan last month, my next appointment is 6 month time, is this Normal just to carry on as if nothing is wrong, I asked about liver transplant and was told a would have passed before one is available so basically
Kingbilly3
in
British Liver Trust
5 months ago
First Overseas Holiday post liver transplant
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
TripleCrown
in
British Liver Trust
5 months ago
Hi everyone and Happy New Year
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
my name is Jill and it’s been along while since I’ve posted anything. I was diagnosed in 1999. Aged 39. Despite being very unwell for months and being ‘fobbed ’ off by my Gp. By the time I was diagnosed I had Saddle Nose deformity. Like alot of you even as a nurse I was very scared and felt alone
Essex-jill
in
Vasculitis UK
5 months ago
Ischemic Cholangiopathy following liver transplant.
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
KateG94
in
British Liver Trust
5 months ago
What is naturopathic nutritional therapy?
In 2012, after 3 years of study at the College of Naturopathic Medicine in London, out into the world I went, as a newly qualified Naturopathic Nutritional Therapist. A time when banking and a daily commute from Crystal Palace into Canary Wharf, in London, were still the mainstay of my fabric, but not
In 2012, after 3 years of study at the College of Naturopathic Medicine in London, out into the world I went, as a newly qualified Naturopathic Nutritional Therapist. A time when banking and a daily commute from Crystal Palace into Canary Wharf, in London, were still the mainstay of my fabric, but not
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
5 months ago
after liver transplant
after my liver transplant everything went great! But, now having problems with kidneys why???
after my liver transplant everything went great! But, now having problems with kidneys why???
Livergal
in
British Liver Trust
6 months ago
advise please
New to group, 69 yo female, new dx osteoporosis. Scores are:Spine 1-3, BMD0.768 TSCORE 2-3 Z SCORE 0.3, FEMUR ltn BMD 0.566, T SCORE 2.5 Z SCORE 0.8, FRAX 41% overall, hip 15%. Kidney transplant 16 yrs prior on low dose prednisone, immunosuppresents. Please advise on vitamins, brands that are better
New to group, 69 yo female, new dx osteoporosis. Scores are:Spine 1-3, BMD0.768 TSCORE 2-3 Z SCORE 0.3, FEMUR ltn BMD 0.566, T SCORE 2.5 Z SCORE 0.8, FRAX 41% overall, hip 15%. Kidney transplant 16 yrs prior on low dose prednisone, immunosuppresents. Please advise on vitamins, brands that are better
05011954
in
Osteoporosis Support
6 months ago
Anniversary of varices bleed
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
foofighter1
in
British Liver Trust
6 months ago
Christmas
Hey all, mums chirosis continues to cause us fun each day. I’m now pretty much at the stage of forcing her to eat little and often as she is never hungry, and is never thirsty despite all of her lips cracking and her tounge swelling. When she drinks, it’s as though she is trying to swallow knives or
Hey all, mums chirosis continues to cause us fun each day. I’m now pretty much at the stage of forcing her to eat little and often as she is never hungry, and is never thirsty despite all of her lips cracking and her tounge swelling. When she drinks, it’s as though she is trying to swallow knives or
PerpetuallySad
in
British Liver Trust
6 months ago
Manganese levels
hi everyone so I’ve come on here to pick peoples brains because I am completely at a loss of what to do. I was recently seen by my consultant and he said everything is going really well, and my bloods are normal so even though I have cirrhosis my liver is working. I’ve been referred to a neurologist
hi everyone so I’ve come on here to pick peoples brains because I am completely at a loss of what to do. I was recently seen by my consultant and he said everything is going really well, and my bloods are normal so even though I have cirrhosis my liver is working. I’ve been referred to a neurologist
Lifehappened123
in
British Liver Trust
6 months ago
The Seat of the Soul_Lili
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
lassirenas
in
Kidney Donation
6 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
6 months ago
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